Cross-sectorial cooperation and supportive care in general practice: Cancer patients' experiences

Family Practice

Volumn 28, Issue 5, 2011, Pages 532-540

  Lundstrøm, Louise Hyldborg ^a   Johnsen, Anna Thit ^a   Ross, Lone ^a   Petersen, Morten Aagaard ^a   Groenvold, Mogens ^a,b  

^a BISPEBJERG HOSPITAL   (Denmark)

^b UNIVERSITY OF COPENHAGEN   (Denmark)

Author keywords

Cancer; Continuity of care; Patient centred care; Primary health care; Questionnaire design

Indexed keywords

ADULT; AGED; ARTICLE; BREAST CANCER; CANCER PATIENT; CANCER STAGING; COOPERATION; DIGESTIVE SYSTEM CANCER; EMPATHY; FEMALE; GENERAL PRACTICE; GENERAL PRACTITIONER; HEAD AND NECK CANCER; HEALTH SERVICE; HUMAN; KNOWLEDGE; LEUKEMIA; LUNG CANCER; LYMPHOMA; MAJOR CLINICAL STUDY; MALE; MALPRACTICE; PATIENT CARE; PATIENT SATISFACTION; PREVALENCE; PROSTATE CANCER; UROGENITAL TRACT CANCER;

ADOLESCENT; ADULT; AGE FACTORS; AGED; AGED, 80 AND OVER; CONTINUITY OF PATIENT CARE; CROSS-SECTIONAL STUDIES; DENMARK; FEMALE; GENERAL PRACTICE; HOSPITAL-PHYSICIAN RELATIONS; HUMANS; LOGISTIC MODELS; MALE; MIDDLE AGED; NEOPLASMS; PATIENT SATISFACTION; PHYSICIAN'S ROLE; PHYSICIAN-PATIENT RELATIONS; QUESTIONNAIRES; RANDOM ALLOCATION; YOUNG ADULT;

EID: 80052949405     PISSN: 02632136     EISSN: 14602229     Source Type: Journal    
DOI: 10.1093/fampra/cmr011     Document Type: Article

References (36)

1. Cheung WY, Neville BA, Cameron DB, Cook EF, Earle CC. Comparisons of patient and physician expectations for cancer survivorship care. J Clin Oncol 2009; 27: 2489-95.
2. Unit of Patient-Perceived Quality. [Patients' Experiences in Transitions Between Primary and Secondary Sector]. Copenhagen, Denmark: Unit of Patient-Perceived Quality, The Capital Region of Denmark, 2007.
3. Kripalani S, LeFevre F, Phillips CO et al. Deficits in communication and information transfer between hospital-based and primary care physicians: implications for patient safety and continuity of care. JAMA 2007; 297: 831-41.
4. Naithani S, Gulliford M, Morgan M. Patients' perceptions and experiences of 'continuity of care' in diabetes. Health Expect 2006; 9: 118-29.
5. Nielsen JD, Palshof T, Mainz J, Jensen AB, Olesen F. Randomised controlled trial of a shared care programme for newly referred cancer patients: bridging the gap between general practice and hospital. Qual Saf Health Care 2003; 12: 263-72.
6. Goldschmidt D, Groenvold M, Johnsen AT et al. Cooperating with a palliative home-care team: expectations and evaluations of GPs and district nurses. Palliat Med 2005; 19: 241-50.
7. Holge-Hazelton B, Blake-Gumbs L, Miedema B, van RE. Primary care for young adult cancer survivors: an international perspective. Support Care Cancer 2010; 18: 1359-63.
8. Dalsted RJ, Guassora AD, Thorsen T. Danish general practitioners only play a minor role in the coordination of cancer treatment. Dan Med Bull 2011; 58: A4222.
9. Neergaard MA, Vedsted P, Olesen F et al. Associations between successful palliative trajectories, place of death and GP involvement. Scand J Prim Health Care 2010; 28: 138-45.
10. Neergaard MA, Vedsted P, Olesen F et al. Associations between successful palliative cancer pathways and community nurse involvement. BMC Palliat Care 2009; 8: 18.
11. Brazil K, Bedard M, Krueger P et al. Service preferences among family caregivers of the terminally ill. J Palliat Med 2005; 8: 69-78.
12. Hoefler JM, Vejlgaard TB. Something's ironic in Denmark: an otherwise progressive welfare state lags well behind in care of patients at the end of life. Health Policy 2010 December 21 [Epub ahead of print].
13. Petrova M, Dale J, Munday D et al. The role and impact of facilitators in primary care: findings from the implementation of the Gold Standards Framework for palliative care. Fam Pract 2010; 27: 38-47.
14. Shaw KL, Clifford C, Thomas K, Meehan H. Review: improving end-of-life care: a critical review of the gold standards framework in primary care. Palliat Med 2010; 24: 317-29.
15. Bull J, Zafar SY, Wheeler JL et al. Establishing a regional, multisite database for quality improvement and service planning in community-based palliative care and hospice. J Palliat Med 2010; 13: 1013-20.
16. Johnsen AT, Jensen CR, Pedersen C, Groenvold M. [The Cancer Patient's World-An Investigation of Which Problems Danish Cancer Patients Experience: Literature Review and Interviews]. Copenhagen, Denmark: The Danish Cancer Society, 2006.
17. Groenvold M, Pedersen C, Jensen CR, Faber MT, Johnsen AT. [The Cancer Patient's World-an Investigation of Needs Among Danish Cancer Patients]. Copenhagen, Denmark: The Danish Cancer Society, 2006.
18. Johnsen AT, Petersen MA, Pedersen L, Groenvold M. Development and initial validation of the three-levels-of-needs questionnaire for self-assessment of palliative needs in patients with cancer. J Pain Symptom Manage 2011 February 8 [Epub ahead of print].
19. Willis G. Cognitive Interviewing: A Tool for Improving Questionnaire Design. California, CA: Sage Publications, 2005.
20. Peräkylä A. Analyzing talk and text. In: Denzin NK, Lincoln YS (eds). 3rd edn. The SAGE Handbook of Qualitative Research, California, CA: Sage Publications, 2005, pp. 869-86.
21. Neergaard MA, Olesen F, Andersen RS, Sondergaard J. Qualitative description-the poor cousin of health research? BMC Med Res Methodol 2009; 9: 52.
22. Strandberg-Larsen M, Krasnik A. Does a public single payer system deliver integrated care? A national survey study among professional stakeholders in Denmark. Int J Integr Care 2008; 8: e61.
23. Strandberg-Larsen M, Nielsen M, Krasnik A, Vrangbaek K. Is Denmark prepared to meet future health care demands? Eurohealth 2006; 12: 7-10.
24. Preston C, Cheater F, Baker R, Hearnshaw H. Left in limbo: patients' views on care across the primary/secondary interface. Qual Health Care 1999; 8: 16-21.
25. Aabom B, Pfeiffer P. Why are some patients in treatment for advanced cancer reluctant to consult their GP? Scand J Prim Health Care 2009; 27: 58-62.
26. Ouwens M, Hulscher M, Hermens R et al. Implementation of integrated care for patients with cancer: a systematic review of interventions and effects. Int J Qual Health Care 2009; 21: 137-44.
27. Committee on Cancer Survivorship: Improving Care and Quality of Life NCPB. From Cancer Patient to Cancer Survivor: Lost in Transition. Washington, DC The National Academies Press, 2006.
28. Helitzer DL, Lanoue M, Wilson B et al. A randomized controlled trial of communication training with primary care providers to improve patient-centeredness and health risk communication. Patient Educ Couns 2011; 82: 21-9.
29. Jenkinson C, Coulter A, Bruster S, Richards N, Chandola T. Patients' experiences and satisfaction with health care: results of a questionnaire study of specific aspects of care. Qual Saf Health Care 2002; 11: 335-9.
30. Vedsted P, Sokolowski I, Heje HN. Data quality and confirmatory factor analysis of the Danish EUROPEP questionnaire on patient evaluation of general practice. Scand J Prim Health Care 2008; 26: 174-80.
31. Moret L, Nguyen JM, Pillet N et al. Improvement of psychometric properties of a scale measuring inpatient satisfaction with care: a better response rate and a reduction of the ceiling effect. BMC Health Serv Res 2007; 7: 197.
32. Klabunde CN, Ambs A, Keating NL et al. The role of primary care physicians in cancer care. J Gen Intern Med 2009; 24: 1029-36.
33. Neergaard MA, Olesen F, Jensen AB, Sondergaard J. Shared care in basic level palliative home care: organizational and interpersonal challenges. J Palliat Med 2010; 13: 1071-7.
34. The Institute for Health Research. What are the Psychosocial Needs of Cancer Patients and their Main Carers?. Lancaster, UK: Lancaster University, 2001.
35. Brennan J. Cancer in Context: A Practical Guide to Supportive Care. New York, NY: Oxford University Press, 2004.
36. Smith GF, Toonen TR. Primary care of the patient with cancer. Am Fam Physician 2007; 75: 1207-14.