The difficulties assessing spiritual distress in palliative care patients: A qualitative study

Mental Health, Religion and Culture

Volumn 14, Issue 4, 2011, Pages 341-352

  Abbas, S Q ^a   Dein, S ^b  

^a St Clare Hospice ^*  (United Kingdom)

^b UNIVERSITY COLLEGE LONDON   (United Kingdom)

Author keywords

Difficulties; Focus group; Healthcare professionals; Palliative care; Spirituality

Indexed keywords

EID: 79953212251     PISSN: 13674676     EISSN: 14699737     Source Type: Journal    
DOI: 10.1080/13674671003716780     Document Type: Article

References (47)

1. Anandarajah, G., & Hight, E. (2001). Spirituality and medical practice: Using the HOPE questions as a practical tool for spiritual assessment. American Family Physician, 63(1), 81-88.
2. Babler, J. (1997). A comparison of spiritual care provided by hospice social workers, nurses and spiritual care professionals. Hospice Journal, 12, 15-27.
3. Brady, M.J., Peterman, A.H., Fitchett, G., Mo, M., & Cella, D. (1999). A case for including spirituality in quality of life measurement in oncology. Psycho Oncology, 8(5), 417-428.
4. Burkhardt, M.A. (1994). Becoming and connecting: Elements of spirituality for women. Holistic Nursing Practice, 8, 12-21.
5. Cawley, N. (1997). Toward defining spirituality: An exploration of the concept of spirituality. International Journal of Palliative Nursing, 3, 31-36.
6. Chandler, C.K., Holden, J.M., & Kolander, C.A. (1992). Counselling for spiritual wellness: Theory and practice. Journal of Counselling Development, 71, 169-175.
7. Chibnall, J.T., Bennett, M.L., Videen, S.D., Duckro, P.N., & Miller, D.K. (2004). Identifying barriers to psychosocial spiritual care at the end of life: A physician group study. American Journal of Hospice and Palliative Medicine, 21(6), 419-426.
8. Cobb, M. (2002). The dying soul: Spiritual care at the end of life. Buckingham, UK: Open University Press.
9. Coyle, N., & Sculco, L. (2003). Communication and the patient/physician relationship: A phenomenological inquiry. Journal of Supportive Oncology, 1, 206-215.
10. Dom, H. (1999). Spiritual care need and pain - recognition and response. European Journal of Palliative Care, 6(3), 87-90.
11. Ellershaw, J., & Wilkinson, S. (2003). Care of the dying: A pathway to excellence. Oxford: Oxford University Press.
12. Ellis, M.R., Vinson, D.C., & Ewigman, B. (1999). Addressing spiritual concerns of patients: Family physicians' attitudes and practices. Journal of Family Practice, 48(2), 105-109.
13. Fitchett, G., Rybarczyk, B.D., DeMarco, G.A., & Nicholas, J.J. (1999). The role of religion in medical rehabilitation outcomes: A longitudinal study. Rehabilitation Psychology, 44(4), 333-353.
14. Hart Jr, A., Kohlwes, R.J., Deyo, R., Rhodes, L.A., & Bowen, D.J. (2003). Hospice patients' attitudes regarding spiritual discussions with their doctors. American Journal of Hospice and Palliative Care, 20(2), 135-139.
15. Hills, J., Paice, J.A., Cameron, J.R., & Shott, S. (2005). Spirituality and distress in palliative care consultation. Journal of Palliative Medicine, 8(4), 782-788.
16. Kristeller, J.L., Zumbrun, C.S., & Schilling, R.F. (1999). "I would if I could": How oncologists and oncology nurses address spiritual distress in cancer patients. Psycho Oncology, 8, 451-458.
17. Kreuger, R.A., & Casey, M.A. (2000). Focus groups: A practical guide for applied research. London: Sage.
18. Larrymore, W.L., Parker, M., & Crowther, M. (2002). Should clinicians incorporate positive spirituality in their practices? What does the evidence say? Annals of Bahavorial Medicine, 24, 69-73.
19. Legere, T. (1984). A spirituality for today. Studies in Formative Spirituality, 5, 514-520.
20. Liverpool Care Pathway. (2007). Liverpool Care Pathway for the Dying Patient. Retrieved September 30, 2009 from http://www.endoflifecare.nhs.uk/eolc/lcp.htm
21. Lo, B., Ruston, D., Kates, L.W., Arnold, R.M., Cohen, C.B., Faber-Langendoen, K., et al. (2002). Discussing religious and spiritual issues at the end of life: A practical guide for physicians. Journal of American Medical Association, 287, 749-754.
22. Marie Curie Cancer Care. (2003). Spiritual and religious care competencies for specialist palliative care. Retrieved September 30, 2009, from http://www.mariecurie.org.uk/NR/rdonlyres/0C664FB0-FBA1-4C81-91AB-05035634DF4A/0/competencies.pdf
23. McCord, G., Gilchrist, V.J., Grossman, S.D., King, B.D., McCormick, K.F., Oprandi, A.M., et al. (2004). Discussing spirituality with patients: A rational and ethical approach. Annals of Family Medicine, 2(4), 356-361.
24. McSherry, W. (2006). Making sense of spirituality in nursing and health care practice: An interactive approach. London: Jessica Kingsley.
25. McSherry, W., & Ross, L. (2002). Dilemmas for spiritual assessment: Considerations for nursing practice. Journal of Advanced Nursing, 38 (5), 479-488.
26. National Patient Safety Agency and National Research Ethics Service (NPSA & NRES). (2009). Defining research: Issue 3.
27. Narayanasamy, A. (2007). Palliative care and spirituality. Indian Journal of Palliative Care, 13(2), 32-41.
28. Orchard, H. (Eds.). (2001). Spirituality in healthcare contexts. London: Jessica Kingsley.
29. Pargament, K. (1997). The psychology of religion and coping: Theory, research, practice. New York: Guilford.
30. Puchalski, C.M. (2002). Spirituality and end-of-life care: A time for listening and caring. Journal of Palliative Medicine, 5(2), 289-294.
31. Puchalski, C.M., & Romer, A.L. (2000). Taking a spiritual history allows clinicians to understand patients more fully. Journal of Palliative Medicine, 3(1), 129-137.
32. Randall, F., & Downie, R.S. (2006). The philosophy of palliative care: Critique and reconstruction. Oxford: Oxford University Press.
33. Scott, B.K. (2001). Heart and soul of medicine. Canadian Family Physician, 4(3), 1507-1508.
34. Sherwood, G.D. (2000). The power of nurse-client encounters. Journal of Holistic Nursing, 18, 159-175.
35. Stanworth, R. (2003). Recognising spiritual care needs in people who are dying. Oxford: Oxford University Press.
36. Stewart, D.W., & Shamdasani, P.N. (2006). Focus groups: Theory and practice. In D.L. Bickman & D.J. Rog (Eds.), Applied social research methods. London: Sage.
37. Swinton, J. (2002). A space to listen: Meeting the spiritual needs of people with learning disabilities. London: The Foundation for People with Learning Disabilities.
38. The Scottish Partnership for Palliative Care. (2002). Clinical standards: Specialist palliative care. Edinburgh: Clinical Standards Board for Scotland.
39. Vachon, M.L.S. (1995). Staff stresses in hospice/palliative care: A review. Palliative Medicine, 9, 91-112.
40. Vaughan, F. (1995). Shadows of the sacred: Seeing through spiritual illusions. Wheaton, IL: Quest Books.
41. Waldrop, D.P., & Kirkendall, A.M. (2009). Comfort measures: A qualitative study of nursing-homes based end of life care. Journal of Palliative Medicine, 12(8), 719-724.
42. Walter, T. (2002). Spirituality in palliative care: Opportunity or burden? Palliative Medicine, 16, 133-139.
43. Walsh, K., King, M., Jones, L., Tookman, A., & Blizard, R. (2002). Spiritual beliefs may affect outcome of bereavement: A prospective study. British Medical Journal, 324, 1551-1555.
44. Wasner, M., Longaker, C., Fegg, M.J., & Borasio, G.D. (2005). Effects of spiritual care training for palliative care professionals. Palliative Medicine, 19(2), 99-104.
45. Wilkinson, S. (1998). Focus groups in health research. Journal of Health Psychology, 3, 323-342.
46. Wilkinson, S., Perry, R., Blanchard, K., & Linsell, L. (2008). Effectiveness of a three day communication skills course in changing nurses' communication skills with cancer/palliative care patients - a randomised controlled trial. Palliative Medicine, 22, 365-375.
47. World Health Organisation (WHO). (2002). Cancer pain relief and palliative care. Geneva: World Health Organisation.