메뉴 건너뛰기




Volumn 10, Issue SUPPL. 2, 2011, Pages

The implementation of standards of care in Europe: State of the art

Author keywords

Care; Cystic fibrosis; Demographics

Indexed keywords

ANTIBIOTIC AGENT;

EID: 79958176941     PISSN: 15691993     EISSN: 18735010     Source Type: Journal    
DOI: 10.1016/S1569-1993(11)60003-9     Document Type: Article
Times cited : (45)

References (48)
  • 1
    • 0025868478 scopus 로고
    • Prevention of chronic Pseudomonas aeruginosa infection in cystic fibrosis by early treatment
    • Valerius NH, Koch C, Hoiby N Prevention of chronic Pseudomonas aeruginosa infection in cystic fibrosis by early treatment. Lancet 1991, 338:725-726.
    • (1991) Lancet , vol.338 , pp. 725-726
    • Valerius, N.H.1    Koch, C.2    Hoiby, N.3
  • 2
    • 0029921514 scopus 로고    scopus 로고
    • Improved survival in the Danish center-treated cystic fibrosis patients: results of aggressive treatment
    • Frederikson B, Lanng S, Koch C, Høiby N Improved survival in the Danish center-treated cystic fibrosis patients: results of aggressive treatment. Pediatr Pulmonol 1996, 21:153-158.
    • (1996) Pediatr Pulmonol , vol.21 , pp. 153-158
    • Frederikson, B.1    Lanng, S.2    Koch, C.3    Høiby, N.4
  • 3
    • 34147189596 scopus 로고    scopus 로고
    • Towards zero prevalence of chronic Pseudomonas aeruginosa infection in children with cystic fibrosis
    • Lebecque P, Leal T, Zylberberg K, Reychler G, Bossuyt X, Godding V Towards zero prevalence of chronic Pseudomonas aeruginosa infection in children with cystic fibrosis. J Cyst Fibros 2006, 5:237-244.
    • (2006) J Cyst Fibros , vol.5 , pp. 237-244
    • Lebecque, P.1    Leal, T.2    Zylberberg, K.3    Reychler, G.4    Bossuyt, X.5    Godding, V.6
  • 4
    • 17744372496 scopus 로고    scopus 로고
    • Early diagnosis of cystic fibrosis through neonatal screening prevents severe malnutrition and improves long-term growth
    • Farrell PM, Kosorok MR, Rock MJ, et al. Early diagnosis of cystic fibrosis through neonatal screening prevents severe malnutrition and improves long-term growth. Pediatrics 2001, 107:1-13.
    • (2001) Pediatrics , vol.107 , pp. 1-13
    • Farrell, P.M.1    Kosorok, M.R.2    Rock, M.J.3
  • 5
    • 67349143664 scopus 로고    scopus 로고
    • European best practice guidelines for cystic fibrosis neonatal screening
    • Castellani C, Southern KW, Brownlee K, et al. European best practice guidelines for cystic fibrosis neonatal screening. J Cyst Fibros 2009, 8:153-173.
    • (2009) J Cyst Fibros , vol.8 , pp. 153-173
    • Castellani, C.1    Southern, K.W.2    Brownlee, K.3
  • 7
    • 0032513942 scopus 로고    scopus 로고
    • Clinical outcome in relation to care in centres specialising in cystic fibrosis: cross sectional study
    • Mahadeva R, Webb K, Westerbeek RC, Carroll NR, Dodd ME, Bilton D Clinical outcome in relation to care in centres specialising in cystic fibrosis: cross sectional study. BMJ 1998, 316:1771-1775.
    • (1998) BMJ , vol.316 , pp. 1771-1775
    • Mahadeva, R.1    Webb, K.2    Westerbeek, R.C.3    Carroll, N.R.4    Dodd, M.E.5    Bilton, D.6
  • 8
    • 79958089162 scopus 로고    scopus 로고
    • Standards for the clinical care of children and adults with cystic fibrosis in the UK
    • Cystic Fibrosis Trust, London
    • Standards for the clinical care of children and adults with cystic fibrosis in the UK Cystic Fibrosis Trust Clinical Standards and Accreditation Group 2001, Cystic Fibrosis Trust, London.
    • (2001) Cystic Fibrosis Trust Clinical Standards and Accreditation Group
  • 9
    • 20044373435 scopus 로고    scopus 로고
    • Standards of care for patients with cystic fibrosis: A European consensus
    • for the Consensus Committee
    • Kerem E, Conway S, Elborn S, Heijerman H, for the Consensus Committee Standards of care for patients with cystic fibrosis: A European consensus. J Cyst Fibros 2005, 4:7-26.
    • (2005) J Cyst Fibros , vol.4 , pp. 7-26
    • Kerem, E.1    Conway, S.2    Elborn, S.3    Heijerman, H.4
  • 10
    • 33846910543 scopus 로고    scopus 로고
    • Cystic fibrosis diagnosed after 2 months of age leads to worse outcomes and requires more therapy
    • Sims EJ, Clark A, McCormick J, Mehta G, Connett G, Mehta A Cystic fibrosis diagnosed after 2 months of age leads to worse outcomes and requires more therapy. Pediatrics 2007, 119:19-28.
    • (2007) Pediatrics , vol.119 , pp. 19-28
    • Sims, E.J.1    Clark, A.2    McCormick, J.3    Mehta, G.4    Connett, G.5    Mehta, A.6
  • 11
    • 25144492375 scopus 로고    scopus 로고
    • Newborn screening for cystic fibrosis is associated with reduced treatment intensity
    • Sims EJ, McCormick J, Mehta G, Mehta A Newborn screening for cystic fibrosis is associated with reduced treatment intensity. J Pediatr 2005, 147:306-311.
    • (2005) J Pediatr , vol.147 , pp. 306-311
    • Sims, E.J.1    McCormick, J.2    Mehta, G.3    Mehta, A.4
  • 12
    • 33947155711 scopus 로고    scopus 로고
    • Investigators and coordinators of the epidemiologic study of cystic fibrosis. Infant care patterns at epidemiologic study of cystic fibrosis sites that achieve superior childhood lung function
    • Padman R, McColley SA, Miller DP, et al. Investigators and coordinators of the epidemiologic study of cystic fibrosis. Infant care patterns at epidemiologic study of cystic fibrosis sites that achieve superior childhood lung function. Pediatrics 2007, 119:531-537.
    • (2007) Pediatrics , vol.119 , pp. 531-537
    • Padman, R.1    McColley, S.A.2    Miller, D.P.3
  • 13
    • 0033987539 scopus 로고    scopus 로고
    • Randomized controlled trials in cystic fibrosis (1966-1997) categorized by time, design, and intervention
    • Cheng K, Smyth RL, Motley J, O'Hea U, Ashby D Randomized controlled trials in cystic fibrosis (1966-1997) categorized by time, design, and intervention. Pediatr Pulmonol 2000, 29:1-7.
    • (2000) Pediatr Pulmonol , vol.29 , pp. 1-7
    • Cheng, K.1    Smyth, R.L.2    Motley, J.3    O'Hea, U.4    Ashby, D.5
  • 14
    • 31344454859 scopus 로고    scopus 로고
    • Controlled clinical trials in cystic fibrosis - are we doing better?
    • Briggs TA, Bryant M, Smyth RL Controlled clinical trials in cystic fibrosis - are we doing better?. J Cyst Fibros 2006, 5:3-8.
    • (2006) J Cyst Fibros , vol.5 , pp. 3-8
    • Briggs, T.A.1    Bryant, M.2    Smyth, R.L.3
  • 15
    • 0025644665 scopus 로고
    • Cystic Fibrosis Foundation Center Committee and Guidelines Cystic Fibrosis Foundation Subcommittee
    • Cystic Fibrosis Foundation Guidelines for Patient Services, Evaluation, and Monitoring in Cystic Fibrosis Centers
    • Cystic Fibrosis Foundation Guidelines for Patient Services, Evaluation, and Monitoring in Cystic Fibrosis Centers Cystic Fibrosis Foundation Center Committee and Guidelines Cystic Fibrosis Foundation Subcommittee. Am J Dis Child 1990, 144:1311-1312.
    • (1990) Am J Dis Child , vol.144 , pp. 1311-1312
  • 16
    • 0033773012 scopus 로고    scopus 로고
    • Antibiotic therapy against Pseudomonas aeruginosa in cystic fibrosis: a European consensus
    • Döring G, Conway SP, Heijerman HG, et al. Antibiotic therapy against Pseudomonas aeruginosa in cystic fibrosis: a European consensus. Eur Respir J 2000, 16:749-767.
    • (2000) Eur Respir J , vol.16 , pp. 749-767
    • Döring, G.1    Conway, S.P.2    Heijerman, H.G.3
  • 17
    • 3343023861 scopus 로고    scopus 로고
    • Early intervention and prevention of lung disease in cystic fibrosis: a European consensus
    • for the Consensus Study Group
    • Döring G, Høiby N, for the Consensus Study Group Early intervention and prevention of lung disease in cystic fibrosis: a European consensus. J Cyst Fibros 2004, 3:67-91.
    • (2004) J Cyst Fibros , vol.3 , pp. 67-91
    • Döring, G.1    Høiby, N.2
  • 18
    • 0036299705 scopus 로고    scopus 로고
    • Nutrition in patients with cystic fibrosis: a European Consensus
    • Sinaasappel M, Stern M, Littlewood J, et al. Nutrition in patients with cystic fibrosis: a European Consensus. J Cyst Fibros 2002, 1:51-75.
    • (2002) J Cyst Fibros , vol.1 , pp. 51-75
    • Sinaasappel, M.1    Stern, M.2    Littlewood, J.3
  • 19
    • 20944438424 scopus 로고    scopus 로고
    • Immunisation in the current management of cystic fibrosis patients
    • Malfroot A, Adam G, Ciofu O, et al. Immunisation in the current management of cystic fibrosis patients. J Cyst Fibros 2005, 4:77-87.
    • (2005) J Cyst Fibros , vol.4 , pp. 77-87
    • Malfroot, A.1    Adam, G.2    Ciofu, O.3
  • 20
    • 37449031999 scopus 로고    scopus 로고
    • Guidelines for the management of pregnancy in women with cystic fibrosis
    • Edenborough FP, Borgo C, Knoop C, et al. Guidelines for the management of pregnancy in women with cystic fibrosis. J Cyst Fibros 2008, 7(Suppl 1):S1-32.
    • (2008) J Cyst Fibros , vol.7 , Issue.SUPPL. 1
    • Edenborough, F.P.1    Borgo, C.2    Knoop, C.3
  • 21
    • 43549114493 scopus 로고    scopus 로고
    • Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice
    • Castellani C, Cuppens H, Macek M Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice. J Cyst Fibros 2008, 7:179-196.
    • (2008) J Cyst Fibros , vol.7 , pp. 179-196
    • Castellani, C.1    Cuppens, H.2    Macek, M.3
  • 22
    • 57649155710 scopus 로고    scopus 로고
    • A European consensus for the evaluation and management of infants with an equivocal diagnosis following newborn screening for cystic fibrosis. On behalf of the European Cystic Fibrosis Society Neonatal Screening Working Group
    • Mayell SJ, Munck A, Craig JV, et al. A European consensus for the evaluation and management of infants with an equivocal diagnosis following newborn screening for cystic fibrosis. On behalf of the European Cystic Fibrosis Society Neonatal Screening Working Group. J Cyst Fibros 2009, 8:71-78.
    • (2009) J Cyst Fibros , vol.8 , pp. 71-78
    • Mayell, S.J.1    Munck, A.2    Craig, J.V.3
  • 23
    • 69549098338 scopus 로고    scopus 로고
    • Implementation of European standards of care for cystic fibrosis - provision of care
    • Elborn JS, Hodson M, Bertram C Implementation of European standards of care for cystic fibrosis - provision of care. J Cyst Fibros 2009, 8:348-355.
    • (2009) J Cyst Fibros , vol.8 , pp. 348-355
    • Elborn, J.S.1    Hodson, M.2    Bertram, C.3
  • 24
    • 67349236628 scopus 로고    scopus 로고
    • Implementation of standards of care for cystic fibrosis - control and treatment of infection
    • Elborn JS, Hodson ME, Bertram C Implementation of standards of care for cystic fibrosis - control and treatment of infection. J Cyst Fibros 2009, 8:211-217.
    • (2009) J Cyst Fibros , vol.8 , pp. 211-217
    • Elborn, J.S.1    Hodson, M.E.2    Bertram, C.3
  • 25
    • 0021342474 scopus 로고
    • Cystic fibrosis mortality in England and Wales and Victoria Australia
    • Phelan P, Hey E Cystic fibrosis mortality in England and Wales and Victoria Australia. Arch Dis Child 1984, 59:71-73.
    • (1984) Arch Dis Child , vol.59 , pp. 71-73
    • Phelan, P.1    Hey, E.2
  • 26
    • 79958101628 scopus 로고
    • Survival in cystic fibrosis: correlation with treatment in three cystic fibrosis centers. 10th International Cystic Fibrosis Congress, Sydney
    • Wood RE, Piazza F Survival in cystic fibrosis: correlation with treatment in three cystic fibrosis centers. 10th International Cystic Fibrosis Congress, Sydney. Excerpta Medica Asia Pacific Services 1988, 74:89.
    • (1988) Excerpta Medica Asia Pacific Services , vol.74 , pp. 89
    • Wood, R.E.1    Piazza, F.2
  • 27
    • 0023923679 scopus 로고
    • A comparison of survival growth and pulmonary function in patients with cystic fibrosis in Boston and Toronto
    • Corey M, McLaughlin FJ, Williams M, Levison H A comparison of survival growth and pulmonary function in patients with cystic fibrosis in Boston and Toronto. J Clin Epidemiol 1988, 41:588-591.
    • (1988) J Clin Epidemiol , vol.41 , pp. 588-591
    • Corey, M.1    McLaughlin, F.J.2    Williams, M.3    Levison, H.4
  • 30
    • 14844306793 scopus 로고    scopus 로고
    • Using data to identify opportunities for change and to monitor progress
    • Quinton H Using data to identify opportunities for change and to monitor progress. Pediatr Pulmonol Suppl 2004, 27:124-125.
    • (2004) Pediatr Pulmonol Suppl , vol.27 , pp. 124-125
    • Quinton, H.1
  • 31
    • 34247522808 scopus 로고    scopus 로고
    • O'Connor GT. Current issues in quality improvement in cystic fibrosis
    • Quinton HB O'Connor GT. Current issues in quality improvement in cystic fibrosis. Clin Chest Med 2007, 28:459-472.
    • (2007) Clin Chest Med , vol.28 , pp. 459-472
    • Quinton, H.B.1
  • 32
    • 79958141312 scopus 로고
    • Life table studies of mortality. In: Rossi E, Stoll E (eds.). Cystic Fibrosis Part I. Physiology and pathophysiology of serum secretion clinical investigation and therapy. Proc 4th Int Conf on CF. Geigy Symposium Berne/Grundewald (Modern Problems in Pediatrics). Karger: Basle and New York
    • Warwick WJ, Manson S. Life table studies of mortality. In: Rossi E, Stoll E (eds.). Cystic Fibrosis Part I. Physiology and pathophysiology of serum secretion clinical investigation and therapy. Proc 4th Int Conf on CF. Geigy Symposium Berne/Grundewald 1966 (Modern Problems in Pediatrics Vol 10). Karger: Basle and New York; p. 353.
    • (1966) , vol.10 , pp. 353
    • Warwick, W.J.1    Manson, S.2
  • 33
    • 0020403593 scopus 로고
    • Cystic fibrosis in Denmark in the period 1945-1981. Evaluation of centralized treatment
    • Nielsen OH, Schoitz O Cystic fibrosis in Denmark in the period 1945-1981. Evaluation of centralized treatment. Acta Paediatr Scand Suppl 1982, 301:107-119.
    • (1982) Acta Paediatr Scand Suppl , vol.301 , pp. 107-119
    • Nielsen, O.H.1    Schoitz, O.2
  • 35
    • 0034887898 scopus 로고    scopus 로고
    • Influence of neonatal screening and centralized treatment on long-term clinical outcome and survival in CF patients
    • Merelle ME, Schouten JP, Gerritsen J, Dankert-Roelse JE Influence of neonatal screening and centralized treatment on long-term clinical outcome and survival in CF patients. Eur Resp J 2001, 18:306-315.
    • (2001) Eur Resp J , vol.18 , pp. 306-315
    • Merelle, M.E.1    Schouten, J.P.2    Gerritsen, J.3    Dankert-Roelse, J.E.4
  • 36
    • 57649176886 scopus 로고    scopus 로고
    • Early referral to cystic fibrosis specialist centre impacts on respiratory outcome
    • Lebecque P, Leonard A, De Boeck K, et al. Early referral to cystic fibrosis specialist centre impacts on respiratory outcome. J Cyst Fibros 2009, 8:26-30.
    • (2009) J Cyst Fibros , vol.8 , pp. 26-30
    • Lebecque, P.1    Leonard, A.2    De Boeck, K.3
  • 37
    • 45849099155 scopus 로고    scopus 로고
    • German Cystic Fibrosis Quality Assessment Group. From registry to quality management: the German Cystic Fibrosis Quality Assessment project 1995-2006
    • Stern M, Wiedemann B, Wenzlaff P German Cystic Fibrosis Quality Assessment Group. From registry to quality management: the German Cystic Fibrosis Quality Assessment project 1995-2006. Eur Respir J 2008, 31:29-35.
    • (2008) Eur Respir J , vol.31 , pp. 29-35
    • Stern, M.1    Wiedemann, B.2    Wenzlaff, P.3
  • 39
    • 79958145955 scopus 로고    scopus 로고
    • The Israeli cystic fibrosis database - genetic and clinical characteristics
    • Mei-Zahay M, Yahav Y, Kerem E, et al. The Israeli cystic fibrosis database - genetic and clinical characteristics. Pediatr Pulmonol Suppl 2009, 32:378.
    • (2009) Pediatr Pulmonol Suppl , vol.32 , pp. 378
    • Mei-Zahay, M.1    Yahav, Y.2    Kerem, E.3
  • 40
    • 79958086373 scopus 로고    scopus 로고
    • Differences in treatment and outcome between the USA and Sweden
    • Lindblad A, Hjelte L, Mared L, et al. Differences in treatment and outcome between the USA and Sweden. Pediatr Pulmonol Suppl 2009, 32:376.
    • (2009) Pediatr Pulmonol Suppl , vol.32 , pp. 376
    • Lindblad, A.1    Hjelte, L.2    Mared, L.3
  • 41
    • 79958150554 scopus 로고    scopus 로고
    • A costing and severity banding exercise in patients with cystic fibrosis in the UK for 2007 and 2008
    • Gunn E, Osmond J, Baker M, Larsen A, Bilton D A costing and severity banding exercise in patients with cystic fibrosis in the UK for 2007 and 2008. Pediatr Pulmonol Suppl 2009, 32:394.
    • (2009) Pediatr Pulmonol Suppl , vol.32 , pp. 394
    • Gunn, E.1    Osmond, J.2    Baker, M.3    Larsen, A.4    Bilton, D.5
  • 42
    • 67649792041 scopus 로고    scopus 로고
    • An overview of international literature from cystic fibrosis registries: 1. Mortality and survival studies in cystic fibrosis
    • Buzzetti R, Salvatore D, Baldo E, et al. An overview of international literature from cystic fibrosis registries: 1. Mortality and survival studies in cystic fibrosis. J Cyst Fibros 2009, 8:229-237.
    • (2009) J Cyst Fibros , vol.8 , pp. 229-237
    • Buzzetti, R.1    Salvatore, D.2    Baldo, E.3
  • 43
    • 77949728437 scopus 로고    scopus 로고
    • Comparative demographics of the European cystic fibrosis population: a cross sectional database analysis
    • European Registry Working Group
    • McCormick J, Mehta G, Olesen HV, Viviani L, Macek M, Mehta A, European Registry Working Group Comparative demographics of the European cystic fibrosis population: a cross sectional database analysis. Lancet 2010, 375:1007-1013.
    • (2010) Lancet , vol.375 , pp. 1007-1013
    • McCormick, J.1    Mehta, G.2    Olesen, H.V.3    Viviani, L.4    Macek, M.5    Mehta, A.6
  • 44
    • 51349100398 scopus 로고    scopus 로고
    • The prevalence of cystic fibrosis in the European Union
    • Farrell PM The prevalence of cystic fibrosis in the European Union. J Cyst Fibros 2008, 7:450-453.
    • (2008) J Cyst Fibros , vol.7 , pp. 450-453
    • Farrell, P.M.1
  • 45
    • 0036258208 scopus 로고    scopus 로고
    • Cystic fibrosis: A worldwide analysis of CFTR mutations - Correlation with incidence data and application to screening
    • Bobadilla JL, Macek M, Fine JP, Farrell PM Cystic fibrosis: A worldwide analysis of CFTR mutations - Correlation with incidence data and application to screening. Hum Mutat 2002, 19:575-606.
    • (2002) Hum Mutat , vol.19 , pp. 575-606
    • Bobadilla, J.L.1    Macek, M.2    Fine, J.P.3    Farrell, P.M.4
  • 46
    • 79958153078 scopus 로고    scopus 로고
    • Personal communication
    • Kahre D. Personal communication, 2010.
    • (2010)
    • Kahre, D.1
  • 47
    • 0026026265 scopus 로고
    • Neonatal screening for cystic fibrosis in Wales and the West Midlands: clinical assessment after five years of screening
    • Chatfield S, Owen G, Ryley HC, et al. Neonatal screening for cystic fibrosis in Wales and the West Midlands: clinical assessment after five years of screening. Arch Dis Child 1991, 66:29-33.
    • (1991) Arch Dis Child , vol.66 , pp. 29-33
    • Chatfield, S.1    Owen, G.2    Ryley, H.C.3
  • 48
    • 67650712233 scopus 로고    scopus 로고
    • Lung disease at diagnosis in infants with cystic fibrosis detected by newborn screening
    • Sly PD, Brennan S, Gangell C, et al. Lung disease at diagnosis in infants with cystic fibrosis detected by newborn screening. Am J Resp Crit Care 2009, 180:146-152.
    • (2009) Am J Resp Crit Care , vol.180 , pp. 146-152
    • Sly, P.D.1    Brennan, S.2    Gangell, C.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.