메뉴 건너뛰기




Volumn 101, Issue 11, 2011, Pages 2111-2116

Concerns of newborn blood screening advisory committee members regarding storage and use of residual newborn screening blood spots

Author keywords

[No Author keywords available]

Indexed keywords

ADVISORY COMMITTEE; ARTICLE; BLOOD SAMPLING; CONFIDENTIALITY; ETHICS; HEALTH EDUCATION; HUMAN; INFORMATION PROCESSING; MEDICAL RESEARCH; METHODOLOGY; NEWBORN; NEWBORN SCREENING; ORGANIZATION AND MANAGEMENT; PARENT; PUBLIC HEALTH;

EID: 79953298338     PISSN: 00900036     EISSN: 15410048     Source Type: Journal    
DOI: 10.2105/AJPH.2010.200485     Document Type: Article
Times cited : (28)

References (28)
  • 1
    • 77649286535 scopus 로고    scopus 로고
    • Association of State and Territorial Health Officials, Accessed April 27, 2010
    • Association of State and Territorial Health Officials. Newborn screening position statement. Available at: http://www.astho.org/Advocacy/Policy-and- Position- Statements/2009-Newborn-Screening. Accessed April 27, 2010.
    • Newborn Screening Position Statement
  • 2
    • 33644692103 scopus 로고    scopus 로고
    • Research for newborn screening: Developing a national framework
    • DOI 10.1542/peds.2004-2571
    • Botkin JR. Research for newborn screening: developing a national framework. Pediatrics. 2005;116(4): 862-871. (Pubitemid 44542812)
    • (2005) Pediatrics , vol.116 , Issue.4 , pp. 862-871
    • Botkin, J.R.1
  • 3
    • 79951784730 scopus 로고    scopus 로고
    • Parental permission for research in newborn screening
    • Bailey M, Murray T, eds., Baltimore, MD: Johns Hopkins, University Press
    • Botkin JR. Parental permission for research in newborn screening. In: Bailey M, Murray T, eds. Ethics and Newborn Genetic Screening. Baltimore, MD: Johns Hopkins University Press; 2009.
    • (2009) Ethics and Newborn Genetic Screening
    • Botkin, J.R.1
  • 4
    • 30144440304 scopus 로고    scopus 로고
    • Neonatal screening for congenital cytomegalovirus infection and hearing loss
    • DOI 10.1016/j.jcv.2005.08.010, PII S1386653205003021
    • Barbi M, Binda S, Caropppo S, Primache V. Neonatal screening for congenital cytomegalovirus infection and hearing loss. J Clin Virol. 2006;35(2):206-209. (Pubitemid 43053401)
    • (2006) Journal of Clinical Virology , vol.35 , Issue.2 , pp. 206-209
    • Barbi, M.1    Binda, S.2    Caroppo, S.3    Primache, V.4
  • 6
    • 0023865257 scopus 로고
    • Seroprevalence of human immunodeficiency virus among childbearing women. Estimation by testing samples of blood from newborns
    • Hoff R, Berardi VP, Weiblen J, Mahoney-Trout L, Mitchell ML, Grady GF. Seroprevalence of human immunodeficiency virus among childbearing women. Estimation by testing samples of blood from newborns. N Engl J Med. 1988;318(9):525-530. (Pubitemid 18083572)
    • (1988) New England Journal of Medicine , vol.318 , Issue.9 , pp. 525-530
    • Hoff, R.1    Berardi, V.P.2    Weiblen, B.J.3    Mahoney-Trout, L.4    Mitchell, M.L.5    Grady, G.F.6
  • 7
    • 33646852801 scopus 로고    scopus 로고
    • Storage and use of residual dried blood spots from state newborn screening programs
    • DOI 10.1016/j.jpeds.2005.12.053, PII S0022347605012400
    • Olney RS, Moore CA, Ojodu JA, Lindegren ML, Hannon WH. Storage and use of residual dried blood spots from state newborn screening programs. J Pediatr. 2006;148(5):618-622. (Pubitemid 43776916)
    • (2006) Journal of Pediatrics , vol.148 , Issue.5 , pp. 618-622
    • Olney, R.S.1    Moore, C.A.2    Ojodu, J.A.3    Lindegren, M.L.4    Hannon, W.H.5
  • 11
    • 0001373172 scopus 로고    scopus 로고
    • Newborn screening: A blueprint for the future- A call for a national agenda on state newborn screening programs
    • Serving the family from birth to the medical home
    • Serving the family from birth to the medical home. Newborn screening: a blueprint for the future-a call for a national agenda on state newborn screening programs. Pediatrics. 2000;106(2 Pt 2):389-422.
    • (2000) Pediatrics , vol.106 , Issue.2 PART 2 , pp. 389-422
  • 13
    • 38249015730 scopus 로고
    • U.S. newborn screening system guidelines: Statement of the Council of Regional Networks for Genetic Services
    • Therrell BL, Panny SR, Davidson A, et al. U.S. newborn screening system guidelines: statement of the Council of Regional Networks for Genetic Services. Screening. 1992;1(2):135-147.
    • (1992) Screening. , vol.1 , Issue.2 , pp. 135-147
    • Therrell, B.L.1    Panny, S.R.2    Davidson, A.3
  • 14
    • 0030746725 scopus 로고    scopus 로고
    • Public participation in medical policy-making and the status of consumer autonomy: The example of newborn-screening programs in the United States
    • Hiller EH, Landenburger G, Natowicz MR. Public participation in medical policy-making and the status of consumer autonomy: the example of newborn-screening programs in the United States. Am J Public Health. 1997;87(8):1280-1288. (Pubitemid 27358021)
    • (1997) American Journal of Public Health , vol.87 , Issue.8 , pp. 1280-1288
    • Hiller, E.H.1    Landenburger, G.2    Natowicz, M.R.3
  • 18
    • 33744786549 scopus 로고    scopus 로고
    • Status of newborn screening programs in the United States
    • DOI 10.1542/peds.2005-2633C
    • Therrell BL, Johnson A, Williams D. Status of newborn screening programs in the United States. Pediatrics. 2006;117(5 Pt 2):S212-S252. (Pubitemid 46071311)
    • (2006) Pediatrics , vol.117 , Issue.5
    • Therrell, B.L.1    Johnson, A.2    Williams, D.3
  • 20
    • 0001924941 scopus 로고
    • Primary care research: A multi-method typology and qualitative road map
    • Crabtree BF, Miller WL, eds., Newbury Park, CA, Sage
    • Miller WL, Crabtree BF. Primary care research: a multi-method typology and qualitative road map. In: Crabtree BF, Miller WL, eds. Doing Qualitative Research. Newbury Park, CA: Sage; 1992:3-28.
    • (1992) Doing Qualitative Research , pp. 3-28
    • Miller, W.L.1    Crabtree, B.F.2
  • 23
    • 0027551348 scopus 로고
    • Qualitative content analysis: A guide to paths not taken
    • Morgan DL. Qualitative content analysis: a guide to paths not taken. Qual Health Res. 1993;3(1):112-121.
    • (1993) Qual Health Res. , vol.3 , Issue.1 , pp. 112-121
    • Morgan, D.L.1
  • 24
    • 0035042606 scopus 로고    scopus 로고
    • A seat at the table: Membership in federal advisory committees evaluating public policy in genetics
    • Ard CF, Natowicz MR. A seat at the table: membership in federal advisory committees evaluating public policy in genetics. Am J Public Health. 2001;91(5): 787-790. (Pubitemid 32397916)
    • (2001) American Journal of Public Health , vol.91 , Issue.5 , pp. 787-790
    • Ard, C.E.1    Natowicz, M.R.2
  • 25
    • 0037985456 scopus 로고    scopus 로고
    • Rights and responsibilities in the genetics era
    • Kerr A. Rights and responsibilities in the genetics era. Crit Soc Policy. 2003;23(2):208-226.
    • (2003) Crit Soc Policy. , vol.23 , Issue.2 , pp. 208-226
    • Kerr, A.1
  • 27
    • 0035690516 scopus 로고    scopus 로고
    • Newborn screening, informed consent, and future use of archived tissue samples
    • DOI 10.1089/10906570152742218
    • Pelias MK, Markward NJ. Newborn screening, informed consent, and future use of archived tissue samples. Genet Test. 2001;5(3):179-185. (Pubitemid 34066160)
    • (2001) Genetic Testing , vol.5 , Issue.3 , pp. 179-185
    • Pelias, M.K.1    Markward, N.J.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.