Biopsychosocial predictors of health-related quality of life in children with thalassemia in Thammasat University Hospital

Journal of the Medical Association of Thailand

Volumn 93, Issue SUPPL 7, 2010, Pages

  Surapolcha, Pacharapan ^a   Satayasa, Wallee ^a   Sinlapamongkolku, Phakatip ^a   Udomsubpayaku, Umaporn ^b  

^a THAMMASAT UNIVERSITY   (Thailand)

^b MAHIDOL UNIVERSITY   (Thailand)

Author keywords

Health related quality of life; PedsQL ; Thalassemia

Indexed keywords

ADOLESCENT; ARTICLE; CHI SQUARE DISTRIBUTION; CHILD; CROSS-SECTIONAL STUDY; CUSTODY; FEMALE; HEALTH STATUS; HUMAN; MALE; PARENT; PATHOPHYSIOLOGY; PEDIATRICS; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL RATING SCALE; PSYCHOMETRY; QUALITY OF LIFE; SELF REPORT; SOCIOECONOMICS; STATISTICAL MODEL; THAILAND; THALASSEMIA; UNIVERSITY HOSPITAL;

ADOLESCENT; CHI-SQUARE DISTRIBUTION; CHILD; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH STATUS; HOSPITALS, UNIVERSITY; HUMANS; LINEAR MODELS; MALE; PARENTS; PEDIATRICS; PROXY; PSYCHIATRIC STATUS RATING SCALES; PSYCHOMETRICS; QUALITY OF LIFE; SELF REPORT; SOCIOECONOMIC FACTORS; THAILAND; THALASSEMIA;

EID: 79952496695     PISSN: 01252208     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (22)

1. Weatherall DJ, Clegg JB. Inherited haemoglobin disorders: an increasing global health problem. Bull World Health Organ 2001; 79: 704-12.
2. Gibbons R, Higgs DR, Olivieri NF, Wood WG. The alpha thalassaemias and their interaction with structural hemoglobin variants. In: Weatherall DJ, Clegg JB, editors. The thalassaemia syndromes. 4th ed. Oxford: Blackwell Science; 2001: 484-525.
3. Panich V, Pornpatkul M, Sriroongrueng W. The problem of thalassemia in Thailand. Southeast Asian J Trop Med Public Health 1992; 23(Suppl 2): 1-6.
4. Matza LS, Swensen AR, Flood EM, Secnik K, Leidy NK. Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health 2004; 7: 79-92.
5. Seid M, Varni JW, Kurtin PS. Measuring quality of care for vulnerable children: challenges and conceptualization of a pediatric outcome measure of quality. Am J Med Qual 2000; 15: 182-8.
6. Shaligram D, Girimaji SC, Chaturvedi SK. Psychological problems and quality of life in children with thalassemia. Indian J Pediatr 2007; 74: 727-30.
7. Ismail A, Campbell MJ, Ibrahim HM, Jones GL. Health Related Quality of Life in Malaysian chil dren with thalassaemia. Health Qual Life Outcomes 2006; 4: 39.
8. Abetz L, Baladi JF, Jones P, Rofail D. The impact of iron overload and its treatment on quality of life: results from a literature review. Health Qual Life Outcomes 2006; 4: 73.
9. Pakbaz Z, Treadwell M, Yamashita R, Quirolo K, Foote D, Quill L, et al. Quality of life in patients with thalassemia intermedia compared to thalassemia major. Ann N Y Acad Sci 2005; 1054: 457-61.
10. Thavorncharoensap M, Torcharus K, Nuchprayoon I, Riewpaiboon A, Indaratna K, Ubol BO. Factors affecting health-related quality of life in Thai children with thalassemia. BMC Blood Disord 2010; 10: 1.
11. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001; 39: 800-12.
12. Varni JW, Seid M, Knight TS, Uzark K, Szer IS. The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decisionmaking. J Behav Med 2002; 25: 175-93.
13. Sprangers MA, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol 1992; 45: 743-60.
14. Achenbach TM, McConaughy SH, Howell CT. Child/adolescent behavioral and emotional problems: implications of cross-informant correlations for situational specificity. Psychol Bull 1987; 101: 213-32.
15. Pongwilairat K, Louthrenoo O, Charnsil C, Witoonchart C. Quality of life of children with attention-deficit/hyper activity disorder. J Med Assoc Thai 2005; 88: 1062-6.
16. Varni JW, Burwinkle TM. The PedsQL as a patient-reported outcome in children and adolescents with Attention-Deficit/Hyperactivity Disorder: a population-based study. Health Qual Life Outcomes 2006; 4: 26.
17. Khurana A, Katyal S, Marwaha RK. Psychosocial burden in thalassemia. Indian J Pediatr 2006; 73: 877-80.
18. Wisai M, Sritipsukho P. Health-related quality of life among teenage pupils. Thammasat Med J 2009; 9: 104-10.
19. Osborne RH, De Abreu LR, Dalton A, Houltram J, Dowton D, Joshua DE, et al. Quality of life related to oral versus subcutaneous iron chelation: a time trade-off study. Value Health 2007; 10: 451-6.
20. Porter JB, Piga A, Cohen A, Ford JM, Bodner J, Cappellini MD. Assessment of safety in patients receiving longer-term iron chelation therapy with deferasirox who had achieved serum ferritin levels of <1000 ng/mL during the study course [abstract]. Haematologica 2009;94(Suppl 2):199.
21. Olivieri NF, Nathan DG, MacMillan JH, Wayne AS, Liu PP, McGee A, et al. Survival in medically treated patients with homozygous beta-thalassemia. N Engl J Med 1994; 331: 574-8.
22. World Health Organization. Therapy of thalassaemia. Recommendations for transfusion treatment of beta-thalassaemia major. Geneva: WHO; 1985:237-55.