Dravet syndrome and parent associations: The IDEA League experience with comorbid conditions, mortality, management, adaptation, and grief

Epilepsia

Volumn 52, Issue SUPPL. 2, 2011, Pages 95-101

  Skluzacek, Joan V ^a   Watts, Kathryn P ^b   Parsy, Olivier ^c   Wical, Beverly ^d   Camfield, Peter ^e  

^a International Dravet Syndrome Epilepsy Action League   (United States)

^b IDEA League UK   (United Kingdom)

^c IDEA League France ^*  (France)

^d GILLETTE CHILDREN'S SPECIALTY HEALTHCARE   (United States)

^e DALHOUSIE UNIVERSITY   (Canada)

Author keywords

Dravet syndrome; International Dravet syndrome Epilepsy Action League; Mortality; Nonfinite grief; Status epilepticus comprehensive care; Sudden unexplained death in epilepsy

Indexed keywords

ADOLESCENT; ARTICLE; AWARENESS; CHILD; COMORBIDITY; CONTROLLED STUDY; DISEASE ASSOCIATION; EDUCATION PROGRAM; FEMALE; GENETIC ASSOCIATION; HEALTH PRACTITIONER; HUMAN; MAJOR CLINICAL STUDY; MALE; MORTALITY; PRIORITY JOURNAL; SEVERE MYOCLONIC EPILEPSY IN INFANCY;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; COMORBIDITY; DISEASE MANAGEMENT; EPILEPSIES, MYOCLONIC; FEMALE; GRIEF; HUMANS; INFANT; INTERNATIONALITY; MALE; MORTALITY; PARENT-CHILD RELATIONS; SELF-HELP GROUPS; YOUNG ADULT;

EID: 79953684053     PISSN: 00139580     EISSN: 15281167     Source Type: Journal    
DOI: 10.1111/j.1528-1167.2011.03012.x     Document Type: Article

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