Evidence-Based Neuroethics for Neurodevelopmental Disorders

Seminars in Pediatric Neurology

Volumn 18, Issue 1, 2011, Pages 21-25

  Racine, Eric ^a,b,c   Bell, Emily ^a   Di Pietro, Nina C ^d   Wade, Lucie ^a,c   Illes, Judy ^d  

^a CLIN RESEARCH INSTITUTE OF MONTREAL   (Canada)

^b UNIVERSITÉ DE MONTRÉAL   (Canada)

^c MCGILL UNIVERSITY   (Canada)

^d UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ALTERNATIVE MEDICINE; AUTISM; BRAIN DEVELOPMENT; BRAIN DISEASE; CEREBRAL PALSY; ETHICAL DECISION MAKING; EVIDENCE BASED PRACTICE; FETAL ALCOHOL SYNDROME; HEALTH CARE ACCESS; HEALTH CARE DELIVERY; HUMAN; IDENTITY; MEDICAL DECISION MAKING; MEDICAL RESEARCH; NEUROETHICS; NEUROSCIENCE; NEWBORN CARE; NON PROFIT ORGANIZATION; PERSONHOOD; RESEARCH ETHICS; REVIEW;

BIOETHICAL ISSUES; BRAIN DISEASES; CANADA; GOVERNMENT PROGRAMS; HUMANS;

EID: 79955966954     PISSN: 10719091     EISSN: 15580776     Source Type: Journal    
DOI: 10.1016/j.spen.2011.02.002     Document Type: Review

References (48)

1. Racine E., Illes J. Neuroethics. Cambridge Textbook of Bioethics 2008, 495-503. Cambridge University Press, Cambridge, New York, NY. P. Singer, A. Viens (Eds.).
2. Illes J. Empirical neuroethics. EMBO Rep 2007, 8:S57-S60.
3. Racine E. Pragmatic Neuroethics: Improving Treatment and Understanding of the Mind-Brain 2010, MIT Press, Cambridge, MA.
4. Moreno J. Bioethics is a naturalism. Pragmatic Bioethics 1999, 5-17. Vanderbilt University Press, Nashville/London. G. McGee (Ed.).
5. Racine E. Which naturalism for bioethics?. A defense of moderate (pragmatic) naturalism. Bioethics 2008, 22:92-100.
6. Wolf S.M. Shifting paradigms in bioethics and health law: The rise of a new pragmatism. Am J Law Med 1994, 20:395-415.
7. Miller F.G., Fins J.J., Bacchetta M.D. Clinical pragmatism: John Dewey and clinical ethics. J Contemp Health Law Policy 1996, 13:27-51.
8. Brendel D.H. Healing Psychiatry: Bridging the Science/Humanism Divide 2006, MIT Press, Cambridge, MA.
9. Bernat J.L. Ethical Issues in Neurology 2008, Lippincott Williams & Wilkins, Philadelphia. (ed 3).
10. Racine E., Waldman S., Illes J. Contemporary neuroscience in the media. Soc Sci Med 2010, 71:725-733.
11. Viner R. Transition from paediatric to adult care. Bridging the gaps or passing the buck?. Arch Dis Child 1999, 81:271-275.
12. Dommergues J.P., Alvin P. Transition from pediatric to adult care in severe chronic diseases in children. Arch Pediatr 2003, 10:295-299.
13. Reiss J.G., Gibson R.W., Walker L.R. Health care transition: Youth, family, and provider perspectives. Pediatrics 2005, 115:112-120.
14. Binks J.A., Barden W.S., Burke T.A., et al. What do we really know about the transition to adult-centered health care?. A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabil 2007, 88:1064-1073.
15. Tiffreau V., Schill A., Popielarz S., et al. Transition in health care from youth to adulthood for disabled people. Ann Readapt Med Phys 2006, 49:652-658.
16. Young N.L., Gilbert T.K., McCormick A., et al. Youth and young adults with cerebral palsy: Their use of physician and hospital services. Arch Phys Med Rehabil 2007, 88:696-702.
17. Tervo R.C., Azuma S., Palmer G., et al. Medical students' attitudes toward persons with disability: A comparative study. Arch Phys Med Rehabil 2002, 83:1537-1542.
18. Russell G.M., Kinirons M.J. A study of the barriers to dental care in a sample of patients with cerebral palsy. Community Dent Health 1993, 10:57-64.
19. Martin H.L., Rowell M.M., Reid S.M., et al. Cerebral palsy: What do medical students know and believe?. J Paediatr Child Health 2005, 41:43-47.
20. Bernat J.L. Ethical aspects of determining and communicating prognosis in critical care. Neurocrit Care 2004, 1:107-117.
21. Glass K.C. Ethical issues in neonatal intensive care: Perspectives for the neurologist. Semin Pediatr Neurol 2002, 9:35-40.
22. Shevell M.I., Majnemer A., Miller S.P. Neonatal neurologic prognostication: The asphyxiated term newborn. Pediatr Neurol 1999, 21:776-784.
23. McCullough L.B. Neonatal ethics at the limits of viability. Pediatrics 2005, 116:1019-1021.
24. Astin J.A. Why patients use alternative medicine: Results of a national study. JAMA 1998, 279:1548-1553.
25. Dunning T. Complementary therapies and diabetes. Complement Ther Nurs Midwifery 2003, 9:74-80.
26. Kemper K.J., Cassileth B., Ferris T. Holistic pediatrics: A research agenda. Pediatrics 1999, 103:902-909.
27. Cohen M.H., Kemper K.J. Complementary therapies in pediatrics: A legal perspective. Pediatrics 2005, 115:774-780.
28. Kaptchuk T.J. The placebo effect in alternative medicine: Can the performance of a healing ritual have clinical significance?. Ann Intern Med 2002, 136:817-825.
29. Kemper K.J., Vohra S., Walls R., et al. The use of complementary and alternative medicine in pediatrics. Pediatrics 2008, 122:1374-1386.
30. Nickel R. Controversial therapies for young children with developmental disabilities. Infants Young Child 1996, 8:29-40.
31. Hurvitz E.A., Leonard C., Ayyangar R., et al. Complementary and alternative medicine use in families of children with cerebral palsy. Dev Med Child Neurol 2003, 45:364-370.
32. Levy S.E., Mandell D.S., Merhar S., et al. Use of complementary and alternative medicine among children recently diagnosed with autistic spectrum disorder. J Dev Behav Pediatr 2003, 24:418-423.
33. McCann L.J., Newell S.J. Survey of paediatric complementary and alternative medicine use in health and chronic illness. Arch Dis Child 2006, 91:173-174.
34. Pitetti R., Singh S., Hornyak D., et al. Complementary and alternative medicine use in children. Pediatr Emerg Care 2001, 17:165-169.
35. Wong H.H., Smith R.G. Patterns of complementary and alternative medical therapy use in children diagnosed with autism spectrum disorders. J Autism Dev Disord 2006, 36:901-909.
36. Ottolini M.C., Hamburger E.K., Loprieato J.O., et al. Complementary and alternative medicine use among children in the Washington, DC area. Ambul Pediatr 2001, 1:122-125.
37. Counseling families who choose complementary and alternative medicine for their child with chronic illness or disability. Committee on Children With Disabilities. Pediatrics 2001, 107:598-601. American Academy of Pediatrics.
38. Bulen J.A. Greenwall Bioethics Award. Complementary and alternative medicine. Ethical and legal aspects of informed consent to treatment. J Leg Med 2003, 24:331-358.
39. Clinical practice guidelines in complementary and alternative medicine. An analysis of opportunities and obstacles. Practice and policy Guidelines Panel, National Institutes of Health Office of Alternative Medicine. Arch Fam Med 1997, 6:149-154.
40. McCaffrey A.M., Pugh G.F., O'Connor B.B. Understanding patient preference for integrative medical care: Results from patient focus groups. J Gen Intern Med 2007, 22:1500-1505.
41. Simpson N., Roman K. Complementary medicine use in children: Extent and reasons. A population-based study. Br J Gen Pract 2001, 51:914-916.
42. Di Pietro NC, Whiteley L, Illes J: Drawing on science? Treatment services and products for neurodevelopment disorders on the internet. Neuroethics Society Meeting, November 13, 2010, San Diego, CA (abstract).
43. Semere W., Karamanoukian H.L., Levitt M., et al. A pediatric surgery study: Parent usage of the Internet for medical information. J Pediatr Surg 2003, 38:560-564.
44. Caspi O., Holexa J. Lack of standards in informed consent in complementary and alternative medicine. Complement Ther Med 2005, 13:123-130.
45. Aylott J. Understanding and listening to people with autism. Br J Nurs 2001, 10:166-172.
46. Barnbaum D.R. The Ethics of Autism: Among Them, But Not of Them 2008, Indiana University Press, Bloomington, IN.
47. Sacks O. An Anthropologist on Mars 1995, Vintage, New York.
48. Hagerman R., Hoem G., Hagerman P. Fragile X and autism: Intertwined at the molecular level leading to targeted treatments. Mol Autism 2010, 1:12.