Genetic counseling for early-onset familial alzheimer disease in large aboriginal kindred from a remote community in British Columbia: Unique challenges and possible solutions

Journal of Genetic Counseling

Volumn 20, Issue 2, 2011, Pages 136-142

  Butler, Rachel ^a   Dwosh, Emily ^a   Beattie, B Lynn ^a   Guimond, Colleen ^a   Lombera, Sofia ^a   Brief, Elana ^a   Illes, Judy ^a   Sadovnick, A Dessa ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Aboriginal; Alzheimer disease; Genetic counseling; Rural

Indexed keywords

ALZHEIMER DISEASE; ARTICLE; CANADA; CULTURAL FACTOR; GENETIC COUNSELING; GENETICS; HUMAN; PATIENT EDUCATION;

ALZHEIMER DISEASE; BRITISH COLUMBIA; CULTURAL CHARACTERISTICS; GENETIC COUNSELING; HUMANS; PATIENT EDUCATION AS TOPIC;

EID: 79952186885     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-010-9334-9     Document Type: Article

References (11)

1. L Arbour D Cook 2006 DNA on loan: issues to consider when carrying out genetic research with aboriginal families and communities Community Genetics 9 3 153 160 16741344 10.1159/000092651 (Pubitemid 43854179)
2. R Butler BL Beattie UP Thong E Dwosh C Guimond HH Feldman, et al. 2010 A novel PS1 gene mutation in a large aboriginal kindred from a remote community in Northern British Columbia The Canadian Journal of Neurological Sciences 37 359 364 20481270
3. D Craufurd A Tyler 1992 Predictive testing for Huntington's disease: protocol of the UK Huntington's Prediction Consortium Journal of Medical Genetics 29 915 918 1479607 10.1136/jmg.29.12.915 1:STN:280:DyaK3s7isVCrug%3D%3D (Pubitemid 23035220)
4. L D'Agincourt-Canning 2004 Genetic testing for hereditary cancer: challenges to ethical care in rural and remote communities HEC Forum 16 4 222 233 15672697 10.1007/s10730-005-2233-z (Pubitemid 40543700)
5. Hulko, W., Camille, E., Antifeau, E., Arnouse, M., Bachynski, N., & Taylor, D. (2010). Views of first nation elders on memory loss and memory care in later life. Journal of Cross-Cultural Gerontology. doi: 10.1007/s10823-010- 9123-9129.
6. Lombera, S., Butler, R., Beattie, B.L., & Illes, J. (2009). Aging, dementia and cognitive decline: Perspectives of an aboriginal community in British Columbia. Canadian Association of Neuroscience Annual Meeting. Vancouver, Canada.
7. G McKhann D Drachman M Folstein R Katzman D Price EM Stadlan 1984 Clinical diagnosis of Alzheimer's disease: report of the NINCDS-ADRDA Work Group under the auspices of Department of Health and Human Services Task Force on Alzheimer's Disease Neurology 34 7 939 944 6610841 1:STN:280: DyaL2c3ks1altQ%3D%3D (Pubitemid 14076461)
8. Ministerial Advisory Council on Rural Health. (2002). Rural health in rural hands: Strategic direction for rural, remote, northern and Aboriginal communities. Ottawa, Ontario: Kinsley C. Retrieved from http://www.srpc.ca/ librarydocs/rural-handsbr.pdf
9. NSGC (2010). Code of Ethics. Retrieved from http://www.nsgc.org/about/ codeEthics.cfm
10. Romanow, R. J. (2002). Building on Values: The future of health care in Canada. Rural and remote communities (Chapter 7). Retrieved from: www.hc-sc.gc.ca/english/pdfs/HCC-Final-Report.pdf
11. Statistics Canada (2003). The health of rural Canadians: A rural-urban comparison of health indicators. Rural and small town Canada analysis bulletin, 2003 (No. 21-006-XIE). 4(6) Mitura V., & Bollman R. D. Retrieved from http://dsp-psd.pwgsc.gc.ca/Collection/Statcan/21-006-X/21-006-XIE.html