Attitudes to perinatal postmortem: Parental views about research participation

Journal of Medical Ethics

Volumn 37, Issue 6, 2011, Pages 364-367

  Breeze, Andrew C G ^a,b   Statham, Helen ^c   Hackett, Gerald A ^a   Jessop, Flora A ^a   Lees, Christoph C ^a  

^a ADDENBROOKE S HOSPITAL   (United Kingdom)

^b QUEEN S MEDICAL CENTRE   (United Kingdom)

^c UNIVERSITY OF CAMBRIDGE   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO DEATH; FEMALE; FETUS DEATH; HUMAN; MALE; MIDDLE AGED; PARENT; PREGNANCY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; RESEARCH SUBJECT; SPONTANEOUS ABORTION; STILLBIRTH;

ABORTION, SPONTANEOUS; ADOLESCENT; ADULT; ATTITUDE TO DEATH; FEMALE; FETAL DEATH; HUMANS; MALE; MIDDLE AGED; PARENTS; PREGNANCY; QUESTIONNAIRES; RESEARCH SUBJECTS; STILLBIRTH; YOUNG ADULT;

EID: 79958786332     PISSN: 03066800     EISSN: 14734257     Source Type: Journal    
DOI: 10.1136/jme.2010.038505     Document Type: Article

References (20)

1. Åhman E, Zupan J. Neonatal and Perinatal Mortality. Country, Regional and Global Estimates 2004. Geneva: WHO, 2007.
2. Confidential Enquiry into Maternal and Child Heath [CEMACH]. Perinatal Mortality 2007. London: Confidential Enquiry into Maternal and Child Health, 2009.
3. Boyd PA, Tondi F, Hicks NR, et al. Autopsy after termination of pregnancy for fetal anomaly: retrospective cohort study. BMJ 2004;328:137.
4. Confidential Enquiry into Maternal and Child Health. Stillbirth, Neonatal and Post-neonatal Mortality 2000e2003, England, Wales and Northern Ireland. London: RCOG Press, 2005.
5. Pathak S, Lees C. Ultrasound structural fetal anomaly screening: an update. Arch Dis Child Fetal Neonatal Ed 2009;94:F384-90.
6. Griffiths P, Paley M, Whitby E. Imaging the Central Nervous System of the Fetus and Neonate. New York, USA: Taylor & Francis, 2006.
7. Khong TY, Tanner AR. Foetal and neonatal autopsy rates and use of tissue for research: The influence of 'organ retention' controversy and new consent process. J Paediatr Child Health 2006;42:366-9.
8. Cooper ES, Laing IA. The clinicians' view of fetal and neonatal necropsy. In: Keeling JW, Khong TY, eds. Fetal and Neonatal Pathology. London: Springer, 2007.
9. Snowdon C, Elbourne DR, Garcia J. Perinatal pathology in the context of a clinical trial: attitudes of neonatologists and pathologists. Arch Dis Child Fetal Neonatal Ed 2004;89:F204-7.
10. Rose C, Evans M, Tooley J. Falling rates of perinatal postmortem examination: are we to blame? Arch Dis Child Fetal Neonatal Ed 2006;91:F465.
11. McHaffie HE, Fowlie PW, Hume R, et al. Consent to autopsy for neonates. Arch Dis Child Fetal Neonatal Ed 2001;85:F4-7.
12. Rankin J, Wright C, Lind T. Cross sectional survey of parents' experience and views of the postmortem examination. BMJ 2002;324:816-18.
13. Snowdon C, Elbourne DR, Garcia J. Perinatal pathology in the context of a clinical trial: attitudes of bereaved parents. Arch Dis Child Fetal Neonatal Ed 2004;89:F208-11.
14. Rahman HA, Khong TY. Survey of women's reactions to perinatal necropsy. BMJ 1995;310:870-1.
15. Evans M, Robling M, Maggs RF, et al. It doesn't cost anything just to ask, does it? The ethics of questionnaire-based research. J Med Ethics 2002;28:41-4.
16. Kreicbergs U, Valdimarsd́ottir U, Steineck G, et al. A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer. Lancet 2004;364:787-9.
17. Burnell RH, O'Keefe M. Asking parents unaskable questions. Lancet 2004;364:737-8.
18. House of Commons Library. 2001 Census of Population Statistics for Parliamentary Constituencies. http://www.parliament.uk/documents/commons/lib/research/rp2004/rp04-001.pdf 2004 (accessed 19 Jan 2011).
19. Cartwright A, Windsor J. Who else responds to postal questionnaires? Are those involved in the subject of the study more likely to do so? Community Med 1989;11:373-5.
20. Turrell G, Patterson C, Oldenburg B, et al. The socio-economic patterning of survey participation and non-response error in a multilevel study of food purchasing behaviour: area- and individual-level characteristics. Public Health Nutr 2003;6:181-9.