Treating the cause of illness rather than the symptoms: Parental causal beliefs and treatment choices in autism spectrum disorder

Research in Developmental Disabilities

Volumn 32, Issue 3, 2011, Pages 1137-1146

  Dardennes, Roland M ^a,b,c   Al Anbar, Nebal N ^a   Prado Netto, Arthur ^a   Kaye, Kelley ^b   Contejean, Yves ^b   Al Anbar, Nesreen N ^d  

^a UNIVERSITÉ PARIS DESCARTES   (France)

^b CENTRE HOSPITALIER SAINTE ANNE   (France)

^c INSERM   (France)

^d DREXEL UNIVERSITY   (United States)

Author keywords

Autism; Decision making; Health behavior; Illness beliefs; Parents

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; AUTISM; BEHAVIOR THERAPY; BRAIN DISEASE; CHILD; CROSS-SECTIONAL STUDY; DECISION MAKING; DETOXIFICATION; DIETARY INTAKE; DRUG USE; FEMALE; FOOD ALLERGY; HEALTH BEHAVIOR; HEALTH BELIEF; HEREDITY; HUMAN; MAJOR CLINICAL STUDY; MALE; PARENTAL ATTITUDE; PICTURE EXCHANGE COMMUNICATION SYSTEM; PREGNANCY DISORDER; PRESCHOOL CHILD; SCHOOL CHILD; SPECIAL EDUCATION; VITAMIN INTAKE;

ADULT; AGED; ATTITUDE TO HEALTH; BRAIN; CHILD; CHILD DEVELOPMENT DISORDERS, PERVASIVE; CROSS-SECTIONAL STUDIES; DECISION MAKING; FEMALE; FOOD HYPERSENSITIVITY; GENETIC DISEASES, INBORN; HEALTH BEHAVIOR; HUMANS; LOGISTIC MODELS; MALE; MIDDLE AGED; PARENTS; QUESTIONNAIRES; YOUNG ADULT;

EID: 79952444124     PISSN: 08914222     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ridd.2011.01.010     Document Type: Article

References (54)

1. Al Anbar N.N., Dardennes R.M., Prado-Netto A., Kaye K., Contejean Y. Treatment choices in autism spectrum disorder: The role of parental illness perceptions. Research in Developmental Disabilities 2010, 31:817-828.
2. Aman M.G., Lam K.S., Van Bourgondien M.E. Medication patterns in patients with autism: Temporal, regional, and demographic influences. Journal of Child and Adolescent Psychopharmacology 2005, 15:116-126.
3. American Psychiatric Association Diagnostic and statistical manual of mental disorders 1994, American Psychiatric Association, Washington, DC. 4th ed.
4. Arndt T.L., Stodgell C.J., Rodier P.M. The teratology of autism. International Journal of Developmental Neuroscience 2005, 23:189-199.
5. Atladóttir H.O., Thorsen P., Ostergaard L., Schendel D.E., Lemcke S., Abdallah M., et al. Maternal infection requiring hospitalization during pregnancy and autism spectrum disorders. Journal of Autism and Developmental Disorders 2010, April 23 (Epub ahead of print).
6. Bender R., Lange S. Multiple test procedures other than Bonferroni's deserve wider use. British Medical Journal 1999, 318:600-601.
7. Bettleheim B. The empty fortress 1967, Free Press, New York.
8. Brown M.J., Willis T., Omalu B., Leiker R. Deaths resulting from hypocalcemia after administration of edetate disodium: 2003-2005. Pediatrics 2006, 118:534-536.
9. Buie T., Campbell D.B., Fuchs G.J., Furuta G.T., Levy J., Vandewater J., et al. Evaluation, diagnosis, and treatment of gastrointestinal disorders in individuals with ASDs: A consensus report. Pediatrics 2010, 125(Suppl. 1):S1-S18.
10. Burgess D.C., Burgess M.A., Leask J. The MMR vaccination and autism controversy in United Kingdom 1998-2005: Inevitable community outrage or a failure of risk communication?. Vaccine 2006, 24:3921-3928.
11. Carlson M.J., Krahn G. Use of complementary and alternative medicine practitioners by people with physical disabilities: Estimates from a national US survey. Disability and Rehabilitation 2006, 28:505-513.
12. Center for Disease Control and Prevention Parental report of diagnosed autism in children aged 4-17 years-United States, 2003-2004. Morbidity and Mortality Weekly Report 2006, 55:481-486.
13. Cohen M.H., Kemper K.J., Stevens L., Hashimoto D., Gilmour J. Pediatric use of complementary therapies: Ethical and policy choices. Pediatrics 2005, 116:568-575.
14. Collier S.A., Rasmussen S.A., Feldkamp M.L., Honein M.A. National birth defects prevention study. Prevalence of self-reported infection during pregnancy among control mothers in the national birth defects prevention study. Birth Defects Research Part A: Clinical and Molecular Teratology 2009, 85:193-201.
15. Ernst E. 'First, do no harm' with complementary and alternative medicine. Trends in Pharmacological Sciences 2007, 28:48-50.
16. Furnham A., Buck C. A comparison of lay-beliefs about autism and obsessive-compulsive disorder. International Journal of Social Psychiatry 2003, 49:287-307.
17. Gerber J.S., Offit P.A. Vaccines and autism: A tale of shifting hypotheses. Clinical Infectious Diseases 2009, 48:456-461.
18. Glasson E.J., Bower C., Petterson B., de Klerk N., Chaney G., Hallmayer J.F. Perinatal factors and the development of autism: A population study. Archives of General Psychiatry 2004, 61:618-627.
19. Green V.A., Pituch K.A., Itchon J., Choi A., O'Reilly M., Sigafoos J. Internet survey of treatments used by parents of children with autism. Research in Developmental Disabilities 2006, 27:70-84.
20. Gurney J.G., McPheeters M.L., Davis M.M. Parental report of health conditions and health care use among children with and without autism: National survey of children's health. Archives of Pediatrics and Adolescent Medicine 2006, 160:825-830.
21. Hanson E., Kalish L.A., Bunce E., Curtis C., McDaniel S., Ware J., et al. Use of complementary and alternative medicine among children diagnosed with autism spectrum disorder. Journal of Autism and Developmental Disorders 2007, 37:628-636.
22. Harrington J.W., Rosen L., Garnecho A., Patrick P.A. Parental perceptions and use of complementary and alternative medicine practices for children with autistic spectrum disorders in private practice. Journal of Developmental and Behavioral Pediatrics 2006, 27(2, Suppl. 22):156-161.
23. Hurvitz E.A., Leonard C., Ayyangar R., Nelson V.S. Complementary and alternative medicine use in families of children with cerebral palsy. Developmental Medicine and Child Neurology 2003, 45:364-370.
24. Johnston C., Seipp C., Hommersen P., Hoza B., Fine S. Treatment choices and experiences in attention deficit and hyperactivity disorder: Relations to parents' beliefs and attributions. Child: Care, Health and Development 2005, 31:669-677.
25. Jose V.M., Bhalla A., Sharma N., Hota D., Sivaprasad S., Pandhi P. Study of association between use of complementary and alternative medicine and non-compliance with modern medicine in patients presenting to the emergency department. Journal of Postgraduate Medicine 2007, 53:96-101.
26. Jowett S.L., Seal C.J., Phillips E., Gregory W., Barton J.R., Welfare M.R. Dietary beliefs of people with ulcerative colitis and their effect on relapse and nutrient intake. Clinical Nutrition: Official Journal of the European Society of Parenteral and Enteral Nutrition 2004, 23:161-170.
27. Kogan M.D., Blumberg S.J., Schieve L.A., Boyle C.A., Perrin J.M., Ghandour R.M., Singh G.K., Strickland B.B., Trevathan E., van Dyck P.C. Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics 2009, 124:1395-1403.
28. Kuppin S., Carpiano R.M. Public conceptions of serious mental illness and substance abuse, their causes and treatments: Findings from the 1996 general social survey. American Journal of Public Health 2006, 96:1766-1771.
29. Levy S.E., Hyman S.L. Novel treatments for autistic spectrum disorders. Mental Retardation and Developmental Disabilities Research Reviews 2005, 11:131-142.
30. Levy S.E., Mandell D.S., Merhar S., Ittenbach R.F., Pinto-Martin J.A. Use of complementary and alternative medicine among children recently diagnosed with autistic spectrum disorder. Journal of Developmental and Behavioral Pediatrics 2003, 24:418-423.
31. Mak W.W., Kwok Y.T. Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science and Medicine 2010, 70:2045-2051.
32. Matson J.L., Benavidez D.A., Compton L.S., Paclawskyj T., Baglio C. Behavioral treatment of autistic persons: A review of research from 1980 to the present. Research in Developmental Disabilities 1996, 17:433-465.
33. Matson J.L., Matson M.L., Rivet T.T. Social-skills treatments for children with autism spectrum disorders: An overview. Behavior Modification 2007, 31:682-707.
34. Matson J.L., Shoemaker M. Intellectual disability and its relationship to autism spectrum disorders. Research in Developmental Disabilities 2009, 30:1107-1114.
35. Mercer L., Creighton S., Holden J.J., Lewis M.E. Parental perspectives on the causes of an autism spectrum disorder in their children. Journal of Genetic Counseling 2006, 15:41-50.
36. Moore T.R., Symons F.J. Adherence to behavioral and medical treatment recommendations by parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders 2009, 39:1173-1184.
37. Moss-Morris R., Weinman J., Petrie K.J., Horne R., Cameron L.D., Buick D. The revised illness perception questionnaire (IPQ-R). Psychology and Health 2002, 17:1-16.
38. Myers S.M., Johnson C.P. Management of children with autism spectrum disorders. Pediatrics 2007, 120:1162-1182. The Council on Children With Disabilities.
39. Nordeng H., Koren G., Einarson A. Pregnant women's beliefs about medications-A study among 866 Norwegian women. The Annals of Pharmacotherapy 2010, 44:1478-1484.
40. Perneger T.V. What's wrong with Bonferroni adjustments. British Medical Journal 1998, 316:1236-1238.
41. Petrie K.J., Cameron L., Ellis C.J., Buick D., Weinman J. Changing illness perceptions after myocardial infarction: An early intervention randomised controlled trial. Psychosomatic Medicine 2002, 64:580-586.
42. Phelan J.C., Yang L.H., Cruz-Rojas R. Effects of attributing serious mental illnesses to genetic causes on orientations to treatment. Psychiatric Services 2006, 57:382-387.
43. Roudinesco E. Pourquoi tant de haine? 2005, Navarin, Paris.
44. Rubak S., Sandbaek A., Lauritzen T., Borch-Johnsen K., Christensen B. General practitioners trained in motivational interviewing can positively affect the attitude to behaviour change in people with type 2 diabetes. One year follow-up of an RCT, ADDITION Denmark. Scandinavian Journal of Primary Health Care 2009, 27:172-179.
45. Schopler E. Parents of psychotic children as scapegoats. Journal of Contemporary Psychotherapy 1971, 4:l7-22.
46. Schopler E., Reichler R.J. Psychobiological referents for the treatment of autism. Infantile autism 1971, 243-264. Thomas, Springfield, IL. D.W. Churchill, G.D. Alpern, M.K. DeMyer (Eds.).
47. Schopler E., Reichler R.J. How well do parents understand their own psychotic child?. Journal of Autism and Childhood Schizophrenia 1972, 2:387-400.
48. Singh J., Hallmayer J., Illes J. Interacting and paradoxical forces in neuroscience and society. Nature Reviews Neuroscience 2007, 8:153-160.
49. Smith M.J., Ellenberg S.S., Bell L.M., Rubin D.M. Media coverage of the measles-mumps-rubella vaccine and autism controversy and its relationship to MMR immunization rates in the United States. Pediatrics 2008, 121:e836-e843.
50. Street R.L., Haidet P. How well do doctors know their patients? Factors affecting physician understanding of patients' health beliefs. Journal of General Internal Medicine 2010, July 23 (Epub ahead of print).
51. Tosteson T.D., Buzas J.S., Demidenko E., Karagas M. Power and sample size calculations for generalized regression models with covariate measurement error. Statistics in Medicine 2003, 22:1069-1082.
52. Volkmar F.R., Pauls D. Autism. Lancet 2003, 362:1133-1141.
53. Wong H.H., Smith R.G. Patterns of complementary and alternative medical therapy use in children diagnosed with autism spectrum disorders. Journal of Autism and Developmental Disorders 2006, 36:901-909.
54. Zeelenberg M., van de Bos K., van Dijk E., Pieters R. The inaction effect in the psychology of regret. Journal of Personality and Social Psychology 2002, 82:314-327.