'It's easier said than done': Perspectives on mammography from women with intellectual disabilities

Annals of Family Medicine

Volumn 9, Issue 2, 2011, Pages 142-147

  Wilkinson, Joanne E ^a,b   Deis, Cristina E ^a,b   Bowen, Deborah J ^b   Bokhour, Barbara G ^b,c  

^a BOSTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b BOSTON UNIVERSITY SCHOOL OF PUBLIC HEALTH   (United States)

^c VETERANS AFFAIRS MEDICAL CENTER   (United States)

Author keywords

Cancer screening; Disability; Mammography

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; BREAST TUMOR; DISABLED PERSON; EARLY DIAGNOSIS; FEMALE; HUMAN; MAMMOGRAPHY; MENTAL DEFICIENCY; MIDDLE AGED; MOTIVATION; PATIENT EDUCATION; PATIENT SATISFACTION; PSYCHOLOGIC TEST; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; WOMEN'S HEALTH;

ADULT; AGED; BREAST NEOPLASMS; DISABLED PERSONS; EARLY DETECTION OF CANCER; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERVIEW, PSYCHOLOGICAL; MAMMOGRAPHY; MENTAL RETARDATION; MIDDLE AGED; MOTIVATION; PATIENT EDUCATION AS TOPIC; PATIENT SATISFACTION; QUALITATIVE RESEARCH; WOMEN'S HEALTH;

EID: 79952809574     PISSN: 15441709     EISSN: 15441717     Source Type: Journal    
DOI: 10.1370/afm.1231     Document Type: Article

References (24)

1. Wisdom JP, McGee MG, Horner-Johnson W, Michael YL, Adams E, Berlin M. Health disparities between women with and without disabilities: a review of the research. Soc Work Public Health. 2010;25(3):368-386.
2. Krahn GL, Hammond L, Turner A. A cascade of disparities: health and health care access for people with intellectual disabilities. Ment Retard Dev Disabil Res Rev. 2006;12(1):70-82.
3. Luckasson R, Coulter DL, Polloway EA, et al. Mental Retardation: Def nition, Classif cation and Systems of Support. Washington, DC: American Association of Mental Retardation; 2002.
4. President's Committee for People with Intellectual Disabilities. Online fact sheet. http://www.acf.hhs.gov/programs/pcpid/pcpid_fact.html. Accessed Aug 26, 2010.
5. Larson SA, Scott N, Salmi P, Lakin KC. Changes in number and characteristics of people living in state institutions, 1977-2008. Intellect Dev Disabil. 2009;47(4):329-333.
6. Janicki M P, Dalton AJ, Henderson CM, Davidson PW. Mortality and morbidity among older adults with intellectual disability: health services considerations. Disabil Rehabil. 1999;21(5-6):284-294.
7. Iacono T, Sutherland G. Health screening and developmental disabilities. J Policy Pract Intellect Disabil. 2006;3(3):155-163.
8. Sullivan W F, Heng J, Cameron D, et al. Consensus guidelines for primary health care of adults with developmental disabilities. Can Fam Physician. 2006;52(11):1410-1418.
9. Wilkinson JE, Culpepper L, Cerreto M. Screening tests for adults with intellectual disabilities. J Am Board Fam Med. 2007;20(4):399-407.
10. Sullivan SG, Hussain R, Threlfall T, Bittles AH. The incidence of cancer in people with intellectual disabilities. Cancer Causes Control. 2004;15(10):1021-1025.
11. Patja K, Eero P, Iivanainen M. Cancer incidence among people with intellectual disability. J Intellect Disabil Res. 2001;45(Pt 4):300-307.
12. Davies N, Duff M. Breast cancer screening for older women with intellectual disability living in community group homes. J Intellect Disabil Res. 2001;45(Pt 3):253-257.
13. Sullivan SG, Glasson EJ, Hussain R, et al. Breast cancer and the uptake of mammography screening services by women with intellectual disabilities. Prev Med. 2003;37(5):507-512.
14. Brown AA, Gill CJ. New voices in women's health: perceptions of women with intellectual and developmental disabilities. Intellect Dev Disabil. 2009;47(5):337-347.
15. Tejeda S, Thompson B, Coronado GD, Martin D P. Barriers and facilitators related to mammography use among lower educated Mexican women in the USA. Soc Sci Med. 2009;68(5):832-839.
16. Fernandez ME, Palmer RC, Leong-Wu CA. Repeat mammogram screening among low-income and minority women: a qualitative study. Cancer Control. 2005;12(Suppl 2):77-83.
17. Goldman RE, Risica PM. Perceptions of breast and cervical cancer risk and screening among Dominicans and Puerto Ricans in Rhode Island. Ethn Dis. 2004;14(1):32-42.
18. Kirby S, Hegarty J. Breast awareness within an intellectual disability setting. Eur J Oncol Nurs. 2010;14(4):328-336.
19. Tyler CV, Zyzanski SJ, Panaite V,Council L. Nursing perspectives on cancer screening in adults with intellectual and other developmental disabilities. Intellect Dev Disabil. 2010;48(4):271-277.
20. Charmaz K. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. Beverly Hills,CA; Sage Publications, 2006.
21. Hanson K, Montgomery P, Bakker D, Conlon M. Factors inf uencing mammography participation in Canada: an integrative review of the literature. Curr Oncol. 2009;16(5):65-75.
22. Edgerton RB. The Cloak of Competence. Revised and updated ed. Berkeley, CA: University of California Press; 1993.
23. Ahmed NU, Fort JG, Fair AM, Semenya K, Haber G. Breast cancer knowledge and barriers to mammography in a low-income managed care population. J Cancer Educ. 2009;24(4):261-266.
24. Clark MA, Rogers ML, Wen X, et al. Repeat mammography screening among unmarried women with and without a disability. Wom-ens Health Issues. 2009;19(6):415-424.