Initial counseling prior to palliation for hypoplastic left heart syndrome

Congenital Heart Disease

Volumn 6, Issue 4, 2011, Pages 347-358

  Yates, Andrew R ^a,b   Hoffman, Timothy M ^a,b   Boettner, Bethany ^a   Feltes, Timothy F ^a,b   Cua, Clifford L ^a,b  

^a NATIONWIDE CHILDREN S HOSPITAL   (United States)

^b THE OHIO STATE UNIVERSITY COLLEGE OF MEDICINE   (United States)

Author keywords

Hypoplastic left heart syndrome; Surgical approach; Survey

Indexed keywords

ANATOMICAL VARIATION; ARTICLE; BLALOCK TAUSSIG SHUNT; CARDIAC PATIENT; CHROMOSOME ABERRATION; COMORBIDITY; DISEASE SEVERITY; FAMILY COUNSELING; FEMALE; GESTATIONAL AGE; HEART ATRIUM SEPTUM; HEART TRANSPLANTATION; HOSPICE CARE; HUMAN; HYPOPLASTIC LEFT HEART SYNDROME; LOW BIRTH WEIGHT; LUNG ARTERY BANDING; MAJOR CLINICAL STUDY; MALE; NORWOOD PROCEDURE; PALLIATIVE THERAPY; PHYSICIAN; PREMATURITY; PRIORITY JOURNAL; RIGHT VENTRICLE TO PULMONARY ARTERY CONDUIT; SURVIVAL; TREATMENT OUTCOME; TRICUSPID VALVE REGURGITATION;

CARDIAC SURGICAL PROCEDURES; COUNSELING; FEMALE; HEALTH CARE SURVEYS; HEALTHCARE DISPARITIES; HOSPICE CARE; HUMANS; HYPOPLASTIC LEFT HEART SYNDROME; INTERNET; MALE; PALLIATIVE CARE; PATIENT SELECTION; PHYSICIAN'S PRACTICE PATTERNS; PREOPERATIVE CARE; RESIDENCE CHARACTERISTICS; RISK ASSESSMENT; RISK FACTORS; UNITED STATES;

EID: 79960683211     PISSN: 1747079X     EISSN: 17470803     Source Type: Journal    
DOI: 10.1111/j.1747-0803.2011.00525.x     Document Type: Article

References (32)

1. Samanek M. Children with congenital heart disease: probability of natural survival. Pediatr Cardiol. 1992;13:152-158.
2. Galantowicz M, Cheatham JP. Lessons learned from the development of a new hybrid strategy for the management of hypoplastic left heart syndrome. Pediatr Cardiol. 2005;26:190-199.
3. Sano S, Ishino K, Kawada M, etal. Right ventricle-pulmonary artery shunt in first-stage palliation of hypoplastic left heart syndrome. J Thorac Cardiovasc Surg. 2003;126:504-509; discussion 9-10.
4. Akintuerk H, Michel-Behnke I, Valeske K, etal. Stenting of the arterial duct and banding of the pulmonary arteries: basis for combined Norwood stage I and II repair in hypoplastic left heart. Circulation. 2002;105:1099-1103.
5. Norwood WI, Lang P, Casteneda AR, Campbell DN. Experience with operations for hypoplastic left heart syndrome. J Thorac Cardiovasc Surg. 1981;82:511-519.
6. Stoica SC, Philips AB, Egan M, etal. The retrograde aortic arch in the hybrid approach to hypoplastic left heart syndrome. Ann Thorac Surg. 2009;88:1939-1946; discussion 46-47.
7. Sano S, Huang SC, Kasahara S, Yoshizumi K, Kotani Y, Ishino K. Risk factors for mortality after the Norwood procedure using right ventricle to pulmonary artery shunt. Ann Thorac Surg. 2009;87:178-185; discussion 85-86.
8. Stasik CN, Gelehrter S, Goldberg CS, Bove EL, Devaney EJ, Ohye RG. Current outcomes and risk factors for the Norwood procedure. J Thorac Cardiovasc Surg. 2006;131:412-417.
9. Gaynor JW, Mahle WT, Cohen MI, etal. Risk factors for mortality after the Norwood procedure. Eur J Cardiothorac Surg. 2002;22:82-89.
10. Ohye RG, Sleeper LA, Mahony L, etal. Comparison of shunt types in the Norwood procedure for single-ventricle lesions. N Engl J Med. 2010;362:1980-1992.
11. Cua CL, Thiagarajan RR, Gauvreau K, etal. Early postoperative outcomes in a series of infants with hypoplastic left heart syndrome undergoing stage I palliation operation with either modified Blalock-Taussig shunt or right ventricle to pulmonary artery conduit. Pediatr Crit Care Med. 2006;7:238-244.
12. Tabbutt S, Dominguez TE, Ravishankar C, etal. Outcomes after the stage I reconstruction comparing the right ventricular to pulmonary artery conduit with the modified Blalock Taussig shunt. Ann Thorac Surg. 2005;80:1582-1590; discussion 90-91.
13. Galantowicz M, Cheatham JP, Phillips A, etal. Hybrid approach for hypoplastic left heart syndrome: intermediate results after the learning curve. Ann Thorac Surg. 2008;85:2063-2071.
14. Azakie T, Merklinger SL, McCrindle BW, etal. Evolving strategies and improving outcomes of the modified norwood procedure: a 10-year single-institution experience. Ann Thorac Surg. 2001;72:1349-1353.
15. Bove EL. Current status of staged reconstruction for hypoplastic left heart syndrome. Pediatr Cardiol. 1998;19:308-315.
16. Forbess JM, Cook N, Roth SJ, Serraf A, Mayer JE, Jr, Jonas RA. Ten-year institutional experience with palliative surgery for hypoplastic left heart syndrome. Risk factors related to stage I mortality. Circulation. 1995;92(9 suppl):II262-II266.
17. Jacobs JP, O'Brien SM, Chai PJ, Morell VO, Lindberg HL, Quintessenza JA. Management of 239 patients with hypoplastic left heart syndrome and related malformations from 1993 to 2007. Ann Thorac Surg. 2008;85:1691-1696; discussion 7.
18. Mahle WT, Spray TL, Wernovsky G, Gaynor JW, Clark BJ, 3rd. Survival after reconstructive surgery for hypoplastic left heart syndrome: a 15-year experience from a single institution. Circulation. 2000;102(19 suppl 3):III136-III141.
19. Wernovsky G. The paradigm shift toward surgical intervention for neonates with hypoplastic left heart syndrome. Arch Pediatr Adolesc Med. 2008;162:849-854.
20. Kon AA. Healthcare providers must offer palliative treatment to parents of neonates with hypoplastic left heart syndrome. Arch Pediatr Adolesc Med. 2008;162:844-848.
21. Feudtner C. Ethics in the midst of therapeutic evolution. Arch Pediatr Adolesc Med. 2008;162:854-857.
22. Prsa M, Holly CD, Carnevale FA, Justino H, Rohlicek CV. Attitudes and practices of cardiologists and surgeons who manage HLHS. Pediatrics. 2010;125:e625-e630.
23. Vida VL, Bacha EA, Larrazabal A, etal. Hypoplastic left heart syndrome with intact or highly restrictive atrial septum: surgical experience from a single center. Ann Thorac Surg. 2007;84:581-585. discussion 6.
24. Wernovsky G, Ghanayem N, Ohye RG, etal. Hypoplastic left heart syndrome: consensus and controversies in 2007. Cardiol Young. 2007;17(17 suppl 2):75-86.
25. Karamlou T, Diggs BS, Ungerleider RM, Welke KF. Evolution of treatment options and outcomes for hypoplastic left heart syndrome over an 18-year period. J Thorac Cardiovasc Surg. 2010;139:119-126; discussion 26-27.
26. Galantowicz M, Cheatham JP, Phillips A, etal. Hybrid approach for hypoplastic left heart syndrome: intermediate results after the learning curve. Ann Thorac Surg. 2008;85:2063-2070; discussion 70-71.
27. Chrisant MR, Naftel DC, Drummond-Webb J, etal. Fate of infants with hypoplastic left heart syndrome listed for cardiac transplantation: a multicenter study. J Heart Lung Transplant. 2005;24:576-582.
28. Pizarro C, Derby CD, Baffa JM, Murdison KA, Radtke WA. Improving the outcome of high-risk neonates with hypoplastic left heart syndrome: hybrid procedure or conventional surgical palliation? Eur J Cardiothorac Surg. 2008;33:613-618.
29. Cua CL, Galantowicz ME, Turner DR, etal. Palliation via hybrid procedure of a 1.4-kg patient with a hypoplastic left heart. Congenit Heart Dis. 2007;2:191-193.
30. Sarajuuri A, Jokinen E, Puosi R, etal. Neurodevelopment in children with hypoplastic left heart syndrome. J Pediatr. 2010;157:414-420; 20 e1-20 e4.
31. Mahle WT, Wernovsky G. Long-term developmental outcome of children with complex congenital heart disease. Clin Perinatol. 2001;28:235-247.
32. Mahle WT, Clancy RR, Moss EM, Gerdes M, Jobes DR, Wernovsky G. Neurodevelopmental outcome and lifestyle assessment in school-aged and adolescent children with hypoplastic left heart syndrome. Pediatrics. 2000;105:1082-1089.