Be known, be available, be mutual: A qualitative ethical analysis of social values in rural palliative care

BMC Medical Ethics

Volumn 12, Issue 1, 2011, Pages

  Pesut, Barbara ^a   Bottorff, Joan L ^a,b   Robinson, Carole A ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^b UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

ethics; ethnography; palliative care; qualitative research; rural health services

Indexed keywords

ARTICLE; CANADA; ETHICS; ETHNOLOGY; HEALTH CARE DELIVERY; HEALTH CARE POLICY; HEALTH SERVICE; HUMAN; PALLIATIVE THERAPY; QUALITATIVE RESEARCH; RURAL POPULATION; SOCIAL PSYCHOLOGY; STANDARD;

CANADA; ETHICAL ANALYSIS; HEALTH POLICY; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; PALLIATIVE CARE; QUALITATIVE RESEARCH; RURAL POPULATION; SOCIAL VALUES;

EID: 80053344441     PISSN: None     EISSN: 14726939     Source Type: Journal    
DOI: 10.1186/1472-6939-12-19     Document Type: Article

References (44)

1. Rural healthcare ethics: No longer the forgotten quarter. Nelson WA, Greene MA, West A, Cambridge Quarterly of Healthcare Ethics 2010 19 510 517 10.1017/S096318011000040X 20719029
2. Rural palliative care: A comprehensive review. Robinson CA, Pesut B, Bottorff JL, Mowrey A, Broughton S, Fyles G, Journal of Palliative Medicine 2009 12 3 253 258 10.1089/jpm.2008.0228
3. Providing hospice and palliative care in rural and frontier areas. National Rural Health A, Kansas City, MO: National Rural Health Association 2005
4. Rural-urban differences in end-of-life care: Reflections on social contracts. Gessert CE, Ethical Issues in Rural Health Care Baltimore: John Hopkins University Press, Klugman CM, Dalinis PM, 2008 15 33
5. A proposed rural healthcare ethics agenda. Nelson W, Pomerantz A, Howard K, Bushy A, Journal of Medical Ethics 2007 33 136 139 10.1136/jme.2006.015966 17329381
6. Introduction. Klugman CM, Dalinis PM, Ethical Issues in Rural Health Care Baltimore: John Hopkins University Press, Klugman CM, Dalinis PM, 2008 1 12
7. Doyle D, Though one man's eyes: A 30-year retropective on ethical issues in palliative care 1999 21929779
8. A clinician's understanding of ethics in palliative care: an American perspective. Cimino JE, Critical Reviews in Oncology Hematology 2003 46 17 24 10.1016/S1040-8428(03)00004-0 (Pubitemid 36369413)
9. Ethical issues in palliative care. Kinlaw K, Seminars in Oncology Nursing 2005 21 1 63 68 10.1053/j.soncn.2004.10.009 15807058 (Pubitemid 40222489)
10. Randall F, Downie RS, Palliative care ethics: A companion to all specialties Oxford: Oxford University Press 1999
11. National consensus project for quality palliative care: Clinical practice guidelines for quality palliative care, Executive Summary. National Consensus Project for Quality Palliative Care Steering Committee, Journal of Palliative Medicine 2004 7 5 611 627 15588352
12. Palliative care as an international human right. Brennan F, Journal of Pain and Symptom Management 2007 33 5 494 499 10.1016/j.jpainsymman.2007.02.022 17482036 (Pubitemid 46669893)
13. Top 10 health care ethics challenges facing the public: Views of Toronto bioethicists. Breslin JM, MacRae SK, Bell J, Singer PA, BMC Medical Ethics 2005 6 5 108
14. Bioethics and rural health: Theorizing place, space, and subjects. Kelly SE, Social Science and Medicine 2003 56 2277 2288 10.1016/S0277-9536(02)00227-7 12719181 (Pubitemid 36444723)
15. Rural health care ethics; What assumptions and attitudes should drive the research. Hardwig J, The American Journal of Bioethics 2006 6 2 53 54 10.1080/15265160500506845 16997830 (Pubitemid 43323331)
16. Defining 'research' in rural healthcare ethics. Prata Miller J, The American Journal of Bioethics 2006 6 2 59 61 10.1080/15265160500506894 17085413 (Pubitemid 43323334)
17. Rural health care ethics: Is there a literature? Nelson W, Lushkov G, Pomerantz A, Weeks WB, The American Journal of Bioethics 2006 6 2 44 50 10.1080/15265160500506746 17085409 (Pubitemid 43323329)
18. The challenges of rural health care. Nelson WA, Ethical Issues in Rural Health Care Baltimore: John Hopkins University Press, Klugman CM, Dalinis PM, 2008 34 59
19. Debate: Clinical ethics revisited. Singer PA, Pellegrino ED, Siegler M, BMC Medical Ethics 2001 2 1 online
20. An exploration of Canadian social values relative to health care. Wilson DM, Kerr JR, American Journal of Health Behaviour 1998 22 2 120 129
21. The 'good' rural death: A report of an ethnographic study in Alberta, Canada. Wilson DM, Fillion L, Thomas R, Justice C, Bhardwaj PP, Veillette A-M, Journal of palliative care 2009 25 1 21 29 19445339
22. The ethical dilemmas of a rural physician. Purtilo R, Sorrell J, the Hastings Center Report 1986 16 4 24 28 10.2307/3563112 11643945
23. Frontier ethics: Mental health care needs and ethical dilemmas in rural communities. Roberts LW, Battaglia J, Epstein RS, Psychiatric Services 1999 50 4 497 503 10211730 (Pubitemid 29165787)
24. Issues in rural palliative care: Views from the countryside. Robinson CA, Pesut B, Bottorff JL, Journal of Rural Health 2010 26 78 84 10.1111/j.1748-0361.2009.00268.x 20105272
25. Maintaining treatment boundaries in small communities and rural areas. Simon RI, Williams IC, Psychiatric Services 1999 50 11 1440 1446 10543853 (Pubitemid 29510955)
26. General Practitioners' Attitudes to Palliative Care: A Western Australian Rural Perspective. O'Connor M, Lee-Steere R, Journal of palliative medicine 2006 9 6 1271 1128 10.1089/jpm.2006.9.1271 17187535 (Pubitemid 46047941)
27. A student view of the difference between general practice and rural and remote medicine. Denz-Penhey H, Murdoch JC, Rural and Remote Health 2007 7 641 650 17477793
28. Palliative care nursing in rural Western Australia. McConigley R, Kristjanson L, Morgan A, International journal of palliative nursing 2000 6 2 80 90 11035627
29. Providing cancer and palliative care in rural areas: A review of patient and carer needs. Hughes P, Ingleton MC, Clark D, Journal of Palliative Care 2004 20 1 44 49 15132076 (Pubitemid 38661880)
30. Organizing palliative care for rural populations: a systematic review of the evidence. Evans R, Stone D, Elwyn G, Family practice 2003 20 3 304 310 10.1093/fampra/cmg312 12738700 (Pubitemid 36722468)
31. Rural nonphysician providers' perspectives on palliative care services in northwestern Ontario, Canada. Kelley ML, Sellick S, Linkewich B, The Journal of Rural Health: Official journal of the American Rural Health Association and the National Rural Health Care Association 2003 19 1 55 62 (Pubitemid 36143054)
32. Palliative care by nurses in rural and remote practice. Rosenberg JP, Canning DF, The Australian Journal of Rural Health 2004 12 4 166 171 10.1111/j.1440-1854.2004.00591.x 15315546 (Pubitemid 39199953)
33. Barriers to quality care for dying patients in rural communities. Van Vorst RF, Crane LA, Barton PL, Kutner JS, Kallail KJ, Westfall JM, The Journal of Rural Health: Official journal of the American Rural Health Association and the National Rural Health Care Association 2006 22 3 248 253 (Pubitemid 43894040)
34. Access to rural health services: Research as community action and policy critique. Panelli R, Gallagher L, Kearns R, Social Science and Medicine 2006 62 1103 1114 10.1016/j.socscimed.2005.07.018 16185802 (Pubitemid 43129576)
35. Preventive ethics and rural healthcare: Addressing issues on a systems level. Vernillo A, American Journal of Bioethics 2008 8 4 61 62 10.1080/15265160802147116 19085483 (Pubitemid 351896842)
36. "It's not necessarily the distance on the map. ": Using place as an analytic tool to elucidate geographic issues central to rural palliative care. Castleden H, Crooks VA, Schuurman N, Hanlon N, Health & place 2010 16 2 284 290 10.1016/j.healthplace.2009.10.011 21961179
37. Territorial tensions: Misaligned management and community perspectives on health services for older people in rural and remote areas. Farmer J, Philip L, King G, Farrington J, MacLeod M, Health and Place 2010 16 275 283 10.1016/j.healthplace.2009.10.010 19906556
38. Closing rural hospital in Saskatchewan: On the road to wellness? James AM, Social Science and Medicine 1999 49 1021 1034 10.1016/S0277-9536(99)00180-X 10475667 (Pubitemid 29372010)
39. Community hospitals: an under-recognized resource for palliative care. Payne S, Kerr C, Hawker S, Seamark D, Davis C, Roberts H, Jarrett N, Roderick P, Smith H, Journal of the Royal Society of Medicine 2004 97 9 428 431 10.1258/jrsm.97.9.428 15340022 (Pubitemid 39279080)
40. Experiences of end-of-life care in community hospitals. Payne S, Hawker S, Kerr C, Seamark D, Roberts H, Jarrett N, Smith H, Health & Social Care in the Community 2007 15 5 494 501 10.1111/j.1365-2524.2007.00714.x 21961179
41. Palliative care for all? A review of the evidence in community hospitals. Steers J, Brereton L, Ingleton C, Int J Palliat Nurs 2007 13 8 392 399 18018819
42. Assessing the suitability of host communities for secondary palliative care hubs: a location analysis model. Cinnamon J, Schuurman N, Crooks VA, Health Place 2009 15 3 792 800 19269241
43. Visioning for secondary palliative care service hubs in rural communities: a qualitative case study from British Columbia's interior. Crooks VA, Castleden H, Schuurman N, Hanlon N, BMC Palliat Care 2009 8 15 10.1186/1472-684X-8-15 19818139
44. The state of rural populations. Hugo G, Sustainability and Change in Rural Australia Sydney: University of New South Wales Press, Cocklin C, Dibden J, 2005 56 79