An analysis of parental roles during haematopoietic stem cell transplantation of their offspring: A qualitative and participant observational study

Journal of Advanced Nursing

Volumn 67, Issue 7, 2011, Pages 1458-1467

  Larsen, Hanne Bækgaard ^a,b   Heilmann, Carsten ^b   Johansen, Christoffer ^c,d   Adamsen, Lis ^a,d,e  

^a Mental Health Services CPH   (Denmark)

^b UNIVERSITY OF COPENHAGEN   (Denmark)

^c Rigshospitalet   (Denmark)

^d INSTITUTE OF CANCER EPIDEMIOLOGY   (Denmark)

^e UNIVERSITY OF SOUTHERN DENMARK   (Denmark)

Author keywords

HSCT; Intervention; Nursing; Parents; Psychosocial; Qualitative

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; CHILD; CHILD HOSPITALIZATION; CHILD PARENT RELATION; EMOTION; FEMALE; HEALTH PERSONNEL ATTITUDE; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMAN; HUMAN RELATION; INFANT; MALE; MENTAL STRESS; NURSING; NURSING METHODOLOGY RESEARCH; PARENT; PATIENT CARE; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; ROLE PLAYING;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CAREGIVERS; CHILD; CHILD, HOSPITALIZED; CHILD, PRESCHOOL; EMOTIONS; FEMALE; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMANS; INFANT; MALE; NURSING METHODOLOGY RESEARCH; PARENT-CHILD RELATIONS; PARENTING; PARENTS; PATIENT ISOLATION; PROFESSIONAL-FAMILY RELATIONS; QUALITATIVE RESEARCH; ROLE; STRESS, PSYCHOLOGICAL;

EID: 79958726910     PISSN: 03092402     EISSN: 13652648     Source Type: Journal    
DOI: 10.1111/j.1365-2648.2010.05587.x     Document Type: Article

References (30)

1. Barrera M. & Atenafu E. (2008) Cognitive, educational, psychosocial adjustment and quality of life of children who survive hematopoietic SCT and their siblings. Bone Marrow Transplantation 42, 15-21.
2. Barrera M., Pringle L.B., Sumbler K. & Saunders F. (2000) Quality of life and behavioural adjustment after pediatric bone marrow transplantation. Bone Marrow Transplantation 26, 427-435.
3. Barrera M., Atenafu E. & Hancock K. (2009) Longitudinal health-related quality of life outcomes and related factors after pediatric SCT. Bone Marrow Transplantation 44(4), 249-256.
4. Bogdewic S.P. (1999) Participant observation. In Doing Qualitative Research, 2nd edn (Crabtree B.F. & Miller W.L., eds), Sage Publication, Thousand Oaks, CA, pp. 37-70.
5. Breiner P. (2007) Ideal-types as 'Utopias' and impartial political clarification: Weber and Mannheim on Sociological Prudence. In Max Weber's "Objectivity" Reconsidered (McFalls L.H. ed.), University of Toronto Press, Toronto, pp. 89-116.
6. Collins R. (1985) Max Weber: A Skeleton Key. Sage Publications, Newbury Park, CA.
7. Copelan E. (2006) Hematopoietic stem cell transplantation. New England Journal of Medicine 354, 17.
8. Dermatis H. & Lesko L. (1990) Psychological distress in parents consenting to child's bone marrow transplant. Bone Marrow Transplantation 6, 411-417.
9. DuHamel K.N., Manne S., Nereo N., Ostroff J., Martini R., Parsons S., Williams S., Mee L., Sexson S., Wu L., Winkel G., Boulad F. & Redd W.H. (2004) Cognitive processing among mothers of children undergoing bone marrow/stem cell transplantation. Psychosomatic Medicine 66, 92-103.
10. DuHamel K.N., Rini C., Austin J., Ostroff J., Parsons S., Martini R., Williams S., Mee L., Sexson S., Winkel G., Boulad F. & Redd W.H. (2007) Optimism and life events as predictors of fear appraisals in mothers of children undergoing hematopoietic stem cell transplantation. Psycho-Oncology 16, 821-833.
11. Hochschild A.R. (2003) The Managed Heart. University of California Press, Berkeley & Los Angeles, CA.
12. Jobe-Shields L., Alderfer M.A., Barrera M., Vannatta K., Currier J.M. & Phipps S. (2009) Parental depression and family environment predict distress in children before stem sell transplantation. Journal of Developmental and Behavioral Pediatrics 30(2), 140-146.
13. Kronenberger W.G., Carter B.D., Edwards J., Morrow C., Stewart J. & Sender L. (1998) Psychosocial adjustment of mothers of children undergoing bone marrow transplantation: the role of stress, coping and family factors. Children's Health Care 27(2), 77-95.
14. Loberiza F.R. Jr, Serna D.S., Horowitz M.M. & Rizzo J.D. (2003) Transplant center characteristics and clinical outcomes after hematopoietic stem cell transplantation: what do we know. Bone Marrow Transplantation 31, 417-421.
15. Malterud K. (2001a) The art and sciences of clinical knowledge: evidence beyond measures and numbers. The Lancet 358, 397-400.
16. Malterud K. (2001b) Qualitative research: standards, challenges, and guidelines. The Lancet 358, 483-488.
17. Manne S., DuHamel K., Nereo N., Ostroff J., Parsons S., Martini R., Williams S., Mee L., Sexson S., Wu L., Difede J. & Redd W.H. (2002) Predictors of PTSD in mothers of children undergoing bone marrow transplantation: the role of cognitive and social processes. Journal of Pediatric Psychology 27(7), 607-617.
18. Manne S., DuHamel K., Winkel G., Ostroff J., Parsons S., Martini R., Williams S.E., Mee L., Austin J. & Redd W.H. (2003) Brief Reports: percieved partner critical and avoidant behaviors as predictors of anxiety and depressive symptoms among mothers of children undergoing hemopaietic stem cell transplantation. Journal of Consulting and Clinical Psychology 71(6), 1076-1083.
19. Manne S., DuHamel K., Ostroff J., Parsons S., Martini R., Williams S.E., Mee L., Sexson S., Austin J., Difede J., Rini C. & Redd W.H. (2004) Anxiety, depressive and posttraumatic stress disorder among mothers of pediatric survivors of hematopoitic stem cell transplantation. Pediatrics 113, 1700-1708.
20. Moore C.W. & Rauch P.K. (2006) Addressing parenting concerns of bone marrow transplant patients: opening and closing Pandora's box. Bone Marrow Transplantation 38(12), 775-782.
21. Oppenheim D., Valteau-Couanet D., Vasselon S. & Hartmann O. (2002) How do parents perceive high-done chemotherapy and autologous stem cell transplantation for their children. Bone Marrow Transplantation 30(1), 35-39.
22. Packman W., Weber S., Wallance J. & Bugescu N. (2010) Psychological effects of hematopoietic SCT on pediatric patients, siblings and parents: a review. Bone Marrow Transplantation 45(1), 1-13.
23. Phipps S., Duvant M., Lensing S. & Rai N. (2005) Psychosocial predictors of distress in parents of children undergoing stem cell or bone marrow transplantation. Journal of Pediatric Psychology 30(2), 139-153.
24. Rini C., DuHamel K.N., Austin J., Ostroff J., Boulad F., Parsons S.K., Martini R., Williams S.E., Mee L., Sexson S. & Redd W. (2004) Mothers' perception of benefit following pediatric stem cell transplantation: a longitudinal investigation of the role of optimism, medical risk, and sociodemographic resources. Annual of Behavioural Medicine 28(2), 132-141.
25. Rini C., Manne S., DuHamel K., Austin J., Ostoff J., Boulad F., Parsons S.K., Martini R., Williams S.E., Mee L., Sexson S. & Redd W.H. (2008) Social support from family and friends as a buffer of low spousal support among mothers of critically ill children: a multilevel modeling approach. Health Psychology 27(5), 593-603.
26. Streisand R., Rodrigue J.R., Houck C., Graham-Pole J. & Berlant N. (2000) Brief Report: Parents of Children Undergoing Bone Marrow Transplantation: Documenting Stress and Piloting a Psychological Intervention Program. Journal of Pediatric Psychology 25(5), 331-337.
27. Tremolada M., Bonichini S., Pillon M., Messina C. & Carli M. (2009) Quality of life and psychosocial sequelae in children undergoing hematopoietic stem-cell transplantation: a review. Pediatric Transplantation 13(8), 955-970.
28. Vrijmoet-Wiersma C.M.J., Kolk A.M., Grootenhuis M.A., Sprek E.M., van Klink J.M.M., Egeler R.M., Bredius R.G.M. & Koopman H.M. (2009a) Child and parental adaption to pediatric stem cell transplantation. Supportive Care in Cancer 17(6), 707-714.
29. Vrijmoet-Wiersma C.M.J., Egeler R.M., Koopman H.M., Norberg A.L. & Grootenhuis M.A. (2009b) Parental stress before, during, and after pediatric stem cell transplantation: a review article. Supportive Care in Cancer 17(12), 1435-1443.
30. Weber M. (2003) The Protestant Ethic and the Spirit of Capitalism. Dover Publications Inc., New York, USA.