Chronic pain in adults with an intellectual disability: Prevalence, impact, and health service use based on caregiver report

Pain

Volumn 152, Issue 9, 2011, Pages 1951-1957

  Walsh, Maria ^a   Morrison, Todd G ^b   McGuire, Brian E ^a  

^a NATIONAL UNIVERSITY OF IRELAND   (Ireland)

^b UNIVERSITY OF SASKATCHEWAN   (Canada)

Author keywords

Chronic pain; Intellectual disability; Prevalence

Indexed keywords

ANALGESIC AGENT; ANTIINFLAMMATORY AGENT; CODEINE; PARACETAMOL;

ABDOMINAL PAIN; ADULT; AGED; ARTHRALGIA; ARTICLE; CAREGIVER; CEREBRAL PALSY; CHRONIC PAIN; COMMUNICATION SKILL; CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; DISEASE ASSOCIATION; FACE PAIN; FEMALE; GENITAL PAIN; HEADACHE; HEALTH SERVICE; HEALTH SURVEY; HERBAL MEDICINE; HIP PAIN; HUMAN; INTELLECTUAL IMPAIRMENT; LEG PAIN; LOW BACK PAIN; MALE; MASSAGE; MEDICAL DECISION MAKING; MOUTH PAIN; NECK PAIN; OTALGIA; PAIN ASSESSMENT; PELVIS PAIN SYNDROME; PHYSICAL ACTIVITY; PHYSICAL DISABILITY; PHYSIOTHERAPY; PREVALENCE; PRIORITY JOURNAL; PSYCHOLOGIC ASSESSMENT; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; QUESTIONNAIRE; REFLEXOLOGY; SEX DIFFERENCE; SHOULDER PAIN; THORAX PAIN;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; CHRONIC PAIN; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH SERVICES; HUMANS; INTELLECTUAL DISABILITY; MALE; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; PREVALENCE; QUESTIONNAIRES; YOUNG ADULT;

EID: 80051798939     PISSN: 03043959     EISSN: 18726623     Source Type: Journal    
DOI: 10.1016/j.pain.2011.02.031     Document Type: Article

References (49)

1. M. Arvio, and M. Sillanpaa Prevalence, aetiology and comorbidity of severe and profound intellectual disability in Finland J Intellect Disabil Res 47 2003 108 112 (Pubitemid 36367499)
2. N. Becker, A. Bondegaard Thomsen, A.K. Olsen, P. Sjogren, P. Bech, and J. Eriksen Pain epidemiology and health related quality of life in chronic non-malignant pain patients referred to a Danish multidisciplinary pain center Pain 73 1997 393 400 (Pubitemid 28021844)
3. F. Benini, M. Trapanotto, D. Gobber, C. Agosto, G. Carli, P. Drigo, J. Eland, and F. Zacchello Evaluating pain induced by venipuncture in pediatric patients with developmental delay Clin J Pain 20 2004 156 163 (Pubitemid 38544034)
4. K.K. Biersdorff Pain insensitivity and indifference: alternative explanations for some medical catastrophes Ment Retard 29 1991 359 362
5. K.K. Biersdorff Incidence of significantly altered pain experience among individuals with developmental disabilities Am J Ment Retard 98 1994 619 631 (Pubitemid 24096759)
6. F.M. Blyth, L.M. March, A.J.M. Brnabic, and M.J. Cousins Chronic pain and frequent use of health care Pain 111 2004 51 58 (Pubitemid 39141006)
7. F.M. Blyth, L.M. March, A.J.M. Brnabic, L.R. Jorm, M. Williamson, and M.J. Cousins Chronic pain in Australia: a prevalence study Pain 89 2001 127 134 (Pubitemid 32146391)
8. S. Bottos, and C.T. Chambers The epidemiology of pain in developmental disabilities T.F. Oberlander, F.J. Symons, Pain in children and adults with developmental disabilities 2006 Paul H Brookes Publishing Baltimore 67 87
9. L.M. Breau, C.S. Camfield, P.J. McGrath, and G.A. Finley The incidence of pain in children with severe cognitive impairments Arch Pediatr Adolesc Med 157 2003 1219 1226 (Pubitemid 37509330)
10. L.M. Breau, G.A. Finley, P.J. McGrath, and C.S. Camfield Validation of the Non-communicating Children's Pain Checklist-Postoperative Version Anesthesiology 96 2002 528 535 (Pubitemid 34193488)
11. L.M. Breau, P.J. McGrath, C. Camfield, C. Rosmus, and G.A. Finley Preliminary validation of an observational pain checklist for persons with cognitive impairments and inability to communicate verbally Dev Med Child Neurol 42 2000 609 616
12. L.M. Breau, P.J. McGrath, and M. Zabalia Assessing pediatric pain and developmental disabilities T.F. Oberlander, F.J. Symons, Pain in children & adults with developmental disabilities 2006 Paul H Brookes Publishing Baltimore, MD 149 172
13. H. Breivik, B. Collett, V. Ventafridda, R. Cohen, and D. Gallacher Survey of chronic pain in Europe: prevalence, impact on daily life, and treatment Eur J Pain 10 2006 287 333
14. B. Brochet, P. Michel, P. Barberger-Gateau, and J.-F. Dartigues Population-based study of pain in elderly people: a descriptive survey Age Ageing 27 1998 279 284 (Pubitemid 28346923)
15. E. Catala, E. Reig, M. Artes, L. Aliaga, J.S. Lopez, and J.L. Segu Prevalence of pain in the Spanish population: telephone survey in 5000 homes Eur J Pain 6 2002 133 140
16. T.A. Couston Indifference to pain in low-grade mental defectives Br Med J 1 1954 1128 1129
17. R. Defrin, C.G. Pick, C. Peretz, and E. Carmeli A quantitative somatosensory testing of pain threshold in individuals with mental retardation Pain 108 2004 58 66 (Pubitemid 38251674)
18. J. Dersh, R.J. Gatchel, T. Mayer, P. Polatin, and O.R. Temple Prevalence of psychiatric disorders in patients with chronic disabling occupational spinal disorders Spine 31 2006 1156 1162
19. A.M. Elliott, B.H. Smith, K.I. Penny, W.C. Smith, and W.A. Chambers The epidemiology of chronic pain in the community Lancet 354 1999 1248 1252 (Pubitemid 29469353)
20. E. Emerson Prevalence of psychiatric disorders in children and adolescents with and without intellectual disability J Intellect Disabil Res 47 2003 51 58 (Pubitemid 36367492)
21. J. Eriksen, M.K. Jensen, P. Sjogren, O. Ekholm, and N.K. Rasmussen Epidemiology of chronic non-malignant pain in Denmark Pain 106 2003 221 228 (Pubitemid 37505870)
22. R.J. Gatchel, Y.B. Peng, M.L. Peters, P.N. Fuchs, and D.C. Turk The biopsychosocial approach to chronic pain: scientific advances and future directions Psychol Bull 133 2007 581 624
23. B. Gates, and D. Wilberforce The nature of learning disabilities B. Gates, Learning disabilities: toward inclusion 2002 Churchill Livingstone London 1 19
24. C.A. Gilbert-MacLeod, K.D. Craig, E.M. Rocha, and M.D. Mathias Everyday pain responses in children with and without developmental delays J Pediatr Psychol 25 2000 301 308 (Pubitemid 30471164)
25. K.H. Gustavson, O. Umb-Carlsson, and K. Sonnander A follow-up study of mortality, health conditions and associated disabilities of people with intellectual disabilities in a Swedish county J Intellect Disabil Res 49 2005 905 914 (Pubitemid 43009344)
26. M. Hennequin, C. Morin, and J.S. Feine Pain expression and stimulus localisation in individuals with Down's syndrome Lancet 356 2000 1882 1887
27. N. Hikmet, and S.K. Chen An investigation into low mail survey response rates of information technology users in health care organizations Int J Med Inform 72 2003 29 34 (Pubitemid 37476148)
28. M.P. Jensen, J.M. Engel, A.J. Hoffman, and L. Schwartz Natural history of chronic pain and pain treatment in adults with cerebral palsy Am J Phys Med Rehabil 83 2004 439 445 (Pubitemid 38658132)
29. D. Jones Pain management and people with learning disabilities: a complex challenge J Learn Disabil 7 2003 291 295 (Pubitemid 38016559)
30. F. Kelly, C. Kelly, G. Maguire, and S. Craig Annual Report of the National Intellectual Disability Database Committee 2008 Health Research Board Dublin
31. D.L. LaChapelle, T. Hadjistavropoulos, and K.D. Craig Pain measurement in persons with intellectual disabilities Clin J Pain 15 1999 13 23 (Pubitemid 29142742)
32. S. Lewis, D. Bell, and D. Gillanders Managing chronic pain in people with learning disabilities: a case study Br J Learn Disabil 35 2007 93 98
33. M. Lotan, E.A. Ljunggren, T.B. Johnsen, R. Defrin, C.G. Pick, and L.I. Strand A modified version of the Non-communicating Children Pain Checklist-Revised, adapted to adults with intellectual and developmental disabilities: sensitivity to pain and internal consistency J Pain 10 2009 398 407
34. G.J. Macfarlane, G.T. Jones, and J. McBeth Epidemiology of Pain S.B. McMahon, M. Koltenzenburg, Wall and Melzack's textbook of pain 2005 Elsevier Churchill Livingstone New York 1199 1214
35. C. Mallen, G. Peat, E. Thomas, and P. Croft Severely disabling chronic pain in young adults: prevalence from a population-based postal survey in North Staffordshire BMC Musculoskelet Disord 6 2005 42
36. B. McGuire, P. Daly, and F. Smyth Chronic pain among people with an intellectual disability: under-recognised and under-treated? J Intellect Disabil Res 54 2010 240 245
37. B.E. McGuire, P. Daly, and F. Smyth Lifestyle and health behaviours of adults with an intellectual disability J Intellect Disabil Res 51 2007 497 510 (Pubitemid 47097240)
38. Mencap. "Am I making myself clear?" Mencap's guidelines for accessible writing. London: Mencap Publications; 2000.
39. C.A. Molloy, and P. Manning-Courtney Prevalence of chronic gastrointestinal symptoms in children with autism and autistic spectrum disorders Autism 7 2003 165 171 (Pubitemid 36748447)
40. National Disability Authority. NDA ethical guidelines for disability research. Dublin: National Disability Authority; 2005. http://www.nda.ie/ cntmgmtnew.nsf/0/D6EFA30A02A47B14802570660054EC16?OpenDocument.
41. K.F.J. Ng, S.L. Tsui, and W.S. Chan Prevalence of common chronic pain in Hong Kong adults Clin J Pain 18 2002 275 281 (Pubitemid 35001152)
42. T.F. Oberlander, and F.J. Symons An introduction to the problem of pain in developmental disability T.F. Oberlander, F.J. Symons, Pain in children & adults with developmental disabilities 2006 Paul H Brookes Publishing Baltimore 1 4
43. J. Robertson, E. Emerson, N. Gregory, C. Hatto, S. Turner, S. Kessissoglou, and A. Hallam Lifestyle related risk factors for poor health in residential settings for people with intellectual disabilities Res Dev Disabil 21 2000 469 486
44. T. Rustoen, A.K. Wahl, B.R. Hanestad, A. Lerdal, S. Paul, and C. Miaskowski Prevalence and characteristics of chronic pain in the general Norwegian population Eur J Pain 8 2004 555 565 (Pubitemid 39504960)
45. L. Schwartz, J.M. Engel, and M.P. Jensen Pain in persons with cerebral palsy Arch Phys Med Rehabil 80 1999 1243 1246 (Pubitemid 29474611)
46. J. Sherrard, B.J. Tonge, and J. Ozanne-Smith Injury in young people with intellectual disability: descriptive epidemiology Inj Prev 7 2001 56 61
47. B.H. Smith, A.M. Elliott, W.A. Chambers, W. Cairns Smith, P.C. Hannaford, and K. Penny The impact of chronic pain in the community Fam Pract 18 2001 292 299 (Pubitemid 32514684)
48. N.K. Tang, and C. Crane Suicidality in chronic pain: a review of the prevalence, risk factors and psychological links Psychol Med 36 2006 575 586
49. R.C. Tervo, F. Symons, J. Stout, and T. Novacheck Parental report of pain and associated limitations in ambulatory children with cerebral palsy Arch Phys Med Rehabil 87 2006 928 934 (Pubitemid 43949362)