Patient and carer unmet needs: A survey of the British association of head and neck oncology nurses

British Journal of Oral and Maxillofacial Surgery

Volumn 49, Issue 5, 2011, Pages 343-348

  Rogers, S N ^a,b   Clifford, N ^c   Lowe, D ^a  

^a EDGE HILL UNIVERSITY   (United Kingdom)

^b UNIVERSITY HOSPITAL AINTREE   (United Kingdom)

^c QUEEN MARY UNIVERSITY OF LONDON   (United Kingdom)

Author keywords

Head and neck cancer; Multidisciplinary team; Survey; Unmet needs

Indexed keywords

ARTICLE; CANCER PATIENT; CAREGIVER SUPPORT; CLERGY; CLINICAL NURSE SPECIALIST; COMMUNICATION SKILL; CONSULTATION; COUNSELING; DENTAL CARE; EMOTION; HEAD AND NECK CANCER; HEALTH SURVEY; HUMAN; NEEDS ASSESSMENT; NURSE ATTITUDE; NURSING ORGANIZATION; NUTRITIONAL SUPPORT; OCCUPATIONAL THERAPY; ONCOLOGY NURSING; PATIENT CARE; PATIENT IDENTIFICATION; PATIENT REFERRAL; PHYSIOTHERAPY; QUESTIONNAIRE; SPEECH REHABILITATION;

AMBULATORY CARE; ATTITUDE TO HEALTH; COMMUNICATION; COUNSELING; DENTAL HYGIENISTS; DENTISTS; DIETETICS; GREAT BRITAIN; HEAD AND NECK NEOPLASMS; HEALTH SERVICES ACCESSIBILITY; HUMANS; MEDICAL ONCOLOGY; NEEDS ASSESSMENT; NEUROLOGY; NURSE-PATIENT RELATIONS; NURSING ASSESSMENT; OCCUPATIONAL THERAPY; ONCOLOGIC NURSING; PASTORAL CARE; PATIENT CARE TEAM; PHYSICAL THERAPY (SPECIALTY); PSYCHOLOGY; QUESTIONNAIRES; REFERRAL AND CONSULTATION; SOCIAL WORK; SPEECH-LANGUAGE PATHOLOGY; TREATMENT OUTCOME;

EID: 79959296994     PISSN: 02664356     EISSN: 15321940     Source Type: Journal    
DOI: 10.1016/j.bjoms.2010.06.017     Document Type: Article

References (21)

1. Chandu A, Smith AC, Rogers SN. Health-related quality of life in oral cancer: a review. J Oral Maxillofac Surg 2006;64(3):495-502. (Pubitemid 43257937)
2. Rogers SN. Quality of life perspectives in patients with oral cancer. Oral Oncol 2010;46:445-7.
3. Sharpe L, Butow P, Smith C, McConnell D, Clarke S. The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their carers. Psycho-Oncology 2005;14(2):102-14. (Pubitemid 40298142)
4. Chen SC, Lai YH, Liao CT, Chang JT, Lin CC. Unmet information needs and preferences in newly diagnosed and surgically treated oral cavity cancer patients. Oral Oncol 2009;45(11):946-52.
5. Mitchell AJ. Short screening tools for cancer-related distress: a review and diagnostic validity meta-analysis. J Natl Compr Canc Netw 2010;8(4):487-94.
6. Bonevski B, Sanson-Fisher R, Girgis A, Burton L, Cook P, Boyes A. Evaluation of an instrument to assess the needs of patients with cancer (Support Care Needs Survey). Cancer 2000;88:217-25. (Pubitemid 30027699)
7. Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P. The unmet supportive care needs of patients with cancer. Supportive Care Review Group. Cancer 2000;88(1):226-37.
8. Rogers SN. Oral cancer management: pitfalls and solutions. Article: rogers SN Quality of life of head and neck cancer patients. Has treatment planning altered? Oral Oncol 2009;45:435-9.
9. Millsopp L, Frackleton S, Lowe D, Rogers SN. A feasibility study of computer-assisted health-related quality of life data collection in patients with oral and oropharyngeal cancer. Int J Oral Maxillofac Surg 2006;35(8):761-4. (Pubitemid 43906181)
10. Rogers SN, Lowe D. Screening for dysfunction to promote MDT intervention using the University of Washington Quality of Life questionnaire (UW-QOL). Arch Otolaryngol Head Neck Surg 2009;135:369-75.
11. Velikova G, Booth L, Smith AB, Brown PM, Lynch P, Brown JM, et al. Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial. J Clin Oncol 2004;15(22(4)):714-24. (Pubitemid 41095076)
12. Rogers SN, El-Sheikha J, Lowe D. The development of a Patients Concerns Inventory (PCI) to help reveal patients concerns in the head and neck clinic. Oral Oncol 2009;45:555-61.
13. Birchall M, Brown PM, Browne J. The organisation of head and neck oncology services in the UK: The Royal College of Surgeons of England and British Association of Head and Neck Oncologists' preliminary multidisciplinary head and neck oncology audit. Ann R Coll Surg Engl 2003;85(3):154-7. (Pubitemid 36591989)
14. Bradley PJ, Zutshi B, Nutting CM. An audit of clinical resources available for the care of head and neck cancer patients in England. Clin Oncol (R Coll Radiol) 2005;17(8):604-9. (Pubitemid 41700324)
15. Bradley PJ, Zutshi B, Nutting CM. An audit of clinical resources available for the care of head and neck cancer patients in England. J Laryngol Otol 2005;119(8):620-6. (Pubitemid 41113167)
16. Improving Supportive and Palliative Care for Adults with Cancer: The Manual. National Institute for Clinical Excellence; 2004. ISBN:1-84257r-r579-1.
17. Gessler S, Low J, Daniells E, Williams R, Brough V, Tookman A, et al. Screening for distress in cancer patients: is the distress thermometer a valid measure in the UK and does it measure change over time? A prospective validation study. Psychooncology 2008;17(6):538-47.
18. Harvey-Woodworth C, Rogers SN, Lowe D. The patient's perspective of the financial impact of treatment of head and neck cancer. Br J Oral Maxillofac Surg 2010;48:S22.
19. Rogers SN, Pabla R, McSorley A, Lowe D, Brown JS, Vaughan ED. An assessment of deprivation as a factor in the delay in presentation, diagnosis and treatment in patients with oral and oropharyngeal squamous cell carcinoma. Oral Oncol 2007;43:648-55.
20. Rogers SN, Scott B, Lowe D, Ozakinci G, Humphris GM. Fear of recurrence following head and neck cancer: evaluation in a busy routine clinical setting. Eur Arch Otorhinolaryngol Head Neck;in press.
21. Humphris GM. The missing member of the head and neck multidisciplinary team: the psychologist. Why we need them. Curr Opin Otolaryngol Head Neck Surg 2008;16(2):108-12. (Pubitemid 351354964)