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Volumn 39, Issue 3, 2011, Pages 502-512

Inclusion of Racial and Ethnic Minorities in Genetic Research: Advance the Spirit by Changing the Rules?

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ATTITUDE; CULTURAL ANTHROPOLOGY; FEMALE; GENETICS; HUMAN; INTERVIEW; MALE; MINORITY GROUP; NATIONAL HEALTH ORGANIZATION; PATIENT SELECTION; PEER REVIEW; PERSONNEL; PRACTICE GUIDELINE; UNITED STATES;

EID: 80051985142     PISSN: 10731105     EISSN: 1748720X     Source Type: Journal    
DOI: 10.1111/j.1748-720X.2011.00617.x     Document Type: Article
Times cited : (40)

References (20)
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    • C. Agyemang et al., "Negro, Black, Black African, African Caribbean, African American or What? Labeling African Origin Populations in the Health Arena in the 21st Century, "Journal of Epidemiology and Community Health 59, no. 12 (2005): 1014-1018; T. Caulfield et al., "Race and Ancestry in Biomedical Research: Exploring the Challenges, "Genome Medicine 1, no. 8 (2009): 8.1-8.8; R. S. Cooper et al., "Race and Genomics, "New England Journal of Medicine 348, no. 12 (2003): 1166-1170; B. Koeing, S. S. J. Lee and S. Richardson, eds., Revisiting Race in a Genomic Age (New Brunswick: Rutgers University Press, 2008); B. O. Tayo et al., "Genetic Background of Patients from a University Medical Center in Manhattan: Implications for Personalized Medicine, "PLoS ONE 6, no. 5 (2011): e19166.
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  • 3
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    • L. Braun et al., "Racial Categories in Medical Practice: How Useful Are They?" PLoS Medicine 4, no. 9 (2007): 1423-1428; J. Kahn, "Genes, Race, and Population: Avoiding a Collision of Categories, "American Journal of Public Health 96, no. 11 (2006): 1965-1970; A. E. Shields et al., "The Use of Race Variables in Genetic Studies of Complex Traits and the Goal of Reducing Health Disparities a Transdisciplinary Perspective, "American Psychologist 60, no. 1 (2005): 77-103.
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    • quot;
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  • 7
    • 84856510865 scopus 로고    scopus 로고
    • National Institutes of Health, quot;NIH Policy and Guidelines on the Inclusion of Women and Minorities as Subjects in Clinical Research - Amended, October, 2001," at Section II, Paragraph A; NIH Revitalization Act of 1993 (PL 103-43), codified at 42 U.S.C. § 289a-1 (1993), available at (last visited May 11, 2011).
    • National Institutes of Health, "NIH Policy and Guidelines on the Inclusion of Women and Minorities as Subjects in Clinical Research - Amended, October, 2001, "at Section II, Paragraph A; NIH Revitalization Act of 1993 (PL 103-43), codified at 42 U.S.C. § 289a-1 (1993), available at (last visited May 11, 2011).
  • 8
    • 80052014819 scopus 로고    scopus 로고
    • Extramural research is research supported by NIH through a grant, contract, or cooperative agreement. Intramural research is research conducted in U.S. government laboratories headed by NIH-employed scientists.
    • Extramural research is research supported by NIH through a grant, contract, or cooperative agreement. Intramural research is research conducted in U.S. government laboratories headed by NIH-employed scientists.
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    • May 17, quot;Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity," Office of Management and Budget, available at (last visited).
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  • 10
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    • See National Institutes of Health, supra note 7.
    • See National Institutes of Health, supra note 7.
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    • May 17, National Institutes of Health, quot;Inclusion Enrollment Report," available at (last visited).
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  • 13
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    • See, supra note 3; L. M. Hunt and M. S. Megyesi, quot;Genes, Race and Research Ethics: Who's Minding the Store?"Journal of Medical Ethics 34, no. 6 (2008): 495-500.
    • See Braun et al., supra note 3; L. M. Hunt and M. S. Megyesi, "Genes, Race and Research Ethics: Who's Minding the Store?"Journal of Medical Ethics 34, no. 6 (2008): 495-500.
    • Braun1
  • 14
    • 33750971169 scopus 로고    scopus 로고
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    • See Epstein G. Corbie-Smith et al., "Investigators' Assessment of NIH Mandated Inclusion of Women and Minorities in Research, "Contemporary Clinical Trials 27, no. 6 (2006): 571-579; H. A. Taylor, "Inclusion of Women, Minorities and Children in Clinical Trials: Opinions of Research Ethics Board Administrators, "Journal of Empirical Research on Human Research Ethics 4, no. 2 (2009): 65-73; H. A. Taylor, "Implementation of NIH Inclusion Guidelines: Survey of NIH Study Section Members, "Clinical Trials 5, no. 2 (2008): 140-146.
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  • 15
    • 84856510862 scopus 로고    scopus 로고
    • See and, supra note 13; L. M. Hunt and M. S. Megyesi, quot;The Ambiguous Meanings of the Racial/Ethnic Categories Routinely Used in Human Genetics Research," Social Science and Medicine 66, no. 2 (2008): 349-361; G. Corbie-Smith, quot;Conceptualizing Race in Research,"Journal of the National Medical Association 100, no. 10 (2008): 1235-1243; C. Lee, quot;'Race' and 'Ethnicity' in Biomedical Research: How Scientists Construct and Explain Differences in Health,"Social Science and Medicine 68, no. 6 (2009): 1183-1190.
    • See Hunt and Megyesi, supra note 13; L. M. Hunt and M. S. Megyesi, "The Ambiguous Meanings of the Racial/Ethnic Categories Routinely Used in Human Genetics Research, "Social Science and Medicine 66, no. 2 (2008): 349-361; G. Corbie-Smith et al., "Conceptualizing Race in Research, "Journal of the National Medical Association 100, no. 10 (2008): 1235-1243; C. Lee, "'Race' and 'Ethnicity' in Biomedical Research: How Scientists Construct and Explain Differences in Health, "Social Science and Medicine 68, no. 6 (2009): 1183-1190.
    • Hunt1    Megyesi2
  • 17
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    • "Impact of Limited Population Diversity of Genome-Wide Association Studies
    • quot;
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  • 18
    • 47049100938 scopus 로고    scopus 로고
    • "Social Inclusivity vs. Analytical Acuity? A Qualitative Study of UK Scientists Regarding the Inclusion of Minority Ethnic Groups in Biobanks
    • quot;
    • A. Smart et al., "Social Inclusivity vs. Analytical Acuity? A Qualitative Study of UK Scientists Regarding the Inclusion of Minority Ethnic Groups in Biobanks, "Medical Law International 9, no. 2 (2008): 169-190.
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  • 19
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    • See and, supra note 3.
    • See Braun et al. and Kahn, supra note 3.
    • Braun1    Kahn2
  • 20
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    • "Racial Categories in Medicine: A Failure of Evidence-Based Practice?"
    • S. M. Outram and G. T. H. Ellison, quot;Anthropological Insights into the Use of Race/Ethnicity to Explore Genetic Contributions to Disparities in Health,"Journal of Biosocial Science 38, no. 1 (2006): 83-102; P. Sankar and M. K. Cho, quot;Genetics: Toward a New Vocabulary of Human Genetic Variation,"Science 298, no. 5597 (2002): 1337-1338.
    • G. T. H. Ellison et al., "Racial Categories in Medicine: A Failure of Evidence-Based Practice?" PLoS Medicine 4, no. 9 (2007): 1434-1436; S. M. Outram and G. T. H. Ellison, "Anthropological Insights into the Use of Race/Ethnicity to Explore Genetic Contributions to Disparities in Health, "Journal of Biosocial Science 38, no. 1 (2006): 83-102; P. Sankar and M. K. Cho, "Genetics: Toward a New Vocabulary of Human Genetic Variation, "Science 298, no. 5597 (2002): 1337-1338.
    • (2007) PLoS Medicine , vol.4 , Issue.9 , pp. 1434-1436
    • Ellison, G.T.H.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.