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Volumn 72, Issue 11, 2011, Pages 1810-1816

Moral landscapes and everyday life in families with Huntington's disease: Aligning ethnographic description and bioethics

Author keywords

Bioethics; Denmark; Ethnography; Everyday life; Huntington's disease; Morality

Indexed keywords

DISEASE INCIDENCE; ETHICS; FAMILY STRUCTURE; GENETIC ANALYSIS; MEDICAL GEOGRAPHY; MORALITY; NERVOUS SYSTEM DISORDER; THEORETICAL STUDY;

EID: 79958757488     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2010.06.039     Document Type: Article
Times cited : (24)

References (57)
  • 1
    • 0000149004 scopus 로고    scopus 로고
    • Family values and resistance to genetic testing
    • Temple University Press, Philadelphia, B. Hoffmaster (Ed.)
    • Beeson D., Doksum T. Family values and resistance to genetic testing. Bioethics in social context 2001, Temple University Press, Philadelphia. B. Hoffmaster (Ed.).
    • (2001) Bioethics in social context
    • Beeson, D.1    Doksum, T.2
  • 2
    • 1642414344 scopus 로고    scopus 로고
    • Gino's lesson on humanity: genetics, mutual entanglements and the sociologist's role
    • Callon M., Rabeharisoa V. Gino's lesson on humanity: genetics, mutual entanglements and the sociologist's role. Economy & Society 2004, 33(1):1-27.
    • (2004) Economy & Society , vol.33 , Issue.1 , pp. 1-27
    • Callon, M.1    Rabeharisoa, V.2
  • 5
    • 0004003299 scopus 로고    scopus 로고
    • Blackwell Publishers, Oxford, P. Conrad, J. Gabe (Eds.)
    • Sociological perspectives on the new genetics 1999, Blackwell Publishers, Oxford. P. Conrad, J. Gabe (Eds.).
    • (1999) Sociological perspectives on the new genetics
  • 6
    • 3943063596 scopus 로고    scopus 로고
    • Stories in decisions: how at-risk individuals decide to request predictive testing for Huntington's disease
    • Cox S. Stories in decisions: how at-risk individuals decide to request predictive testing for Huntington's disease. Qualitative Sociology 2003, 26(2):257-280.
    • (2003) Qualitative Sociology , vol.26 , Issue.2 , pp. 257-280
    • Cox, S.1
  • 7
    • 0033181469 scopus 로고    scopus 로고
    • There's this thing in our family: predictive testing and the construction of risk for Huntington's disease
    • Blackwell Publishers, Oxford, P. Conrad, J. Gabe (Eds.)
    • Cox S., McKellin W. There's this thing in our family: predictive testing and the construction of risk for Huntington's disease. Sociological perspectives on the new genetics 1999, Blackwell Publishers, Oxford. P. Conrad, J. Gabe (Eds.).
    • (1999) Sociological perspectives on the new genetics
    • Cox, S.1    McKellin, W.2
  • 9
    • 0004088716 scopus 로고    scopus 로고
    • Reproductive decision-making in families at risk for Huntington's disease: perceptions of responsibility, Doctoral dissertation
    • UK: University of Cambridge
    • Downing, C. (2001). Reproductive decision-making in families at risk for Huntington's disease: perceptions of responsibility, Doctoral dissertation. UK: University of Cambridge.
    • (2001)
    • Downing, C.1
  • 10
    • 0842319543 scopus 로고
    • Personal locations and perspectives - psychological aspects of social practice
    • University of Copenhagen, Museum Tusculanum Press, N. Engelsted, J. Gammelgaard, A.H. Jørgensen, A. Mortensen (Eds.)
    • Dreier O. Personal locations and perspectives - psychological aspects of social practice. Psychological yearbook 1994, Vol. 1:63-90. University of Copenhagen, Museum Tusculanum Press. N. Engelsted, J. Gammelgaard, A.H. Jørgensen, A. Mortensen (Eds.).
    • (1994) Psychological yearbook , vol.1 , pp. 63-90
    • Dreier, O.1
  • 13
    • 1642293394 scopus 로고    scopus 로고
    • The kin in the gene. The medicalization of family and kinship in American Society
    • Finkler K. The kin in the gene. The medicalization of family and kinship in American Society. Current Anthropology 2001, 42(2):235-263.
    • (2001) Current Anthropology , vol.42 , Issue.2 , pp. 235-263
    • Finkler, K.1
  • 15
    • 0742334514 scopus 로고    scopus 로고
    • Life itself: global nature and the genetic imaginary
    • Sage, London, S. Franklin, C. Lury, J. Stacey (Eds.)
    • Franklin S. Life itself: global nature and the genetic imaginary. Global nature, global culture 2000, Sage, London. S. Franklin, C. Lury, J. Stacey (Eds.).
    • (2000) Global nature, global culture
    • Franklin, S.1
  • 16
    • 0010804902 scopus 로고    scopus 로고
    • Routledge, London/NY, M.E. Gardiner (Ed.)
    • Critiques of everyday life 2000, Routledge, London/NY. M.E. Gardiner (Ed.).
    • (2000) Critiques of everyday life
  • 17
    • 0002296179 scopus 로고    scopus 로고
    • Discipline and practice: " The field" as site, method, and location in anthropology
    • University of California Press, Berkeley, Los Angeles/London, A. Gupta, J. Ferguson (Eds.)
    • Gupta A., Ferguson J. Discipline and practice: " The field" as site, method, and location in anthropology. Anthropological locations. Boundaries and grounds of a field science 1997, University of California Press, Berkeley, Los Angeles/London. A. Gupta, J. Ferguson (Eds.).
    • (1997) Anthropological locations. Boundaries and grounds of a field science
    • Gupta, A.1    Ferguson, J.2
  • 18
    • 0003737048 scopus 로고    scopus 로고
    • W.B. Saunders Co. Ltd, London, P.S. Harper (Ed.)
    • Huntington's disease. Major problems in neurology 1996, Vol. 31. W.B. Saunders Co. Ltd, London. 2nd ed. P.S. Harper (Ed.).
    • (1996) Huntington's disease. Major problems in neurology , vol.31
  • 19
    • 33750004459 scopus 로고    scopus 로고
    • " Ethics wars" reflections on the antagonism between bioethicists and social science observers of biomedicine
    • Hoeyer K. " Ethics wars" reflections on the antagonism between bioethicists and social science observers of biomedicine. Human Studies 2006, 29:203-227.
    • (2006) Human Studies , vol.29 , pp. 203-227
    • Hoeyer, K.1
  • 20
    • 0026493866 scopus 로고
    • Can ethnography save the life of medical ethics?
    • Hoffmaster B. Can ethnography save the life of medical ethics?. Social Science & Medicine 1992, 35(12):1421-1431.
    • (1992) Social Science & Medicine , vol.35 , Issue.12 , pp. 1421-1431
    • Hoffmaster, B.1
  • 24
    • 84868916844 scopus 로고
    • Alltägliche lebensführung als subjektwissenschaftliches grundkonzept. Das Argument
    • Holzkamp K. Alltägliche lebensführung als subjektwissenschaftliches grundkonzept. Das Argument. Zeitschrift für Philosophie und Socialwissenschaften 1995, 37(6):817-846.
    • (1995) Zeitschrift für Philosophie und Socialwissenschaften , vol.37 , Issue.6 , pp. 817-846
    • Holzkamp, K.1
  • 25
    • 0842276374 scopus 로고    scopus 로고
    • Huntington's disease in everyday life: Knowledge, ignorance and genetic risk, Doctoral dissertation
    • University of Copenhagen (Publication series at University of Aarhus: Center for Health, Humanity and Culture)
    • Huniche, L. (2002). Huntington's disease in everyday life: Knowledge, ignorance and genetic risk, Doctoral dissertation. University of Copenhagen (Publication series at University of Aarhus: Center for Health, Humanity and Culture).
    • (2002)
    • Huniche, L.1
  • 26
    • 0842330447 scopus 로고    scopus 로고
    • Learning from the voiceless
    • Huniche L. Learning from the voiceless. New Genetics and Society 2003, 22(3):257-269.
    • (2003) New Genetics and Society , vol.22 , Issue.3 , pp. 257-269
    • Huniche, L.1
  • 27
    • 68049095231 scopus 로고    scopus 로고
    • Existential concerns in families with Huntington's disease: towards an understanding of the person in social practice
    • Huniche L. Existential concerns in families with Huntington's disease: towards an understanding of the person in social practice. Theory & Psychology 2009, 19(1):93-113.
    • (2009) Theory & Psychology , vol.19 , Issue.1 , pp. 93-113
    • Huniche, L.1
  • 29
    • 70449707598 scopus 로고    scopus 로고
    • (Re)searching for persons in practice. Field-based methods for psychological practice research
    • Jefferson A., Huniche L. (Re)searching for persons in practice. Field-based methods for psychological practice research. Qualitative Research in Psychology 2009, 6:12-27.
    • (2009) Qualitative Research in Psychology , vol.6 , pp. 12-27
    • Jefferson, A.1    Huniche, L.2
  • 34
    • 9344220060 scopus 로고    scopus 로고
    • The government of genetic knowledge
    • Nordic Academic Press, Lund, S. Lundin, L. Åkesson (Eds.)
    • Koch L. The government of genetic knowledge. Gene technology and economy 2002, Nordic Academic Press, Lund. S. Lundin, L. Åkesson (Eds.).
    • (2002) Gene technology and economy
    • Koch, L.1
  • 35
    • 9644307885 scopus 로고    scopus 로고
    • Providing solutions - defining problems: the imperative of disease prevention in genetic counselling
    • Koch L., Svendsen M.N. Providing solutions - defining problems: the imperative of disease prevention in genetic counselling. Social Science & Medicine 2005, 60:823-832.
    • (2005) Social Science & Medicine , vol.60 , pp. 823-832
    • Koch, L.1    Svendsen, M.N.2
  • 36
    • 79960974262 scopus 로고    scopus 로고
    • Towards a social ontology of learning
    • Aarhus University Press, Aarhus, K. Nielsen, S. Brinkmann, C. Elmholt, L. Tanggaard, P. Musaeus, G. Kraft (Eds.)
    • Lave J., Packer M. Towards a social ontology of learning. A qualitative stance. Essays in honour of Steinar Kvale 2008, Aarhus University Press, Aarhus. K. Nielsen, S. Brinkmann, C. Elmholt, L. Tanggaard, P. Musaeus, G. Kraft (Eds.).
    • (2008) A qualitative stance. Essays in honour of Steinar Kvale
    • Lave, J.1    Packer, M.2
  • 38
    • 65249113524 scopus 로고    scopus 로고
    • Historicity of the subject: subjectivity of life history
    • Captus Press, York/USA, C.W. Tolman, F. Cherry, R. Van Hezewijk, I. Lubek (Eds.)
    • Maiers W. Historicity of the subject: subjectivity of life history. Problems of theoretical psychology 1996, Captus Press, York/USA. C.W. Tolman, F. Cherry, R. Van Hezewijk, I. Lubek (Eds.).
    • (1996) Problems of theoretical psychology
    • Maiers, W.1
  • 39
    • 0000987355 scopus 로고
    • Ethnography in/of the world system: the emergence of multi-sited ethnography
    • Marcus G. Ethnography in/of the world system: the emergence of multi-sited ethnography. Annual Review of Anthropology 1995, 24:95-117.
    • (1995) Annual Review of Anthropology , vol.24 , pp. 95-117
    • Marcus, G.1
  • 40
    • 70449716568 scopus 로고    scopus 로고
    • Critical psychology in a Danish context
    • Retrieved September 26, 2009, from
    • Mørck L.L., Huniche L. Critical psychology in a Danish context. Annual Review of Critical Psychology 2006, 5. Retrieved September 26, 2009, from. http://www.discourseunit.com/arcp/5.htm.
    • (2006) Annual Review of Critical Psychology , vol.5
    • Mørck, L.L.1    Huniche, L.2
  • 43
    • 33644795291 scopus 로고    scopus 로고
    • Genetic knowledge and moral responsibility: ambiguity at the interface of genetic research and clinical practice
    • Pullman D., Holgkinson K. Genetic knowledge and moral responsibility: ambiguity at the interface of genetic research and clinical practice. Clinical Genetics 2006, 69(3):199-203.
    • (2006) Clinical Genetics , vol.69 , Issue.3 , pp. 199-203
    • Pullman, D.1    Holgkinson, K.2
  • 44
    • 0002928765 scopus 로고    scopus 로고
    • Writing. A method of inquiry
    • Sage Publications, California, N.K. Denzin, Y.S. Lincoln (Eds.)
    • Richardson L. Writing. A method of inquiry. Handbook of qualitative research 2000, Sage Publications, California. N.K. Denzin, Y.S. Lincoln (Eds.).
    • (2000) Handbook of qualitative research
    • Richardson, L.1
  • 45
    • 0011038104 scopus 로고    scopus 로고
    • On understanding understanding
    • Schwandt T.A. On understanding understanding. Qualitative Inquiry 1999, 5:451-464.
    • (1999) Qualitative Inquiry , vol.5 , pp. 451-464
    • Schwandt, T.A.1
  • 46
    • 79958716374 scopus 로고    scopus 로고
    • Unstable familial transmissions of Huntington disease alleles with 27-35 CAG repeats (intermediate alleles)
    • Semaka A., Collins J.A., Hayden M.R. Unstable familial transmissions of Huntington disease alleles with 27-35 CAG repeats (intermediate alleles). American Journal of Medical Genetics. Part B 2009.
    • (2009) American Journal of Medical Genetics. Part B
    • Semaka, A.1    Collins, J.A.2    Hayden, M.R.3
  • 48
    • 9644310906 scopus 로고    scopus 로고
    • The space in the gap. A study of the social implications of cancer genetic counselling and testing in Denmark, Doctoral dissertation
    • Institute of Anthropology, University of Copenhagen
    • Svendsen, M. N. (2003). The space in the gap. A study of the social implications of cancer genetic counselling and testing in Denmark, Doctoral dissertation. Institute of Anthropology, University of Copenhagen.
    • (2003)
    • Svendsen, M.N.1
  • 49
    • 0003659388 scopus 로고
    • Philosophical papers 2, Cambridge University Press, Cambridge
    • Taylor C. Philosophy and the human sciences 1985, Philosophical papers 2, Cambridge University Press, Cambridge.
    • (1985) Philosophy and the human sciences
    • Taylor, C.1
  • 52
    • 0020138026 scopus 로고
    • How medicine saved the life of bioethics
    • Toulmin S. How medicine saved the life of bioethics. Perspectives in Biology and Medicine 1982, 25(4):736-750.
    • (1982) Perspectives in Biology and Medicine , vol.25 , Issue.4 , pp. 736-750
    • Toulmin, S.1
  • 53
    • 84936410940 scopus 로고
    • The recovery of practical philosophy
    • Toulmin S. The recovery of practical philosophy. American Scholar 1988, 57:337-359.
    • (1988) American Scholar , vol.57 , pp. 337-359
    • Toulmin, S.1
  • 56
    • 0036719042 scopus 로고    scopus 로고
    • Chorea and community in a nineteenth century town
    • Wexler A. Chorea and community in a nineteenth century town. Bulletin of the History of Medicine 2002, 76(3):495-527.
    • (2002) Bulletin of the History of Medicine , vol.76 , Issue.3 , pp. 495-527
    • Wexler, A.1


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