The influence of culture on home-based family caregiving at end-of-life: A case study of Dutch reformed family care givers in Ontario, Canada

Social Science and Medicine

Volumn 72, Issue 3, 2011, Pages 338-346

  Donovan, Rhonda ^a   Williams, Allison ^a   Stajduhar, Kelli ^b   Brazil, Kevin ^c   Marshall, Denise ^c  

^a MCMASTER UNIVERSITY   (Canada)

^b UNIVERSITY OF VICTORIA   (Canada)

^c MCMASTER UNIVERSITY   (Canada)

Author keywords

Canada; Culture; Dutch reformed; Family caregiving; Health; Palliative end of life care; Religion

Indexed keywords

CULTURAL IDENTITY; CULTURAL INFLUENCE; ETHNICITY; HEALTH CARE; RELIGION;

ADULT; ARTICLE; BEREAVEMENT; CANADA; CAREGIVER; CAREGIVER SUPPORT; COPING BEHAVIOR; CULTURAL FACTOR; DUTCH; ETHNIC GROUP; ETHNICITY; FEMALE; GEOGRAPHY; HELP SEEKING BEHAVIOR; HOME CARE; HUMAN; LONGITUDINAL STUDY; MALE; NORMAL HUMAN; PATIENT CARE; PERSONAL EXPERIENCE; QUALITATIVE RESEARCH; RELIGION; RESPONSIBILITY; SOCIAL ASPECT; SOCIAL SUPPORT; TERMINAL CARE; ADAPTIVE BEHAVIOR; ATTITUDE TO HEALTH; HEALTH SERVICES RESEARCH; MIDDLE AGED; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; PATIENT ATTITUDE; PSYCHOLOGICAL ASPECT;

CANADA; ONTARIO [CANADA];

ADAPTATION, PSYCHOLOGICAL; ATTITUDE TO HEALTH; CAREGIVERS; CULTURAL CHARACTERISTICS; FEMALE; HOME NURSING; HUMANS; MALE; MIDDLE AGED; ONTARIO; ORGANIZATIONAL CASE STUDIES; PALLIATIVE CARE; PATIENT ACCEPTANCE OF HEALTH CARE; QUALITATIVE RESEARCH; RELIGION;

EID: 79953000708     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2010.10.010     Document Type: Article

References (34)

1. Allen R.S., Haley W.E., Roff L.L., Schmid B., Bergman E.J. Responding to the needs of caregivers near the end of life: enhancing benefits and minimizing burden. Psychosocial issues near the end of life 2005, 183-201. American Psychological Association, Washington, DC. J.L. Werth, D. Blevins (Eds.).
2. Aoun S.M., Kristjanson L.J. Challenging the framework for evidence in palliative care research. Palliative Medicine 2005, 19:461-465.
3. Aoun S.M., Kristjanson L.J., Currow D.C., Hudson P.L. Caregiving for the terminally ill: at what cost?. Palliative Medicine 2005, 19:551-555.
4. Baxter J., Eyles J. Evaluating qualitative research in social geography: establishing " rigour" in interview analysis. Transactions of Institute of British Geographers 1997, 22:505-525.
5. Becker G., Zander C.J., Blum H.E., Momm J., Gysels M., Higginson I.J. Do religious or spiritual beliefs influence bereavement? A systematic review. Palliative Medicine 2007, 201:207-217.
6. Blevins D., Papadatou D. The effects of culture in end-of-life situations. Psychosocial issues near the end of life 2006, 27-55. American Psychological Association, Washington, DC. J.L. Werth, D. Blevins (Eds.).
7. Bondi L., Davidson J., Smith M. Introduction: geography's 'emotional turn'. Emotional geographies 2005, Ashgate Publishing, Hampshire, England, (1-16). J. Davidson, L. Bondi, M. Smith (Eds.).
8. About us: history Canadian and American Reformed Churches [CANRC], Retrieved from. http://www.canrc.org/about/about2b.html.
9. Christian Reformed Church in North America [CRCNA]. (2009) Retrieved from: http://www.crcna.org/pages/welcome_home.cfm.
10. Creswell J.W. Qualitative inquiry & research design: Choosing among five approaches 2007, Sage Publications, Thousand Oaks, CA. 2nd ed.
11. Dilworth-Anderson P., Canty Williams I., Gibson B.E. Issues of race, ethnicity and culture in caregiving research: a 20-year review (1980-2000). The Gerontologist 2002, 42(2):237-272.
12. Donovan, R.M. & Williams, A.M. Shifting the burden: The effects of home-based palliative care on family caregivers in rural areas. In J. Kulig & A.M. Williams (Eds.), Rural health: A Canadian perspective, Vancouver, British Columbia: UBC Press. (in press).
13. Grande G., Stajduhar K., Aoun S., Toye C., Funk L., Addington-Hall J., et al. Supporting lay carers in end of life care: current gaps and future priorities. Palliative Medicine 2009, 23:339-344.
14. Guberman N., Maheu P. Beyond cultural sensitivity: universal issues in caregiving. Generations 2003/2004, 27(4):39-43.
15. Koenig H.G. Religion, spirituality, and medicine: research findings and implications for clinical practice. Southern Medical Journal 2004, 97(12):1194-1200.
16. Krakauer E.L., Crenner C., Fox K. Barriers to optimum end-of-life care for minority patients. Journal of American Geriatric Society 2002, 50(1):182-190.
17. Lai D.W.L. Cultural predictors of caregiving burden of Chinese-Canadian family caregivers. Canadian Journal of Aging 2007, 26(suppl 1):133-148.
18. Milligan C., Atkinson S., Skinner M., Wiles J. Geographies of care: a commentary. New Zealand Geographer 2007, 63(2):135-140.
19. Milne A., Chryssanthopoulou C. Dementia care-giving in black and Asian populations: reviewing and refining the research agenda. Journal of Community & Applied Social Psychology 2005, 15:319-337.
20. Patton M.Q. " Excerpt from designing qualitative studies" Qualitative research & evaluation methods 2002, Sage Publications, Thousand Oaks, CA. 3rd ed.
21. Pinquart M., Sorensen S. Ethnic differences in stressors, resources and psychological outcomes of family caregiving: a meta-analysis. The Gerontologist 2005, 45(1):90-106.
22. Rajnovich B., Keefe J., Fast J. Supporting caregivers of dependent adults in the 21st century. (Healthy Balance Research Program). Maritime Data Centre for Aging Research & Policy Analysis 2005.
23. Romanow R.J. Building on values: The future of health care in Canada 2002, Commission on the Future of Health Care in Canada, Ottawa.
24. Siefert M.L., Williams A., Dowd M.F., Chappel-Aiken L., McCorkle R. The caregiving experience in a racially diverse sample of cancer family caregivers. Cancer Nursing 2008, 31(5):399-407.
25. Spitzer D., Neufeld A., Harrison M., Hughes K., Stewart M. Caregiving in a transnational context: " my wings have been cut; where can I fly?" Gender & Society 2003, 17(2):267-286.
26. Srivastava R.H. Understanding cultural competence in health care. The healthcare professional's guide to clinical cultural competence ( 2007, 3-27. Elsevier, Toronto, ON, (Canada). R.H. Srivastava (Ed.).
27. Stajduhar K.I., Allan D.E., Cohen S.R., Heyland D. Preferences for location of death of seriously ill hospitalized patients: perspectives from Canadian patients and their family caregivers. Palliative Medicine 2008, 22:85-88.
28. Stajduhar K.I., Davies B. Death at home: challenges for families and directions for the future. Journal of Palliative Care 1998, 14(3):8-15.
29. Stake R.E. Case studies. Handbook of qualitative research 2000, 435-454. Sage Publications, Thousand Oaks, CA. 2nd ed. N.K. Denzin, Y.S. Lincoln (Eds.).
30. Statistics Canada Selected religions, for Canada, provinces and territories - 20% sample data 2001, Retrieved from. http://www12.statcan.ca/english/census01/products/highlight/religion/Page.cfm?Lang%3DE&Geo%3DPR&View%3D1a&Code%3D35&Table%3D1&StartRec%3D1&Sort%3D2&B1%3DCanada&B2%3D1.
31. Weaver A.J., Flannelly K.J. The role of religion/spirituality for cancer patients and their caregivers. Southern Medical Journal 2004, 97(12):1210-1214.
32. Williams A.M. Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space. Social Science & Medicine 2002, 55:141-154.
33. Williams A., Forbes D., Mitchell J., Essar M., Corbett B. The influence of income on the experience of informal caregiving: policy implications. Health Care for Women International 2003, 24:280-291.
34. World Health Organization WHO definition of palliative care Retrieved from. http://who.int/cancer/palliative/definition/en/print/html.