Preferences and perceived involvement in treatment decision making among chinese patients with chronic hepatitis

Medical Decision Making

Volumn 31, Issue 2, 2011, Pages 245-253

  Zhang, Yuhai ^a   Su, Haixia ^a,b   Shang, Lei ^a   Li, Duan ^c   Wang, Rui ^a   Zhang, Ruiqiao ^d   Xu, Yongyong ^a  

^a FOURTH MILITARY MEDICAL UNIVERSITY   (China)

^b Department of Epidemiology ^*  (China)

^c FOURTH MILITARY MEDICAL UNIVERSITY   (China)

^d Sanatorium Center for Retired Cadre   (China)

Author keywords

Chronic hepatitis; Control Preferences Scale; Decision making; Involvement

Indexed keywords

ADULT; ARTICLE; CHINA; CHRONIC DISEASE; DECISION MAKING; FEMALE; HUMAN; MALE; MIDDLE AGED; PATIENT PREFERENCE; PATIENT SATISFACTION; PSYCHOLOGICAL ASPECT; VIRUS HEPATITIS;

ADULT; CHINA; CHRONIC DISEASE; DECISION MAKING; FEMALE; HEPATITIS, VIRAL, HUMAN; HUMANS; MALE; MIDDLE AGED; PATIENT PREFERENCE; PATIENT SATISFACTION;

EID: 79953863894     PISSN: 0272989X     EISSN: 1552681X     Source Type: Journal    
DOI: 10.1177/0272989X10375990     Document Type: Article

References (51)

1. Emanuel EJ, Emanuel LL. Fours models of physician-patients relationship. J Am Med Assoc. 1992;267(16):2221-6.
2. Protière C, Viens P, Genre D, et al. Patient participation in medical decision-making: a French study in adjuvant radiochemotherapy for early breast cancer. Ann Oncol. 2000;11(1):39-45. (Pubitemid 30084577)
3. Harkness J. Patient involvement: a vital principle for patientcentered health care. World Hosp Health Serv. 2005;41(2):12-6, 40-3.
4. Deadman JM, Leinster SJ, Owens RG, Dewey ME, Slade PD. Taking responsibility for cancer treatment. Soc Sci Med. 2001;53: 669-77. (Pubitemid 32611686)
5. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (Or, it takes at least two to tango). Soc Sci Med. 1997;44:681-92. (Pubitemid 27067502)
6. Edwards A, Elwyn G, Hood K, et al. Patient-based outcome results from a cluster randomized trial of shared decision making skill development and use of risk communication aids in general practice. Fam Pract. 2004;21(4):347-54. (Pubitemid 39172054)
7. Guadagnoli E, Ward P. Patient participation in decisionmaking. Soc Sci Med. 1998;47:329-39.
8. Xu KT, Borders TF, Arif AA. Ethnic differences in parents' perception of participatory decision-making style of their children's physicians. Med Care. 2004;42:328-35.
9. Lu FM, Zhuang H. Management of hepatitis B in China. Chin Med J (Engl). 2009;122(1):3-4.
10. Jia JD, Zhuang H. The overview of the seminar on chronic hepatitis B. Chin J Hepatol. 2004;12:698-9.
11. Zhuang H. The challenge of hepatitis B infection in China. Chin J Infect Dis. 2005;23(suppl):2-6.
12. Chinese Society of Hepatology, Chinese Medical Association and Chinese Society of Infectious Diseases, Chinese Medical Association. Guideline on prevention and treatment of chronic hepatitis B in China (2005). Chin Med J (Engl). 2007;120(24): 2159-73.
13. Hoofnagle JH. Hepatitis B-preventable and now treatable. N Engl J Med. 2006;354(10):1074-6.
14. Yu ML, Chuang WL. Treatment of chronic hepatitis C in Asia: when East meets West. J Gastroenterol Hepatol. 2009;24(3): 336-45.
15. Furusyo N, Takeoka H, Toyoda K, et al. Long-term lamivudine treatment for chronic hepatitis B in Japanese patients: a project of Kyushu University Liver Disease Study. World J Gastroenterol. 2006;12(4):561-7. (Pubitemid 43380786)
16. Hoofnagle JH, Seeff LB. Peginterferon and ribavirin for chronic hepatitis C. N Engl J Med. 2006;355:2444-51. (Pubitemid 44903748)
17. Hoofnagle JH, di Bisceglie AM. The treatment of chronic viral hepatitis. N Engl J Med. 1997;336:347-56.
18. Costiniuk CT, Mills E, Cooper CL. Evaluation of oral cannabinoid- containing medications for the management of interferon and ribavirin-induced anorexia, nausea and weight loss in patients treated for chronic hepatitis C virus. Can J Gastroenterol. 2008;22(4):376-80. (Pubitemid 351772331)
19. Greenfield S, Kaplan SH, Ware JE Jr, Yano EM, Frank HJ. Patients' participation in medical care: effects on blood sugar control and quality of life in diabetes. J Gen Intern Med. 1988;3: 448-57.
20. Kaplan SH, Greenfield S, Ware JE Jr. Assessing the effects of physician-patient interactions on the outcomes of chronic disease. Med Care. 1989;27:S110-S127.
21. Hamann J, Cohen R, Leucht S, Busch R, Kissling W. Shared decision making and long-term outcome in schizophrenia treatment. J Clin Psychiatry. 2007;68(7):992-7. (Pubitemid 47340317)
22. Heesen C, Kasper J, Köpke S, Richter T, Segal J, Mühlhauser I. Informed shared decision making in multiple sclerosis-inevitable or impossible? J Neurol Sci. 2007;259:109-17. (Pubitemid 47033934)
23. Gore C, Johnson RJ, Caress AL, Woodcock A, Custovic A. The information needs and preferred roles in treatment decisionmaking of parents caring for infants with atopic dermatitis: a qualitative study. Allergy. 2005;60(7):938-43. (Pubitemid 40813817)
24. Ramfelt E, Lutzen K, Nordstrom G. Treatment decisionmaking in a group of patients with colorectal cancer before surgery and a one-year follow-up. Eur J Cancer Care. 2005;14(4):327-35. (Pubitemid 41787432)
25. Beaver K, Booth K. Information needs and decision-making preferences: comparing findings for gynaecological, breast and colorectal cancer. Eur J Oncol Nurs. 2007;11:409-16.
26. Rodriguez KL, Appelt CJ, Switzer GE, Sonel AF, Arnold RM. Veterans' decision-making preferences and perceived involvement in care for chronic heart failure. Heart Lung. 2008;37(6): 440-8.
27. Wallberg B, Michelson H, Nystedt M, Bolund C, Degner LF, Wilking N. Information needs and preferences for participation in treatment decisions among Swedish breast cancer patients. Acta Oncol. 2000;39:467-76.
28. Kremer H, Ironson G. Measuring the involvement of people with HIV in treatment decision making using the Control Preferences Scale. Med Decis Making. 2008;28(6):899-908.
29. Stewart DE, Wong F, Cheung AM, et al. Information needs and decisional preferences among women with ovarian cancer. Gynecol Oncol. 2000;77:357-61. (Pubitemid 30368550)
30. Benbassat J, Pilpel D, Tidhar M. Patients' preferences for participation in clinical decision making: a review of published surveys. Behav Med. 1998;24:81-8. (Pubitemid 28401322)
31. O'Neal EL, Adams JR, McHugo GJ, Van Citters AD, Drake RE, Bartels SJ. Preferences of older and younger adults with serious mental illness for involvement in decision-making in medical and psychiatric settings. Am J Geriatr Psychiatry. 2008;16(10): 826-33.
32. Orsino A, Cameron JI, Seidl M, Mendelssohn D, Stewart DE. Medical decision-making and information needs in end-stage renal disease patients. Gen Hosp Psychiatry. 2003;25:324-31. (Pubitemid 37102939)
33. Robinson A, Thomson R. Variability in patient preferences for participating in medical decision making: implication for the use of decision support tools. Qual Health Care. 2001;10(suppl 1):i34-8.
34. Hawley ST, Lantz PM, Janz NK, et al. Factors associated with patient involvement in surgical treatment decision making for breast cancer. Patient Educ Couns. 2007;65(3):387-95. (Pubitemid 46241780)
35. Richer MC, Ezer H. Understanding beliefs and meanings in the experience of cancer: a concept analysis. J Adv Nurs. 2000; 32(5):1108-15.
36. Baider L, Ever-Hadani P, Kaplan-De-Nour AK. The impact of culture on perceptions of patient-physician satisfaction. Isr J Med Sci. 1995;31:179-85.
37. Blackhall LJ, Murphy ST, Frank G, Michel V, Azen S. Ethnicity and attitudes towards patient autonomy. JAMA. 1995;274:820-5.
38. Degner LF, Sloan JA, Venkatesh P. The Control Preferences Scale. Can J Nurs Res. 1997;29:21-43. (Pubitemid 127473357)
39. Caress AL, Beaver K, Luker K, Campbell M, Woodcock A. Involvement in treatment decisions: what do adults with asthma want and what do they get? Results of a cross sectional survey. Thorax. 2005;60(3):199-205. (Pubitemid 40380277)
40. Degner LF, Kristjanson LJ, Bowman D, et al. Information needs and decisional preferences in women with breast cancer. JAMA. 1997;277:1485-92. (Pubitemid 27208893)
41. Kremer H, Ironson G, Schneiderman N, Hautzinger M. "It's my body": does patient involvement in decision making reduce decisional conflict? Med Decis Making. 2007;27:522-32. (Pubitemid 47547598)
42. Chapple H, Shah S, Caress AL, Kay EJ. Exploring dental patients' preferred roles in treatment decision-making-a novel approach. Br Dent J. 2003;194:321-7. (Pubitemid 38843655)
43. Davison BJ, Parker PA, Goldenberg SL. Patients' preferences for communicating a prostate cancer diagnosis and participating in medical decision-making. BJU Int. 2004;93(1):47-51. (Pubitemid 38112962)
44. Janz NK, Wren PA, Copeland LA, Lowery JC, Goldfarb SL, Wilkins EG. Patient-physician concordance: preferences, perceptions, and factors influencing the breast cancer surgical decision. J Clin Oncol. 2004;22(15):3091-8. (Pubitemid 41103721)
45. Giordano A, Mattarozzi K, Pucci E, et al. Participation in medical decision-making: attitudes of Italians with multiple sclerosis. J Neurol Sci. 2008;275:86-91.
46. Steyerberg EW, Eijkemans MJ, Harrell FE Jr, Habbema JD. Prognostic modeling with logistic regression analysis: in search of a sensible strategy in small data sets. Med Decis Making. 2001; 21(1):45-56. (Pubitemid 32245030)
47. Keating NL, Guadagnoli E, Landrum MB, Borbas C, Weeks JC. Treatment decision making in early stage breast cancer: should surgeons match patients' desired level of involvement? J Clin Oncol. 2002;20(6):1473-9. (Pubitemid 34260525)
48. Funk LM. Who wants to be involved? Decision-making preferences among residents of long-term care facilities. Can J Aging. 2004;23(1):47-58. (Pubitemid 38418549)
49. O'Leary KA, Estabrooks CA, Olson K, Cumming C. Information acquisition for women facing surgical treatment for breast cancer: influencing factors and selected outcomes. Patient Educ Couns. 2007;69:5-19. (Pubitemid 350051680)
50. Pieterse AH, Baas-Thijssen MC, Marijnen CA, Stiggelbout AM. Clinician and cancer patient views on patient participation in treatment decision-making: a quantitative and qualitative exploration. Br J Cancer. 2008;99(6):875-82.
51. Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaeffer J, Bonomi A. Improving chronic illness care: translating evidence into action. Health Aff (Millwood). 2001;20(6):64-78. (Pubitemid 33707442)