Relieving the suffering of end-of-life patients: A grounded theory study

Journal of Hospice and Palliative Nursing

Volumn 13, Issue 3, 2011, Pages 161-171

  Martins, Clara ^a,c   Basto, Marta Lima ^b  

^a School of Nursing   (Portugal)

^b UNIVERSITY OF LISBON   (Portugal)

^c Escola Superior de Enfermagem S José de Cluny   (Portugal)

Author keywords

End of life care; end of life patients; nursing accompaniment; relief of suffering; suffering

Indexed keywords

EID: 79955653427     PISSN: 15222179     EISSN: 15390705     Source Type: Journal    
DOI: 10.1097/NJH.0b013e31820a95dd     Document Type: Article

References (56)

1. Nuland S. Como morremos: Reflexões sobre o capítulo final da vida. Rio de Janeiro, Brazil: Editora Rocco; 1995.
2. Lévinas E. Deus, a Morte e o Tempo. Coimbra, Portugal: Almedina; 2003.
3. Kübler-Ross E. Sobre a Morte e o Morrer. São Paulo, Brazil: Martins Fontes; 2005.
4. Nyatanga B. The concept of suffering: a hidden phenomenon. In: Nyatanga B, Astley-Pepper M, eds. Hidden Aspects of Palliative Care. London: Cromwell Press; 2005.
5. Morse JM. Toward a praxis theory of suffering. Adv Nurs Sci. 2001;24(1):47-59. (Pubitemid 33596707)
6. Wright L. Espiritualidade, Sofrimento e Doença. Coimbra, Portugal: Ariadne ed; 2005.
7. Martins MC. O Enfermeiro e o Alvio do Sofrimento: Uma Revisão de Literatura. Pensar Enferm. 2007;11(1) 34-43.
8. Taylor EJ, Amenta M, Highfield M. Spiritual care practices of oncology nurses. Oncol Nurs Forum. 1995;22(1):31-39.
9. Carroll B. A phenomenological exploration of the nature of spirituality and spiritual care. Mortality. 2001;6(1):81-98. (Pubitemid 33243676)
10. Grant D. Spiritual interventions: how, when, and why nurses use them. Holist Nurs Pract. 2004;18(1):36-41.
11. Roxo J. O Toque na prática clinica. Rev Ref, 2008: 2, 6, 77-89.
12. Cox T. Theory and exemplars of advanced practice spiritual intervention. Complement Ther Nurs Midwifery. 2003;9(1):30-34. (Pubitemid 36336355)
13. Narayanasamy A, Clisset P, Paruma L, Thompson D, Annasamy S, Edge R. Responses to the spiritual needs of older people. J Adv Nurs. 2004;48(1):6-16. (Pubitemid 39318476)
14. Kleinman S. What is the nature of nurse practitioners' lived experiences interacting with patients. J Am Acad Nurse Pract. 2004;16(6):263-269.
15. Skilbeck J, Payne S. Emotional support and the role of clinical nurse specialists in palliative care. J Adv Nurs. 2003;43(5): 521-530. (Pubitemid 37260241)
16. Dover L, Bacon J. Spiritual care in nursing practice: a close-up view. Nurs Forum. 2001;36(3):18-30.
17. Takman C, Severinsson E. A description of health care professionals' experiences of encounters with patients in clinical settings. J Adv Nurs. 1999;30(6):1368-1374.
18. Mok E, Chiu PC. Nurse-patient relationship in palliative care. J Adv Nurs. 2004;48(5):475-483.
19. Arman M, Rehnsfeld A. The presence of love in ethical caring. Nurs Forum. 2006;41(1):4-12.
20. Arman M, Rehnsfeld A. The 'little extra' that alleviates suffering. Nurs Ethics. 2007;14(3):372-386.
21. Araú jo M, Silva M, Francisco M. Nursing the dying: essential elements in the care of terminally ill patients. Int Nurs Rev. 2004;51:149-158 (Pubitemid 39118944)
22. Kahn D, Steeves R. An understanding of suffering grounded in clinical practice and research. In: Ferrell B, ed. Suffering. Sudbury, MA: Jones and Bartlett Publishers; 1996.
23. Rehnsfeldt A, Eriksson K. The progression of suffering implies alleviated suffering. Scand J Caring Sci. 2004;18:264-272. (Pubitemid 41710685)
24. Stranahan S. Spiritual perception, attitudes about spiritual care, and spiritual care practices among nurse practitioners. West J Nurs Res. 2001;23(1):90-104. (Pubitemid 33610471)
25. Koslander T, Arvidsson B. How the spiritual dimension is addressed in psychiatric patient-nurse relationships. J Adv Nurs. 2005;51(6):558-566. (Pubitemid 41296800)
26. Puchalski C. Spirituality and the care of patients at the end-oflife: an essential component of care. Omega. 2007-2008;56(1): 33-46.
27. Burkhardt M, Jacobson MG. Spirituality and Health. In: Dossey B, Keegan L, Guzzetta C, eds. Holistic Nursing, A Handbook for Practice. 3rd ed. Boston, MA: Jones and Bartlett Publishers; 2003.
28. DiJoseph J, Cavendish R. Expanding the dialogue on prayer relevant to holistic care. Holist Nurs Pract. 2005;19(4):147-154.
29. Ross L. The spiritual dimension: its importance to patients health, well-being and quality of life and its implications for nursing practice. Int J Nurs Stud. 1995;32(5):457-468.
30. Rustoen T, Hanestadt B. Nursing intervention to increase hope in cancer patients. J Clin Nurs. 1998;7(1):19.
31. Johnston K, Rohaly-Davis J. An introduction to music therapy: helping the oncology patient. In: Guzzetta C, ed. Essential Readings in Holistic Nursing. Gaithersburg, MD: Aspen Publishers, Inc; 1998.
32. Good M, Stanton-Hicks M, Grass J, et al. Relaxation and music to reduce postsurgical pain. Issues and innovations in nursing practice. J Adv Nurs. 2001;33(2):208-215. (Pubitemid 33614441)
33. McCaffrey R, Freeman E. Effect of music on chronic osteoarthritis pain in older people. J Adv Nurs. 2003;44(5):517-524. (Pubitemid 37548528)
34. Mcewen M. Spiritual nursing careVstate of the art. Holist Nurs Pract. 2005;19(4):161-168.
35. Billhult A, Dahlberg K. A meaningful relief from suffering experiences of massage in cancer care. Cancer Nurs. 2001;24(3): 180-184. (Pubitemid 32497001)
36. Blomqvist K. Older People in persistent pain: nursing and paramedical staff perceptions and pain management. J Adv Nurs. 2003;41(6):575-584. (Pubitemid 37255947)
37. Spross J. Coaching and suffering, the role of the nurse in helping people facing illness. In: Ferrell B, ed. Suffering. Sudbury, MA: Jones and Bartlett Publishers; 1996.
38. Seki NH, Galheigo SM. The use of music in palliative care: humanizing care and facilitating the farewell. Interface Comunic Saude Educ. 2010;14(33):273-284.
39. Kolcaba K, Dowd T, Steiner R, Mitzel A. Efficacy of hand massage for enhancing the comfort of hospice patients. J Hospice Palliat Nurs. 2004;6(2):91-102.
40. José H. Humor na Esfera de Compet4ncias dos Enfermeiros. Ensino Superior. 2009;32:38-44.
41. Charmaz K. Constructing Grounded Theory, A Practical Guide Through Qualitative Analysis. London: Sage Publications; 2006.
42. Hutchinson S. Grounded Theory: the method. In Munhall PL, Oiler CJ, eds. Nursing Research: A Qualitative Perspective. Norwalk, CT: Appleton-Century- Crafts; 1986.
43. Green J, Thorogood N. Qualitative Methods for Health Research; London: Sage Publications; 2005.
44. Evans MJ, Hallett C. Living with dying: a hermeneutic phenomenological study of the work of hospice nurses. J Clin Nurs. 2007;16:742-751.
45. Abraham A, Kutner J, Beaty B. Suffering at the end of life in the setting of low physical symptom distress. J Palliat Med. 2006; 9(3):658-665. (Pubitemid 43938842)
46. Heidegger M. Ser e Tempo. 3rd ed Petró polis, Rio de Janeiro, Brazil: Editorial Vozes; 2008.
47. Cassell E. The Nature of Suffering and the Goals of Medicine. 2nd ed. New York: Oxford University Press; 2004.
48. GregoryDM. Narratives of Suffering in the Cancer Experience [doctoral dissertation-research]. Tucson, AZ:University ofArizona; 1994.
49. Bottorf J, Gogag M, Engelberg-Lotskar M. Comforting: exploring the work of cancer nurses. J Adv Nurs. 1995;22:1077-1084.
50. Morse J, Bottorf J, Hutchinson S. The phenomenology of comfort. J Adv Nurs. 1994;20:189-195.
51. Edvardsson D, Sandman P, Rasmussen B. Caring or uncaringV meanings of being in an oncology environment. J Adv Nurs. 2006;55(2):188Y197.
52. Beckstrand R, Moore J, Callister L, Bond E. Oncology nurses' perceptions of obstacles and supportive behaviors at the end of life. Oncol Nurs Forum. 2009;36(4):446-453.
53. Doutrich D, Wros P, Izumi S. Relief of suffering and regard for personhood: nurses' ethical concerns in Japan and the USA. Nurs Ethics. 2001;8(5):448-459.
54. Kotzé W. An anthropological nursing science: nursing accompaniment theory. Health SA Gesondheid. 1998;3(2):3-14.
55. Beaulieu MB. L'accompagnement au quotidian L'áide-soignant face aux souffrances et aux deuils. Issy-les-Moulineaux, France: Elsevier Masson; 2007.
56. Hennezel M. Morrer de Olhos Abertos. Cruz Quebrada, Portugal: Casa das Letras; 2006.