Young-Onset Dementia: A review of the literature and what it means for clinicians

Journal of Psychosocial Nursing and Mental Health Services

Volumn 49, Issue 4, 2011, Pages 28-33

  Hunt, Debra Collins ^a  

^a UNIVERSITY OF CENTRAL FLORIDA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 79955449442     PISSN: 02793695     EISSN: None     Source Type: Journal    
DOI: 10.3928/02793695-20110302-05     Document Type: Review

References (27)

1. Alzheimer's Association. (2006). Early onset dementia: A national challenge, a future crisis. Retrieved from http://www.alz.org/national/documents/report_earlyonset_summary.pdf
2. Arai, A., Matsumoto, T., Ikeda, M., & Arai, Y. (2007). Do family caregivers perceive more difficulty when they look after patients with early onset dementia compared to those with late onset dementia? International Journal of Geriatric Psychiatry, 22, 1255-1261. doi:10.1002/gps.1935
3. Armstrong, M. (2003, August 1). The needs of people with young-onset dementia and their carers. Nursing Times. Retrieved from http://www.nursingtimes.net/nursing-practice-clinical-research/the-needs-of-people-with-young-onset-dementia-and-their-carers/199806.article
4. Baltes, P.B. (1997). On the incomplete architecture of human ontogeny: Selection, optimization, and compensation as foundation of developmental theory. American Psychologist, 52, 366-380.
5. Beattie, A., Daker-White, G., Gilliard, J., & Means, R. (2004). "How can they tell?" A qualitative study of the views of younger people about their dementia and dementia care services. Health & Social Care in the Community, 12, 359-368. doi:10.1111/j.1365-2524.2004.00505.x
6. Berlit, P. (2007). Neuropsychiatric disease in collagen vascular diseases and vasculitis. Journal of Neurology, 254(Suppl. 2), II87-II89. doi:10.1007/s00415-007-2021-6
7. Bulsara, C., Ward, A., & Joske, D. (2004). Haematological cancer patients: Achieving a sense of empowerment by use of strategies to control illness. Journal of Clinical Nursing, 13, 251-258. doi:10.1046/j.1365-2702.2003.00886.x
8. Carpenter, B.D., Xiong, C., Porensky, E.K., Lee, M.M., Brown, P.J., Coats, M., Morris, J.C. (2008). Reaction to a dementia diagnosis in individuals with Alzheimer's disease and mild cognitive impairment. Journal of the American Geriatrics Society, 56, 405-412. doi:10.1111/j.1532-5415.2007.01600.x
9. Erikson, E.H. (1980). Generativity versus stagnation. In Identity and the life cycle (Rev. ed., pp. 103-104). New York: Norton and Company.
10. Harden, J. (2005). Developmental life stage and couples' experiences with prostate cancer: A review of the literature. Cancer Nursing, 28, 85-98.
11. Harris, P.B., & Keady, J. (2004). Living with early onset dementia: Exploring the experience and developing evidence-based guidelines for practice. Alzheimer's Care Today, 5, 111-122. Retrieved from http://www.nursingcenter.com/library/JournalArticle.asp?Article_ID=520721
12. Harvey, R.J., Skelton-Robinson, M., & Rossor, M.N. (2003). The prevalence and causes of dementia in people under age of 65 years. Journal of Neurology, Neurosurgery & Psychiatry, 74, 1206-1209. doi:10.1136/jnnp.74.9.1206
13. Henderson, S.L., Packman, W., & Packman, S. (2009). Psychosocial aspects of patients with Niemann-Pick disease, type B. American Journal of Medical Genetics Part A, 149A, 2430-2436. doi:10.1002/ajmg.a.33077
14. Jha, A., Tabet, N., & Orrell, M. (2001). To tell or not to tell-Comparison of older patients' reaction to their diagnosis of dementia and depression. International Journal of Geriatric Psychology, 16, 879-885. doi:10.1002/gps.412
15. Kaiser, S., & Panegyres, P.K. (2007). The psychosocial impact of young onset dementia on spouses. American Journal of Alzheimer's Disease and Other Dementias, 21, 398-402. doi:10.1177/1533317506293259
16. Koedam, E.L., Lauffer, V., van der Vlies, A.E., van der Flier, W.M., Scheltens, P., & Pijnenburg, Y.A. (2010). Early-versus late-onset Alzheimer's disease: More than age alone. Journal of Alzheimer's Disease, 19, 1401-1408.
17. Lewis, P.R., & Lubkin, I.M. (2002). Illness roles. In I.M. Lubkin & P.D. Larsen (Eds.), Chronic illness: Impact and interventions (5th ed., pp. 25-52). Sudbury, MA: Jones & Bartlett.
18. Licht, E.A., McMurtray, A.M., Saul, R.E., & Mendez, M.F. (2007). Cognitive differences between early-and late-onset Alzheimer's disease. American Journal of Alzheimer's Disease and Other Dementias, 22, 218-222. doi:10.1177/1533317506299156
19. McGoldrick, M., & Carter, B. (2003). The family life cycle. In F. Walsh (Ed.), Normal family processes: Growing diversity and complexity (3rd ed., pp. 335-355). New York: Guilford Press.
20. McMurtray, A., Clark, D.G., Christine, D., & Mendez, M.F. (2006). Early-onset dementia: Frequency and causes compared to late-onset dementia. Dementia and Geriatric Cognitive Disorders, 21, 59-64. doi:10.1159/000089546
21. Nijboer, C., Triemstra, M., Tempelaar, R., Mulder, M., Sanderman, R., & van den Bos, G.A. (2000). Patterns of caregiver experiences among partners of cancer patients. The Gerontologist, 40, 738-746. doi:10.1093/geront/40.6.738
22. Sampson, E.L., Warren, J.D., & Rossor, M.N. (2004). Young onset dementia. Postgraduate Medical Journal, 80, 125-139. doi:10.1136/pgmj.2003.011171
23. Söderberg, S., Lundman, B., & Norberg, A. (1999). Struggling for dignity: The meaning of women's experiences of living with fibromyalgia. Qualitative Health Research, 9, 575-587. doi:10.1177/104973299129122090
24. Steverink, N., Westerhof, G.J., Bode, C., & Dittmann-Kohli, F. (2001). The personal experience of aging, individual resources, and subjective well-being. Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 56, P364-P373. doi:10.1093/geronb/56.6.P364
25. Stoquart-Elsankari, S., Périn, B., Lehmann, P., Gondry-Jouet, C., & Godefroy, O. (2010). Cognitive forms of multiple sclerosis: Report of a dementia case. Clinical Neurology and Neurosurgery, 112, 258-260. doi:10.1016/j.clineuro.2009.11.018
26. Taylor, R. (2007). Alzheimer's from the inside out. Baltimore: Health Professions Press.
27. Wardini, Y., & de la Rosa, P. (2005). The effects of adapted logotherapy on the self-esteem of mid-life women with life-threatening illnesses: Findings from a study in Indonesia. Asian Journal of Nursing Studies, 8(3), 39-49.