Collaborative approaches to e-health: Valuable for users and non-users

Studies in Health Technology and Informatics

Volumn 116, Issue , 2005, Pages 879-884

  Safran, Charles ^a   Pompilio Weitzner, Grace ^b   Emery, Kathryn D ^c   Hampers, Lou ^c  

^a HARVARD MEDICAL SCHOOL   (United States)

^b EMERSON HOSPITAL   (United States)

^c UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

Author keywords

Care management; Collaborative healthware; Education; Ehealth; Home care; Infants; Internet portals; Neonatal care; NICU; Parents

Indexed keywords

EDUCATION; EHEALTH; HOSPITALS; WEBSITES;

CARE MANAGEMENT; COLLABORATIVE HEALTHWARE; HOME CARE; INFANTS; INTERNET PORTALS; NEONATAL CARE; NICU; PARENTS;

HEALTH INSURANCE;

COOPERATION; HUMAN; INFANT; INTERNET; NEWBORN INTENSIVE CARE; PARENT; UNITED STATES;

COLORADO; COOPERATIVE BEHAVIOR; HUMANS; INFANT; INTENSIVE CARE UNITS, NEONATAL; INTERNET; PARENTS;

EID: 79959637363     PISSN: 09269630     EISSN: 18798365     Source Type: Book Series    
DOI: None     Document Type: Conference Paper

References (19)

1. Perlman NB, Freedman JL, Abramovitch R, Whyte H, Kirpalani H, Perlman M. Informational needs of parents of sick neonates. Pediatrics. 1991; 88(3): 512-518.
2. McKim EM. The information and support needs of mothers of premature infants. Journal of Pediatric Nursing. 1993; 8(4): 233-244.
3. Singer LT, Salvator AMS, Guo S, Collin M, Lilien L, Baley J. Maternal psychological distress and parenting stress after the birth of a very low-birth-weight infant. The Journal of the American Medical Association. 1999; 281(9): 799-805.
4. Brazy JE, Anderson BMH, Becker PT, Becker M. How parents of premature infants gather information and obtain support. Neonatal Network. 2001; 20(2): 41-48.
5. Dhillon AS, Albersheim SG, Alsaad S, Pargass NS, Zupancic JAF. Internet use and perceptions of information reliability by parents in a neonatal intensive care unit. Journal of Perinatology. 2003; 23: 420-424.
6. Eng, T., & Gustafson, D. (Eds). (1999). Wired for health and well being: The emergence of interactive health communication. Washington DC: US Department of Health and Human Services.
7. Eng, T.R., Maxfield, A., Patrick, K., Deering, M.J., Ratzan, S., & Gustafson, D. (1998). Access to health information and support: A public highway or a private road? JAMA, 280, 1371-1375.
8. Ferguson, T. (1995). Consumer Health Informatics. Health Care Forum, 28-33.
9. Ferguson, T. (2000). Online patient-helpers and physicians working together: A new patient collaboration for high quality health care. BMJ, 321(7269), 1129-32.
10. Donna M. D'Alessandro and Nienke P. Dosa. Empowering Children and Families With Information Technology Arch Pediatr Adolesc Med, Oct 2001; 155: 1131 - 1136.
11. Lamp JM, Howard PA. Guiding parents' use of the Internet for newborn education. The American Journal of Maternal/Child Nursing. 1999; 24(1): 33-36.
12. Qavi T, Corley L, Kay S. Nursing staff requirements for telemedicine in the neonatal intensive care unit. Journal of End User Computing. 2001; 13(3): 5-13.
13. Gustafson, D.H., McTavish, F., Boberg, E., et al. (1999). Empowering patients using computer based health support systems. Quality Health Care, 8(1), 49-56.
14. Safran, C. The collaborative edge: Patient empowerment for vulnerable populations. International Journal of Medical Informatics, 2003 (69):185-190.
15. Gray JE, Safran C, Davis RB, Pompilio-Weitzner G, Stewart JE, Zaccagnini L, Pursley DW. Baby CareLink: Using the Internet and telemedicine to improve care for high-risk infants. Pediatrics. 2000; 106(6): 1318-1324.
16. Goldsmith DM, Safran C. Collaborative Healthware, Chapter in: Nelson R, Ball MJ. Consumer Informatics: Applications and Strategies in Cyber Health Care. New York: Springer-Verlag, 2004; pp 9-19.
17. Kenner C. The Journal of Perinatal and Neonatal Nursing. 1990; 4(3): 78-87.
18. Cisneros Moore KA, Coker K, DuBuisson AB, Swett B, Edwards WH. Implementing potentially better practices for improving family-centered care in neonatal intensive care units: Successes and challenges. Pediatrics. April 2003; 111(4): e450-e460.
19. Harrison H. The principles for family-centered neonatal care. Pediatrics. 1993; 92(5): 643-650.