Cancer survivorship in the age of YouTube and social media: A narrative analysis

Journal of Medical Internet Research

Volumn 13, Issue 1, 2011, Pages

  Sylvia Chou, Wen Ying ^a   Hunt, Yvonne ^a   Folkers, Anna ^b   Augustson, Erik ^a  

^a NATIONAL CANCER INSTITUTE   (United States)

^b NEW COLLEGE OF FLORIDA   (United States)

Author keywords

Cancer survivors; Health communication; Linguistics; Narrative communication; Qualitative research; Social media

Indexed keywords

ARTICLE; ATTITUDE; CAREGIVER; CONTROL; EMOTION; HEALTH CARE PERSONNEL; HUMAN; INTERNET; MORTALITY; NEOPLASM; PSYCHOLOGICAL ASPECT; SOCIAL SUPPORT; SURVIVAL RATE; VERBAL COMMUNICATION;

ATTITUDE; CAREGIVERS; EMOTIONS; HEALTH PERSONNEL; HUMANS; INTERNAL-EXTERNAL CONTROL; INTERNET; NARRATION; NEOPLASMS; SOCIAL SUPPORT; SURVIVAL RATE;

EID: 79953120300     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.1569     Document Type: Article

References (27)

1. Kreuter MW, Green MC, Cappella JN, Slater MD, Wise ME, Storey D, et al. Narrative communication in cancer prevention and control: a framework to guide research and application. Ann Behav Med 2007 Jun;33(3):221-235. [doi: 10.1080/08836610701357922] [Medline: 17600449] (Pubitemid 47041341)
2. Cepeda MS, Chapman CR, Miranda N, Sanchez R, Rodriguez CH, Restrepo AE, et al. Emotional disclosure through patient narrative may improve pain and well-being: results of a randomized controlled trial in patients with cancer pain. J Pain Symptom Manage 2008 Jun;35(6):623-631. [doi: 10.1016/j.jpainsymman. 2007.08.011] [Medline: 18359604] (Pubitemid 351707759)
3. Charon R. Narrative and medicine. N Engl J Med 2004 Feb 26;350(9):862-864. [doi: 10.1056/NEJMp038249] [Medline: 14985483] (Pubitemid 38252533)
4. Charon R, Wyer P, NEBM Working Group. Narrative evidence based medicine. Lancet 2008 Jan 26;371(9609):296-297. [Medline: 18300381]
5. Kreuter MW, Buskirk TD, Holmes K, Clark EM, Robinson L, Si X, et al. What makes cancer survivor stories work? An empirical study among African American women. J Cancer Surviv 2008 Mar;2(1):33-44. [doi: 10.1007/s11764-007-0041-y] [Medline: 18648985]
6. Chou WY, Hunt YM, Beckjord EB, Moser RP, Hesse BW. Social media use in the United States: implications for health communication. J Med Internet Res 2009;11(4):e48 [FREE Full text] [doi: 10.2196/jmir.1249] [Medline: 19945947]
7. Fox S, Purcell K. Pew Internet. Washington, DC: Pew Internet & American Life Project; 2010 Mar 24. Chronic disease and the internet URL: http://pewinternet.org/~/media//Files/Reports/2010/PIP-Chronic-Disease-with- topline.pdf [accessed 2010-12-10] [WebCite Cache ID 5usE1TVjD]
8. Pagliari C. Design and evaluation in eHealth: challenges and implications for an interdisciplinary field. J Med Internet Res 2007;9(2):e15 [FREE Full text] [doi: 10.2196/jmir.9.2.e15] [Medline: 17537718] (Pubitemid 47450399)
9. O'Connor PE. Speaking of Crime: Narratives of Prisoners. Lincoln, NE: University of Nebraska Press; 2000.
10. Capps L, Ochs E. Constructing Panic: The Discourse of Agoraphobia. Cambridge, MA: Harvard University Press; 1995.
11. Schiffrin D. Narrative as self-portrait: sociolinguistic constructions of identity. Language in Society 1996 Jun;25(2):167-203. [doi: 10.1017/S0047404500020601] (Pubitemid 126175212)
12. Pandey A, Patni N, Singh M, Sood A, Singh G. YouTube as a source of information on the H1N1 influenza pandemic. Am J Prev Med 2010 Mar;38(3):e1-e3. [doi: 10.1016/j.amepre.2009.11.007] [Medline: 20171526]
13. Labov W. Language in the Inner City: Studies in the Black English Vernacular (Conduct & Communication Ser). Philadelphia, PA: University of Pennsylvania Press; 1972.
14. Holt E. Reporting on talk: the use of direct reported speech in conversation. Research on Language and Social Interaction 1996;29(3):219-245. [doi: 10.1207/s15327973rlsi2903-2] (Pubitemid 126172814)
15. Gordon C. Reshaping prior text, reshaping identities. Text & Talk 2006;26(4-5):545-571. [doi: 10.1515/TEXT.2006.022]
16. Tannen D. Conversational Style: Analyzing Talk Among Friends. New York, NY: Oxford University Press; 2005.
17. Johnstone B. Talking Voices: Repetition, Dialog, and Imagery in Conversational Discourse. By Deborah Tannen (book review). Quarterly Journal of Speech 1992 Feb;78(1):102-103.
18. Linde C. Life Stories: The Creation of Coherence. New York, NY: Oxford University Press; 1993.
19. Wennerstrom A. Intonation and evaluation in oral narratives. Journal of Pragmatics 2001 Aug;33(8):1183-1206. (Pubitemid 33664790)
20. Midtgaard J, Stelter R, Rørth M, Adamsen L. Regaining a sense of agency and shared self-reliance: the experience of advanced disease cancer patients participating in a multidimensional exercise intervention while undergoing chemotherapy-analysis of patient diaries. Scand J Psychol 2007 Apr;48(2):181-190. [doi: 10.1111/j.1467-9450.2007.00562.x] [Medline: 17430371]
21. Bishop FL, Yardley L. Constructing agency in treatment decisions: negotiating responsibility in cancer. Health (London) 2004 Oct;8(4):465-482. [doi: 10.1177/1363459304045699] [Medline: 15358899] (Pubitemid 39407107)
22. Chou WS. End-of-Life Discourse: An Analysis of Agency, Coherence, and Questions. Washington, DC: Linguistics Department, Georgetown University; 2004.
23. Kameny RR, Bearison DJ. Illness narratives: discursive constructions of self in pediatric oncology. J Pediatr Nurs 1999 Apr;14(2):73-79. [doi: 10.1016/S0882-5963(99)80040-2] [Medline: 10337117]
24. Brown LM, Gilligan C. Meeting at the Crossroads: Women's Psychology and Girls' Development. Cambridge, MA: Harvard University Press; 1992.
25. Charon R. What to do with stories: the sciences of narrative medicine. Can Fam Physician 2007 Aug;53(8):1265-1267 [FREE Full text] [Medline: 17872831] (Pubitemid 351194571)
26. Eddens KS, Kreuter MW, Morgan JC, Beatty KE, Jasim SA, Garibay L, et al. Disparities by race and ethnicity in cancer survivor stories available on the web. J Med Internet Res 2009;11(4):e50 [FREE Full text] [doi: 10.2196/jmir.1163] [Medline: 19945948]
27. Bauman R. Story, Performance, and Event: Contextual Studies of Oral Narrative. Cambridge, UK: Cambridge University Press; 1986.