Surveillance of systemic autoimmune rheumatic diseases using administrative data

Rheumatology International

Volumn 31, Issue 4, 2011, Pages 549-554

  Bernatsky, S ^a,b   Lix, L ^c   Hanly, J G ^d   Hudson, M ^e   Badley, E ^f   Peschken, C ^g   Pineau, C A ^b   Clarke, A E ^a,b   Fortin, P R ^h   Smith, M ⁱ   Belisle P ^a   Lagace, C ^j   Bergeron, L ^k   Joseph, L ^a,b  

^a RESEARCH INSTITUTE OF THE MCGILL UNIVERSITY HEALTH CENTRE   (Canada)

^b MCGILL UNIVERSITY   (Canada)

^c UNIVERSITY OF SASKATCHEWAN   (Canada)

^d DALHOUSIE UNIVERSITY   (Canada)

^e MCGILL UNIVERSITY   (Canada)

^f UNIVERSITY OF TORONTO   (Canada)

^g UNIVERSITY OF MANITOBA   (Canada)

^h TORONTO WESTERN HOSPITAL   (Canada)

ⁱ UNIVERSITY OF MANITOBA   (Canada)

^j PUBLIC HEALTH AGENCY OF CANADA   (Canada)

^k Canadian Arthritis Patient Alliance (CAPA)   (Canada)

more..

Author keywords

Administrative databases; Prevalence; Surveillance; Systemic autoimmune rheumatic diseases

Indexed keywords

ADULT; ARTICLE; AUTOIMMUNE DISEASE; CANADA; DATA BASE; DERMATOMYOSITIS; DISEASE SURVEILLANCE; FEMALE; GENDER; GROUPS BY AGE; HOSPITAL BILLING; HOSPITALIZATION; HUMAN; MALE; MEDICAL RECORD; POLYMYOSITIS; PRIORITY JOURNAL; RURAL AREA; SCLERODERMA; SJOEGREN SYNDROME; SYSTEMIC AUTOIMMUNE RHEUMATIC DISEASE; SYSTEMIC LUPUS ERYTHEMATOSUS; URBAN AREA;

ADULT; AGED; AUTOIMMUNE DISEASES; CANADA; FEMALE; HUMANS; MALE; MIDDLE AGED; PREVALENCE; RHEUMATIC DISEASES;

EID: 79954435009     PISSN: 01728172     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00296-010-1591-2     Document Type: Article

References (26)

1. The Arthritis Society. Highlights from the first ever Canadian consensus conference on Systemic Autoimmune Rheumatic Diseases (SARD) Dec 20, 2007. Available at: http://www.arthritis.ca/look%20at%20research/sard/default.asp?s=1. Accessed 16 May 2009
2. JG Hanly 2001 Manpower in Canadian academic rheumatology units: current status and future trends. Canadian Council of Academic Rheumatologists Rheumatol 28 1944 1951 1:STN:280:DC%2BD3MrgtFKmtw%3D%3D (Pubitemid 32803768)
3. R Callaghan A Prabu RB Allan, et al. 2007 Direct healthcare costs and predictors of costs in patients with primary Sjogren's syndrome Rheumatology 46 105 111 16728437 10.1093/rheumatology/kel155 1:STN:280:DC%2BD28jis12hsg%3D%3D (Pubitemid 44932796)
4. N Sutcliffe AE Clarke R Taylor, et al. 2001 Total costs and predictors of costs in patients with systemic lupus erythematosus Rheumatology (Oxford) 40 37 47 10.1093/rheumatology/40.1.37 1:STN:280:DC%2BD3M7ltVyisg%3D%3D
5. S Bernatsky M Hudson P Panopalis, et al. 2009 The cost of systemic sclerosis Arthritis Rheum 61 119 123 19116974
6. AE Clarke P Panopalis M Petri, et al. 2008 SLE patients with renal damage incur higher health care costs Rheumatology (Oxford) 47 329 333 10.1093/rheumatology/kem373 1:STN:280:DC%2BD1c7hs1Wgtg%3D%3D (Pubitemid 351267201)
7. P Panopalis M Petri S Manzi, et al. 2007 The systemic lupus erythematosus Tri-Nation study: cumulative indirect costs Arthritis Rheum 57 64 70 17266095 10.1002/art.22470
8. M Wilchesky RM Tamblyn A Huang 2004 Validation of diagnostic codes within medical services claims J Clin Epidemiol 57 131 141 15125622 10.1016/S0895-4356(03)00246-4 (Pubitemid 38668607)
9. S Bernatsky L Joseph CA Pineau, et al. 2008 Estimating the prevalence of polymyositis and dermatomyositis from administrative data: age, sex, and regional differences Ann Rheum Dis 68 1192 1196 18713785 10.1136/ard.2008.093161
10. L Joseph T Gyorkos L Coupal 1995 Bayesian estimation of disease prevalence and the prevalence of diagnostic tests in the absence of a gold standard Am J Epidemiol 141 263 272 7840100 1:STN:280:DyaK2M7kt1SksQ%3D%3D
11. D Ashby 2006 Bayesian statistics in medicine: a 25 year review Stat Med 25 3589 3631 16947924 10.1002/sim.2672 (Pubitemid 44613898)
12. N Dendukuri L Joseph 2001 Bayesian approaches to modeling the conditional dependence between multiple diagnostic tests Biometrics 57 158 167 11252592 10.1111/j.0006-341X.2001.00158.x 1:STN:280:DC%2BD3MzmvVejsg%3D%3D (Pubitemid 32200150)
13. E Losina J Barrett JA Baron, et al. 2003 Accuracy of Medicare claims data for rheumatologic diagnoses in total hip replacement recipients J Clin Epidemiol 56 515 519 12873645 10.1016/S0895-4356(03)00056-8 (Pubitemid 36842908)
14. S Bernatsky L Joseph CA Pineau, et al. 2007 A population-based assessment of systemic lupus erythematosus incidence and prevalence-results and implications of using administrative data for epidemiological studies Rheumatology (Oxford) 46 1814 1818 10.1093/rheumatology/kem233 1:STN:280:DC%2BD2snpsFyrtQ%3D%3D (Pubitemid 350168297)
15. S Bernatsky L Joseph P Belisle, et al. 2005 Bayesian modelling of imperfect ascertainment methods in cancer studies Stat Med 24 2365 2379 15977290 10.1002/sim.2116 (Pubitemid 41093920)
16. M Ladouceur E Rahme CA Pineau, et al. 2007 Robustness of prevalence estimates derived from misclassified data from administrative databases Biometrics 63 272 279 17447953 10.1111/j.1541-0420.2006.00665.x (Pubitemid 46622703)
17. Statistics Canada. Geographic Units: Census Metropolitan Area (CMA) and Census Agglomeration (CA) December 17, 2002. Available at: http://www12.statcan. ca/english/census01/Products/Reference/dict/geo009.htm. Accessed 16 May 2009
18. PM Vacek 1985 The effect of conditional dependence on the evaluation of diagnostic tests Biometrics 41 959 968 3830260 10.2307/2530967 1:STN:280:DyaL287mtVSqsg%3D%3D
19. CG Helmick DT Felson RC Lawrence, et al. 2008 Estimates of the prevalence of arthritis and other rheumatic conditions in the United States. Part I Arthritis Rheum 58 15 25 18163481 10.1002/art.23177
20. Y Kabasakal G Kitapcioglu T Turk, et al. 2006 The prevalence of Sjogren's syndrome in adult women Scand J Rheumatol 35 379 383 17062438 10.1080/03009740600759704 1:STN:280:DC%2BD28nivFyitg%3D%3D (Pubitemid 44601072)
21. CN Bernstein A Wajda LW Svenson, et al. 2006 The epidemiology of inflammatory bowel disease in Canada: a population-based study Am J Gastroenterol 101 1559 1568 16863561 10.1111/j.1572-0241.2006.00603.x (Pubitemid 43980630)
22. J Rourke 2007 In search of a definition of "rural" Can J Rural Med 2 113 115
23. LM Lix MS Yogendran WD Leslie, et al. 2008 Using multiple data features improved the validity of osteoporosis case ascertainment from administrative databases J Clin Epidemiol 61 1250 1260 18619800 10.1016/j.jclinepi.2008.02.002
24. RJ Prosser BC Carleton MA Smith 2008 Identifying persons with treated asthma using administrative data via latent class modelling Health Serv Res 43 733 754 18370976 10.1111/j.1475-6773.2007.00775.x (Pubitemid 351442582)
25. Statistical information on Canadian physicians 2009. Available at: http://www.cma.ca/index.cfm/ci-id/16959/la-id/1.htm
26. N Yiannakoulias LW Svenson DP Schopflocher 2009 An integrated framework for the geographic surveillance of chronic disease Int J Health Geogr 8 69 19948046 10.1186/1476-072X-8-69