Prophylaxis therapy in haemophilia A: Current situation in Spain

Haemophilia

Volumn 17, Issue 1, 2011, Pages 75-80

  Lucia J F ^a   Aznar, J A ^b   Abad Franch, L ^b   Escuin, R R ^a   Jimenez Yuste V ^c   Perez R ^d   Batlle, J ^e   Balda, I ^f   Alperovich, G ^g   Parra, R ^h  

^a HOSPITAL UNIVERSITARIO MIGUEL SERVET   (Spain)

^b HOSPITAL UNIVERSITARIO LA FE   (Spain)

^c HOSPITAL UNIVERSITARIO LA PAZ   (Spain)

^d HOSPITAL UNIVERSITARIO VIRGEN DEL ROCÍO   (Spain)

^e HOSPITAL JUAN CANALEJO   (Spain)

^f HOSPITAL UNIVERSITARIO DE GRAN CANARIA DR NEGRÍN   (Spain)

^g PFIZER INC   (United States)

^h HOSPITAL UNIVERSITARI VALL D HEBRON   (Spain)

Author keywords

Epidemiology; Haemophilia A; Prophylaxis; Spain

Indexed keywords

BLOOD CLOTTING FACTOR 8; RECOMBINANT BLOOD CLOTTING FACTOR 8;

ADULT; ARTHROPATHY; ARTICLE; DISEASE SEVERITY; HEMOPHILIA; HEMOPHILIA A; HEMOPHILIA B; HEMOPHILIC ARTHROPATHY; HUMAN; MAJOR CLINICAL STUDY; PRIORITY JOURNAL; PROPHYLAXIS; SPAIN;

ADULT; CHILD; FACTOR VIII; FEMALE; HEMARTHROSIS; HEMOPHILIA A; HUMANS; JOINT DISEASES; MALE; SEVERITY OF ILLNESS INDEX; SPAIN;

EID: 79951875567     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2010.02378.x     Document Type: Article

References (18)

1. Aznar JA, Lucía F, Abad-Franch L et al. Haemophilia in Spain. Haemophilia 2009; 15: 665-75.
2. Aznar JA, Abad-Franch L, Cortina VR, Marco P. The national registry of haemophilia A and B in Spain: results from a census of patients. Haemophilia 2009; 15: 1327-30.
3. Pettersson H, Ahlberg A, Nilsson IM. A radiologic classification of hemophilic arthropathy. Clin Orthop Relat Res 1980; 149: 153-9.
4. Hacker MR, Geraghty S, Manco-Johnson M. Barriers to compliance with prophylaxis therapy in haemophilia. Haemophilia 2001; 7: 392-6.
5. White GC, Rosendaal F, Aledort LM, Lusher JM, Rothschild C, Ingerslev J. Definitions in haemophilia recommendation of the scientific subcommittee on factor VIII and factor IX of the Scientific and Standardization Committee of the International Society on Thrombosis and Haemostasis. Thromb Haemost 2001; 85: 560.
6. Donadel-Claeyssens S. Current co-ordinated activities of the PEDNET (European Paediatric Network for Haemophilia Management). Haemophilia 2006; 12: 124-7.
7. Biss TT, Chan AK, Blanchette V. The use of prophylaxis in 2663 children and adults with haemophilia: results of the 2006 Canadian national haemophilia prophylaxis survey. Haemophilia 2008; 14: 923-30.
8. Larsson SA, Nilsson IM, Blomback M. Current status of Swedish haemophiliacs. A demographic survey. Acta Med Scand 1982; 212: 195-200.
9. Plug I, van der Bom JG, Peters M et al. Thirty years of haemophilia treatment in the Netherlands, 1972-2001. Blood 2004; 14: 3494-500.
10. Butler RB, McClure W, Wulff K. Practice patterns in haemophilia A therapy- a survey of treatment centres in the United States. Haemophilia 2003; 9: 549-54.
11. Windyga J, Lopaciuk S, Stefanska E et al. Haemophilia in Poland. Haemophilia 2006; 12: 52-7.
12. Ono O, Suzuki Y, Yosikawa K et al. Assessment of haemophilia treatment practice pattern in Japan. Haemophilia 2009; 15: 1032-8.
13. Taki M, Shirahata A. Current situation of regular replacement therapy (prophylaxis) for haemophilia in Japan. Haemophilia 2009; 15: 78-82.
14. Blanchette VS, McCready M, Achonu C, Abdolell M, Rivard G, Manco-Johnson MJ. A survey of factor prophylaxis in boys with haemophilia followed in North American haemophilia treatment centres. Haemophilia 2003; 9(Suppl. 1): 19-26.
15. Aledort LM, Haschmeyer RH, Pettersson H. A longitudinal study of orthopaedic outcomes for severe factor-VIII-deficient haemophiliacs. The Orthopaedic Outcome Study Group. J Intern Med 1994; 236: 391-9.
16. Valentino LA, Ewenstein B, Navickis RJ, Wilkes MM. Central venous access devices in haemophilia. Haemophilia 2004; 10: 134-46.
17. Ljung R. Central venous lines in haemophilia. Haemophilia 2003; 9(Suppl. 1): 88-92.
18. Ljung R, van den Berg M, Petrini P et al. Port-A-Cath usage in children with haemophilia: experience of 53 cases. Acta Paediatr 1998; 87: 1051-4.