Do nursing homes for older people have the support they need to provide end-of-life care? A mixed methods enquiry in England

Palliative Medicine

Volumn 25, Issue 2, 2011, Pages 125-138

  Seymour, Jane E ^a   Kumar, Arun ^a   Froggatt, Katherine ^b  

^a UNIVERSITY OF NOTTINGHAM   (United Kingdom)

^b LANCASTER UNIVERSITY   (United Kingdom)

Author keywords

Case studies; End of life care; Mixed methods; Nursing homes; Older people; Survey

Indexed keywords

ARTICLE; DEATH; GENERAL PRACTITIONER; HEALTH CARE QUALITY; HEALTH SURVEY; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; NURSING CARE; NURSING HOME; NURSING STAFF; SOCIAL SUPPORT; TERMINAL CARE; UNITED KINGDOM;

ENGLAND; HEALTH SERVICES NEEDS AND DEMAND; HOMES FOR THE AGED; HUMANS; NURSING HOMES; ORGANIZATIONAL CASE STUDIES; QUALITATIVE RESEARCH; QUALITY OF HEALTH CARE; QUALITY OF LIFE; TERMINAL CARE;

EID: 79953893841     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1177/0269216310387964     Document Type: Article

References (40)

1. Tebbit P. Capacity to care: a data analysis and discussion of the capacity and function of care homes as providers of end-of-life care. London: National Council for Palliative Care, 2008.
2. National End-of-life Care Intelligence Network. http://www.endoflifecare- intelligence.org.uk/home.aspx (2010, accessed 25 June 2010).
3. Froggatt KA. Palliative care and nursing homes: where next? Palliat Med 2001; 15: 42-48. (Pubitemid 32103356)
4. Netten A, Darton R and Curtis L. Self-funded admissions to care homes. Leeds: Department of Work and Pensions, 2001.
5. Aguero-Torres H, Fratiglioni L, Guo Z, Viitanen M and Winblad B. Mortality from dementia in advanced age: a 5-year follow-up study of incident dementia cases. J Clin Epidemiol 1999; 52: 737-743. (Pubitemid 29361449)
6. Bowman C, Whistler J and Ellerby M. A national census of care home residents. Age Ageing 2004; 33: 561-566. (Pubitemid 39504287)
7. Morrison R and Meier D. Introduction. In: Morrison R and Meier D (eds) Geriatric palliative care. Oxford: Oxford University Press, 2003, pp.xxi-xxx.
8. Falconer M and O'Neill D. Profiling disability within nursing homes: a census-based approach. Age Ageing 2007; 36: 209-213. (Pubitemid 46455402)
9. Froggatt K. Life and death in English nursing homes: sequestration or transition? Ageing Soc 2001; 21: 319-332. (Pubitemid 32949387)
10. Kinley J and Hockley J. A baseline review of medication provided to older people in nursing care homes in the last month of life. Int J Palliat Nurs 2010; 15: 216-223.
11. Challis D, Mozley C, Sutcliffe C, Bagley H, Price L, Burns A, et al. Dependency in older people recently admitted to care homes. Age Ageing 2000; 29: 255-260. (Pubitemid 30316211)
12. Glendinning C, Jacobs S, Alborz A and Hann M. A survey of access to medical services in nursing and residential homes in England. Br J Gen Pract 2002; 52: 545-548. (Pubitemid 34752203)
13. Froggatt KA, Poole K and Hoult L. The provision of palliative care in nursing homes and residential care homes: a survey of clinical nurse specialist work. Palliat Med 2002; 16: 481-487. (Pubitemid 35386005)
14. Miller SC, Teno JM and Mor V. Hospice and palliative care in nursing homes. Clin Geriatr Med 2004; 20: 717-734. (Pubitemid 39488033)
15. Macdonald AJ, Carpenter GI, Box O, Roberts A and Sahu S. Dementia and use of psychotropic medication in non-'Elderly Mentally Infirm' nursing homes in South East England. Age Ageing 2002; 31: 58-64. (Pubitemid 34187753)
16. Wetle T, Shield R, Teno J, Miller SC and Welch L. Family perspectives on end-of-life care experiences in nursing homes. Gerontologist 2005; 45: 642-650. (Pubitemid 41407530)
17. Wetle T, Teno J, Shield R, Miller S, Welch L and Ciambrone D. End-of-lifecare in nursing homes: Experiences of decedents and their families. Gerontologist 2003; 43: 483-483.
18. Turrell A. Nursing homes: a suitable alternative to hospital care for older people in the UK? Age Ageing 2001; 30: 24-32. (Pubitemid 32798980)
19. Froggatt K, Davies S and Meyer J. Research and development in care homes: setting the scene. In: Froggatt K, Davies S and Meyer J (eds) Understanding care homes: a research and development perspective. London: Jessica Kingsley Press, 2008.
20. Turrell AR and Castleden CM. Improving the emergency medical treatment of older nursing-home residents. Age Ageing 1999; 28: 77-82. (Pubitemid 29084067)
21. Froggatt K. Palliative care in care homes for older people. London: National Council for Palliative Care, 2004.
22. National End-of-life Care Programme. Introductory guide to end-of-lifecare in care homes. London: Department of Health, 2006.
23. National End-of-life Care Programme. Building on firm foundations. Improving end-of-lifecare in care homes: examples of innovative practice. London: Department of Health, 2007.
24. National End-of-life Care Programme. http://www.endoflifecareforadults. nhs.uk/(accessed 25 June 2010).
25. Stake R. The art of case study research. Thousand Oaks, CA: Sage, 1995.
26. Care Quality Commission. http://www.cqc.org.uk/(accessed 25 June 2010).
27. Katz J, Sidell M and Komaromy C. Understanding palliative care in residential and nursing homes. Int J Palliat Nurs 1999; 5: 58-64.
28. Froggatt K and Payne S. A survey of end-of-life care in care homes: issues of definition and practice. Health Soc Care Community 2006; 14: 341-348. (Pubitemid 43925205)
29. Bloor M. Techniques of validation in qualitative research: a critical commentary. In: Miller G and Dingwall R (eds) Context and method in qualitative research. London: Sage, 1997, pp.37-50.
30. National Audit Office. End-of-life care: survey of care homes. London, 2008.
31. Komaromy C, SidellMand Katz J. Dying in care: factors which influence the quality of terminal care given to older people in residential and nursing homes. Int J Palliat Nurs 2000; 6: 192-205.
32. Department of Health. End-of-life care strategy: promoting high quality care for all adults at end of life. London: HMSO, 2008.
33. Royal Commission on Long Term Care. With respect to old age: long term care - rights and responsibilities. London: HMSO, 1999.
34. Watson J, Hockley J and Dewar B. Barriers to implementing an integrated care pathway for the last days of life in nursing homes. Int J Palliat Nurs 2006; 12: 234-240.
35. Chan R and Webster J. End-of-life care pathways for improving outcomes in caring for the dying (review). Issue 1. Cochrane Database Syst Rev 2010; Art No. CD008006.
36. Gibbs G. Nurses in private nursing homes- a study of their knowledge and attitudes to pain management in palliative care. Palliat Med 1995; 9: 245-253.
37. Torvik K, Kaasa S, Kirkevold O and Rustoen T. Pain in patients living in Norwegian nursing homes. Palliat Med 2009; 23: 8-16.
38. Meyer J. Keeping the workforce fit for purpose. In: My home life: quality of life in care homes a review of the literature. London: Help the Aged, 2007, pp.124-141.
39. Corner J, Halliday D, Haviland J, Douglas HR, Bath P, Clark D, et al. Exploring nursing outcomes for patients with advanced cancer following intervention by Macmillan specialist palliative care nurses. J Adv Nurs 2003; 41: 561-574. (Pubitemid 37255946)
40. Macdonald AJD. Maintaining older people's dignity and autonomy in healthcare settings: whole system must be looked at to prevent degrading treatment. Br Med J 2001; 323: 340. (Pubitemid 32744468)