Development and validation of the health competence beliefs inventory in young adults with and without a history of childhood cancer

Annals of Behavioral Medicine

Volumn 41, Issue 1, 2011, Pages 48-58

  Derosa, Branlyn Werba ^a   Kazak, Anne E ^a,b   Doshi, Kinjal ^b   Schwartz, Lisa A ^a   Ginsberg, Jill ^a,b   Mao, Jun J ^b   Straton, Joseph ^b   Hobbie, Wendy ^a   Rourke, Mary T ^a   Carlson, Claire ^a   Ittenbach, Richard F ^a  

^a CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

Beliefs; Cancer; Health; Psychological outcomes; Survivorship; Young adults

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; HEALTH CARE SURVEY; HUMAN; INFORMATION PROCESSING; METHODOLOGY; NEOPLASM; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SURVIVOR; UNITED STATES;

ADOLESCENT; ADULT; ATTITUDE TO HEALTH; FOCUS GROUPS; HEALTH CARE SURVEYS; HUMANS; NEOPLASMS; QUALITY OF LIFE; SURVIVORS; UNITED STATES; YOUNG ADULT;

EID: 79952281615     PISSN: 08836612     EISSN: None     Source Type: Journal    
DOI: 10.1007/s12160-010-9228-y     Document Type: Article

References (39)

1. MJ Park TP Mulye SH Adams C Brindis CE Irwin Jr 2006 The health status of young adults in the U.S. J Adolesc Health. 39 305 317 10.1016/j.jadohealth. 2006.04.017 16919791 (Pubitemid 44224137)
2. National Cancer Institute, LIVESTRONG Young Adult Alliance. Closing the gap: Research and care imperative for adolescents and young adults with cancer, report of the adolescent and young adult oncology progress review group. NIH Publication No. 06-6067; 2006.
3. KC Oeffinger MD Mertens CA Sklar, et al. 2006 Chronic health conditions in adult survivors of childhood cancer N Engl J Med. 355 1572 1582 1:CAS:528:DC%2BD28XhtVyht7jL 10.1056/NEJMsa060185 17035650 (Pubitemid 44547808)
4. H Stam EE Hartman JA Deurloo J Groothoff MA Grootenhuis 2006 Young adult patients with a history of pediatric disease: Impact on course of life and transition into adulthood J Adolesc Health. 39 4 13 10.1016/j.jadohealth.2005. 03.011 16781955 (Pubitemid 43867332)
5. LK Zeltzer CJ Recklitis D Buchbinder, et al. 2009 Psychological status in childhood cancer survivors: A report for the childhood cancer survivor study J Clin Oncol. 27 2396 2404 10.1200/JCO.2008.21.1433 19255309
6. L Schwartz D Drotar 2006 Defining the nature and impact of goals in children and adolescents with a chronic health condition: A review of research and a theoretical framework J Clin Psychol Med Settings. 13 393 405 10.1007/s10880-006-9041-8 (Pubitemid 44597069)
7. MT Rourke WL Hobbie LA Schwartz AE Kazak 2007 Posttraumatic stress disorder (PTSD) in young adult survivors of childhood cancer Pediatr Blood Cancer. 49 177 182 10.1002/pbc.20942 16862538 (Pubitemid 47041108)
8. YL Lee SJ Santacroce L Sadler 2007 Predictors of healthy behaviour in long-term survivors of childhood cancer J Clin Nurs. 16 285 295 10.1111/j.1365-2702.2007.01966.x 17931322
9. American Academy of Pediatrics and the Children's Oncology Group 2009 Long-term follow-up care for pediatric cancer survivors Pediatrics 123 906 915 10.1542/peds.2008-3688
10. NS Kadan-Lottick LL Robison JG Gurney, et al. 2002 Childhood cancer survivors' knowledge about their past diagnosis and treatment: Childhood cancer survivor study J Am Med Assoc. 287 1832 1839 10.1001/jama.287.14.1832 (Pubitemid 34303628)
11. JG Reiss RW Gibson LR Walker 2005 Health care transition: Youth, family, and provider Pediatrics. 115 112 120 10.1542/peds.2005-0448 15629990 (Pubitemid 43843275)
12. JP Ginsberg WL Hobbie CA Carlson AT Meadows 2006 Delivering Long-Term Follow-Up Care to Pediatric Cancer Survivors: Transitional Care Issues Pediatr Blood Cancer. 46 169 173 10.1002/pbc.20610 16320315 (Pubitemid 43076066)
13. DA Haller LA Sanci SM Sawyer G Patton 2008 Do young people's illness beliefs affect health care? A systematic view J Adolesc Health. 42 436 449 10.1016/j.jadohealth.2007.09.013 18407038
14. KC Oeffinger 2003 Longitudinal risk-based health care for adult survivors of childhood cancer Curr Probl Cancer. 27 3 143 167 10.1016/S0147-0272(03) 00031-X 12748583 (Pubitemid 36627186)
15. MS Smith KA Wallston CA Smith 1995 The development and validation of the perceived health competence scale Health Educ Res. 10 51 64 1:STN:280: DyaK2Mzit12msw%3D%3D 10.1093/her/10.1.51 10150421
16. B Zebrack 2009 Developing a new instrument to assess the impact of cancer in young adult survivors of childhood cancer J Cancer Surviv. 3 174 180 10.1007/s11764-009-0087-0 19434501
17. AE Kazak BW DeRosa LA Schwartz, et al. 2010 Psychological outcomes and health beliefs in adolescent and young adult (AYA) survivors of childhood cancer and controls J Clin Oncol. 28 2002 2007 10.1200/JCO.2009.25.9564 20231679
18. Author. The Health Competence Beliefs Inventory: A technical report of scale development. Author Institution; 2009.
19. Schwarzer R, Jerusalem M. Generalized Self-Efficacy scale. In: Weinman J, Wright S, Johnston M, eds. Measures in health psychology: A user's portfolio. Causal and control beliefs; 1995: 35-37.
20. U Scholz B Dona S Sud R Schwarzer 2002 Is general self-efficacy a universal construct? Psychometric findings from 25 countries Eur J Psychol Assess. 18 242 251 10.1027//1015-5759.18.3.242
21. L Schwartz J Mao B DeRosa, et al. 2010 Self-reported health problems of young adults in clinical settings: Survivors of childhood cancer and healthy controls J Am Board Fam Med. 23 306 314 10.3122/jabfm.2010.03.090215 20453176
22. E Diener RA Emmons 1985 The independence of positive and negative affect J Pers Soc Psychol. 47 1105 1117
23. KM Gill JW Carson LS Porter, et al. 2003 Daily stress and mood and their association with pain, health-care use, and school activity in adolescents with sickle cell disease J Pediatr Psychol. 28 363 373 10.1093/jpepsy/jsg026 (Pubitemid 36750460)
24. Weathers FW, Ford J. Psychometric review of the PTSD Checklist. In: Stamm, BH, ed. Measurement of stress, trauma, and adaptation; 1996: 250-251.
25. MA Andrykowski MJ Cordova JL Studts TW Miller 1998 Posttraumatic stress disorder after treatment for breast cancer: prevalence of diagnosis and use of the PTSD Checklist-Civilian Version (PCL-C) as a screening instrument J Consult Clin Psychol. 66 586 90 1:STN:280:DyaK1czgs1yksg%3D%3D 10.1037/0022-006X.66.3. 586 9642900 (Pubitemid 28272966)
26. MY Smith WH Redd KN DuHamel SMJ Viekberg R Ricketts 1999 Validation of the post-traumatic stress disorder checklist-civilian in survivors of bone marrow transplantation J Trauma Stress. 12 485 499 1:STN:280: DyaK1Mzps1yrug%3D%3D 10.1023/A:1024719104351 10467557 (Pubitemid 29398631)
27. JE Ware Jr M Kosinski SD Keller 1996 A 12-item short-form health survey: Construction of scales and preliminary tests of reliability and validity Med Care. 34 220 33 10.1097/00005650-199603000-00003 8628042 (Pubitemid 126433231)
28. C Jenkinson T Chandola A Coulter A Bruster 2001 An assessment of the construct validity of the SF-12 summary scores across ethnic groups J Public Health Med. 23 187 194 1:STN:280:DC%2BD3MrjslOrtQ%3D%3D 10.1093/pubmed/23.3.187 11585190 (Pubitemid 32895885)
29. JC Hayton DG Allen V Scarpello 2004 Factor Retention Decisions in Explorator Factor Analysis: A Tutorial on Parallel Analysis Organizational Research Methods. 7 191 205 10.1177/1094428104263675 (Pubitemid 38597597)
30. WR Zwick WF Velicer 1986 Comparison of five rules for determining the number of components to retain Psychol Bull. 99 4327 4442 10.1037/0033-2909.99. 3.432
31. DeVellis, R. Scale development: Theory and applications. 2nd ed. Thousand Oaks, CA: Sage Publications, Inc.; 2003.
32. Kline, P. The new psychometrics: Science, psychology and measurement. London: Routledge; 1998.
33. RL Worthington TA Whittaker 2006 Scale development research: A content analysis and recommendations for best practices Couns Psychol 34 6 806 838 10.1177/0011000006288127 (Pubitemid 44653069)
34. MH Alazri RD Neal 2003 The association between satisfaction with services provided in primary care and outcomes in Type 2 diabetes mellitus Diabet Med. 20 486 90 1:STN:280:DC%2BD3s3mtFCqsw%3D%3D 10.1046/j.1464-5491.2003.00957.x 12786685 (Pubitemid 36776011)
35. VS Fan M Burman MB McDonell SD Fihn 2005 Continuity of care and other determinants of patient satisfaction with primary care J Gen Intern Med. 20 226 10.1111/j.1525-1497.2005.40135.x 15836525 (Pubitemid 40628725)
36. KC Oeffinger AC Mertens MM Hudson, et al. 2004 Health care of young adult survivors of childhood cancer: A report from the childhood cancer survivor study Ann Fam Med. 2 61 70 10.1370/afm.26 15053285 (Pubitemid 39318021)
37. IB Ressler J Cash D McNeill S Joy PM Rosoff 2003 Continued parental attendance at a clinic for adult survivors of childhood cancer J Pediatr Hematol Oncol. 25 868 873 10.1097/00043426-200311000-00009 14608196 (Pubitemid 37413836)
38. LM Banner EJ Mackie JW Hill 1996 Family relationships in survivors of childhood cancer: Resource or restraint? Patient Educ Couns. 28 191 199 1:STN:280:DyaK2s%2FgsVOrsQ%3D%3D 10.1016/0738-3991(96)00901-9 8852094 (Pubitemid 26291118)
39. TE O'Leary L Diller CJ Reklitis 2007 The effects of response bias on self-reported quality of life among childhood cancer survivors Qual Life Res. 16 1211 1220 10.1007/s11136-007-9231-3 17624814 (Pubitemid 47357732)