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Volumn 17, Issue 6, 2011, Pages 861-866

Prospective Assessment of Health-Related Quality of Life in Pediatric Patients with Beta-Thalassemia following Hematopoietic Stem Cell Transplantation

Author keywords

Child self report; Parent proxy report; Pediatric Quality of Life Inventory

Indexed keywords

ADOLESCENT; ARTICLE; BETA THALASSEMIA; CHILD; CLINICAL ARTICLE; CLINICAL DECISION MAKING; EVIDENCE BASED MEDICINE; FEMALE; GRAFT VERSUS HOST REACTION; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMAN; MALE; MORTALITY; OVERALL SURVIVAL; QUALITY OF LIFE; SELF REPORT;

EID: 79956038028     PISSN: 10838791     EISSN: 15236536     Source Type: Journal    
DOI: 10.1016/j.bbmt.2010.09.011     Document Type: Article
Times cited : (59)

References (32)
  • 1
    • 20844460608 scopus 로고    scopus 로고
    • Survival and complications in patients with thalassemia major treated with transfusion and deferoxamine
    • Borgna-Pignatti C., Rugolotto S., De Stefano P., et al. Survival and complications in patients with thalassemia major treated with transfusion and deferoxamine. Haematologica 2004, 89:1187-1193.
    • (2004) Haematologica , vol.89 , pp. 1187-1193
    • Borgna-Pignatti, C.1    Rugolotto, S.2    De Stefano, P.3
  • 2
    • 33845237600 scopus 로고    scopus 로고
    • Surviving with thalassemia major: the Italian experience
    • Borgna-Pignatti C. Surviving with thalassemia major: the Italian experience. Pediatr Hematol Oncol 2007, 24:75-78.
    • (2007) Pediatr Hematol Oncol , vol.24 , pp. 75-78
    • Borgna-Pignatti, C.1
  • 4
    • 0034964422 scopus 로고    scopus 로고
    • Living a " normal life": young people coping with thalassemia major or sickle cell disorder
    • Atkin K., Ahmad W. Living a " normal life": young people coping with thalassemia major or sickle cell disorder. Soc Sci Med 2001, 53:615-626.
    • (2001) Soc Sci Med , vol.53 , pp. 615-626
    • Atkin, K.1    Ahmad, W.2
  • 5
    • 0025070260 scopus 로고
    • Bone marrow transplantation in patients with thalassemia
    • Lucarelli G., Galimberti M., Polchi P., et al. Bone marrow transplantation in patients with thalassemia. N Engl J Med 1990, 322:417-421.
    • (1990) N Engl J Med , vol.322 , pp. 417-421
    • Lucarelli, G.1    Galimberti, M.2    Polchi, P.3
  • 7
    • 39549112062 scopus 로고    scopus 로고
    • Advances in the allogeneic transplantation for thalassemia
    • Lucarelli G., Gaziev J. Advances in the allogeneic transplantation for thalassemia. Blood Rev 2008, 22:53-63.
    • (2008) Blood Rev , vol.22 , pp. 53-63
    • Lucarelli, G.1    Gaziev, J.2
  • 8
    • 0037097807 scopus 로고    scopus 로고
    • Unrelated donor bone marrow transplantation for thalassemia: the effect of extended haplotypes
    • La Nasa G., Giardini C., Argiolu F., et al. Unrelated donor bone marrow transplantation for thalassemia: the effect of extended haplotypes. Blood 2002, 99:4350-4356.
    • (2002) Blood , vol.99 , pp. 4350-4356
    • La Nasa, G.1    Giardini, C.2    Argiolu, F.3
  • 9
    • 0026342217 scopus 로고
    • Assessment of quality of life in clinical trials
    • Schumacher M., Olschewski M., Schulgen G. Assessment of quality of life in clinical trials. Stat Med 1991, 10:1915-1930.
    • (1991) Stat Med , vol.10 , pp. 1915-1930
    • Schumacher, M.1    Olschewski, M.2    Schulgen, G.3
  • 10
    • 1842376852 scopus 로고    scopus 로고
    • The problem of quality of life in medicine
    • Leplege A., Hunt S. The problem of quality of life in medicine. JAMA 1997, 278:47-50.
    • (1997) JAMA , vol.278 , pp. 47-50
    • Leplege, A.1    Hunt, S.2
  • 13
    • 29744442891 scopus 로고    scopus 로고
    • Quality of life in patients with thalassemia intermedia compared to thalassemia major
    • Pakbaz Z., Treadwell M., Yamashita R., et al. Quality of life in patients with thalassemia intermedia compared to thalassemia major. Ann N Y Acad Sci 2005, 1054:457-461.
    • (2005) Ann N Y Acad Sci , vol.1054 , pp. 457-461
    • Pakbaz, Z.1    Treadwell, M.2    Yamashita, R.3
  • 14
    • 70349302143 scopus 로고    scopus 로고
    • Quality of life in transfusion-dependent thalassemia patients on desferrioxamine treatment
    • Dahlui M., Hishamshah M.I., Rahman A.J., et al. Quality of life in transfusion-dependent thalassemia patients on desferrioxamine treatment. Singapore Med J 2009, 50:794-799.
    • (2009) Singapore Med J , vol.50 , pp. 794-799
    • Dahlui, M.1    Hishamshah, M.I.2    Rahman, A.J.3
  • 15
    • 47949125257 scopus 로고    scopus 로고
    • Costs, quality of life, treatment satisfaction and compliance in patients with beta-thalassemia major undergoing iron chelation therapy: the ITHACA study
    • Scalone L., Mantovani L.G., Krol M. Costs, quality of life, treatment satisfaction and compliance in patients with beta-thalassemia major undergoing iron chelation therapy: the ITHACA study. Curr Med Res Opin 2008, 24:1905-1917.
    • (2008) Curr Med Res Opin , vol.24 , pp. 1905-1917
    • Scalone, L.1    Mantovani, L.G.2    Krol, M.3
  • 16
    • 33747156917 scopus 로고    scopus 로고
    • Health-related quality of life in Malaysian children with thalassemia
    • Ismail A., Campbell M.J., Ibrahim H.M., et al. Health-related quality of life in Malaysian children with thalassemia. Health Qual Life Outcomes 2006, 4:39-46.
    • (2006) Health Qual Life Outcomes , vol.4 , pp. 39-46
    • Ismail, A.1    Campbell, M.J.2    Ibrahim, H.M.3
  • 17
    • 30944447552 scopus 로고    scopus 로고
    • Decision-making in adult thalassemia patients undergoing unrelated bone marrow transplantation: quality of life, communication and ethical issues
    • Caocci G., Pisu S., Argiolu F., et al. Decision-making in adult thalassemia patients undergoing unrelated bone marrow transplantation: quality of life, communication and ethical issues. Bone Marrow Transplant 2006, 37:165-169.
    • (2006) Bone Marrow Transplant , vol.37 , pp. 165-169
    • Caocci, G.1    Pisu, S.2    Argiolu, F.3
  • 18
    • 52149111377 scopus 로고    scopus 로고
    • Quality of life in patients with transfusion-dependent thalassemia after hematopoietic SCT
    • Cheuk D.K., Mok A.S., Lee A.C., et al. Quality of life in patients with transfusion-dependent thalassemia after hematopoietic SCT. Bone Marrow Transplant 2008, 42:319-327.
    • (2008) Bone Marrow Transplant , vol.42 , pp. 319-327
    • Cheuk, D.K.1    Mok, A.S.2    Lee, A.C.3
  • 19
    • 33744994360 scopus 로고    scopus 로고
    • Health-related quality of life among child and adolescent survivors of childhood cancer
    • Speechley K.N., Barrera M., Shaw A.K., et al. Health-related quality of life among child and adolescent survivors of childhood cancer. J Clin Oncol 2006, 24:2536-2543.
    • (2006) J Clin Oncol , vol.24 , pp. 2536-2543
    • Speechley, K.N.1    Barrera, M.2    Shaw, A.K.3
  • 20
    • 33646873456 scopus 로고    scopus 로고
    • Quality of life following allogeneic stem cell transplantation, comparing parents' and children's perspective
    • Forinder U., Lof C., Winiarski J. Quality of life following allogeneic stem cell transplantation, comparing parents' and children's perspective. Pediatr Transplant 2006, 10:491-496.
    • (2006) Pediatr Transplant , vol.10 , pp. 491-496
    • Forinder, U.1    Lof, C.2    Winiarski, J.3
  • 21
    • 69749089543 scopus 로고    scopus 로고
    • Longitudinal health-related quality of life outcomes and related factors after pediatric SCT
    • Barrera M., Atenafu E., Hancock K. Longitudinal health-related quality of life outcomes and related factors after pediatric SCT. Bone Marrow Transplant 2009, 44:249-256.
    • (2009) Bone Marrow Transplant , vol.44 , pp. 249-256
    • Barrera, M.1    Atenafu, E.2    Hancock, K.3
  • 23
    • 0018973048 scopus 로고
    • Chronic graft-versus-host syndrome in man: a long-term clinicopathologic study of 20 Seattle patients
    • Shulman H.M., Sullivan K.M., Weiden P.L., et al. Chronic graft-versus-host syndrome in man: a long-term clinicopathologic study of 20 Seattle patients. Am J Med 1980, 69:204-217.
    • (1980) Am J Med , vol.69 , pp. 204-217
    • Shulman, H.M.1    Sullivan, K.M.2    Weiden, P.L.3
  • 24
    • 0036525747 scopus 로고    scopus 로고
    • The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory generic core scales, mutidimensional fatigue scale, and cancer module
    • Varni J.W., Burwinkle T.M., Katz E.R., et al. The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory generic core scales, mutidimensional fatigue scale, and cancer module. Cancer 2002, 94:2090-2106.
    • (2002) Cancer , vol.94 , pp. 2090-2106
    • Varni, J.W.1    Burwinkle, T.M.2    Katz, E.R.3
  • 25
    • 32544446020 scopus 로고    scopus 로고
    • The PedsQL 4.0 as a school population measure: feasibility, reliability, and validity
    • Varni J.W., Burwinkle T.M., Seid M. The PedsQL 4.0 as a school population measure: feasibility, reliability, and validity. Qual Life Res 2006, 15:203-215.
    • (2006) Qual Life Res , vol.15 , pp. 203-215
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3
  • 26
    • 79956025744 scopus 로고    scopus 로고
    • The PedsQL measurement model for the Pediatric Quality of Life Inventory. Available from: Accessed July 6
    • Varni JW. The PedsQL measurement model for the Pediatric Quality of Life Inventory. Available from: Accessed July 6, 2010. http://www.pedsql.org/about_pedsql.html.
    • (2010)
    • Varni, J.W.1
  • 27
    • 79956018354 scopus 로고    scopus 로고
    • World Health Organization. Measuring quality of life. Available from: Accessed July 6
    • World Health Organization. Measuring quality of life. Available from: Accessed July 6, 2010. http://www.who.int/evidence/assessement-instrument/QOL/index.ht/.
    • (2010)
  • 28
    • 77949700005 scopus 로고    scopus 로고
    • The life of patients with thalassemia major
    • Borgna-Pignatti C. The life of patients with thalassemia major. Haematologica 2010, 3:345-348.
    • (2010) Haematologica , vol.3 , pp. 345-348
    • Borgna-Pignatti, C.1
  • 29
    • 48349085754 scopus 로고    scopus 로고
    • Health-related quality of life in survivors of BMT for pediatric malignancy: a systematic review of the literature
    • Clarke S.A., Eiser C., Skinner R. Health-related quality of life in survivors of BMT for pediatric malignancy: a systematic review of the literature. Bone Marrow Transplant 2008, 42:73-82.
    • (2008) Bone Marrow Transplant , vol.42 , pp. 73-82
    • Clarke, S.A.1    Eiser, C.2    Skinner, R.3
  • 30
    • 0026196155 scopus 로고
    • For debate: bone marrow transplantation for severe thalassaemia
    • Lucarelli G., Weatherall D.J. For debate: bone marrow transplantation for severe thalassaemia. Br J Haematol 1991, 78:300-303.
    • (1991) Br J Haematol , vol.78 , pp. 300-303
    • Lucarelli, G.1    Weatherall, D.J.2
  • 31
    • 0027260496 scopus 로고
    • The treatment of thalassemia: slow progress and new dilemmas
    • Weatherall D.J. The treatment of thalassemia: slow progress and new dilemmas. N Engl J Med 1993, 329:877-879.
    • (1993) N Engl J Med , vol.329 , pp. 877-879
    • Weatherall, D.J.1
  • 32
    • 0029054243 scopus 로고
    • Ethical issue of bone marrow transplantation for thalassemia (editorial)
    • Giardini C. Ethical issue of bone marrow transplantation for thalassemia (editorial). Bone Marrow Transplant 1995, 15:657-658.
    • (1995) Bone Marrow Transplant , vol.15 , pp. 657-658
    • Giardini, C.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.