Ethics in the Treatment of Advanced Heart Failure: Palliative Care and End-of-Life Issues

Congestive Heart Failure

Volumn 17, Issue 5, 2011, Pages 235-240

  Tanner, Craig E ^a   Fromme, Erik K ^b   Goodlin, Sarah J ^a,c  

^a PORTLAND VA MEDICAL CENTER   (United States)

^b OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

^c OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BIVENTRICULAR ASSIST DEVICE; CLINICAL DECISION MAKING; CLINICAL FEATURE; DEVICE THERAPY; HEART FAILURE; HOSPICE CARE; HUMAN; MEDICAL ETHICS; PALLIATIVE THERAPY; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; TERMINAL CARE;

HEART FAILURE; HUMANS; PALLIATIVE CARE; TERMINAL CARE;

EID: 80052682182     PISSN: 15275299     EISSN: 17517133     Source Type: Journal    
DOI: 10.1111/j.1751-7133.2011.00245.x     Document Type: Review

References (35)

1. Lloyd-Jones D, Adams RJ, Brown TM, et al. Heart disease and stroke statistics - 2010 update: a report from the American Heart Association. Circulation. 2010;121:e46-e215.
2. Goodlin SJ, Hauptman PJ, Arnold R, et al. Consensus statement: palliative and supportive care in advanced heart failure. J Card Fail. 2004;10:200-209.
3. Bekelman DB, Rumsfeld JS, Havranek EP, et al. Symptom burden, depression, and spiritual well-being: a comparison of heart failure and advanced cancer patients. J Gen Intern Med. 2009;24:592-598.
4. Harding R, Selman L, Beynon T, et al. Meeting the communication and information needs of chronic heart failure patients. J Pain Symptom Manage. 2008;36:149-156.
5. The AM, Hak T, Koeter G, van Der Wal G. Collusion in doctor-patient communication about imminent death: an ethnographic study. BMJ. 2000;321:1376-1381.
6. Quill TE, Arnold R, Back AL. Discussing treatment preferences with patients who want "everything." Ann Intern Med. 2009;151:345-349.
7. Swetz KM, Mueller PS, Ottenberg AL, et al. The use of advance directives among patients with left ventricular assist devices. Hosp Pract (Minneap). 2011;39:78-84.
8. Goodlin SJ, Quill TE, Arnold RM. Communication and decision-making about prognosis in heart failure care. J Card Fail. 2008;14:106-113.
9. Ditto PH, Jacobson JA, Smucker WD, et al. Context changes choices: a prospective study of the effects of hospitalization on life-sustaining treatment preferences. Med Decis Making. 2006;26:313-322.
10. Berger JT, Gorski M, Cohen T. Advance health planning and treatment preferences among recipients of implantable cardioverter defibrillators: an exploratory study. J Clin Ethics. 2006;17:72-78.
11. Moss AJ, Zareba W, Hall WJ, et al. Prophylactic implantation of a defibrillator in patients with myocardial infarction and reduced ejection fraction. N Engl J Med. 2002;346:877-883.
12. MacIver J, Rao V, Delgado DH, et al. Choices: a study of preferences for end-of-life treatments in patients with advanced heart failure. J Heart Lung Transplant. 2008;27:1002-1007.
13. Cleland JG, Daubert JC, Erdmann E, et al. The effect of cardiac resynchronization on morbidity and mortality in heart failure. N Engl J Med. 2005;352:1539-1549.
14. Epstein AE, DiMarco JP, Ellenbogen KA, et al. ACC/AHA/HRS 2008 Guidelines for Device-Based Therapy of Cardiac Rhythm Abnormalities: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Revise the ACC/AHA/NASPE 2002 Guideline Update for Implantation of Cardiac Pacemakers and Antiarrhythmia Devices): developed in collaboration with the American Association for Thoracic Surgery and Society of Thoracic Surgeons. Circulation. 2008;117:e350-e408.
15. Long JW, Kfoury AG, Slaughter MS, et al. Long-term destination therapy with the HeartMate XVE left ventricular assist device: improved outcomes since the REMATCH study. Congest Heart Fail. 2005;11:133-138.
16. Hansson SO. Implant ethics. J Med Ethics. 2005;31:519-525.
17. Rizzieri AG, Verheijde JL, Rady MY, McGregor JL. Ethical challenges with the left ventricular assist device as a destination therapy. Philos Ethics Humanit Med. 2008;3:20.
18. Bunzel B, Laederach-Hofmann K, Wieselthaler G, et al. Mechanical circulatory support as a bridge to heart transplantation: what remains? Long-term emotional sequelae in patients and spouses. J Heart Lung Transplant. 2007;26:384-389.
19. Mueller PS, Swetz KM, Freeman MR, et al. Ethical analysis of withdrawing ventricular assist device support. Mayo Clin Proc. 2010;85:791-797.
20. Brush S, Budge D, Alharethi R, et al. End-of-life decision making and implementation in recipients of a destination left ventricular assist device. J Heart Lung Transplant. 2010;29:1337-1341.
21. Solano JP, Gomes B, Higginson IJ. A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. J Pain Symptom Manage. 2006;31:58-69.
22. Blinderman CD, Homel P, Billings JA, et al. Symptom distress and quality of life in patients with advanced congestive heart failure. J Pain Symptom Manage. 2008;35:594-603.
23. Goebel JR, Doering LV, Shugarman LR, et al. Heart failure: the hidden problem of pain. J Pain Symptom Manage. 2009;38:698-707.
24. Cully JA, Johnson M, Moffett ML, et al. Depression and anxiety in ambulatory patients with heart failure. Psychosomatics. 2009;50:592-598.
25. Horowitz CR, Rein SB, Leventhal H. A story of maladies, misconceptions and mishaps: effective management of heart failure. Soc Sci Med. 2004;58:631-643.
26. Zambroski CH, Moser DK, Bhat G, Ziegler C. Impact of symptom prevalence and symptom burden on quality of life in patients with heart failure. Eur J Cardiovasc Nurs. 2005;4:198-206.
27. Chang VT, Hwang SS, Feuerman M. Validation of the Edmonton Symptom Assessment Scale. Cancer. 2000;88:2164-2171.
28. Goodlin SJ. Palliative care in congestive heart failure. J Am Coll Cardiol. 2009;54:386-396.
29. Zambroski CH, Moser DK, Roser LP, et al. Patients with heart failure who die in hospice. Am Heart J. 2005;149:558-564.
30. Goodlin SJ, Kutner JS, Connor SR, et al. Hospice care for heart failure patients. J Pain Symptom Manage. 2005;29:525-528.
31. Goodlin SJ, Trupp R, Bernhardt P, et al. Development and evaluation of the "Advanced Heart Failure Clinical Competence Survey": a tool to assess knowledge of heart failure care and self-assessed competence. Patient Educ Couns. 2007;67:3-10.
32. Bain KT, Maxwell TL, Strassels SA, Whellan DJ. Hospice use among patients with heart failure. Am Heart J. 2009;158:118-125.
33. Goldstein NE, Lampert R, Bradley E, et al. Management of implantable cardioverter defibrillators in end-of-life care. Ann Intern Med. 2004;141:835-838.
34. Fromme EK, Stewart TL, Jeppesen M, Tolle SW. Adverse experiences with implantable defibrillators in oregon hospices. Am J Hosp Palliat Care. 2010 Nov 25. [Epub ahead of print].
35. Puchalski CM. Spirituality and end-of-life care: a time for listening and caring. J Palliat Med. 2002;5:289-294.