Disclosing disorders of sex development and opening the doors

Sexual Development

Volumn 4, Issue 4-5, 2010, Pages 304-309

  D'Alberton, F ^a  

^a UNIVERSITY OF BOLOGNA   (Italy)

Author keywords

DSD; Full disclosure; Informed consent

Indexed keywords

ARTICLE; COOPERATION; EMOTION; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; PSYCHOLOGICAL ASPECT; SEX DIFFERENTIATION DISORDER;

COOPERATIVE BEHAVIOR; DISORDERS OF SEX DEVELOPMENT; EMOTIONS; FEMALE; HUMANS; TRUTH DISCLOSURE;

EID: 79952109446     PISSN: 16615425     EISSN: 16615433     Source Type: Journal    
DOI: 10.1159/000317480     Document Type: Article

References (13)

1. Brinkmann L, Schutzmann K, Richter-Appelt H: Gender assignment and medical history of individuals with different forms of intersexuality: evaluation of medical records and the patients' perspective. J Sex Med 4: 964-980 (2007).
2. Carmichael P, Ransley PG: Telling children about a physical intersex condition. Dialogues Pediatr Urol 25: 7-8 (2002).
3. Creighton S, Minto CL: Managing intersex. BMJ 323: 1264-1265 (2001).
4. Creighton S, Minto CL, Steele SJ: Objective cosmetic and anatomical outcomes at adolescence of feminising surgery for ambiguous genitalia done in childhood. Lancet 358: 124-125 (2001).
5. Hughes A, Houk C, Ahamed SF, Lee PA; LWPES/ ESPE Consensus Group: Consensus statement on managing of intersex disorders. Arch Dis Child 91: 554-563 (2006).
6. Kanzakis K: Fixing Sex: Intersex, Medical Authority and Lived Experience. (Duke University Press, Durham and London 2008).
7. Liao LM: Learning to assist women born with atipic genitalia: journey through ignorance, taboo and dilemma. J Reprod Infant Psyc 21: 229-238 (2003).
8. Liao LM, Green H, Creighton SM, Crouch NS, Conway GS: Patient experiences of obtaining and giving information about disorder of sex development. BJOG-Int J Obstet Gy 117: 193- 199 (2010).
9. Menzies IE: A case in the functioning of social systems as a defence against anxiety: a report on a study of the nursing service of a general hospital. Hum Relat 13: 95-121 (1960).
10. Money J, Hampson JG, Hampson JL: Hermaphroditism. Recommendations concerning assignment of sex, change of sex and psychological management. Bull Johns Hopkins Hosp 97: 284-300 (1955).
11. Slijper FM, Frets PG, Boehmer AL, Drop SL, Niermeijer MF: Androgen insensitivity syndrome (AIS) emotional reactions of parents and adult patients to the clinical diagnosis of AIS and its confirmation by androgen receptor gene mutation analysis. Horm Res 53: 9-15 (2000).
12. Sutton A: 'Lesley': the struggle of a teenager with an intersex disorder to find an identity - its impact on the 'I' of the beholder, in Di Ceglie D, Freeman D (eds): A Stranger in My Own Body - Atypical Gender Identity Development and Mental Health (Karnac Books, London 1998).
13. Wisniewski AB, Migeon CJ, Heino FL, Meyer-Bahlburg JP, Berkovitz GD, et al: Complete androgen insensitivity syndrome: long-term medical, surgical and psychosexual outcome. J Clin Endocrinol Metab 85: 2664-2669 (2000).