Behavioral and psychosocial program needs of young adult cancer survivors

Qualitative Health Research

Volumn 21, Issue 6, 2011, Pages 796-806

  Rabin, Carolyn ^a   Simpson, Norah ^b   Morrow, Kathleen ^a   Pinto, Bernardine ^a  

^a MIRIAM HOSPITAL   (United States)

^b BETH ISRAEL DEACONESS MEDICAL CENTER   (United States)

Author keywords

cancer; health behavior; intervention programs; social support; survivorship; young adults

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; FEMALE; HEALTH PROMOTION; HEALTH SURVEY; HUMAN; INTERVIEW; MALE; METHODOLOGY; NEEDS ASSESSMENT; NEOPLASM; PSYCHOLOGICAL ASPECT; RISK REDUCTION; SURVIVOR;

ADOLESCENT; ADULT; FEMALE; HEALTH PROMOTION; HEALTH SURVEYS; HUMANS; INTERVIEWS AS TOPIC; MALE; NEEDS ASSESSMENT; NEOPLASMS; RISK REDUCTION BEHAVIOR; SURVIVORS; YOUNG ADULT;

EID: 79955622209     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732310380060     Document Type: Article

References (45)

1. Adolescent and Young Adult Oncology Progress Review Group. (2006). Closing the gap: Research and care imperatives for adolescents and young adults with cancer (No. 06-6067). Bethesda, MD: U.S. Department of Health and Human Services, and Livestrong Young Adult Alliance.
2. Ashing-Giwa, K.T. (2008). Enhancing physical well-being and overall quality of life among underserved Latina-American cervical cancer survivors: Feasibility study. Journal of Cancer Survivorship, 2 (3). 215-223. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=Pu bMed&dopt=Citation&list-uids=18712607
3. Avis, N.E., Crawford, S., & Manuel, J. (2004). Psychosocial problems among younger women with breast cancer. Psycho-Oncology, 13 (5). 295-308. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=15133771 (Pubitemid 38714192)
4. Blaauwbroek, R., Bouma, M.J., Tuinier, W., Groenier, K.H., de Greef, M.H., Meyboom-de Jong, B.,... Postma, A. (2008). The effect of exercise counselling with feedback from a pedometer on fatigue in adult survivors of childhood cancer: A pilot study. Support Care in Cancer. Advance online publication. doi:10.1007/s00520-008-0533-y.
5. Bleyer, A. (2007). Young adult oncology: The patients and their survival challenges. CA: A Cancer Journal for Clinicians, 57 (4). 242-255. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=17626120 (Pubitemid 47312083)
6. Bloom, J.R., Stewart, S.L., Chang, S., & Banks, P.J. (2004). Then and now: Quality of life of young breast cancer survivors. Psycho-Oncology, 13 (3). 147-160. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=15022150 (Pubitemid 38372442)
7. Burgess, C., Cornelius, V., Love, S., Graham, J., Richards, M., & Ramirez, A. (2005). Depression and anxiety in women with early breast cancer: Five-year observational cohort study. British Medical Journal, 330 (7493). 702. doi:10.1136/ bmj.38343.670868.D3
8. Campbell, M., Fitzpatrick, R., Haines, A., Kinmonth, A.L., Sandercock, P., Spiegelhalter, D.,... Tyrer, P. (2000). Framework for design and evaluation of complex interventions to improve health. British Medical Journal, 321 (7262). 694-696. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&1ist-uids=10987780
9. Cantrell, M.A., & Conte, T.M. (2009). Between being cured and being healed: The paradox of childhood cancer survivorship. Qualitative Health Research, 19, 312-322. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query. fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list-uids=19224875
10. Courneya, K.S., Friedenreich, C.M., Quinney, H.A., Fields, A.L., Jones, L.W., & Fairey, A.S. (2003). A randomized trial of exercise and quality of life in colorectal cancer survivors. European Journal of Cancer Care (English), 12 (4). 347-357. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve&db=PubMed&dopt=Citation&list-uids=14982314 (Pubitemid 37550287)
11. Courneya, K.S., Friedenreich, C.M., Sela, R.A., Quinney, H.A., Rhodes, R.E., & Handman, M. (2003). The group psychotherapy and home-based physical exercise (group-hope) trial in cancer survivors: Physical fitness and quality of life outcomes. Psycho-Oncology, 12 (4). 357-374. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=12748973 (Pubitemid 36625973)
12. Courneya, K.S., Sellar, C.M., Stevinson, C., McNeely, M.L., Friedenreich, C.M., Peddle, C.J.,... Reiman, T. (2009). Moderator effects in a randomized controlled trial of exercise training in lymphoma patients. Cancer Epidemiology, Bio-markers and Prevention, 18 (10). 2600-2607. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=19815635
13. Daley, A.J., Crank, H., Mutrie, N., Saxton, J.M., & Coleman, R. (2007). Determinants of adherence to exercise in women treated for breast cancer. European Journal of Oncology Nursing, 11 (5). 392-399. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=17524796
14. Davidson, K.W., Goldstein, M., Kaplan, R.M., Kaufmann, P.G., Knatterud, G.L., Orleans, C.T.,... Whitlock, E.P. (2003). Evidence-based behavioral medicine: What is it and how do we achieve it? Annals of Behavioral Medicine, 26 (3). 161-171. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=14644692 (Pubitemid 37553472)
15. Demark-Wahnefried, W., Clipp, E.C., Lipkus, I.M., Lobach, D., Snyder, D.C., Sloane, R.,... Kraus, W.E. (2007). Main outcomes of the FRESH START trial: A sequentially tailored, diet and exercise mailed print intervention among breast and prostate cancer survivors. Journal of Clinical Oncology, 25 (19). 2709-2718. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=17602076 (Pubitemid 47123178)
16. Demark-Wahnefried, W., Peterson, B., McBride, C., Lipkus, I., & Clipp, E. (2000). Current health behaviors and readiness to pursue life-style changes among men and women diagnosed with early stage prostate and breast carcinomas. Cancer, 88 (3). 674-684. Retrieved from http://www.ncbi.nlm.nih.gov/ entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list-uids= 10649263 (Pubitemid 30056945)
17. Emmons, K.M., Puleo, E., Park, E., Gritz, E.R., Butterfield, R.M., Weeks, J.C.,... Li, F.P. (2005). Peer-delivered smoking counseling for childhood cancer survivors increases rate of cessation: The partnership for health study. Journal of Clinical Oncology, 23 (27). 6516-6523. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=15941955 (Pubitemid 46190243)
18. Foss Abrahamsen, A., Andersen, A., Nome, O., Jacobsen, A.B., Holte, H., Foss Abrahamsen, J., & Kvaloy, S. (2002). Long-term risk of second malignancy after treatment of Hodgkin's disease: The influence of treatment, age and follow-up time. Annals of Oncology, 13 (11). 1786-1791. Retrieved from http:// www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&d b=PubMed&dopt=Citation&list-uids=12419752 (Pubitemid 35439459)
19. Ganz, P.A., Greendale, G.A., Petersen, L., Kahn, B., & Bower, J.E. (2003). Breast cancer in younger women: Reproductive and late health effects of treatment. Journal of Clinical Oncology, 21 (22). 4184-4193. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=14615446 (Pubitemid 46606187)
20. Glasgow, R.E., Bull, S.S., Gillette, C., Klesges, L.M., & Dzewaltowski, D.A. (2002). Behavior change intervention research in healthcare settings: A review of recent reports with emphasis on external validity. American Journal of Preventive Medicine, 23 (1). 62-69. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=Pub Med&dopt=Citation&list-uids=12093425 (Pubitemid 34687134)
21. Gloeckler Ries, L.A., Reichman, M.E., Lewis, D.R., Hankey, B.F., & Edwards, B.K. (2003). Cancer survival and incidence from the Surveillance, Epidemiology, and End Results (SEER) program. Oncologist, 8 (6). 541-552. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=14657533 (Pubitemid 37467370)
22. Greenfield, D.M., Walters, S.J., Coleman, R.E., Hancock, B.W. Eastell, R., Davies, H.A.... Ross, R.J. (2007). Prevalence and consequences of androgen deficiency in young male cancer survivors in a controlled cross-sectional study. Journal of Clinical Endocrinology & Metabolism, 92 (9). 3476-3482. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=17579201 (Pubitemid 47435323)
23. Hewitt, M., & Rowland, J.H. (2002). Mental health service use among adult cancer survivors: Analyses of the National Health Interview Survey. Journal of Clinical Oncology, 20 (23). 4581-4590. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=12454116 (Pubitemid 35402962)
24. Hilton, S., Emslie, C., Hunt, K., Chapple, A., & Ziebland, S. (2009). Disclosing a cancer diagnosis to friends and family: A gendered analysis of young men's and women's experiences. Qualitative Health Research, 19, 744-754. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=19342703
25. Hooning, M.J., Aleman, B.M.P., Klijn, J.G.M., & van Leeuwen, F.E. (2004). Cardiovascular mortality following breast cancer treatment. European Journal of Cancer Supplements, 2 (3). 140-141.
26. King, V., Constine, L.S., Clark, D., Schwartz, R.G., Muhs, A.G., Henzler, M.,... Rubin, P. (1996). Symptomatic coronary artery disease after mantle irradiation for Hodgkin's disease. International Journal of Radiation Oncology, Biology, Physics, 36 (4). 881-889. Retrieved from http://www.ncbi.nlm.nih.gov/ entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list-uids= 8960517 (Pubitemid 27008604)
27. Kok, G., Schaalma, H., Ruiter, R.A., van Empelen, P., & Brug, J. (2004). Intervention mapping: Protocol for applying health psychology theory to prevention programmes. Journal of Health Psychology, 9 (1). 85-98. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=14683571 (Pubitemid 38112062)
28. Loge, J.H., Abrahamsen, A.F., Ekeberg, O., & Kaasa, S. (1999). Reduced health-related quality of life among Hodgkin's disease survivors: A comparative study with general population norms. Annals of Oncology, 10 (1). 71-77. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=10076725 (Pubitemid 29090595)
29. Parker, P.A., Baile, W.F., de Moor, C., & Cohen, L. (2003). Psychosocial and demographic predictors of quality of life in a large sample of cancer patients. Psycho-Oncology, 12 (2). 183-193. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=12619150 (Pubitemid 36362046)
30. Pinto, B.M., Frierson, G.M., Rabin, C., Trunzo, J.J., & Marcus, B.H. (2005). Home-based physical activity intervention for breast cancer patients. Journal of Clinical Oncology, 23 (15). 3577-3587. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=15908668
31. Pope, C., Ziebland, S., & Mays, N. (2000). Qualitative research in health care: Analysing qualitative data. British Medical Journal, 320 (7227). 114-116. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=Pu bMed&dopt=Citation&list-uids=10625273
32. QSR International Pty Ltd. (2008). NVivo qualitative data analysis software (Version 8.0) [Computer software]. Melbourne, Australia: Author.
33. Rabin, C., Pinto, B., Dunsiger, S., Nash, J., & Trask, P. (2009). Exercise and relaxation intervention for breast cancer survivors: Feasibility, acceptability and effects. Psycho-Oncology, 18 (3). 258-266. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=18473397
34. Rabin, C., & Politi, M. (2010). Need for health behavior interventions for young adult cancer survivors. American Journal of Health Behavior, 34 (1). 70-76. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/ query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list-uids=19663754
35. Reuben, S.H. (2004). Living beyond cancer: Finding a new balance. Bethesda, MD: U.S. Department of Health and Human Services, National Institutes of Health, National Cancer Institute. Retrieved from http://deainfo.nci.nih.gov/ advisory/pcp/pcp03-04rpt/survivorship.pdf
36. Santacroce, S.J., & Lee, Y.L. (2006). Uncertainty, posttraumatic stress, and health behavior in young adult childhood cancer survivors. Nursing Research, 55 (4). 259-266. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/ query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list-uids=16849978 (Pubitemid 44503657)
37. Shapiro, C.L., & Recht, A. (2001). Side effects of adjuvant treatment of breast cancer. New England Journal of Medicine, 344 (26). 1997-2008. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=11430330 (Pubitemid 32568155)
38. Thewes, B., Butow, P., Girgis, A., & Pendlebury, S. (2004). The psychosocial needs of breast cancer survivors: A qualitative study of the shared and unique needs of younger versus older survivors. Psycho-Oncology, 13 (3). 177-189. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=15022153 (Pubitemid 38372445)
39. Travis, L.B., Fossa, S.D., Schonfeld, S.J., McMaster, M.L., Lynch, C.F., Storm, H.,... Gilbert, E.S. (2005). Second cancers among 40,576 testicular cancer patients: Focus on long-term survivors. Journal of the National Cancer Institute, 97 (18). 1354-1365. Retrieved from http://www.ncbi.nlm.nih.gov/ entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list-uids= 16204692 (Pubitemid 41487803)
40. United States Department of Health and Human Services. (1996). Physical activity and health: A report of the Surgeon General. Atlanta, GA: Author, Centers for Disease Control and Prevention.
41. van den Belt-Dusebout, A.W., Nuver, J., de Wit, R., Gietema, J.A., ten Bokkel Huinink, W.W., Rodrigus, P.T.,... van Leeuwen, F.E. (2006). Long-term risk of cardiovascular disease in 5-year survivors of testicular cancer. Journal of Clinical Oncology, 24 (3). 467-475. Retrieved from http://www.ncbi.nlm.nih. gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list- uids=16421423 (Pubitemid 46630466)
42. Wenzel, L., DeAlba, I., Habbal, R., Kluhsman, B.C., Fairclough, D., Krebs, L.U.... Aziz, N. (2005). Quality of life in long-term cervical cancer survivors. Gynecologic Oncology, 97 (2). 310-317. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=Pu bMed&dopt=Citation&list-uids=15863123 (Pubitemid 40614869)
43. Whitehead, S., & Lavelle, K. (2009). Older breast cancer survivors' views and preferences for physical activity. Qualitative Health Research, 19, 894-906. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd= Retrieve&db=PubMed&dopt=Citation&list-uids=19448032
44. Wu, X., Groves, F.D., McLaughlin, C.C., Jemal, A., Martin, J., & Chen, V.W. (2005). Cancer incidence patterns among adolescents and young adults in the United States. Cancer Causes and Control, 16 (3). 309-320. Retrieved from http:// www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&d b=PubMed&dopt=Citation&list-uids=15947883 (Pubitemid 40897850)
45. Zebrack, B. (2009). Information and service needs for young adult cancer survivors. Support Care in Cancer, 17 (4). 349-357. Retrieved from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db= PubMed&dopt=Citation&list-uids=18543006