Dealing with requests for euthanasia: Interview study among general practitioners in Belgium

Journal of Pain and Symptom Management

Volumn 41, Issue 6, 2011, Pages 1060-1072

  Meeussen, Koen ^a   Van Den Block, Lieve ^a   Bossuyt, Nathalie ^b   Echteld, Michael ^c   Bilsen, Johan ^a   Deliens, Luc ^a,c  

^a VRIJE UNIVERSITEIT BRUSSEL   (Belgium)

^b SCIENTIFIC INSTITUTE OF PUBLIC HEALTH   (Belgium)

^c VU UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

end of life care; euthanasia; Euthanasia requests; GPs

Indexed keywords

ARTICLE; BELGIUM; DECISION MAKING; EUTHANASIA; GENERAL PRACTITIONER; HUMAN; INTERVIEW; MEDICAL PRACTICE;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; BELGIUM; CRITICAL ILLNESS; EUTHANASIA; FEMALE; GENERAL PRACTITIONERS; HUMANS; MALE; MIDDLE AGED; PATIENT PREFERENCE; PHYSICIAN'S PRACTICE PATTERNS; PHYSICIAN'S ROLE; RIGHT TO DIE; YOUNG ADULT;

EID: 79957636569     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2010.09.020     Document Type: Article

References (35)

1. Jansen-van der Weide MC, Onwuteaka-Philipsen BD, van der Wal G. Granted, undecided, withdrawn, and refused requests for euthanasia and physician-assisted suicide. Arch Intern Med 2005;165:1698-1704. (Pubitemid 41138955)
2. Haverkate I, Onwuteaka-Philipsen BD, van der Heide A, et al. Refused and granted requests for euthanasia and assisted suicide in the Netherlands: interview study with structured questionnaire. BMJ 2000;321:865-866.
3. Meier DE, Emmons CA, Litke A, Wallenstein S, Morrison RS. Characteristics of patients requesting and receiving physician-assisted death. Arch Intern Med 2003;163:1537-1542. (Pubitemid 36835097)
4. Deliens L, Mortier F, Bilsen J, et al. End-of-life decisions in medical practice in Flanders, Belgium: a nationwide survey. Lancet 2000;356:1806-1811.
5. Kuhse H, Singer P, Baume P, Clark M, Rickard M. End-of-life decisions in Australian medical practice. Med J Aust 1997;166:191-196. (Pubitemid 27091208)
6. van der Heide A, Deliens L, Faisst K, et al. End-of-life decision-making in six European countries: descriptive study. Lancet 2003;362:345-350. (Pubitemid 36945056)
7. van der Heide A, Onwuteaka-Philipsen BD, Rurup ML, et al. End-of-life practices in the Netherlands under the Euthanasia Act. N Engl J Med 2007;356:1957-1965. (Pubitemid 46740305)
8. Meier DE, Emmons CA, Wallenstein S, et al. A national survey of physician-assisted suicide and euthanasia in the United States. N Engl J Med 1998;338:1193-1201. (Pubitemid 28180749)
9. Onwuteaka-Philipsen BD, van der Heide A, Koper D, et al. Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001. Lancet 2003;362:395-399.
10. Donker GA. Continuous morbidity registration at Dutch sentinel stations. Utrecht, The Netherlands: NIVEL, 2007. Available from www.nivel.nl.
11. Marquet RL, Bartelds A, Visser GJ, Spreeuwenberg P, Peters L. Twenty five years of requests for euthanasia and physician assisted suicide in Dutch general practice: trend analysis. BMJ 2003;327:201-202. (Pubitemid 36920586)
12. Belgisch Staatsblad 22 juni 2002 [Belgian official collection of the laws, June 22, 2002]. [Law concerning euthanasia May 28, 2002]. [in Dutch]. Bill Number 2002009590. Brussels, Belgium; 2002.
13. Smets T, Bilsen J, Cohen J, et al. The medical practice of euthanasia in Belgium and The Netherlands: legal notification, control and evaluation procedures. Health Policy 2009;90:181-187.
14. Termination of Life on Request and Assisted Suicide (Review Procedures) Act. [in Dutch]. Staatsblad (Bulletin of Acts and Decrees), The Netherlands, 2002.
15. Van den Muijsenbergh M. [Palliative care by general practitioners. Experiences of general practitioners, patients and relatives.] [in Dutch]. Dissertation, University of Leiden. Nijmegen, The Netherlands: Drukkerij SSN; 2001.
16. Georges JJ, The AM, Onwuteaka-Philipsen BD, van der Wal G. Dealing with requests for euthanasia: a qualitative study investigating the experience of general practitioners. J Med Ethics 2008;34:150-155.
17. Pasman HR, Rurup ML, Willems DL, Onwuteaka- Philipsen BD. Concept of unbearable suffering in context of ungranted requests for euthanasia: qualitative interviews with patients and physicians. BMJ 2009;339:b4362.
18. Van den Block L, Bilsen J, Deschepper R, et al. End-of-life decisions among cancer patients compared with noncancer patients in Flanders, Belgium. J Clin Oncol 2006;24:2842-2848. (Pubitemid 46630584)
19. Van den Block L. End-of-life care and medical decision-making in the last phase of life. Brussels, Belgium: VUB Press, 2008.
20. Van den Block L, Deschepper R, Bilsen J, et al. Euthanasia and other end-of-life decisions: a mortality follow-back study in Belgium. BMC Public Health 2009;9:79.
21. Van den Block L, Van Casteren V, Deschepper R, et al. Nationwide monitoring of end-of-life care via the Sentinel Network of General Practitioners in Belgium: the research protocol of the SENTI-MELC study. BMC Palliat Care 2007;6:6.
22. Fleming DM, Schellevis FG, Van Casteren V. The prevalence of known diabetes in eight European countries. Eur J Public Health 2004;14:10-14. (Pubitemid 38523653)
23. Lobet MP, Stroobant A, Mertens R, et al. Tool for validation of the network of sentinel general practitioners in the Belgian health care system. Int J Epidemiol 1987;16:612-618. (Pubitemid 18033139)
24. Stroobant A, Van Casteren V, Thiers G. Surveillance systems from primary-care data: surveillance through a network of sentinal general practitioners. In: Eylenbosch WJ, Noah D, eds. Surveillance in health and disease. Oxford, UK: Oxford University Press, 1988: 62-74.
25. Boffin N, Bossuyt N, Van Casteren V. Current characteristics and evolution of the Sentinel General Practitioners: Data gathered in 2005. Report No. IPH/EPI REPORTS No 2007-013. Brussels, Belgium: Epidemiology Unit, Scientific Institute of Public Health Belgium, 2007. [in Dutch]. Available from http://www.iph.fgov.be/epidemio/epien/index10.htm. Accessed February 25, 2011.
26. Deeg D, Beekman A, Kriegsman D, Westendorpde Serière M. Autonomy and well-being in the aging population II: Report from the Longitudinal Aging Study Amsterdam 1992-1996. Amsterdam, The Netherlands: VU University Press, 1998.
27. Klinkenberg M. The last phase of life of older people: Health, preferences and care: A proxy report study. PhD thesis. Amsterdam, The Netherlands: EMGO Institute, VU Amsterdam; 2003.
28. van der Wal G, van der Heide A, Onwuteaka-Philipsen BD, van der Maas PJ. Medical decision-making at the end of life: Practice in The Netherlands and the evaluation procedure of euthanasia. [in Dutch]. Utrecht, The Netherlands: De Tijdstroom Uitgeverij, 2003.
29. Oken MM, Creech RH, Tormey DC, et al. Toxicity and response criteria of the Eastern Cooperative Oncology Group. Am J Clin Oncol 1982;5:649-655. (Pubitemid 13149996)
30. Hickman SE, Tilden VP, Tolle SW. Family reports of dying patients' distress: the adaptation of a research tool to assess global symptom distress in the last week of life. J Pain Symptom Manage 2001;22:565-574. (Pubitemid 32549731)
31. Kutner JS, Kassner CT, Nowels DE. Symptom burden at the end of life: hospice providers' perceptions. J Pain Symptom Manage 2001;21:473-480. (Pubitemid 32492933)
32. Cosyns M, Deveugele M, Abbadie B, Roland M. Decision-making and end of life care. [in French]. Rev Med Brux 2008;29:77-88.
33. van Marwijk H, Haverkate I, van Royen P, The AM. Impact of euthanasia on primary care physicians in the Netherlands. Palliat Med 2007;21:609-614.
34. Van Wesemael Y, Cohen J, Onwuteaka-Philipsen BD, et al. Role and involvement of life end information forum physicians in euthanasia and other end-of-life care decisions in Flanders, Belgium. Health Serv Res 2009;44:2180-2192.
35. van der Maas PJ, van der Wal G, Haverkate I, et al. Euthanasia, physician-assisted suicide, and other medical practices involving the end of life in the Netherlands, 1990-1995. N Engl J Med 1996;335:1699-1705.