Breathtaking practicalities: A politics of embodied patient positions

Scandinavian Journal of Disability Research

Volumn 13, Issue 3, 2011, Pages 189-206

  Pols, Jeannette ^a  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

Body; Disease illness; Ethnography; Politics; Social theory

Indexed keywords

EID: 80052889943     PISSN: 15017419     EISSN: 17453011     Source Type: Journal    
DOI: 10.1080/15017419.2010.490726     Document Type: Article

References (49)

1. Barbot, J. 2006. How to build an 'active' patient. Social Science and Medicine 3: 538-51
2. Barbot, J., and N. Dodier. 2002. Multiplicity in scientific medicine: The experience of HIV-positive patients. Science, Technology and Human Values 27: 404-40
3. Barnes, C., G. Mercer, and T. Shakespeare. 1999. Exploring disability. Cambridge: Polity Press
4. Boevink, W., ed. 2006a. Stories of recovery. Working together towards experiential knowledge in mental health care. Utrecht, The Netherlands: Trimbos-instituut.
5. Boevink, W. 2006b. From being a disorder to dealing with life. Schizophrenia Bulletin 1, no. 2: 17 19
6. Davis, L.J., ed. 1997. The disability studies reader. New York: Routledge
7. Department of Health. 2001. The expert patient: A new approach to chronic disease management for the 21st century. London: Department of Health
8. Dixon, L., A. Hackman, and A. Lehman. 1997. Consumers as staff in assertive community treatment program. Administration and Policy in Mental Health 25: 199-208
9. Edgar, A. 2005. The expert patient. Illness as practice. Medicine. Health Care and Philosophy 8: 165-71
10. Elias, N. 1976. Über den Prozess der Zivilisation. Soziogenetische und psychogenetische Untersuchungen. Baden-Baden, Germany: Suhrkamp Taschenbuch Verlag
11. Epstein, S. 2008. Patient groups and health movements. In The handbook of science and technology studies, eds. E.J. Hacket, O. Amsterdamska, M. Lynch, and J. Wajcman, 499-539. Cambridge, MA: MIT Press
12. Goffman, E. 1968. Stigma. Harmondsworth, UK: Pelican
13. Greenhalgh, T. 2009. Patient and public involvement in chronic illness: Beyond the expert patient. British Medical Journal 338: b.49
14. Habraken, J.M., J. Pols, P.J.E. Bindels, and D.L. Willems. 2008. The silence of patients with end-stage COPD: A qualitative study. British Journal of General Practice 58: 844-9
15. Hendriks, R. 1998. Egg timers, human values and the care of autistic youths. Science, Technology and Human Values 23, no. 4: 399-424
16. Hughes, B. 2009. Wounded/monstrous/abject: A critique of the disabled body in the sociological imaginary. Disability and Society 24, no. 4: 399-410
17. Hughes, B., and K. Paterson. 1997. The social model of disability and the disappearing body. Towards a sociology op impairment. Disability and Society 12, no. 3: 325-40
18. Law, J. 2002. Aircraft stories. De-centering the object in techno-science. Durham, NC: Duke University Press
19. Mead, S., D. Hilton, and L. Curtis. 2001. Peer support: A theoretical perspective. Psychiatric Rehabilitation Journal 25, no. 2: 134-41
20. Mol, A. 1998. Missing links, making links. The performance of some atheroscleroses. In Differences in medicine, eds. M. Berg and A. Mol. Durham, 144-65. London: Duke University Press
21. Mol, A. 2002. The body multiple. An ontology of medical practice. Durham, NC: Duke University Press
22. Mol, A. 2008. The logic of care. London: Routledge
23. Mol, A., and J. Law. 2004. Embodied action, enacted bodies. The example hypoglycaemia. Body and Society 10: 43-62
24. Mol. A., and J. Pols. 1996. Ziekte leven: Bouwstenen voor een medische sociologie zonder disease/illness-onderscheid [Living disease: Building blocks for a medical sociology without the illness/disease distinction]. Kennis en methode. Tijdschrift voor wetenschapsfilosofie en wetenschapsonderzock 20, no. 4: 347-61
25. Moser, I. 2000. Against normalisation: Subverting norms of ability and disability. Science as Culture 9: 201-40
26. Moser, I. 2005. On becoming disabled and articulating alternatives: The multiple modes of ordering disability and their interferences. Cultural Studies 19: 667-700
27. Moser, I. 2006. Disability and the promise of technology: Technology, subjectivity and embodiment within an order of the normal. Information, Communication and Society 9, no. 3: 373-95
28. Moser, I. 2009. A body that matters? The role of embodiment in the recomposition of life after a road traffic accident. Scandinavian Journal of Disability Research 11, no. 2: 81-96
29. Moser, I., and J. Law. 1999. Good passages, bad passages. In Actor network theory and after, ed. J. Law and J. Hassard, 196-217. Oxford: Blackwell Publishers
30. Mowbray, C.T., D. Moxley, and M.E. Collins. 1998. Consumers as mental health providers: First person accounts of benefits and limitations. Journal of Behavioral Health Services and Research 25: 397-411
31. Oliver, M. 1996. Understanding disability: From theory to practice. Basingstoke, UK: Macmillan
32. Pols, J. 2005. Enacting appreciations: Beyond the patient perspective. Health Care Analysis 13, no. 3: 203-21
33. Pols, J. 2006. Washing the citizen: Washing, cleanliness and citizenship in mental health care. Culture, Medicine and Psychiatry 30, no. 1: 77-104
34. Pols, J. 2008. Which empirical research, whose ethics? Articulating ideals in long-term mental health care. In Empirical ethics in psychiatry, eds. G. Widdershoven, T. Hope, L. Vd. Scheer, and J. McMillan, 51-68. Oxford: Oxford University Press
35. Pols, J. 2009. Burgerschap in relaties. Over zichtbaarheid, onzichtbaarheid en het belang van lotgenoten [Citizenship in relations. About visibility, invisibility and the importance of fellow patients]. Maandblad Geestelijke volksgezondheid 64, no. 9: 760-74
36. Pols, J. 2010a. Telecare: What patients care for. In Care in practice, eds. A. Mol, I. Moser, and J. Pols, 171-93. Bielefeld, Germany: Transcript Verlag
37. Pols, J. 2010b. Wonderful webcams. About active gazes and invisible technologies. Science Technology and Human Values. DOI: 10.1177/0162243910366134
38. Shakespeare, T. 2006. Disability rights and wrongs. London: Routledge
39. Sherlock, J. 1996. Dance and the culture of the body. Where is the Grotesque? Women's Studies International Forum 19, no. 5: 525-33
40. Sorensen, E. 2009. The materiality of learning. Technology and knowledge in educational practice. Cambridge: Cambridge University Press
41. Struhkamp, R., A. Mol, and T. Swierstra. 2009. Dealing with in/dependence: Doctoring in physical rehabilitation practice. Science, Technology and Human Values 34: 55-76
42. Taylor, S., B. Shoultz, and P. Walker, eds. 2003. Disability studies: Information and resources. http://thechp.syr.edu/disability_studies_2003_current.html#Introduction
43. Thomson, R.G. 1997. Feminist theory, the body and the disabled figure. In The disability studies reader, ed. J.L. Davis, 279-92. London: Routledge
44. Trappenburg, M. 2008. Genoeg is genoeg. Over gezondheidszorg en democratie [Enough is enough. About health care and democracy]. Amsterdam: AUP
45. Velpry, L. 2008. The patient's view: Issues of theory and practice. Culture, Medicine and Psychiatry 32: 238-58
46. Winance, M. 2001. Thèse et Prothèse. Le processus d'habilitation comme fabrication de la personne. Paris: ENSMP, CSI
47. Winance, M. 2007. Being normally different? Changes to normalisation processes: From alignment to work on the norm. Disability and Society 22, no. 6: 625-38
48. WHO. 1980. International classification of impairments, disabilities and handicaps. Geneva: WHO
49. Zola, I.K. 1991. Bringing our bodies and ourselves back in: Reflections on a past, present and future 'medical sociology'. Journal of Health and Social Behavior 32: 1-16