Long-term disease-specific quality of life in adult anorectal malformation patients

Journal of Pediatric Surgery

Volumn 46, Issue 4, 2011, Pages 691-698

  Grano, Caterina ^a   Aminoff, Dalia ^b   Lucidi, Fabio ^a   Violani, Cristiano ^a  

^a SAPIENZA UNIVERSITY OF ROME   (Italy)

^b AIMAR   (Italy)

Author keywords

Anorectal malformation; Disease specific quality of life; Emotional functioning; Fecal continence; HAQL; Social functioning; Urinary continence

Indexed keywords

ADOLESCENT; ADULT; ANORECTAL MALFORMATION; ARTICLE; BODY IMAGE; CLINICAL ARTICLE; EMOTION; FECES INCONTINENCE; FEMALE; HUMAN; LONG TERM CARE; MALE; PREDICTION; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; REGRESSION ANALYSIS; SEXUALITY; SOCIAL INTERACTION; URINE INCONTINENCE;

ADOLESCENT; ADULT; ANAL CANAL; ANUS DISEASES; DEFECATION; FECAL INCONTINENCE; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES; RECTAL DISEASES; RECTUM; TIME FACTORS; URINATION; UROLOGIC DISEASES; YOUNG ADULT;

EID: 79954553636     PISSN: 00223468     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpedsurg.2010.10.016     Document Type: Article

References (24)

1. Rintala R., and Lindahl H. Fecal continence in patients having undergone posterior sagittal anorectoplasty procedure for a high anorectal malformation improves at adolescence, as constipation disappears J Pediatr Surg 36 2001 1218 1221 (Pubitemid 32705708)
2. Diseth T.H., Egeland T., and Emblem R. Effects of anal invasive treatment and incontinence on mental health and psychosocial functioning of adolescents with Hirschsprung's disease and low anorectal anomalies J Pediatr Surg 33 1998 468 475 (Pubitemid 28160280)
3. Diseth T.H., and Emblem R. Somatic function, mental health, and psychosocial adjustment of adolescents with anorectal anomalies J Pediatr Surg 31 1996 638 643 (Pubitemid 26152578)
4. Bai Y., Yuan Z., and Wang W. Quality of life for children with fecal incontinence after surgically corrected anorectal malformation J Pediatr Surg 35 2000 432 434
5. Goyal A., Williams J.M., and Kenny S.E. Functional outcome and quality of life in anorectal malformations J Pediatr Surg 41 2006 318 322 (Pubitemid 43233846)
6. Rintala R., and Pakarinen M.D. Imperforate anus: long- and short-term outcome Semin Pediatr Surg 17 2008 79 89 (Pubitemid 351458722)
7. Ludman L., and Spitz L. Psychosocial adjustment of children treated for anorectal anomalies J Pediatr Surg 30 1995 495 499
8. Hartman E.E., Oort F.J., and Aronson D.C. Explaining change in quality of life of children and adolescents with anorectal malformations or Hirschprung's disease Pediatrics 119 2007 e374 83
9. Rintala R., Mildh L., and Lindahl H. Fecal continence and quality of life for adult patients with an operated high or intermediate malformation J Pediatr Surg 29 1994 777 780 (Pubitemid 24191362)
10. Hassink E.A., Rieu P.N., and Brugman A.T. Quality of life after operatively corrected high anorectal malformation: a long-term follow-up study of patients aged 18 years and older J Pediatr Surg 29 1994 773 776 (Pubitemid 24191361)
11. Iwai N., Deguchi E., and Kimura O. Social quality of life for adult patients with anorectal malformations J Pediatr Surg 42 2007 313 317 (Pubitemid 46161551)
12. Hartman E., Oort F., and Mechteld V. Explaining change over time in quality of life of adult patients with anorectal malformations or Hirschsprung's disease Dis Colon Rectum 49 2005 96 103 (Pubitemid 41830661)
13. Aminoff D., La Sala E., and Zaccara A. Follow-up of anorectal anomalies: the Italian parents' perspective J Pediatr Surg 41 2006 837 841
14. Holschneider A., Hutsonb J., and Pena A. Preliminary report on the International Conference for the Development of Standards for the Treatment of Anorectal Malformations J Pediatr Surg 40 2005 1521 1526 (Pubitemid 41530107)
15. Hanneman M., Sprangers M.E., and De Mik E.L. Quality of life in patients with anorectal malformations or Hirschsprung's disease: the development of a disease-specific questionnaire Dis Col & Rect 44 2001 1650 1660 (Pubitemid 33126984)
16. Grano C., Aminoff D., and Lucidi F. Disease-specific quality of life in children and adults with anorectal malformations Pediatr Surg Int 26 2010 151 155
17. Corcos J., Beaulieu S., and Donovan J. Quality of life assessment in men and women with urinary incontinence J Urol 168 2002 896 905
18. Woodhouse C.R. The sexual and reproductive consequences of congenital genitourinary anomalies J Urol 152 1994 645 651 (Pubitemid 24235874)
19. Owens P.L., Bradley E.H., and Horwitz S.M. Clinical assessment of function among women with a recent cerebrovascular event: a self-reported versus performance-based measure Ann Intern Med 136 2002 802 811 (Pubitemid 34568650)
20. Wittink H., Rogers W., and Sukiennik A. Physical functioning: self-report and performance measures are related but distinct Spine 28 2003 2407 2413 (Pubitemid 37271341)
21. Weaver E.M., Kapur V., and Yueh B. Polysomnography vs self-reported measures in patients with sleep apnea Arch Otolaryngol Head Neck Surg 130 2004 453 458 (Pubitemid 38456322)
22. Stewart M.G., and Smith T.L. Objective versus subjective outcomes assessment in rhinology Am J Rhinol 19 2005 529 535 (Pubitemid 41671823)
23. Diseth T.H., Emblem R., and Vandvik E.R. Adolescents with anorectal malformations and their families Fam Syst Med 13 1995 215 231
24. Hartman E.E., Oort F.J., and Aronson D.C. Critical factors affecting quality of life of adult patients with anorectal malformations or Hirschsprung's disease Am J Gastroenterol 99 2004 907 913 (Pubitemid 39090222)