Ethical considerations in paediatric neurology: Neuromuscular disease and epilepsy

Journal of Paediatrics and Child Health

Volumn 47, Issue 9, 2011, Pages 599-602

  Bodensteiner, John B ^a   Ng, Yu Tze ^a  

^a BARROW NEUROLOGICAL INSTITUTE   (United States)

Author keywords

cerebral palsy; children; epilepsy surgery; mental retardation; muscular dystrophy

Indexed keywords

CORTICOTROPIN; GENERIC DRUG; PREDNISOLONE;

ARTIFICIAL VENTILATION; BIOETHICS; CHILDHOOD DISEASE; COST OF ILLNESS; DRUG MEGADOSE; DUCHENNE MUSCULAR DYSTROPHY; EPILEPSY; FOOT ORTHOSIS; GENETIC SCREENING; HEALTH CARE COST; HUMAN; IMPLANT; INDEPENDENCE; INFANTILE SPASM; INVASIVE VENTILATION; MOBILIZATION; NEUROSURGERY; POSITIVE END EXPIRATORY PRESSURE; PRIORITY JOURNAL; REVIEW; VAGUS NERVE STIMULATION; VAGUS NERVE STIMULATOR; WHEELCHAIR FITTING;

ADRENOCORTICOTROPIC HORMONE; ANTICONVULSANTS; CARRIER STATE; CEREBRAL PALSY; CHILD; DECISION MAKING; EPILEPSY; FEMALE; HEALTH CARE COSTS; HUMANS; INTELLECTUAL DISABILITY; LIFE SUPPORT CARE; MALE; MUSCULAR DYSTROPHY, DUCHENNE; NEUROLOGY; QUALITY OF LIFE; TRUTH DISCLOSURE; VAGUS NERVE STIMULATION; WHEELCHAIRS;

EID: 80053518356     PISSN: 10344810     EISSN: 14401754     Source Type: Journal    
DOI: 10.1111/j.1440-1754.2011.02159.x     Document Type: Review

References (13)

1. Zellweger J,. Screening for Duchenne muscular dystrophy. Dev. Med. Child Neurol. 1980; 22: 245-7.
2. Ionasescu V, Zellweger H, Burmeister L,. Detection of carriers and genetic counseling in Duchenne muscular dystrophy by ribosomal protein synthesis. Acta Neurol. Scand. 1976; 54: 442-52.
3. Cook DJ, Guyatt GH, Jaeschke R, et al,. Determinants in Canadian health care workers of the decision to withdraw life support from the critically ill. Canadian Critical Care Trials Group. JAMA 1995; 273: 703-8.
4. Randolph AG, Zollo MB, Guyatt GH, Nelson RM, Stidham GL,. Variability in physician opinion on limiting pediatric life support. Pediatrics 1999; 103: e46.
5. Hardart MK, Burns JP, Truog RD,. Respiratory support in spinal muscular atrophy type I: a survey of physician practices and attitudes. Pediatrics 2002; 110: e24.
6. Ryan MM,. The use of invasive ventilation is appropriate in children with genetically proven spinal muscular atrophy type 1: the motion against. Paediatr. Respir. Rev. 2008; 9: 51-4.
7. Ryan MM, Kilham H, Jacobe S, Tobin B, Isaacs D,. Spinal muscular atrophy type 1: is long-term mechanical ventilation ethical? J. Paediatr. Child Health 2007; 43: 237-42.
8. Ng YT, Hastriter EV, Wethe J, et al,. Surgical resection of hypothalamic hamartomas for severe behavioral symptoms. Epilepsy Behav. 2011 20: 75-8. [Epub ahead of print].
9. Davies R, Baxendale S, Thompson P, Duncan JS,. Epilepsy surgery for people with a low IQ. Seizure 2009; 18: 150-2.
10. Malmgren K, Olsson I, Engman E, Flink R, Rydenhag B,. Seizure outcome after resective epilepsy surgery in patients with low IQ. Brain 2008; 131: 535-42. (Pubitemid 351197607)
11. Grill MF, Ng YT,. Dramatic first words spoken in two children following vagus nerve stimulation. Semin. Pediatr. Neurol. 2010; 17: 54-7.
12. Mackay MT, Weiss SK, Adams-Webber T, et al,. Practice parameter: medical treatment of infantile spasms: report of the American Academy of Neurology and the Child Neurology Society. American Academy of Neurology; Child Neurology Society. Neurology 2004; 62: 1668-81. Review. (Pubitemid 38661719)
13. Ng YT,. There is value in specifying brand name antiepileptic drugs (AEDs). Arch. Neurol. 2009; 66: 1415-16.