The role of disclosure in relation to assent to participate in HIV-related research among HIV-infected youth: A formative study

Journal of the International AIDS Society

Volumn 12, Issue 1, 2009, Pages

  Corneli, Amy ^a   Vaz, Lara ^b   Dulyx, Jennyfer ^a   Omba, Serge ^c   Rennie, Stuart ^a,d   Behets, Frieda ^a  

^a UNIVERSITY OF NORTH CAROLINA   (United States)

^b University of North Carolina at Chapel Hill   (United States)

^c UNIVERSITY OF KINSHASA   (Congo)

^d UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CAREGIVER; CHILD; CLINICAL RESEARCH; DEMOCRATIC REPUBLIC CONGO; FEMALE; HEALTH PRACTITIONER; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTED PATIENT; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INTERPERSONAL COMMUNICATION; JUVENILE; MALE; PARENT; PATIENT PARTICIPATION; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW;

EID: 79959825994     PISSN: None     EISSN: 17582652     Source Type: Journal    
DOI: 10.1186/1758-2652-12-17     Document Type: Article

References (10)

1. American Academy of Pediatrics. Committee on Pediatric AIDS: Disclosure of Illness Status to Children and Adolescents with HIV Infection. Pediatrics 1999, 103:164-166.
2. US Department of Health and Human Services. Code of Federal Regulations (45 CFR 46): Sub-part D: Additional Protections for Children Involved as Subjects in Research 2005 [http://www.hhs.gov/ohrp/human subjects/guidance/45cfr46.htm#46.408]. Accessed 18 August 2008
3. Barfield RC, Kane JR: Balancing disclosure of diagnosis and assent for research in children with HIV. JAMA 2008, 300:576-578.
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5. DeMatteo D, Roberts J: Disclosing HIV/AIDS to Children: The Paths We Take Calgary, Alberta, Canada: Detselig Enterprises LTD; 2001.
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8. Geller G, Tambor ES, Bernhardt BA, Fraser G, Wissow LS: Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision making. Journal of Adolescent Health 2003, 32:260-271.
9. Vaz LME, Corneli AL, Dulyx J, Rennie S, Omba S, Kitetele F, the AD Research Group, Behets F: The process of HIV status disclosure to HIV-positive youth in Kinshasa, Democratic Republic of the Congo. AIDS Care 2008, 20(7):842-52.
10. Bikaako-Kajura W, Luyirika E, Purcell DW, Downing J, Kaharuza F, Mermin J, Malamba S, Bunnell R: Disclosure of HIV status and adherence to daily drug regimens among HIV-infected children in Uganda. AIDS and Behavior 2006, 10(4 Suppl):S85-93.