Challenging symptom profiles of life-limiting conditions in children: A survey of care professionals and families

Palliative Medicine

Volumn 25, Issue 4, 2011, Pages 357-364

  Malcolm, Cari ^a   Forbat, Liz ^a   Anderson, Gillian ^a   Gibson, Faith ^b   Hain, Richard ^c  

^a UNIVERSITY OF STIRLING   (United Kingdom)

^b LONDON SOUTH BANK UNIVERSITY   (United Kingdom)

^c CARDIFF UNIVERSITY   (United Kingdom)

Author keywords

Children; palliative care; symptom

Indexed keywords

AGYRIA; ANENCEPHALUS; ARTICLE; CHILDHOOD DISEASE; COMPLEX EPILEPTIC AND EPILEPTIFORM SEIZURE; DIGEORGE SYNDROME; DISEASE COURSE; EDWARDS SYNDROME; EPIDERMOLYSIS BULLOSA; EPIDERMOLYSIS BULLOSA JUNCTIONAL TYPE; EPIDERMOLYSIS BULLOSA MOSAIC TYPE; EPILEPSY; FAMILY; GENETIC DISORDER; HEALTH CARE PERSONNEL; HEALTH SURVEY; HUMAN; HUNTINGTON CHOREA; HYDROCEPHALUS; INBORN ERROR OF METABOLISM; INFANT DISEASE; INFANTILE EPILEPTIC ENCEPHALOPATHY; INTERPERSONAL COMMUNICATION; LEIGH DISEASE; LENNOX GASTAUT SYNDROME; LEUKODYSTROPHY; LIFE LIMITING CONDITION; METABOLIC DISORDER; MITOCHONDRIAL CHAIN DISEASE; MUCOLIPIDOSIS TYPE 2; MUCOPOLYSACCHARIDOSIS; NEUROACANTHOCYTOSIS; NEURONAL CEROID LIPOFUSCINOSIS; NIEMANN PICK DISEASE; PALLIATIVE THERAPY; PALLISTER KILLIAN SYNDROME; POLYARTERITIS NODOSA; PRADER WILLI SYNDROME; PREDICTION; PULMONARY HYPERTENSION; QT PROLONGATION; QUALITY OF LIFE; SANDHOFF DISEASE; SEIZURE; SPINAL MUSCULAR ATROPHY; SYNDROME CHARGE; UNDEFINED GENETIC DISORDERS WITH COMPLEX EPILEPSY; UNITED KINGDOM; VISUAL IMPAIRMENT; WEST SYNDROME; WOLF HIRSCHHORN SYNDROME;

ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CAREGIVERS; CHILD; DISEASE PROGRESSION; FAMILY; GREAT BRITAIN; HEALTH PRIORITIES; HUMANS; LEUKODYSTROPHY, METACHROMATIC; MUCOPOLYSACCHARIDOSES; NEURONAL CEROID-LIPOFUSCINOSES; PALLIATIVE CARE; RARE DISEASES;

EID: 79957701097     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216310391346     Document Type: Article

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