A disease register for ME/CFS: Report of a pilot study

BMC Research Notes

Volumn 4, Issue , 2011, Pages

  Pheby, Derek ^a   Lacerda, Eliana ^b   Nacul, Luis ^b   Drachler, Maria De Lourdes ^c   Campion, Peter ^d   Howe, Amanda ^c   Poland, Fiona ^c   Curran, Monica ^c   Featherstone, Valerie ^d   Fayyaz, Shagufta ^b   Sakellariou, Dikaios ^e   Leite, José Carlos De Carvalho ^c  

^a BUCKINGHAMSHIRE NEW UNIVERSITY   (United Kingdom)

^b LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE   (United Kingdom)

^c UNIVERSITY OF EAST ANGLIA   (United Kingdom)

^d UNIVERSITY OF HULL   (United Kingdom)

^e CARDIFF UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 79955692293     PISSN: None     EISSN: 17560500     Source Type: Journal    
DOI: 10.1186/1756-0500-4-139     Document Type: Article

References (29)

1. Chemical sensitivities and the Gulf War: Department of Veterans' Affairs Research Center in basic and clinical science studies of environmental hazards. N Fiedler H Kipen B Natelson J Ottenweller, Regulatory Toxicology and Pharmacology 1996 24 1pt2 129 138 8921568
2. Presence of chronic fatigue and chemical sensitivities in Gulf Registry veterans. HM Kipen W Hallman H Kang N Fiedler B Natelson, Archives of Environmental Health 1999 54 5 313 318 10.1080/00039899909602493 10501146 (Pubitemid 29430531)
3. The Swedish Twin Registry in the third millennium. NL Pederson P Lichtenstein P Svedberg, Twin Research 2002 5 5 427 432 10.1375/ 136905202320906219 12537870 (Pubitemid 35315496)
4. Chronic Fatigue in a population sample: definitions and heterogeneity. PF Sullivan NL Pederson A Jacks B Evengard, Psychological Medicine 2005 35 9 1337 1348 10.1017/S0033291705005210 16168156 (Pubitemid 41264313)
5. Premorbid predictors of chronic fatigue. K Kato PF Sullivan B Evengard NL Pederson, Archives of General Psychiatry 2006 63 11 1267 1272 10.1001/archpsyc.63.11.1267 17088507 (Pubitemid 44708085)
6. The Mid-Atlantic Twin Registry. LS Anderson WT Beverley LA Corey L Murrell, Twin Research 2002 5 5 449 455 10.1375/136905202320906264 12537875 (Pubitemid 35315501)
7. Twin analyses of fatigue. E Schur L Afari J Goldberg D Buchwald PF Sullivan, Twin Research and Human Genetics 2007 10 5 729 733 10.1375/twin.10.5.729 17903114 (Pubitemid 47608007)
8. The presence of self-reported chronic fatigue in a US twin registry. H Furberg M Olarto N Afari J Goldberg D Buchwald, Journal of Psychosomatic Research 2005 59 5 283 290 10.1016/j.jpsychores.2005.05.008 16253618 (Pubitemid 41531380)
9. The Chronic Fatigue Twin Registry: method of construction, composition and zygosity assignment. D Buchwald R Herrell S Ashton M Belcourt K Schmaling J Goldberg, Twin Research 1999 2 3 203 211 10.1375/136905299320565870 10555131 (Pubitemid 29468164)
10. J Newton S Garner, Disease Registers in England Oxford: Institute of Health Sciences 2002
11. Personal experience with a district diabetic register located in general practice. N Cheales A Howitt, Chronic Disease Management Registers: Proceedings of a Workshop: 1996; London HMSO, Dawson A, Ferrero M, 1996 92 98
12. Department of Health, Saving Lives: Our Healthier Nation London, HMSO 1999 para. 11.33
13. Chronic Fatigue Syndrome: a survey of GPs' attitudes and knowledge. J Bowen D Pheby A Charlett McNulty, Family Practice 2005 22 4 389 393 10.1093/fampra/cmi019 15805128 (Pubitemid 41487373)
14. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (or Encephalopathy): diagnosis and management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (or Encephalopathy) in adults and children [The NICE Guideline on CFS/ME]. N Turnbull EJ Shaw R Baker S Dunsdon N Costin G Britton S Kuntze R Norman, London, Royal College of General Practitioners 2007
15. National Institute for Health and Clinical Excellence, Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Consultation Table (29 September - 24 November 2006). Comments on the NICE version by the National ME/CFS Observatory London: NICE 2007 241 280
16. Risk factors for severe ME/CFS. D Pheby L Saffron, Biology and Medicine 2009 1 4 50 74
17. CFS/ME Working Group, Report - Annex 2, Prognosis of CFS/ME London: Department of Health 2002
18. The Chronic Fatigue Syndrome: a comprehensive approach to its definition and study. K Fukuda SE Strauss I Hickie MC Sharpe JG Dobbins A Komaroff the International Chronic Fatigue Syndrome Study Group, Ann Intern Med 1994 121 12 953 959 7978722 (Pubitemid 24370860)
19. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome:Clinical Working Case Definition, Diagnostic and Treatment Guidelines - A Consensus Document. BM Carruthers AK Jain KL De Meirleir DL Peterson NG Klimas AM Lerner AC Bested P Flor-Henry P Joshi ACP Powles JA Sherkey MI van de Sande, Journal of Chronic Fatigue Syndrome 2003 11 1 7 115 10.1300/J092v11n01-02 (Pubitemid 36258836)
20. The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. T Osoba D Pheby S Gray L Nacul, Journal of Chronic Fatigue Syndrome 2007 14 4 61 84
21. The MOS 36-Item Short-Form Health Survey (SF-36): I. conceptual framework and item selection. JE Ware CD Sherbourne, Medical Care 1992 30 6 473 83 10.1097/00005650-199206000-00002 1593914
22. CFS/ME Working Group, Report - Annex 1, Epidemiology of CFS/ME London: Department of Health 2002
23. Epidemiological aspects of CFS/ME. PH Levine, The clinical and scientific basis of myalgic encephalomyelitis/chronic fatigue syndrome Ottawa: Nightingale Research Foundation, Hyde BM, Goldstein J, Levine P, 1992 196 205
24. Epidemiologic advances in chronic fatigue syndrome. PH Levine, J Psychiatr Res 1997 31 7 18 10.1016/S0022-3956(96)00058-1 9201643 (Pubitemid 27230848)
25. Epidemiology of chronic fatigue syndrome: the Centers for Disease Control study. WJ Gunn DB Connell B Randall, Ciba Foundation Symposium no. 173 - Chronic fatigue syndrome Chichester: Wiley 1993 83 93
26. Centre for Child and Adolescent Health, Annual Report: 2008 - 2009 Bristol 2009 16
27. National Institute for Health and Clinical Excellence, NICE Clinical Guideline 53 - Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management of CFS/ME in adults and children London 2007 paragraph 1.2.1.2.
28. Measuring handicap: The London Handicap Scale, a new outcome measure for chronic disease. RH Harwood A Rogers E Dickinson S Ebrahim, Quality in Health Care 1994 3 11 16 10.1136/qshc.3.1.11 10171955
29. The London handicap scale: a re-evaluation of its validity using standard scoring and simple summation. C Jenkinson J Mant J Carter D Wade S Winner, J Neurol Neurosurg Psychiatry 2000 68 365 367 10.1136/jnnp.68.3.365 10675222 (Pubitemid 30248714)