Are patients' judgments of health status really different from the general population?

Health and Quality of Life Outcomes

Volumn 9, Issue , 2011, Pages

  Krabbe, Paul F M ^a   Tromp, Noor ^b   Ruers, Theo J M ^c   van Riel, Piet L C M ^b  

^a UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

^b RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^c ANTONI VAN LEEUWENHOEK HOSPITAL   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; DECISION MAKING; DEMOGRAPHY; DEPRESSION; FEMALE; HEALTH STATUS; HUMAN; INTERVIEW; MALE; POPULATION RESEARCH; SELF CARE; VISUAL ANALOG SCALE; ATTITUDE TO HEALTH; HEALTH SURVEY; MIDDLE AGED; NEOPLASM; NETHERLANDS; PATIENT SATISFACTION; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; REGRESSION ANALYSIS; RHEUMATOID ARTHRITIS; SELF CONCEPT;

ADULT; AGED; AGED, 80 AND OVER; ARTHRITIS, RHEUMATOID; ATTITUDE TO HEALTH; FEMALE; HEALTH STATUS; HUMANS; JUDGMENT; MALE; MIDDLE AGED; NEOPLASMS; NETHERLANDS; PATIENT SATISFACTION; POPULATION SURVEILLANCE; QUALITY OF LIFE; QUESTIONNAIRES; REGRESSION ANALYSIS; SELF CONCEPT; YOUNG ADULT;

EID: 79955787558     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-9-31     Document Type: Article

References (48)

1. Gold MR, Siegel JE, Russel LB, et al. Cost-Effectiveness in Health and Medicine. 1996, New York: Oxford University Press.
2. Boyd NF, Sutherland HJ, Heasman KZ. Whose utilities for decision analysis?. Med Decis Making 1990, 10:58-67. 10.1177/0272989X9001000109, 2182963.
3. Ubel PA, Loewenstein G, Jepson C. Whose quality of life? A commentary exploring discrepancies between health state evaluations of patients and the general public. Qual Life Res 2003, 12:599-607. 10.1023/A:1025119931010, 14516169.
4. Jansen SJT, Stiggelbout AM, Wakker PP. Unstable preferences: a shift in valuation or an effect of the elicitation procedure?. Med Decis Making 2000, 20:62-71. 10.1177/0272989X0002000108, 10638538.
5. Zethraeus N, Johannesson MA. Comparison of patient and social tariff values derived from the time trade-off method. Health Econ 1999, 8:541-545. 10.1002/(SICI)1099-1050(199909)8:6<541::AID-HEC464>3.0.CO;2-8, 10544319.
6. Wit de GA, Busschbach van JJV, Charro de FTH. Sensitivity and perspective in the valuation of the health status: whose values count?. Health Econ 2000, 9:109-126. 10.1002/(SICI)1099-1050(200003)9:2<109::AID-HEC503>3.0.CO;2-L, 10721013.
7. Dolders MGT, Zeegers MPA, Groot W, et al. A meta-analysis demonstrates no significant differences between patient and population preferences. J Clin Epidemiol 2006, 59:653-664. 10.1016/j.jclinepi.2005.07.020, 16765267.
8. Kind P, Dolan P. The effect of past and present illness experience on the valuations of health states. Med Care 1995, 33:AS225-AS263.
9. Lenert LA, Treadwell JR, Schwartz CE. Associations between health status and utilities: implications for policy. Med Care 1999, 37:479-489. 10.1097/00005650-199905000-00007, 10335750.
10. Allison PJ, Locker D, Feine JS. Quality of Life: A dynamic construct. Soc Sci Med 1997, 45:221-230. 10.1016/S0277-9536(96)00339-5, 9225410.
11. Solomon JA, Murray CJL. A conceptual framework for understanding adaptation, coping, and adjustment in health state valuations. Summary Measures of Population Health: Concepts, Ethics, Measurement and Applications 2002, 0000:619-626. Geneva: World Health Organization, Murray CJL, Salomon JA, Mathers CD, Lopez AD.
12. Dolan P, Kahneman D. The interpretation of utility and their implications for the valuation of health. The Economic Journal 2008, 118:215-234.
13. Sprangers MAG, Schwartz CE. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med 1999, 48:1507-1515. 10.1016/S0277-9536(99)00045-3, 10400253.
14. Postulart D, Adang EM. Response shift and adaptation in chronically ill patients. Med Decis Making 2000, 20:186-193. 10.1177/0272989X0002000204, 10772356.
15. Festinger L, Rieken HW, Schachter S. When Prophecy Fails: A social and psychological study of a modern group that predicted the destruction of the world. 1956, New York: Harper Torchbooks.
16. Festinger L. A Theory of Cognitive Dissonance. 1957, Stanford: Stanford University Press.
17. Kahnemann D, Tversy A. Prospect Theory: An analysis of decision under risk. Econometrica 1979, 47:263-392.
18. Clarcke AE, Goldstein MK, Michelson D, et al. The effect of assessment method and respondent population on utilities elicited for Gaucher Disease. Qual Life Res 1997, 6:169-184.
19. Jansen SJT, Kievit J, Nooij M, Stiggelbout AM. Stability of patients' preferences for chemotherapy: the impact of experience. Med Decis Making 2001, 21:295-306.
20. Murphy R, Sackley CM, Miller P, et al. Effect of experience of severe stroke on subjective valuations of quality of life after stroke. J Neurol Neurosurg Psychiatry 2001, 70:678-681. 10.1136/jnnp.70.5.678, 1737363, 11309466.
21. McPherson K, Myers J, Taylor WJ, et al. Self-valuation and societal valuations of health state differ with disease severity in chronic and disabling conditions. Med Care 2004, 42:1143-1151. 10.1097/00005650-200411000-00014, 15586842.
22. Happich M, Von Lengerke T. Valuing the health state 'tinnitus': Differences between patients and the general public. Hear Res 2005, 207:50-58. 10.1016/j.heares.2005.04.002, 15919164.
23. Thurstone LL. A law of comparative judgments. Psychol Rev 1927, 34:273-286.
24. Luce RD, Tukey JW. Simultaneous conjoint measurement: a new type of fundamental measurement. J Math Psychol 1964, 1:1-27.
25. McFadden D. Conditional logit analysis of qualitative choice behavior. Frontiers in Econometrics 1974, New York, NY: Academic Press, Zarembka P.
26. Lamers LM, Mc Donnell J, Stalmeier PFM, et al. The Dutch tariff: results and arguments for an effective design for national EQ-5D valuation studies. Health Econ 2006, 15:1121-1132. 10.1002/hec.1124, 16786549.
27. Rabin R, Charro de F. EQ-5D: a measure of health status from the EuroQol Group. Ann Med 2001, 33:337-343. 10.3109/07853890109002087, 11491192.
28. Krabbe PFM. Thurstone scaling as a measurement method to quantify subjective health outcomes. Med Care 2008, 46:357-365. 10.1097/MLR.0b013e31815ceca9, 18362814.
29. Lamers LM, Stalmeier PFM, Krabbe PFM, et al. Inconsistencies in TTO and VAS values for EQ-5D health states. Med Decis Making 2006, 26:173-181. 10.1177/0272989X06286480, 16525171.
30. Torrance GW, Thomas WH, Sackett DL. A utility maximization model for evaluation of health care programs. Health Serv Res 1972, 3:118-133.
31. Dolan P. Modeling valuations for EuroQol health states. Med Care 1997, 35:1095-1108. 10.1097/00005650-199711000-00002, 9366889.
32. Krabbe PFM, Stalmeier PFM, Lamers LM, et al. Testing the interval-level measurement property of multi-item visual analogue scales. Qual Life Res 2006, 15:1651-1661. 10.1007/s11136-006-0027-7, 17031501.
33. McKenna SP, Hunt SM, McEwen J. Weighting the seriousness of perceived health problems using Thurstone's method of paired comparisons. Int J Epidemiol 1981, 10:93-97. 10.1093/ije/10.1.93, 7239768.
34. Hakim Z, Pathak DS. Modelling the Euroqol data: a comparison of discrete choice conjoint and conditional preference modelling. Health Econ 1999, 8:103-116. 10.1002/(SICI)1099-1050(199903)8:2<103::AID-HEC393>3.0.CO;2-E, 10342724.
35. Krabbe PFM, Salomon JA, Murray CJL. Quantification of health states with rank-based nonmetric multidimensional scaling. Med Decis Making 2007, 27:395-405. 10.1177/0272989X07302131, 17761959.
36. Krabbe PFM. Valuation structures of health states revealed with singular value decomposition. Med Decis Making 2006, 26:30-37. 10.1177/0272989X05284106, 16495198.
37. Stalmeier PFM, Busschbach van JJ, Lamers LM, et al. The gap effect: discontinuities of preferences around dead. Health Econ 2005, 14:679-685. 10.1002/hec.986, 15744750.
38. Doctor JN, Bleichrodt H, Lin HJ. Health utility bias: a systematic review and meta-analytic evaluation. Med Decis Making 2010, 30:58-67. 10.1177/0272989X07312478, 18556637.
39. Christensen-Szalanski JJJ. Discount functions and the measurement of patients' values. Women's decisions during childbirth. Med Decis Making 1984, 4:47-58. 10.1177/0272989X8400400108, 6727587.
40. O'Connor AM, Boyd NF, Warde P, et al. Eliciting preferences for alternative drug therapies in oncology: influence of treatment outcome description, elicitation technique and treatment experience on preference. J Chronic Dis 1987, 40:811-818. 10.1016/0021-9681(87)90133-0, 3597681.
41. Llewellyn-Thomas HA, Sutherland HJ, Thiel EC. Do patients' evaluations of a future health state change when they actually enter that state?. Med Care 1993, 31:1002-1012. 10.1097/00005650-199311000-00003, 8231333.
42. Hurst NP, Jobanputra P, Hunter M, et al. Validity of EuroQol - a generic health stature instrument - in patients with rheumatoid arthritis. Br J Rheumatol 1994, 33:655-662. 10.1093/rheumatology/33.7.655, 8019795.
43. Jenkinson C, Gray A, Doll H, et al. Evaluation of index and profile measures of health status in a randomized controlled trial. Comparison of the Medical Outcomes Study 36-item Short Form health survey, EuroQol, and disease specific measures. Med Care 1997, 35:1109-1118. 10.1097/00005650-199711000-00003, 9366890.
44. Suarez-Almazor ME, Conner-Spady B. Rating of arthritis health states by patients, physicians, and the general public: Implications for cost-utility analyses. J Rheumatol 2001, 28:648-656.
45. Janssen KJM, Goris RJA, Hazenberg CEVB, et al. Discrepancies between the EuroQol-5D societal index and patient derived valuations. Proceedings of the 20th Plenary Meeting of the EuroQol Group 11th - 14th September 2003, 111-17. Bled, Slovenia, Prevolnik Rupel V.
46. Dolan P. The effect of experience of illness on health state valuations. J Clin Epidemiol 1996, 49:551-564. 10.1016/0895-4356(95)00532-3, 8636729.
47. Badia X, Herdman M, Kind P. The influence of ill-health experience on the valuation of health. Pharmacoeconomics 1998, 13:687-696. 10.2165/00019053-199813060-00005, 10179704.
48. Badia X, Rué M, et al. Measuring health and health state preferences among critically ill patients. Intensive Care Med 1996, 22:1379-1384. 10.1007/BF01709554, 8986489.