Pediatric palliative care patients: A prospective multicenter cohort study

Pediatrics

Volumn 127, Issue 6, 2011, Pages 1094-1101

  Feudtner, Chris ^a   Kang, Tammy I ^a   Hexem, Kari R ^a   Friedrichsdorf, Stefan J ^b   Osenga, Kaci ^b   Siden, Harold ^c   Friebert, Sarah E ^d   Hays, Ross M ^e   Dussel, Veronica ^f   Wolfe, Joanne ^f  

^a CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^b CHILDREN S HOSPITALS AND CLINICS OF MINNESOTA   (United States)

^c UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^d AKRON CHILDREN'S HOSPITAL   (United States)

^e SEATTLE CHILDREN S HOSPITAL   (United States)

^f BOSTON CHILDREN S HOSPITAL   (United States)

Author keywords

Chronic illness; Hospice care; Palliative care; Pediatric care; Polypharmacy; Technology dependence

Indexed keywords

ADOLESCENT; ADULT; AGE DISTRIBUTION; ARTICLE; CANADA; CARDIOVASCULAR DISEASE; CHILD; CHILD CARE; CHILD PARENT RELATION; CHILDHOOD MORTALITY; COGNITIVE DEFECT; COHORT ANALYSIS; CONGENITAL DISORDER; CONTROLLED STUDY; FEMALE; GASTROINTESTINAL DISEASE; GASTROSTOMY; GENETIC DISORDER; HISPANIC; HOSPITAL CARE; HUMAN; INFANT; LONG TERM CARE; MAJOR CLINICAL STUDY; MALE; MALIGNANT NEOPLASTIC DISEASE; MULTICENTER STUDY (TOPIC); NEUROMUSCULAR DISEASE; OBSERVATIONAL STUDY; OUTCOME ASSESSMENT; PAIN; PALLIATIVE THERAPY; PEDIATRIC PALLIATIVE CARE; POLYPHARMACY; PRESCHOOL CHILD; PRIORITY JOURNAL; PROSPECTIVE STUDY; RACE DIFFERENCE; RESPIRATORY TRACT DISEASE; SCHOOL CHILD; SEX DIFFERENCE; SIBLING; TIME OF DEATH; UNITED STATES;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; ELIGIBILITY DETERMINATION; FEMALE; FOLLOW-UP STUDIES; HOSPITALIZATION; HUMANS; INFANT; INFANT, NEWBORN; MALE; MEDICAL AUDIT; PALLIATIVE CARE; PREVALENCE; PROSPECTIVE STUDIES; UNITED STATES; YOUNG ADULT;

EID: 79957914830     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2010-3225     Document Type: Article

References (16)

1. Field MJ, Behrman RE, Institute of Medicine (US). Committee on Palliative and End-of-Life Care for Children and Their Families. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: National Academy Press; 2003
2. Knapp CA. Research in pediatric palliative care: closing the gap between what is and is not known. Am J Hosp Palliat Care. 2009;26(5):392-398
3. Lagman R, Rivera N, Walsh D, LeGrand S, Davis MP. Acute inpatient palliative medicine in a cancer center: clinical problems and medical interventions - a prospective study. Am J Hosp Palliat Care. 2007;24(1):20-28
4. Lagman RL, Walsh D, Davis MP, Young B. All patient refined-diagnostic related group and case mix index in acute care palliative medicine. J Support Oncol. 2007;5(3):145-149 (Pubitemid 46779583)
5. Shah M, Quill T, Norton S, Sada Y, Buckley M, Fridd C. "What bothers you the most?" Initial responses from patients receiving palliative care consultation. Am J Hosp Palliat Care. 2008;25(2):88-92
6. Delgado-Guay MO, Parsons HA, Li Z, Palmer LJ, Bruera E. Symptom distress, interventions, and outcomes of intensive care unit cancer patients referred to a palliative care consult team. Cancer. 2009;115(2):437-445
7. Fadul NA, El Osta B, Dalal S, Poulter VA, Bruera E. Comparison of symptom burden among patients referred to palliative care with hematologic malignancies versus those with solid tumors. J Palliat Med. 2008;11(3):422-427 (Pubitemid 351440550)
8. Fromme EK, Bascom PB, Smith MD, et al. Survival, mortality, and location of death for patients seen by a hospital-based palliative care team. J Palliat Med. 2006;9(4):903-911 (Pubitemid 44289911)
9. Good PD, Cavenagh J, Ravenscroft PJ. Survival after enrollment in an Australian palliative care program. J Pain Symptom Manage. 2004;27(4):310-315 (Pubitemid 38410898)
10. Cheng WW, Willey J, Palmer JL, Zhang T, Bruera E. Interval between palliative care referral and death among patients treated at a comprehensive cancer center. J Palliat Med. 2005;8(5):1025-1032 (Pubitemid 41579244)
11. Osta BE, Palmer JL, Paraskevopoulos T, et al. Interval between first palliative care consult and death in patients diagnosed with advanced cancer at a comprehensive cancer center. J Palliat Med. 2008;11(1):51-57
12. Morrison RS, Maroney-Galin C, Kralovec PD, Meier DE. The growth of palliative care programs in United States hospitals. J Palliat Med. 2005;8(6):1127-1134 (Pubitemid 43010544)
13. Brody AA, Ciemins E, Newman J, Harrington C. The effects of an inpatient palliative care team on discharge disposition. J Palliat Med. 2010;13(5):541-548
14. Meier DE, Beresford L. Palliative care in long-term care: how can hospital teams interface? J Palliat Med. 2010;13(2):111-115
15. Himelstein BP, Hilden JM, Boldt AM, Weissman D. Pediatric palliative care. N Engl J Med. 2004;350(17):1752-1762 (Pubitemid 38501144)
16. Liben S, Papadatou D, Wolfe J. Paediatric palliative care: challenges and emerging ideas. Lancet. 2008;371(9615):852-864 (Pubitemid 351337579)