Creating an assistive technology clinic: The experience of the Johns Hopkins at Clinic for patients with ALS

NeuroRehabilitation

Volumn 28, Issue 3, 2011, Pages 281-293

  Casey, Kelly Showalter ^a  

^a JOHNS HOPKINS HOSPITAL   (United States)

Author keywords

Amyotrophic Lateral Sclerosis (ALS); assistive technology; multidisciplinary clinic; occupational therapy; speech language pathology

Indexed keywords

AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; ASSISTIVE TECHNOLOGY; ASSISTIVE TECHNOLOGY DEVICE; COMPUTER; COST EFFECTIVENESS ANALYSIS; HEALTH CARE ACCESS; HEALTH CARE FACILITY; HEALTH CARE ORGANIZATION; HOSPITAL; HOSPITAL PERSONNEL; HUMAN; MEDICAL EDUCATION; PROGRAM DEVELOPMENT;

AMBULATORY CARE FACILITIES; AMYOTROPHIC LATERAL SCLEROSIS; BIOETHICS; FINANCIAL SUPPORT; HUMANS; INTERDISCIPLINARY COMMUNICATION; OCCUPATIONAL THERAPY; PERSONNEL STAFFING AND SCHEDULING; PROGRAM DEVELOPMENT; QUALITY OF LIFE; SELF-HELP DEVICES; SPEECH-LANGUAGE PATHOLOGY; TREATMENT OUTCOME;

EID: 79957824485     PISSN: 10538135     EISSN: 18786448     Source Type: Journal    
DOI: 10.3233/NRE-2011-0656     Document Type: Article

References (23)

1. AACRERC, (n.d.) Medicare funding of AAC technology: Who is eligible and other basic information, Retrieved 14 July 2010 from http://aacrerc. psu.edu/index31071. php.html.
2. AOTA, (n.d.). Retrieved 14 July 2010 from www.aota.org.
3. L. Ball, D. Beukelman, E. Anderson, D. Bileyeu, J. Robertson and G. Pattee, Duration of AAC technology use by persons with ALS, Journal ofMedical Speech Language Pathology 15 (2007), 371-381.
4. L. Ball, D. Beukelman and G. Pattee, Augmentative and alternative communication acceptance by persons with amyotrophic lateral sclerosis, Augmentative and Alternative Communication 20 (2004), 113-123.
5. D. Beukelman, L. Ball and S. Fager, An AAC Personnel Framework: Adults with acquired complex communication needs, Augmentative and Alternative Communication 24(3) (2008), 255-267.
6. D. Beukelman, S. Fager, L. Ball and A. Dietz, AAC for adults with acquired neurological conditions: A review, Augmentative and Alternative Communication 23(3) (2007), 230-242. (Pubitemid 47299521)
7. G. Borasio and R.Miller, Clinical characteristics and management of ALS, Seminars in Neurology 21 (2001), 155-166. (Pubitemid 32578727)
8. A. Brownlee and M. Palovcak, The role of augmentative communication devices in the medical management of ALS, Journal of Neurorehabilitation 22 (2007), 445-450.
9. A. Chio, G. Logroscino, O. Hardiman, R. Swingler, D. Mitchell, E. Beghi et al., Prognostic factors in ALS: A critical review, Amyotrophic Lateral Sclerosis: Official Publication of the World Federation of Neurology Research Group on Motor Neuron Diseases 10(5-6) (2009), 310-323.
10. Closing the Gap, (n.d.). Retrieved 14 July 2010 from http://www. closingthegap.com/.
11. M. Doyle and B. Phillips, Trends in augmentative and alternative communication use by individuals with amyotrophic lateral sclerosis, AAC Augmentative and Alternative Communication 17 (2001), 167-178. (Pubitemid 32887938)
12. M. FriedOken, L. Fox, M. Rau, J. Tullman, G. Baker, M. Hindal et al., Purposes of AAC device for persons with ALS as reported by caregivers, Augmentative and Alternative Communication 22 (2006), 209-221. (Pubitemid 44350010)
13. I. Laffont et al., Home trials of a speech synthesizer in severe dysarthria: Patterns of use, satisfaction and utility ofword prediction, Journal of Rehabilitation Medicine 39 (2007), 399-404.
14. MDA, (n.d.). Retrieved 14 July 2010 from http://www.alsmda. org/services.html.
15. H. Mitsumoto and M. Del Bene, Improving the quality of life for people with ALS: The challenge ahead, Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders: Official Publication of the World Federation of Neurology, Research Group on Motor Neuron Diseases 1(5) (2000), 329-336.
16. Prentke Romich Company, (n.d.). Retrieved July 14, 2010 from www.prentrom.com.
17. RESNA, Rehabilitation Engineering and Assistive Technology Society of North America (n.d.). Retrieved July 14, 2010 from http://resna.org/.
18. RESNAATP certification, Rehabilitation Engineering and Assistive Technology Society of North America (n.d.). retrieved October 11, 2010 from http://resna.org/certifications/whatiscertification.
19. K. Showalter, An occupational therapy practice model for persons with ALS, Unpublished manuscript, Virginia Commonwealth University, 2008.
20. M. Soriani and C. Desnuelle, Epidemiology of amyotrophic lateral sclerosis, Revue Neurologique 165(8-9) (2009), 627-640.
21. The Robert Packard Center for ALS Research at Johns Hopkins, (n.d.). ALS Statistics. Retrieved 13 July 2010, from http://www.alscenter.org/living with als/facts statistics.html.
22. B. Traynor,M.Alexander, B. Corr et al., Effect of amultidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: a population based study, 1996-2000, Journal of Neurology, Neurosurgery and Psychiatry 74 (2003), 1258-1261.
23. C. Warren, Cost effectiveness and effectiveness in assistive technology service delivery, Rehabilitation Medicine and Bioengineering 5(2) (1993), 61-65.