From limitation to mastery: Exercise experience for adolescents with mild congenital heart disease

Journal of Clinical Nursing

Volumn 20, Issue 15-16, 2011, Pages 2266-2276

  Chiang, Yueh Tao ^a   Chen, Chi Wen ^b   Chen, Yueh Chih ^c  

^a CHANG GUNG UNIVERSITY   (Taiwan)

^b FU JEN CATHOLIC UNIVERSITY   (Taiwan)

^c HUNGKUANG UNIVERSITY   (Taiwan)

Author keywords

Adolescent; Congenital heart disease; Exercise; Nurses; Nursing; Phenomenology

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ARTICLE; AWARENESS; CHILD BEHAVIOR; EXERCISE; HEART DISEASE; HUMAN; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADOLESCENT BEHAVIOR; AWARENESS; EXERCISE; HEART DISEASES; HUMANS;

EID: 79960355797     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2011.03723.x     Document Type: Article

References (37)

1. Alderman LM (2000) At risk: adolescents and adults with congenital heart disease. Dimensions of Critical Care Nursing 19, 2-15.
2. Barbour RS (2000) The role of qualitative research in broadening the 'evidence base' for clinical practice. Journal of Evaluation in Clinical Practice 6, 155-163.
3. Bar-Mor G, Bar-Tal Y, Krulik T & Zeevi B (2000) Self-efficacy and physical activity in adolescents with trivial, mild, or moderate congenital cardiac malformations. Cardiology in the Young 10, 561-566.
4. Betz CL (2004) Adolescents in transition of adult care: why the concern? Nursing Clinics of North America 39, 681-713.
5. Bjorbakmo W & Engelsrud G (2008) 'I am almost like a fish': an investigation of how children with cogenital heart disease experience and perform movement in daily life. Child: Care, Health and Development 34, 781-788.
6. Bureau of National Health Insurance (2006) National Health Insurance Research Database. Department of Health, Zhunun, Miaoli.
7. Chen CW & Chen YC (2007) Health-promoting lifestyle behaviors in adolescents with congenital heart disease: a critical review. Fu-Jen Journal of Medicine 5, 163-171.
8. Chen CW, Chen YC, Chen MY, Wang JK, Su WJ & Wang HL (2007) Health-promoting behavior of adolescents with congenital heart disease. Journal of Adolescent Health 41, 602-609.
9. Diller GP, Dimopoulos K, Okonko D, Uebing A, Broberg CS, Babu-Narayan S, Bayne S, Poole-Wilson PA, Sutton R, Francis DP & Gatzoulis MA (2006) Heart rate response during exercise predicts survival in adults with congenital heart disease. Journal of the American College of Cardiology 48, 1250-1256.
10. de Divitiis M, Pilla C, Kattenhorn M, Mariutzka Z, Donald A, Leeson P, Wallace S, Redington A & Deanfield JE (2001) Vascular dysfunction after repair of coarctation of the aorta: impact of early surgery. Circulation 104, S165-S170.
11. Giorgi A (1985) Sketch of a psychological phenomenological method. In Phenomenology and Psychological Research (Giorgi A ed.). Duquesne University Press, Pittsburgh, PA.
12. Giorgi A (1997) The theory, practice and evaluation of the phenomenological method as a qualitative research procedure. Journal of Phenomenological Psychology 28, 235-261.
13. Green A (2004) Outcomes of congenital heart disease: a review. Pediatric Nursing 30, 280-284.
14. Hasselstrom H, Hansen SE, Froberg K & Andersen LB (2002) Physical fitness and physical activity during adolescence as predictors of cardiovascular disease risk in young adulthood. Danish youth and sports study. An eight-year follow-up study. International Journal of Sports Medicine 23, S27-S31.
15. Holloway I (2005) Qualitative Research in Health Care. Open University Press, Berkshire, England.
16. Lillie S & Card D (2008) Meet@TeenHeart: working with teenagers with heart disease. British Journal of Cardiac Nursing 3, 190-192.
17. Lincoln YS & Guba EG (1985) Naturalistic Inquiry. Sage Publications, London.
18. Lunt D, Briffa T, Briffa NK & Ramsay J (2003) Physical activity levels of adolescents with congenital heart disease. Australian Journal of Physiotherapy 49, 43-50.
19. Mu PF (1996) Phenomenology. Nursing Research (Chinese) 4, 195-202.
20. Paridon SM (1997) Congenital heart disease: cardiac performance and adaptations to exercise. Pediatric Exercise Science 9, 308-323.
21. Pender NJ, Murdaugh CL & Parsons MA (2006) Health Promotion in Nursing Practice, 5th edn. Pearson Prentice Hall, Upper Saddle River, NJ.
22. Reid GJ, Irvine MJ, McCrindle BW, Sananes R & Ritvo PG (2004) Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 113, e197-e205.
23. Reybrouck T & Mertens L (2005) Physical performance and physical activity in grown-up congenital heart disease. European Journal of Cardiovascular Prevention and Rehabilitation 12, 498-502.
24. Simko LC & McGinnis KA (2003) Quality of life experienced by adults with congenital heart disease. AACN Clinical Issues: Advanced Practice in Acute and Critical Care 14, 42-53.
25. Sparacino PS, Tong EM, Messias DK, Foote D, Chesla CA & Gilliss CL (1997) The dilemmas of parents of adolescents and young adults with congenital heart disease. Heart and Lung 26, 187-95.
26. Stefan MA, Hopman WM, Smythe JF, Stefan MA, Hopman WM & Smythe JF (2005) Effect of activity restriction owing to heart disease on obesity. Archives of Pediatrics & Adolescent Medicine 159, 477-481.
27. Tak YR & McCubbin M (2002) Family stress, perceived social support and coping following the diagnosis of a child's congenital heart disease. Journal of Advanced Nursing 39, 190-198.
28. The Criteria Committee of the New York Heart Association (1994) Nomenclature and Criteria for Diagnosis of Diseases of the Heart and Great Vessels, 9th edn. Little, Brown & Co., Boston, MA, pp. 253-256.
29. Tong EM, Sparacino PSA, Messias DKH, Foote D, Chesla CA & Gilliss CL (1998) Growing up with congenital heart disease: the dilemmas of adolescents and young adults. Cardiology in the Young 8, 303-309.
30. Tong EM & Kools S (2004) Health care transitions for adolescents with congenital heart disease: patient and family perspectives. Nursing Clinics of North America 39, 727-740.
31. Tsai CC (2006) Building active lifestyle: the current physical activity and its related factors. Physical Education of School 16, 36-43.
32. Van Deyk K, Moons P, Gewillig M & Budts W (2004) Educational and behavioral issues in transitioning from pediatric cardiology to adult-centered health care. Nursing Clinics of North America 39, 755-768.
33. Vivar C, McQueen A, Whyte D & Armayor N (2007) Getting started with qualitative research: developing a research proposal. Nurse Researcher 14, 60-75.
34. Vriend JWJ, de Groot E, Vliegen HW, Veen G, Van Huizen BE & Stok WJ (2002) Increased carotid arterial wall thickness as an indicator of cardiovascular risk in adult patients successfully operated for aortic coarctation. European Heart Journal 23, S620-S626.
35. Warnes CA, Liberthson R, Danielson GK, Dore A, Harris L & Hoffman JI (2001) Task force. 1: The changing profile of congenital heart disease in adult life. Journal of American College of Cardiology 37, 1170-1175.
36. Wu TY & Pender N (2005) A panel study of physical activity in Taiwanese youth: Testing the revised health-promotion model. Family & Community Health 28, 113-124.
37. Yang HL, Chen YC, Mao HC, Gau BS & Wang JK (2004) Effect of a systematic discharge nursing plan on mothers' knowledge and confidence in caring for infants with congenital heart disease at home. Journal of the Formosan Medical Association 103, 47-52.