Older peoples' descriptions of becoming and being respite care recipients

Journal of Housing for the Elderly

Volumn 25, Issue 2, 2011, Pages 159-174

  Svensson, Ann Marie ^a   Bergh, Ingrid ^a   Jakobsson, Eva ^b  

^a UNIVERSITY OF SKÖVDE   (Sweden)

^b UNIVERSITY OF GOTHENBURG   (Sweden)

Author keywords

Community care; Frail older people; Interviews; Residential care facilities; Respite care

Indexed keywords

EID: 79957847773     PISSN: 02763893     EISSN: 1540353X     Source Type: Journal    
DOI: 10.1080/02763893.2011.571101     Document Type: Article

References (44)

1. Abramson, C. M. (2009). Who are the clients? Goal displacement in an adult day care center for elders with dementia. International Journal of Aging & Human Development, 68, 65-92.
2. Bergh, M. (2002). Medvetenhet om bem̈otande. En studie om sjuksk̈oterskans pedagogiska funktion och kompetens i n̈ arst ° aendeundervisning. [Awareness of meeting. A study of the nurse's pedagogical function and competence in teaching patients' relatives and sicnificant others]. The Sahlgrenska Academy, University of Gotheburg: Acta Universitatis Gothoburgensis. (Published doctoral thesis). [In Swedish].
3. Cummings, S. M., Long, J. K., Peterson-Hazan, S., & Harrison, J. (1999). The efficacy of age group treatment model in helping spouses meet the emotional and practical challenges of early stage caregiving. Clinical Gerontologist, 20, 29-45.
4. Declaration of Helsinki. (2002). World Medical Association Declaration of Helsinki ethical principles for medical research involving human subjects. Journal of Postgraduate Medicine, 48, 206-208.
5. Feinberg, L. F., & Whitlatch, C. J. (1998). Family caregivers and in-home respite options: the consumer-directed versus agency-based experience. Journal of Gerontological Social Work, 30(3/4), 9-28.
6. Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105-112.
7. Hanson, E. J., Tetley, J., & Clarke, A. (1999). Respite care for frail older people and their family carers: concept analysis and user focus group findings of a pan-European nursing research project. Journal of Advanced Nursing, 30, 1396-1407.
8. Hobbs, F., & Stoops, N. (2002). Demographic Trends in the 20th Century. Washington, DC: U.S. Government Printing Office.
9. Janlov, A. C., Hallberg, I. R., & Petersson, K. (2006). Older persons' experience of being assessed for and receiving public home help: do they have any influence over it? Health & Social Care in the Community, 14, 26-36.
10. Jeon, Y. H., Brodaty, H., & Chesterson, J. (2005). Respite care for caregivers and people with severe mental illness: literature review. Journal of Advanced Nursing, 49, 297-306.
11. Kim, H. S. (2000). The nature of theoretical thinking in nursing (2nd rev. ed.). New York, NY: Springer Publishing Company.
12. Krippendorff, K. (2004). Content analysis: An introduction to its methodology (2nd ed.). Thousand Oaks, CA: Sage Publications.
13. Larkin, J. P., & Hopcroft, B. M. (1993). In-hospital respite as a moderator of caregiver stress. Health and Social Work, 18, 132-138.
14. Lee, D. T., Woo, J., & Mackenzie, A. E. (2002). A review of older people's experiences with residential care placement. Journal of Advanced Nursing, 37, 19-27.
15. Levenson, J. W., McCarthy, E. P., Lynn, J., Davis, R. B., & Phillips, R. S. (2000). The last six months of life for patients with congestive heart failure. Journal of the American Geriatrics Society, 48(5 Suppl), S101-S109.
16. MeSH. (2008). MeSH Database, U.S. National Library of Medicine.
17. Ministry of Health and Social Affairs. (1982). The health and medical service act. Sweden. Stockholm, Sweden: Swedish Government.
18. Mossberg-Sand, A.-B. (2000). Ansvar, k̈arlek och f̈ors̈orjning: Om ansẗallda anḧorig v°ardare i Sverige. [Responsibility, love and maintenance: on employed relative carers]: Department of Sociology (No. 76), University of Gothenburg (Published doctoral thesis). [In Swedish].
19. NBHW. (2007). Current developments in care of the elderly in Sweden. Retrieved from http://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/9296/2007-131-40200713140.pdf
20. Neville, C. C., & Byrne, G. J. (2002). Behaviour of older people admitted for residential respite care. The Australian Journal of Advanced Nursing, 20, 8-12.
21. Neville, C. C., & Byrne, G. J. (2006). The impact of residential respite care on the behavior of older people. International Psychogeriatrics, 18, 163-170.
22. Neville, C. C., & Byrne, G. J. (2007). Staff and home caregiver expectations of residential respite care for older people. Collegian, 14(2), 27-31.
23. Nolan, M., & Grant, G. (1992). Mid-range theory building and the nursing theorypractice gap: a respite care case study. Journal of Advanced Nursing, 17, 217-223.
24. Nolan, M., Walker, G., Nolan, J., Williams, S., Poland, F., Curran, M., et al. (1996). Entry to care: positive choice or fait accompli? Developing a more proactive nursing response to the needs of older people and their carers. Journal of Advanced Nursing, 24, 265-274.
25. Polit, D. F., & Tantano Beck, C. (2004). Nursing research: Principles and methods (7th ed.). Philadelphia, PA: Lippincott William & Wilkins.
26. Prop 1997/1998:113. Nationell handlingsplan f̈or̈ aldrepolitik [National Plan of Action for Care of the Elderly]. Health and Social Affairs, Swedish Government Offices.
27. Salin, S., & Astedt-Kurki, P. (2007). Women's views of caring for family members: use of respite care. Journal of Gerontological Nursing, 33(9), 37-45.
28. Sandelowski, M. (2000). Focus on research methods. Whatever happened to qualitative description? Research in Nursing & Health, 23, 334-340.
29. SCB. (2007). Statistisk°arsbok f̈or Sverige [Statistical Yearbook of Sweden]. Stockholm: Statistics Sweden.
30. Seymour, J. E., & Hanson, E. (2001). Palliative care and older people. In M. Nolan, S. Davies, & G. Grant (Eds.), Working with older people and their families (pp. 99-119). Milton Keynes, England: Open University Press, Buckingham.
31. Skilbeck, J. K., Payne, S. A., Ingleton, M. C., Nolan, M., Carey, I., & Hanson, A. (2005). An exploration of family carers' experience of respite services in one specialist palliative care unit. Palliative Medicine, 19, 610-618.
32. Socialstyrelsen. (2000).̈ Aldreuppdraget-Slutrapport [Report on the care of Elderly]. Stockholm, Sweden: The National Board of Health and Welfare.
33. Socialstyrelsen. (2002). Kommunens sẗod till anḧorigv°ardare, - anḧorigas erfarenheter och synpunkter [Municipality support to family carers]. Stockholm, Sweden: The National Board of Health and Welfare.
34. Somogyi-Zalud, E., Zhong, Z., Lynn, J., & Hamel, M. B. (2000). Elderly persons' last six months of life: findings from the Hospitalized Elderly Longitudinal Project. Journal of the American Geriatrics Society, 48(5 Suppl), S131-S139.
35. SOU. (2004). Sammanh°allen hemv°ard 2004:68 [Integrated Home Care], Ministry of Health and Social Affairs, Health Care Division. Sweden.
36. Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., McIntyre, L., & Tulsky, J. A. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. The Journal of the American Medical AssociationJAMA, 284, 2476-2482.
37. Stewart, M. J., Doble, S., Hart, G., Langille, L., & MacPherson, K. (1998). Peer visitor support for family caregivers of seniors with stroke. The Canadian Journal of Nursing Research, 30, 87-117.
38. Stoltz, P., Uden, G., & Willman, A. (2004). Support for family carers who care for an elderly person at home: A systematic literature review. Scandinavian Journal of Caring Sciences, 18, 111-119.
39. Strang, V. R., & Haughey, M. (1998). Factors influencing the caregiver's ability to experience respite. Journal of Family Nursing, 4, 231-254.
40. Sundstrom, G., Johansson, L., & Hassing, L. B. (2002). The shifting balance of longterm care in Sweden. Gerontologist, 42, 350-355.
41. Thome, B., Dykes, A. K., & Hallberg, I. R. (2003). Home care with regard to definition, care recipients, content and outcome: systematic literature review. Journal of Clinical Nursing, 12, 860-872.
42. Tomassini, C. (2004). Demographic data needs for an ageing population. Population Trends, 118, 23-29.
43. van Exel, J., de Graaf, G., & Brouwer, W. (2008). Give me a break! Informal caregiver attitudes towards respite care. Health Policy, 88(1), 73-87.
44. Werkander, C., & Andershed, B. (2004). Good palliative care: how and where? The patients' opinions. Journal of Hospice and Palliative Nursing, 6(1), 27-35.