메뉴 건너뛰기




Volumn 1, Issue 1, 2010, Pages 3-10

Commentary: A sociologist's view on community genetics

Author keywords

Bioethics; Community genetics; Patients' organizations; Public health genetics; Sociology and anthropology of medicine

Indexed keywords

BIOETHICS; COMMUNITY ASSESSMENT; GENETIC ASSOCIATION; GENETIC RISK; GENETIC SCREENING; HEALTH CARE POLICY; HEALTH HAZARD; HETEROZYGOTE; HIGH RISK POPULATION; HUMAN; PATIENT ADVOCACY; PATIENT DECISION MAKING; PATIENT SAFETY; POPULATION GENETICS; PRIORITY JOURNAL; PUBLIC HEALTH SERVICE; REPRODUCTIVE HEALTH; REVIEW; RISK REDUCTION; SOCIAL ASPECT; SOCIOLOGIST;

EID: 79952363385     PISSN: 1868310X     EISSN: 18686001     Source Type: Journal    
DOI: 10.1007/s12687-010-0001-5     Document Type: Review
Times cited : (6)

References (77)
  • 1
    • 34250706276 scopus 로고    scopus 로고
    • Premarital screening for thalassemia and sickle cell disease in Saudi Arabia
    • DOI 10.1097/GIM.0b013e318065a9e8, PII 0012581720070600000006
    • Alhamdan NA, Almazrou YY, Alswaidi FM, Choudhry AJ (2007) Premarital screening for thalassemia and sickle cell disease in Saudi Arabia. Genet Med 9:372-377 (Pubitemid 46956479)
    • (2007) Genetics in Medicine , vol.9 , Issue.6 , pp. 372-377
    • AlHamdan, N.A.1    AlMazrou, Y.Y.2    AlSwaidi, F.M.3    Choudhry, A.J.4
  • 2
    • 36949021591 scopus 로고    scopus 로고
    • Decision-making and antenatal screening for sickle cell and thalassaemia disorders: To what extent do faith and religious identity mediate choice?
    • Atkin K, Ahmed S, Hewison J, Green JM (2008) Decision-making and antenatal screening for sickle cell and thalassaemia disorders: To what extent do faith and religious identity mediate choice? Curr Sociol 56(1):77-98
    • (2008) Curr Sociol , vol.56 , Issue.1 , pp. 77-98
    • Atkin, K.1    Ahmed, S.2    Hewison, J.3    Green, J.M.4
  • 3
    • 34250198253 scopus 로고    scopus 로고
    • Ordinary ethics: The ethical evaluation of the new genetics by lay people
    • Banks S, Scully JL, Shakespeare T (2006) Ordinary ethics: The ethical evaluation of the new genetics by lay people. New Genet Soc 25 (3):289-303
    • (2006) New Genet Soc , vol.25 , Issue.3 , pp. 289-303
    • Banks, S.1    Scully, J.L.2    Shakespeare, T.3
  • 4
    • 79952359852 scopus 로고
    • An introduction to american deaf culture
    • Silver Spring
    • Bienvenu M, Colonomus B (1985) An introduction to american deaf culture. Sign Media, Silver Spring
    • (1985) Sign Media
    • Bienvenu, M.1    Colonomus, B.2
  • 5
    • 37849024039 scopus 로고    scopus 로고
    • Genomics in Cyprus: Challenging the social norms
    • Bornik ZB, Dowlatabadia H (2008) Genomics in Cyprus: challenging the social norms. Technol Soc 30(1):84-93
    • (2008) Technol Soc , vol.30 , Issue.1 , pp. 84-93
    • Bornik, Z.B.1    Dowlatabadia, H.2
  • 6
    • 13444249994 scopus 로고    scopus 로고
    • The birth of the empirical turn in bioethics
    • Borry P, Dierickx K, Schotsmans P (2005) The birth of the empirical turn in bioethics. Bioethics 19(1):50-71
    • (2005) Bioethics , vol.19 , Issue.1 , pp. 50-71
    • Borry, P.1    Dierickx, K.2    Schotsmans, P.3
  • 8
    • 49449117953 scopus 로고    scopus 로고
    • Tunisia: Communities and community genetics
    • Chaabouni-Bouhamed H (2008) Tunisia: communities and community genetics. Community Genet 11:313-323
    • (2008) Community Genet , vol.11 , pp. 313-323
    • Chaabouni-Bouhamed, H.1
  • 9
    • 4243502052 scopus 로고    scopus 로고
    • Population screening for genetic carrier status
    • In: Harper PS, Clark A (eds), Bios Scientific Publishers, Oxford
    • Clarke A (1997) Population screening for genetic carrier status. In: Harper PS, Clark A (eds) Genetics, society and clinical practice. Bios Scientific Publishers, Oxford
    • (1997) Genetics, Society and Clinical Practice
    • Clarke, A.1
  • 11
    • 34548741358 scopus 로고    scopus 로고
    • How geneticists can help reporters to get their story right
    • DOI 10.1038/nrg2201, PII NRG2201
    • Condit CM (2007) Science and society: how geneticists can help reporters to get their story right'. Nat Rev Gen 8(272):815-20 (Pubitemid 47432550)
    • (2007) Nature Reviews Genetics , vol.8 , Issue.10 , pp. 815-820
    • Condit, C.M.1
  • 16
    • 0035236420 scopus 로고    scopus 로고
    • 23. The Dor Yeshorim story: Community-based carrier screening for Tay-Sachs disease
    • PII S0065266001440879
    • Ekstein J, Katzenstein H (2001) The Dor Yesharim story: communitybased carrier screening for Tay-Sachs disease. Adv Genet 44:297-310 (Pubitemid 33804460)
    • (2001) Advances in Genetics , vol.44 , pp. 297-310
    • Ekstein, J.1    Katzenstein, H.2
  • 18
    • 84908576142 scopus 로고
    • Boundary-work and the demarcation of science from non-science
    • Gieryn T (1983) Boundary-work and the demarcation of science from non-science. Am Sociol Rev 48(6):781-95
    • (1983) Am Sociol Rev , vol.48 , Issue.6 , pp. 781-95
    • Gieryn, T.1
  • 20
    • 11344287919 scopus 로고    scopus 로고
    • Community involvement in developing policies for genetic testing: Assessing the interests and experiences of individuals affected by genetic conditions
    • DOI 10.2105/AJPH.2003.025734
    • Gollust SE, Apse K, Fuller BP, Miller PS, Biesecker BB (2005) Community involvement in developing policies for genetic testing: assessing the interests and experiences of individuals affected by genetic conditions. Am J Public Health 95(1):35-41 (Pubitemid 40075880)
    • (2005) American Journal of Public Health , vol.95 , Issue.1 , pp. 35-41
    • Gollust, S.E.1    Apse, K.2    Fuller, B.P.3    Miller, P.S.4    Biesecker, B.B.5
  • 21
    • 0036205915 scopus 로고    scopus 로고
    • What can the social sciences contribute to the study of ethics? Theoretical, empirical and substantive considerations
    • Haimes E (2002) What can the social sciences contribute to the study of ethics? Theoretical, empirical and substantive considerations. Bioethics 16(2):89-95
    • (2002) Bioethics , vol.16 , Issue.2 , pp. 89-95
    • Haimes, E.1
  • 22
    • 34548188791 scopus 로고    scopus 로고
    • Sociology, ethics, and the priority of the particular: Learning from a case study of genetic deliberations
    • Haimes E, Williams R (2007) Sociology, ethics, and the priority of the particular: learning from a case study of genetic deliberations. Br J Sociol 58(3):457-476
    • (2007) Br J Sociol , vol.58 , Issue.3 , pp. 457-476
    • Haimes, E.1    Williams, R.2
  • 23
    • 70349309131 scopus 로고    scopus 로고
    • Health Council of the Netherlands, The Hague: Health Council of the Netherlands, publication no. 2008/05E
    • Health Council of the Netherlands (2008) Screening: Between Hype and Hope. The Hague: Health Council of the Netherlands, publication no. 2008/05E.
    • (2008) Screening: Between Hype and Hope
  • 24
    • 57349153944 scopus 로고    scopus 로고
    • A systematic review of the effects of disclosing carrier results generated through newborn screening
    • Hayeems RZ, Bytautas JP, Miller FA (2008) A systematic review of the effects of disclosing carrier results generated through newborn screening. J Genet Counsel 17(6):538-49
    • (2008) J Genet Counsel , vol.17 , Issue.6 , pp. 538-49
    • Hayeems, R.Z.1    Bytautas, J.P.2    Miller, F.A.3
  • 25
    • 0034900070 scopus 로고    scopus 로고
    • Community genetics and its evaluation: A European Science Foundation workshop
    • DOI 10.1159/000051157
    • Henneman L, Langendam MW, ten Kate LP (2001) Community genetics and its evaluation$ a European science foundation workshop. Community Genet 4(1):56-59 (Pubitemid 32722271)
    • (2001) Community Genetics , vol.4 , Issue.1 , pp. 56-59
    • Henneman, L.1    Langendam, M.W.2    Ten Kate, L.P.3
  • 27
    • 0033187389 scopus 로고    scopus 로고
    • Moral experience and ethical reflection: Can ethnography reconcile them? a quandary for the new bioethics
    • Kleinman A (1999) Moral experience and ethical reflection: can ethnography reconcile them? a quandary for "the new bioethics". Daedalus 128(4):69-97
    • (1999) Daedalus , vol.128 , Issue.4 , pp. 69-97
    • Kleinman, A.1
  • 29
    • 11144270274 scopus 로고    scopus 로고
    • Regulatory approaches to reproductive genetic testing
    • DOI 10.1093/humrep/deh505
    • Knoppers BK, Isasi RM (2004) Regulatory approaches to reproductive genetic testing. Hum Reprod 19(12):2695-701 (Pubitemid 40028935)
    • (2004) Human Reproduction , vol.19 , Issue.12 , pp. 2695-2701
    • Knoppers, B.M.1    Isasi, R.M.2
  • 30
    • 68149126264 scopus 로고    scopus 로고
    • From community genetics to public health genomics: What's in a name?
    • Knoppers BM, Brand AM (2009) From community genetics to public health genomics: what's in a name? Public Health Genomics 12 (1):1-3
    • (2009) Public Health Genomics , vol.12 , Issue.1 , pp. 1-3
    • Knoppers, B.M.1    Brand, A.M.2
  • 31
    • 57449095825 scopus 로고    scopus 로고
    • Three-month follow-up of Western and non- Western participants in a study on preconceptional ancestry-based carrier couple screening for cystic fibrosis and hemoglobinopathies in the Netherlands
    • Lakeman P, Plass AMC, Henneman L, Bezemer PD, Cornel MC, ten Kate LP (2008) Three-month follow-up of Western and non- Western participants in a study on preconceptional ancestry-based carrier couple screening for cystic fibrosis and hemoglobinopathies in the Netherlands. Genet Med 10:820-30
    • (2008) Genet Med , vol.10 , pp. 820-30
    • Lakeman, P.1    Plass, A.M.C.2    Henneman, L.3    Bezemer, P.D.4    Cornel, M.C.5    Ten Kate, L.P.6
  • 32
    • 67749127288 scopus 로고    scopus 로고
    • Preconceptional ancestry-based carrier couple screening for cystic fibrosis and haemoglobinopathies: What determines the intention to participate or not and actual participation?
    • Lakeman P, Plass AMC, Henneman L, Bezemer PD, Cornel MC, ten Kate LP (2009) Preconceptional ancestry-based carrier couple screening for cystic fibrosis and haemoglobinopathies: what determines the intention to participate or not and actual participation? Eur J Hum Genet 17(8):999-1009
    • (2009) Eur J Hum Genet , vol.17 , Issue.8 , pp. 999-1009
    • Lakeman, P.1    Plass, A.M.C.2    Henneman, L.3    Bezemer, P.D.4    Cornel, M.C.5    Ten Kate, L.P.6
  • 33
    • 70449723093 scopus 로고    scopus 로고
    • Research 2.0: Social networking and direct-to-consumer genomics
    • Lee SS-J, Crawley L (2009) Research 2.0: social networking and direct-to-consumer genomics. The American Journal of Bioethics 9(6-7):35-44
    • (2009) The American Journal of Bioethics , vol.9 , Issue.6-7 , pp. 35-44
    • Lee, S.S.-.J.1    Crawley, L.2
  • 34
    • 0036749710 scopus 로고    scopus 로고
    • Genetic testing, eugenics, and risk
    • Lemke T (2002) Genetic testing, eugenics, and risk. Crit Public Health 12(3):283-90
    • (2002) Crit Public Health , vol.12 , Issue.3 , pp. 283-90
    • Lemke, T.1
  • 35
    • 33845963520 scopus 로고    scopus 로고
    • Beyond genetic discrimination: Problems and perspectives of a contested notion
    • Lemke T (2005) Beyond genetic discrimination: problems and perspectives of a contested notion. Genomics Society and Policy 1(3):22-40
    • (2005) Genomics Society and Policy , vol.1 , Issue.3 , pp. 22-40
    • Lemke, T.1
  • 36
    • 0034996201 scopus 로고    scopus 로고
    • A measure of informed choice
    • DOI 10.1046/j.1369-6513.2001.00140.x
    • Marteau TM, Dormandy E, Michie S (2001) A measure of informed choice. Health Expect 4(2):99-108 (Pubitemid 32464021)
    • (2001) Health Expectations , vol.4 , Issue.2 , pp. 99-108
    • Marteau, T.M.1    Dormandy, E.2    Michie, S.3
  • 37
    • 0009987839 scopus 로고    scopus 로고
    • Grounded theory in genetic counseling research
    • McAllister M (2001) Grounded theory in genetic counseling research. J Genet Couns 10(3):233-51
    • (2001) J Genet Couns , vol.10 , Issue.3 , pp. 233-51
    • McAllister, M.1
  • 39
    • 0036245054 scopus 로고    scopus 로고
    • Genetic counselling and customary consanguineous marriage
    • Modell B, Darr A (2002) Genetic counselling and customary consanguineous marriage. Nat Rev Genet 3(3):225-30
    • (2002) Nat Rev Genet , vol.3 , Issue.3 , pp. 225-30
    • Modell, B.1    Darr, A.2
  • 40
    • 79952363606 scopus 로고    scopus 로고
    • Patients as public in ethics debates: Interpreting the role of patient's organisations in democracy
    • In: Atkinson P, Glasner P, Greenslade H (eds), Routledge, London
    • Nelis A, de Vries G, Hagendijk R (2007) Patients as public in ethics debates: interpreting the role of patient's organisations in democracy. In: Atkinson P, Glasner P, Greenslade H (eds) New genetics, new identities. Routledge, London
    • (2007) New Genetics, New Identities
    • Nelis, A.1    De Vries, G.2    Hagendijk, R.3
  • 41
    • 85044912449 scopus 로고    scopus 로고
    • The political economy of hope: Patients' organizations, science and biovalue
    • Novas C (2006) The political economy of hope: patients' organizations, science and biovalue. BioSocieties 1:289-305
    • (2006) BioSocieties , vol.1 , pp. 289-305
    • Novas, C.1
  • 42
    • 45849093984 scopus 로고    scopus 로고
    • Genetic advocacy groups, science and biovalue: Creating political economies of hope
    • In: Atkinson P, Glasner P, Greenslade H (eds), Routledge, London
    • Novas C (2007) Genetic advocacy groups, science and biovalue: creating political economies of hope. In: Atkinson P, Glasner P, Greenslade H (eds) New genetics, new identities: genetics and society. Routledge, London
    • (2007) New Genetics, New Identities: Genetics and Society
    • Novas, C.1
  • 43
    • 0040443914 scopus 로고    scopus 로고
    • Genetic risk and the birth of the somatic individual
    • Novas C, Rose N (2000) Genetic risk and the birth of the somatic individual. Econ Soc 29(4):485-513
    • (2000) Econ Soc , vol.29 , Issue.4 , pp. 485-513
    • Novas, C.1    Rose, N.2
  • 46
    • 0036003310 scopus 로고    scopus 로고
    • There are no rights and wrongs in these situations: Identifying interactional difficulties in genetic counselling
    • Pilnick A (2002) "There are no rights and wrongs in these situations": identifying interactional difficulties in genetic counselling. Sociol Health Illn 24(1):66-88
    • (2002) Sociol Health Illn , vol.24 , Issue.1 , pp. 66-88
    • Pilnick, A.1
  • 47
    • 85044896321 scopus 로고    scopus 로고
    • The rise of genetic couplehood: A comparative view of pre-marital genetic screening
    • Prainsack B, Siegal G (2006) The rise of genetic couplehood: a comparative view of pre-marital genetic screening. Biosocieties 1 (1):17-36
    • (2006) Biosocieties , vol.1 , Issue.1 , pp. 17-36
    • Prainsack, B.1    Siegal, G.2
  • 49
    • 0141570662 scopus 로고    scopus 로고
    • The struggle against neuromuscular diseases in France and the emergence of the "partnership model" of patient organisation
    • DOI 10.1016/S0277-9536(03)00084-4
    • Rabeharisoa V (2003) The struggle against neuromuscular diseases in France and the emergence of the 'partnership model' of patient organization. Soc Sci Med 57:2127-2136 (Pubitemid 37153153)
    • (2003) Social Science and Medicine , vol.57 , Issue.11 , pp. 2127-2136
    • Rabeharisoa, V.1
  • 50
    • 0036217193 scopus 로고    scopus 로고
    • The involvement of patients' associations in research
    • The Knowledge Society
    • Rabeharisoa V, Callon M (2002) The involvement of patients' associations in research. Int Soc Sci J 171:57-65 (Pubitemid 34276433)
    • (2002) International Social Science Journal , vol.54 , Issue.171 , pp. 57-65
    • Rabeharisoa, V.1    Callon, M.2
  • 51
    • 0035019336 scopus 로고    scopus 로고
    • Information about screening - Is it to achieve high uptake or to ensure informed choice?
    • DOI 10.1046/j.1369-6513.2001.00138.x
    • Raffle AE (2001) Information about screening: is it to achieve high uptake or to ensure informed choice? Health Expect 4(2):92-8 (Pubitemid 32464020)
    • (2001) Health Expectations , vol.4 , Issue.2 , pp. 92-98
    • Raffle, A.E.1
  • 54
    • 84908976850 scopus 로고    scopus 로고
    • Community genetics and genetic alliances: Eugenics, carrier testing, and networks of risk
    • Routledge, New York
    • Raz A (2009) Community genetics and genetic alliances: eugenics, carrier testing, and networks of risk. Forthcoming. Routledge, New York
    • (2009) Forthcoming
    • Raz, A.1
  • 55
    • 50949107229 scopus 로고    scopus 로고
    • Carrier matching and collective socialization in community genetics: Dor yeshorim and the reinforcement of stigma
    • Raz A, Vizner Y (2008) Carrier matching and collective socialization in community genetics: dor yeshorim and the reinforcement of stigma. Soc Sci Med 67:1361-1369
    • (2008) Soc Sci Med , vol.67 , pp. 1361-1369
    • Raz, A.1    Vizner, Y.2
  • 56
    • 77952968031 scopus 로고    scopus 로고
    • Diversity and uniformity in genetic responsibility: Moral attitudes of patients, relatives and lay people in Germany and Israel
    • Raz A, Schicktanz S (2009) Diversity and uniformity in genetic responsibility: moral attitudes of patients, relatives and lay people in Germany and Israel. Forthcoming Med Health Care Philos 12:433-442
    • (2009) Forthcoming Med Health Care Philos , vol.12 , pp. 433-442
    • Raz, A.1    Schicktanz, S.2
  • 57
    • 79952360541 scopus 로고    scopus 로고
    • Genetics, religion and identity: A study of British Bangladeshis
    • Working Paper 93, Cardiff University, Cardiff
    • Rozario S, Gilliat-Ray S (2007) Genetics, religion and identity: a study of British Bangladeshis'. Working Paper 93. School of Social Sciences, Cardiff University, Cardiff
    • (2007) School of Social Sciences
    • Rozario, S.1    Gilliat-Ray, S.2
  • 58
    • 8744272457 scopus 로고    scopus 로고
    • Iranian national thalassaemia screening programme
    • Samavat A, Modell B (2004) Iranian national thalassaemia screening programme. BMJ 329:1134-1137 (Pubitemid 39524770)
    • (2004) British Medical Journal , vol.329 , Issue.7475 , pp. 1134-1137
    • Samavat, A.1    Modell, B.2
  • 59
    • 0842305117 scopus 로고    scopus 로고
    • Non-professionals' evaluations of gene therapy ethics
    • DOI 10.1016/S0277-9536(03)00336-8
    • Scully JL, Rippberger C, Rehmann-Sutter C (2004) Nonprofessionals' evaluations of gene therapy ethics. Soc Sci Med 58(7):1415-25 (Pubitemid 38169342)
    • (2004) Social Science and Medicine , vol.58 , Issue.7 , pp. 1415-1425
    • Scully, J.L.1    Rippberger, C.2    Rehmann-Sutter, C.3
  • 60
    • 56049118019 scopus 로고    scopus 로고
    • Responsible patient advocacy: Perspectives from the alpha-1 foundation
    • Ethical Legal and Social Issues Working Group of the Alpha-1 Foundation
    • Sharp RR, Yarborough M, Walsh JW, Ethical, Legal, and Social Issues Working Group of the Alpha-1 Foundation (2008) Responsible patient advocacy: perspectives from the Alpha-1 Foundation. Am J Med Genet Part A 146A(22):2845-50
    • (2008) Am J Med Genet Part A , vol.146 A , Issue.22 , pp. 2845-50
    • Sharp, R.R.1    Yarborough, M.2    Walsh, J.W.3
  • 61
    • 0242652965 scopus 로고    scopus 로고
    • Conflicting models of risk: Clinical genetics and British Pakistanis
    • In: Caplan P (ed), Pluto Press, London
    • Shaw A (2000) "Conflicting models of risk": clinical genetics and British Pakistanis. In: Caplan P (ed) Risk revisited. Pluto Press, London
    • (2000) Risk Revisited
    • Shaw, A.1
  • 62
    • 1242341028 scopus 로고    scopus 로고
    • Kinship, cultural preference and immigration: Consanguineous marriage among British Pakistanis
    • Shaw A (2001) Kinship, cultural preference and immigration: consanguineous marriage among British Pakistanis. J Roy Anthropol Inst 7(2):315-25
    • (2001) J Roy Anthropol Inst , vol.7 , Issue.2 , pp. 315-25
    • Shaw, A.1
  • 63
    • 48449106695 scopus 로고    scopus 로고
    • I don't see any point in telling them: Attitudes to sharing genetic information in the family and carrier testing of relatives among British Pakistani adults referred to a genetics clinic
    • Shaw A, Hurst J (2008a) "I don't see any point in telling them": attitudes to sharing genetic information in the family and carrier testing of relatives among British Pakistani adults referred to a genetics clinic'. Ethn Health 13(5):417-34
    • (2008) Ethn Health , vol.13 , Issue.5 , pp. 417-34
    • Shaw, A.1    Hurst, J.2
  • 64
    • 48449084970 scopus 로고    scopus 로고
    • What is this genetics, anyway? Understandings of genetics, illness causality and inheritance among British Pakistani users of genetic services
    • Shaw A, Hurst J (2008b) "What is this genetics, anyway?" understandings of genetics, illness causality and inheritance among British Pakistani users of genetic services. J Genet Couns 17 (5):459-71
    • (2008) J Genet Couns , vol.17 , Issue.5 , pp. 459-71
    • Shaw, A.1    Hurst, J.2
  • 65
    • 0002046341 scopus 로고    scopus 로고
    • Decision-making in the context of genetic risk
    • In: Marteau T, Richards M (eds), Cambridge University Press, Cambridge
    • Shiloh S (1999) Decision-making in the context of genetic risk. In: Marteau T, Richards M (eds) The troubled helix: social and psychological implications of the new human genetics. Cambridge University Press, Cambridge, pp 82-104
    • (1999) The Troubled Helix: Social and Psychological Implications of the New Human Genetics , pp. 82-104
    • Shiloh, S.1
  • 66
    • 1642284599 scopus 로고    scopus 로고
    • Advocacy groups and the new genetics
    • In: Alpher JS, Ard C, Asch A, Beckwith J, Conrad P, Geller LN (eds), Johns Hopkins University Press, Baltimore
    • Stockdale A, Terry SF (2002) Advocacy groups and the new genetics. In: Alpher JS, Ard C, Asch A, Beckwith J, Conrad P, Geller LN (eds) The double-edged helix: social implications of genetics in a diverse society. Johns Hopkins University Press, Baltimore
    • (2002) The Double-Edged Helix: Social Implications of Genetics in a Diverse Society
    • Stockdale, A.1    Terry, S.F.2
  • 67
    • 17244370883 scopus 로고    scopus 로고
    • Community genetics: A bridge between clinical genetics and public health
    • ten Kate LP (2005) Community genetics: a bridge between clinical genetics and public health. Community Genet 8(1):7-11
    • (2005) Community Genet , vol.8 , Issue.1 , pp. 7-11
  • 68
    • 38349029330 scopus 로고    scopus 로고
    • Community genetics in the era of public health genomics
    • ten Kate LP (2008) Community genetics in the era of public health genomics. Community Genet 11(1):1
    • (2008) Community Genet , vol.11 , Issue.1 , pp. 1
    • Ten Kate, L.P.1
  • 69
    • 85170337916 scopus 로고    scopus 로고
    • PXE International: Harnessing intellectual property law for benefit sharing
    • In: Knoppers BM (ed), Martinus Nijhoff, Leiden
    • Terry PF (2003) PXE International: harnessing intellectual property law for benefit sharing. In: Knoppers BM (ed) Populations and genetics: legal and socio-ethical perspectives. Martinus Nijhoff, Leiden
    • (2003) Populations and Genetics: Legal and Socio-Ethical Perspectives
    • Terry, P.F.1
  • 70
    • 0034449776 scopus 로고    scopus 로고
    • Empowering the public to be informed consumers of genetic technologies and services
    • DOI 10.1159/000051127
    • Terry SF, Davidson ME (2000) Empowering the public to be informed consumers of genetic technologies and services. Community Genet 3(3):148-50 (Pubitemid 32402308)
    • (2000) Community Genetics , vol.3 , Issue.3 , pp. 148-150
    • Terry, S.F.1    Davidson, M.E.2
  • 71
    • 33846296952 scopus 로고    scopus 로고
    • Advocacy groups as research organizations: The PXE International example
    • DOI 10.1038/nrg1991, PII NRG1991
    • Terry SF, Terry PF, Rauen KA, Uitto J, Bercovitch LG (2007) Advocacy groups as research organizations: The PXE International example. Nat Rev Genet 8:157-164 (Pubitemid 46122844)
    • (2007) Nature Reviews Genetics , vol.8 , Issue.2 , pp. 157-164
    • Terry, S.F.1    Terry, P.F.2    Rauen, K.A.3    Uitto, J.4    Bercovitch, L.G.5
  • 72
    • 2942568407 scopus 로고    scopus 로고
    • Integrated empirical ethics: Loss of normativity?
    • van der Scheer L, Widdershoven G (2004) Integrated empirical ethics: loss of normativity? Med Healthc Philos 7(1):71-79
    • (2004) Med Healthc Philos , vol.7 , Issue.1 , pp. 71-79
    • Van Der Scheer, L.1    Widdershoven, G.2
  • 75
    • 84909187454 scopus 로고    scopus 로고
    • Interfaces between bioethics and the empirical social sciences
    • World Health Organization (WHO), World Health Organization, Buenos Aires
    • World Health Organization (WHO) (2002) Interfaces between Bioethics and the Empirical Social Sciences'. Third Meeting of the International Advisory Board on Bioethics Pan American Health Organization. World Health Organization, Buenos Aires
    • (2002) Third Meeting of the International Advisory Board on Bioethics Pan American Health Organization
  • 76
    • 68949212294 scopus 로고    scopus 로고
    • Population programs for the detection of couples at risk for severe monogenic genetic diseases
    • Zlotogora J (2009) Population programs for the detection of couples at risk for severe monogenic genetic diseases. Hum Genet 126(2):247-253
    • (2009) Hum Genet , vol.126 , Issue.2 , pp. 247-253
    • Zlotogora, J.1
  • 77
    • 67349124099 scopus 로고    scopus 로고
    • A targeted population carrier screening programme for severe and frequent genetic diseases in Israel
    • Zlotogora J, Carmi R, Lev B, Shalev SA (2009) A targeted population carrier screening programme for severe and frequent genetic diseases in Israel. Eur J Hum Genet 17(5):591-597
    • (2009) Eur J Hum Genet , vol.17 , Issue.5 , pp. 591-597
    • Zlotogora, J.1    Carmi, R.2    Lev, B.3    Shalev, S.A.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.