'Stop Stealing Our Stories': The ethics of research with vulnerable groups

Journal of Human Rights Practice

Volumn 2, Issue 2, 2010, Pages 229-251

  Pittaway, Eileen ^a   Bartolomei, Linda ^a   Hugman, Richard ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

Author keywords

Ethics; Participation; Reciprocal research; Refugee research

Indexed keywords

EID: 79952860741     PISSN: 17579619     EISSN: 17579627     Source Type: Journal    
DOI: 10.1093/jhuman/huq004     Document Type: Review

References (52)

1. Allotey, P. and Manderson, L. 2003. 'From Case Studies to Case Work: Ethics and Obligations to Refugee Women in the Field'. In: P. Allotey (ed.) The Health of Refugees: Public Health Perspectives from Crisis to Settlement. Melbourne: Oxford University Press: 200-211.
2. An-N'aim, A. 1999. 'The Cultural Mediation of Human Rights: The Al-Arquam Case in Malaysia'. In: J. Baur, and D. Bell (eds). The East Asian Challenge for Human Rights. Cambridge University Press: 56-70.
3. Bartolomei, L. 2010. 'Struggling Against the Silences: Exploring Rights Based Responses to the Rape of Refugee Women and Girls'. Ph.D. Thesis, UNSW.
4. Beauchamp, T.J. and Childress, J.F. 2001. Principles of Biomedical Ethics. 5th ed. Oxford University Press.
5. Boudreau, M.C. 1997. Report on the Discussion at the Panel on Assessing Critical Social Theory Research in Information Systems. Working Conference in Philadelphia May 31 - June 3, 1997. http://www.people.vcu.edu/~aslee/ Philadelphia-CST.htm (referenced 23 October 2009).
6. Butler, I. 2002. 'A Code of Ethics for Social Work and Social Care Research'. British Journal of Social Work, 32 (2): 239-248.
7. Cornwall, A. and Brock, K. 2005. 'Beyond Buzzwords: "Poverty Reduction", "Participation" and "Empowerment" in Development Policy'. Overarching Concerns Programme Paper No. 10. UN Research Institute for Social Development. http://www.equalinrights.org (referenced 10 September 2008).
8. Dominelli, L. 1998. 'Anti-Oppressive Practice in Context'. In: R. Adams, L. Dominelli, and M. Payne (eds). Themes, Issues and Critical Debates. Hampshire: Macmillan Press: 250-269.
9. -. 2002a. Anti-Oppressive Social Work Theory and Practice. Basingstoke: Palgrave Macmillan.
10. -. 2002b. Feminist Social Work Theory and Practice. Basingstoke: Palgrave Macmillan.
11. -. 2007. 'Human Rights in Social Work Practice: An Invisible Part of the Social Work Curriculum?' In: E. Reichert (ed.) Challenges in Human Rights: A Social Work Perspective. New York: Columbia University Press: 16-43.
12. Doney, G., Pittaway, E., and Vu, V. 2009. 'Unsung Heroes: An Evaluation of the AMES Community Guides Program'. AMES Victoria.
13. Ebbs, C.A. 1996. 'Qualitative Research Inquiry: Issues of Power and Ethics'. Education 117 (2): 217-222.
14. Forced Migration and Refugee Studies Program (FMRS). 2003. 'Refugees in Urban Settings: Methods and Ethics'. Research Report. Cairo: The American University.
15. Frankovits, A. 1996. 'Rejoinder: The Rights Way to Development'. Food Policy, 21 (1): 123-128.
16. Gorman, D. and Toombs, M. 2009. 'Matching Research Methodology with Australian Aboriginal Culture'. Aboriginal and Islander Health Worker Journal, 33 (3): 4-7.
17. Guijt, I. and Shah, M.K. 1998. 'Waking Up to Power, Conflict and Process'. In: I. Guijt, and M.K. Shah (eds). The Myth of Community: Gender Issues in Participatory Development. New Delhi: Vistaar Publications: 1-23.
18. Hinman, L. 2003. Ethics: A Pluralistic Approach to Moral Theory. 3rd ed. Belmont: Thomson/Wadsworth.
19. Hugman, R. 2003. 'Professional Ethics and Values in Social Work: Reconsidering Postmodernism?' British Journal of Social Work, 33 (8): 1025-1041.
20. -. 2005. New Approaches in Ethics for the Caring Professions. Basingstoke: Palgrave Macmillan.
21. -. 2008. 'Ethics in a World of Difference'. Ethics and Social Welfare, 2 (2): 118-132.
22. -. 2010. 'Social Work Research and Ethics'. In: I. Shaw, K. Briar-Lawson, J. Orme, and R. Ruckdeschel (eds). The Sage Handbook of Social Work Research. Los Angeles/London: Sage Publications: Chapter 9, 149-163.
23. Hyndman, J. 2000. Managing Displacement: Refugees and the Politics of Humanitarianism. Minneapolis: University of Minnesota Press.
24. Ife, J. 2001. Human Rights and Social Work. Towards Rights-Based Practice. 1st ed. Cambridge University Press.
25. Ife, J. and Tesoriero, F. 2006. Community Development: Community-Based Alternatives in an Age of Globalization. 3rd ed. Frenchs Forest, NSW: Pearson Education.
26. International Federation of Social Workers/International Association of Schools of Social Work (IFSW/IASSW). 2004. Ethics in Social Work: Statement of Principles. Berne: IFSW/IASSW.
27. Jacobsen, K. and Landau, L. 2003. 'Researching Refugees: Some Methodological and Ethical Considerations in Social Science and Forced Migration'. New Issues in Refugee Research, Working Paper No. 90. Geneva: UNHCR Evaluation and Policy Analysis Unit.
28. Karen Women's Organization. 2004. 'Shattering Silences: Karen Women Speak Out about the Burmese Military's Use of Rape as a Strategy of War in Karen State'. Report launched at UN Economic and Social Commission for Asia and the Pacific (ESCAP).
29. Kenny, S. 2006. Developing Communities for the Future. 3rd ed. Melbourne: Thomson.
30. Leaning, J. 2001. 'Ethics of Research in Refugee Populations'. The Lancet, 357: 1432-1433.
31. Mackenzie, C., McDowell, C., and Pittaway, E. 2007. 'Beyond "Do No Harm": The Challenge of Constructing Ethical Relationships in Refugee Research'. Journal of Refugee Studies, 20 (2): 299-319.
32. Merry, S.E. 2001. 'Women, Violence, and the Human Rights System'. In: M. Agosin (ed.) Women, Gender, and Human Rights: A Global Perspective. Piscataway: Rutgers University Press: 83-97.
33. Pease, B., Allan, J. and Briskman, L. 2003. 'Introducing Critical Theories in Social Work'. In: J. Allan, B. Pease, and L. Briskman (eds). Critical Social Work: an introduction to theories and practices, Australia: Allen & Unwin: 1-14.
34. Pittaway, E. and Bartolomei, L. 2003. 'Women at Risk Field Research Report: Thailand 2003'. Sydney: Centre for Refugee Research.
35. -. 2005. 'Field Research Reports: Kakuma, Kenya, Sri Lanka, Ethiopia and the Thai-Burma Border'. Sydney: Centre for Refugee Research.
36. -. 2009a. 'Innovations in Research with Refugee Communities'. Refugee Transitions, No. 21. NSW Service for the Treatment and Rehabilitation of Torture and Trauma Survivors (STARTTS). http://www.startts.org.au/default.aspx?id=411 (referenced 6 May 2010).
37. -. 2009b. 'Reciprocal Research: Aiming for Empowerment Not Exploitation'. Paper presented at 'Migration Methodologies: Researching Asia' held at National University of Singapore (NUS), Seminar Room Auditorium, 8-9 March 2010.
38. Pittaway, E., Rees, S., and Bartolomei, L. 2007. 'Gendered Dimensions of the 2004 Tsunami and a Potential Social Work Response'. International Social Work, 50 (3): 307-319.
39. Quinn, M. 2003. 'Immigrants and Refugees: Towards Anti-Racist and Culturally Affirming Practices'. In: J. Allan, B. Pease, and L. Briskman (eds). Critical Social Work. NSW: Allen & Unwin: Chapter 5, 75-91.
40. Reason, P. and Bradbury, H. 2006. Handbook of Action Research. London: Sage Publications.
41. Reed, H. 2002. Research Ethics in Complex Humanitarian Emergencies: Summary of a Workshop. National Research Council Roundtable on the Demography of Forced Migration, Committee on Population. Washington: National Academy Press.
42. Reichert, E. 2001. 'Placing Human Rights at the Centre of the Social Work Profession'. Journal of Intergroup Relations, 28 (1): 43-50.
43. -. 2003. Social Work and Human Rights: A Foundation for Policy and Practice. New York: Columbia University Press.
44. -. 2007. Challenges in Human Rights: A Social Work Perspective. New York: Columbia University Press.
45. Risse, T. and Sikkink, K. 1999. 'The Socialization of International Human Rights Norms into Domestic Practices'. In: T. Risse, S. Ropp, and K. Sikkink (eds). The Power of Human Rights. International Norms and Domestic Change. Cambridge University Press: 1-38.
46. Shan Women's Action Network (SWAN). 2002. Licence to Rape. http://www.shanwomen.org/pdf/Licence%20to%20Rape%20B.pdf (referenced 14 October 2009).
47. Slim, H. 2001. Not Philanthropy But Rights: Rights-Based Humanitarianism and the Proper Politicisation of Humanitarian Philosophy in War. Centre for Development and Emergency Practice, Oxford Brookes University.
48. Tesch, R. 1990. Qualitative Research: Analysis Types and Software Tools. London: Routledge.
49. United Nations (UN). 1948. Universal Declaration of Human Rights. http://www.un.org/en/documents/udhr (referenced 10 June 2008).
50. UN High Commissioner for Refugees (UNHCR). 2007. Refugee Consultations: Bangladesh. http://www.unhcr.org/refworld/docid/46f0ec002.html (referenced 15 March 2010).
51. -. 2009. Refugees, Asylum-Seekers, Internally Displaced Persons (IDPs), Returnees (Refugees and IDPs), Stateless Persons, and Others of Concern to UNHCR by Country/Territory of Asylum, end-2008: Table 1. http://www.unhcr.org/pages/ 4a0174156.html (referenced 15 March 2010).
52. Westoby, P. 2008. 'Developing a Community-Development Approach through Engaging Resettling Southern Sudanese Refugees within Australia'. Journal of Community Development, 43: 483-495.