Perceived burden of informal caregivers of a chronically ill older family member: Burden in the context of the transactional stressmodel of Lazarus and Folkman

GeroPsych: The Journal of Gerontopsychology and Geriatric Psychiatry

Volumn 24, Issue 3, 2011, Pages 143-154

  Gräßel, Elmar ^a   Adabbo, Raffaela ^a  

^a UNIVERSITY HOSPITAL ERLANGEN   (Germany)

Author keywords

burden; family caregiving; predictors; relief; stress model

Indexed keywords

CAREGIVER BURDEN; CAREGIVER SUPPORT; CHRONIC DISEASE; COPING BEHAVIOR; DEPRESSION; EUROPE; GERMANY; HOME CARE; HUMAN; INSTITUTIONAL CARE; PATIENT CARE; PREDICTION; PRIORITY JOURNAL; RELATIVE; REVIEW; STRESS MANAGEMENT; VIOLENCE;

EID: 80052467678     PISSN: 16629647     EISSN: 1662971X     Source Type: Journal    
DOI: 10.1024/1662-9647/a000042     Document Type: Review

References (53)

1. Baronet, A. (2003). The impact of family relations on caregivers' positive and negative appraisal of their caregiving activities. Family Relations, 52, 137-142. (Pubitemid 36539793)
2. Bundesministerium für Gesundheit. (2011). Zahlen und Fakten zur Pflegeversicherung (03/11) [Facts and figures regarding long-term care insurance]. Retrieved from http://www.bmg. bund.de/ fileadmin/dateien/Downloads/ Statistiken/Pflegeversicherung/ 2011-03-Zahlen-und-Fakten-Pflegeversicherung .pdf
3. Carver, C. S. (1997). You want to measure coping but your protocol's too long: Consider the brief COPE. International Journal of Behavioral Medicine, 4, 92-100. (Pubitemid 127532310)
4. Cohen, C. A., Colantonio, A., & Vernich, L. (2002). Positive aspects of caregiving: Rounding out the caregiver experience. International Journal of Geriatric Psychiatry, 17, 184-188. (Pubitemid 34130311)
5. Cooper, C., Katona, C., Orrell, M., & Livingston, G. (2008). Coping strategies, anxiety and depression in caregivers of people with Alzheimer's disease. International Journal of Geriatric Psychiatry, 23, 929-936.
6. Dello Buono, M., Busato, R., Mezzetto, M., Paccagnella, B., Aleotti, F., Zanetti, O., . . . De Leo, D. (1999). Community care or patients with Alzheimer's disease and nondemented elderly people: Use and satisfaction with services and unmet needs in family caregivers. International Journal of Geriatric Psychiatry, 14, 915-924.
7. Di Mattei, V., Prunas, A., Novella, L., Marcone, A., Cappa, S., & Sarno, L. (2008). The burden of distress in caregivers of elderly demented patients and its relationship with coping strategies. Neurological Sciences, 29, 383-389.
8. Donath, C., Gräßel, E., Großfeld-Schmitz, M., Menn, P., Lauterberg, J., Wunder, S., . . . Holle, R. (2010). Effects of general practitioner training and family support services on the care of home-dwelling dementia patients - results of a controlled cluster- randomized study. BMC Health Services Research, 10, 314.
9. Eichenseer, B. (2011). Qualitätsziele ambulanter und teilstationärer Pflege-, Betreuungs- und Therapieangebote für Demenzkranke aus Experten- und Anbierterperspektive (1. Aufl.) [Quality targets of outpatient and partial inpatient nursing, support and therapy offers for dementia patients from an expert's and a provider's point of view]. Saarbrücken: Südwestdeutscher Verlag für Hochschulschriften.
10. Etters, L., Goodall, D., & Harrison, B. (2008). Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Academy of Nurse Practitioners, 20, 423-428.
11. EUROFAMCARE Consortium. (2005). Zusammenfassende Übersicht der Ergebnisse aus der EUROFAMCARE-Sechs- Länder-Studie [Summarizing overview over the results from the EUROFAMCARE Study of six countries]. Hamburg: Institut für Medizinische Soziologie.
12. Gallagher-Thompson, D., Dal Canto, P. G., Jacob, T., & Thompson, L.W. (2001). A comparison of marital interaction patterns between couples in which the husband does or does not have Alzheimer's disease. Journal of Gerontology: Social Sciences, 56B, 140-150.
13. Gaugler, J. E., Hanna, N., Linder, J., Given, C.W., Tolbert, V., Kataria, R., & Regine, W.F. (2005). Cancer caregiving and subjective stress: A multisite, multidimensional analysis. Psychooncology, 14, 771-785. (Pubitemid 41320790)
14. Germeroth, S. (2011). Auswirkung von Nutzung und Nicht-Nutzung einer vom Hausarzt vermittelten zugehenden Form der Angehörigenberatung bei zu Hause versorgten Patienten mit leichter und mittelschwerer Demenz [Impact of utilization and nonutilization of counseling for caregivers arranged by the patient's doctor for patients with mild and moderate dementia living at home]. Erlangen: Universität Erlangen-Nürnberg.
15. Gräßel, E. (1997). Belastung und gesundheitliche Situation der Pflegenden. Querschnittuntersuchung zur häuslichen Pflege bei chronischem Hilfs- oder Pflegebedarf im Alter (1. Aufl.) [Burden and health situation of caregivers. Cross-sectional study on family care of elderly persons with chronic disease]. Egelsbach: Hänsel-Hohenhausen.
16. Gräßel, E. (1998). Häusliche Pflege dementiell und nicht dementiell Erkrankter. Teil II: Gesundheit und Belastung der Pflegenden [Homecare of dementia and nondementia patients (part II): Health and burden of family caregivers]. Zeitschrift für Gerontologie und Geriatrie, 31, 57-62. (Pubitemid 28092316)
17. Gräßel, E. (2001). Häusliche-Pflege-Skala HPS zur Erfassung der Belastung bei betreuenden oder pflegenden Personen (2. Aufl., rev.) [Burden Scale for Family Caregivers (BSFC) for measuring subjective burden of family caregivers. 2nd ed. rev.]. Ebersberg: Vless.
18. Gräßel, E. (2009). Subjektive Belastung und deren Auswirkungen bei betreuenden Angehörigen eines Demenzkranken - Notwendigkeit der Entlastung [Subjective burden and its impacts on caregivers of a dementia patient - necessity for relief]. In G. Stoppe & G. Stiens (Eds.), Niedrigschwellige Betreuungvon Demenzkranken: Grundlagen und Unterrichtsmaterialien (pp. 42-47). Stuttgart: Kohlhammer.
19. Gräßel, E., & Leutbecher, M. (1993). Häusliche- Pflege-Skala HPS zur Erfassung der Belastung bei betreuenden oder pflegenden Personen [Burden Scale for Family Caregivers (BSFC) for measuring subjective burden of family caregivers]. Ebersberg: Vless.
20. Gräßel, E., Luttenberger, K., Römer, H., & Donath, C. (2010). Ehrenamtlicher Betreuungsdienst bei Demenz - Prädiktoren der Inanspruchnahme und Qualitätserwartungen aus Sicht pflegender Angehöriger [Voluntary help in dementia - Predictors for utilization and expected quality from a family caregiver's point of view]. Fortschritte Neurologie Psychiatrie, 78, 536-541.
21. Grafström, M., Nordberg, A., & Winblad, B. (1993). Abuse is in the eye of the beholder. Report by family members about abuse of demented persons in homecare. A total population-based study. Scandinavian Journal of Social Medicine, 21, 247-255. (Pubitemid 23348668)
22. Grasel, E., Chiu, T., & Oliver, R. (2003). Development and validation of the Burden Scale for Family Caregivers. Toronto: Comprehensive Rehabilitation and Mental Health Services.
23. Grossfeld-Schmitz, M., Donath, C., Holle, R., Lauterberg, J., Ruckdaeschel, S., Mehlig, H., . . . Gräßel, E. (2010). Counselors contact dementia caregivers - Predictors of utilization in a longitudinal study. BMC Geriatrics, 10, 24.
24. Hansberry, M. R., Chen, E., & Gorbien, M.J. (2005). Dementia and elder abuse. Clinics in Geriatric Medicine, 21, 315-319.
25. Hirono, N., Tsukamoto, N., Inoue, M., Moriwaki, Y., & Mori, E. (2002). Predictors of long-term institutionalisation in patients with Alzheimer's disease: Role of caregiver burden. No To Shinkei, 54, 812-818. (Pubitemid 35339706)
26. Karrasch, R.-M., & Reichert, M. (2008). Subjektive Beurteilungen und Wahrnehmungen von Pflegenden und Gepflegten in der Partnerpflege. Zusammenhänge mit auftretender Gewalt [Subjective evaluations and perceptions of caregivers and care receivers in partner care - Associations with abuse]. Zeitschrift für Gerontopsychologie & -psychiatrie, 21, 259-265.
27. Keck, W., & Saraceno, C. (2008). Pflege und arbeite! Familiäre Pflegeleistungen sind nur schwer mit dem Beruf vereinbar [Care and work! Family caregiving is hardly compatible with work-life]. Berlin:Wissenschaftszentrum Berlin für Sozialforschung, Mitteilungen, No. 122, 10-13.
28. Kim, Y., & Schulz, R. (2008). Family caregivers' strains. Comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. Journal of Aging and Health, 20, 483-503. (Pubitemid 351951631)
29. Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
30. Lee, J. L., & Schulz, R. (2000). Gender differences in psychiatric morbidity among family caregivers: A review and analysis. The Gerontologist, 40, 147-164. (Pubitemid 30266283)
31. Liew, T. M., Luo, N., Ng, W.Y., Chionh, H. L., Goh, J., & Yap, P. (2010). Predicting gains in dementia caregiving. Dementia and Geriatric Cognitive Disorders, 29, 115-122.
32. Lüdecke, D., & Mnich, E. (2009). Vereinbarkeit von Beruf und Pflege - Unterschiede von pflegenden Männern und Frauen [Compatibility of work-life and family caregiving - Differences between male and female caregivers]. Retrieved from http://www.lasa-brandenburg.de/fileadmin/user- upload/ IPdateien/kampagnen/IP22/Vereinbarkeit-Beruf-Pflege-Luedecke-Mnich.pdf
33. Luppa, M., Luck, T., Weyerer, S., König, H.-H., Brähler, E., & Riedel-Heller, S.-G. (2010). Prediction of institutionalization in the elderly.Asystematic review. Age and Ageing, 39, 31-38.
34. Miyamoto, Y., Tachimori, H., & Ito, H. (2010). Formal caregiver burden in dementia: Impact of behavioral and psychological symptoms of dementia and activities of daily living. Geriatric Nursing, 31, 246-253.
35. Nobili, A., Riva, E., Tettamanti, M., Lucca, U., & Liscio, M. (2004). The effect of a structured intervention on caregivers of patients with dementia and problem behaviors - A randomized controlled pilot study. Alzheimer Disease and Associated Disorders, 18, 75-87.
36. Pinquart, M., & Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18, 250-267. (Pubitemid 36693587)
37. Pinquart, M., &Sörensen, S. (2007). Correlates of physical health of informal caregivers: A meta-analysis. Journal of Gerontology, 62B, 126-137.
38. Rigby, H., Gubitz, G., & Phillips, S. (2009). A systematic review of caregiver burden following stroke. International Journal of Stroke, 4, 285-292.
39. Schäufele, M., Köhler, L., Teufel, S., & Weyerer, S. (2005). Betreuung von demenziell erkrankten Menschen in Privathaushalten: Potentiale und Grenzen [Nursing of people suffering from dementia in private households: Potentials and limits]. In U. Schneekloth&H.W.Wahl (Eds.), Möglichkeiten und Grenzen selbständiger Lebensführung in privaten Haushalten (MUG III) (pp. 99-143). München: TNS Infratest Sozialforschung.
40. Schneekloth, U. (2005). Entwicklungstrends beim Hilfe- und Pflegebedarf in Privathaushalten - Ergebnisse der Infratest- Repräsentativerhebung [Development trends in care needs in private households - Results of the representative Infratest study]. In U. Schneekloth & H.W.Wahl (Eds.), Möglichkeiten und Grenzen selbständiger Lebensführung in privaten Haushalten (MUG III) (pp. 55-98). München: TNS Infratest Sozialforschung.
41. Schneekloth, U. (2006). Entwicklungstrends und Perspektiven in der häuslichen Pflege. Zentrale Ergebnisse der Studie Möglichkeiten und Grenzen selbständiger Lebensführung (MuG III) [Development trends and perspectives in homecare. Central results of the study "Possibilities and limits of an independent lifestyle" (MuG III)]. Zeitschrift für Gerontologie und Geriatrie, 39, 405-412. (Pubitemid 44951368)
42. Schulz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality. The Journal of the American Medical Association, 282, 2215-2219.
43. Schulze, B., & Roessler, W. (2005). Caregiver burden in mental illness: Review of measurement, findings and interventions in 2004-2005. Current Opinion in Psychiatry, 18, 684-691. (Pubitemid 41578742)
44. Siemens Betriebskrankenkasse. (2011). Analyse der SBK: Pflegende Angehörige sind kränker als andere Menschen, aber Klinikaufenthalte sind nicht drin [Analysis of SBK: Caregivers are more ill than other people, but hospital stays are out of the question]. Retrieved from http://www.sbk.org
45. Silverberg-Koerner, S., Kenyon, D., & Shirai, Y. (2009). Caregiving for elder relatives: Which caregivers experience personal benefits/ gains. Archives of Gerontology and Geriatrics, 48, 238-245.
46. Smith, G.R., Williamson, G.M., Miller, L.S., & Schulz, R. (2011). Depression and quality of informal care: A longitudinal investigation of caregiving stressors. Psychology and Ag-ing, 26, epub ahead of print. http://psycnet.apa.org/doi/10. 1037/a0022263.
47. Sörensen, S., Pinquart, M., & Duberstein, P. (2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42, 356-372. (Pubitemid 34693550)
48. Toseland, R.W., McCallion, P., Gerber, T., Dawson, C., Gieryic, S., & Guilamo-Ramos, V. (1999). Use of health and human services by community-residing people with dementia. Social Work, 44, 535-548.
49. Ulbrecht,G. (2011).Qualitätsziele angehörigenentlastender und-unterstützenderDienste für zuhause lebendeDemenzkranke aus Anbieter- undExpertenperspektive [Quality targets of serviceswhich relieve and support caregivers of dementia patients living at home from a provider's and an expert's point of view]. Saarbrücken: Südwestdeutscher Verlag für Hochschulschriften.
50. Vitaliano, P. P., Young, H. M., & Russo, J. (1991). Burden: A review of measures used among caregivers of individuals with dementia. The Gerontologist, 31, 67-75.
51. Weyerer, S., & Bickel, H. (2004). Die Versorgung dementer Patienten in Deutschland aus epidemiologischer Sicht [Dementia care in Germany: An epidemiological view]. Zeitschrift für Gerontopsychologie und -psychiatrie, 17, 41-50. (Pubitemid 38715359)
52. Williamson, G. M., & Shaffer, D.R. (2001). Relationship quality and potentially harmful behaviors by spousal caregivers: How we were then, how we are now. The family relationship in late life project. Psychology and Aging, 16, 217-226. (Pubitemid 32530284)
53. Yaffe, K., Fox, P., Newcomer, R., Sands, L., & Lindquist, K. (2002). Patient and caregiver characteristics and nursing home placement in patients with dementia. The Journal of the American Medical Association, 287, 2090-2097. (Pubitemid 34437344)