Accessing vulnerable research populations: An experience with gatekeepers of ethical approval

International Journal of Palliative Nursing

Volumn 17, Issue 1, 2011, Pages 14-18

  Walker, Susan ^a   Read, Sue ^a  

^a KEELE UNIVERSITY   (United Kingdom)

Author keywords

Collaboration; Ethical approval; Gatekeepers; Vulnerable populations

Indexed keywords

EID: 79951653900     PISSN: 13576321     EISSN: None     Source Type: Journal    
DOI: 10.12968/ijpn.2011.17.1.14     Document Type: Article

References (30)

1. Addington-Hall J, Bruera E, Higginson IJ, Payne S (2007) Research Methods in Palliative Care. Oxford University Press, Oxford
2. Bolton G (2001) Reflective Practice: Writing and Professional Development. Paul Chapman Publishing Ltd, London
3. Borreani C, Brunelli C, Miccinesi G et al (2008) Eliciting individual preferences about death: development of the end-of-life preferences interview. J Pain Symptom Manage 36(4): 335-350.
4. Cowan D (2009) Research Issues in Health and Social Care. M&K Update Ltd, Keswick
5. Crawford MJ, Rutter D, Manley C et al (2002) Systematic review involving patients in the planning and development of healthcare. BMJ 325: 1263-5 (Pubitemid 35430579)
6. Department of Health (2000) No Secrets: Guidance on Developing and Implementing Multi-Agency Policies and Procedures to Protect Vulnerable Adults from Abuse. Department of Health, London
7. Department of Health (2001) Health and Social Care Act. Department of Health, London
8. Department of Health (2006) The National Health Service Act. Department of Health, London
9. Department of Health (2008) End of Life Care Strategy. Department of Health, London
10. Department of Health, University of Nottingham (2008) Advanced Care Planning: A Guide for Health and Social Care Staff. Department of Health, London
11. Emmel N, Hughes K, Greenhalgh J, Sales A (2007) Accessing socially excluded people - trust and the gatekeepers in the researcher-participant relationship. Sociol Res Online www.socresonline.org.uk/12/2/emmel.html (accessed 9th January 2011)
12. Field D, Clark D, Corner J, Davis C (2001) Researching Palliative Care. Open University Press, Buckingham
13. Furedi F (2002) Don't rock the research boat. Times Higher Education Supplement 1520: 20-21
14. Marie Curie Cancer Care (2004) Views about dying at home: survey of the UK general public. KRC research, London
15. Maslin-Prothero S (2000) The rhetoric of user participation in healthcare. Nurse Educ Today 20: 597-9
16. Miller T, Bell L (2002) Consenting to what? Issues of access, gate-keeping and informed consent. In: Mauthner M, Birch B, Jessop J, Miller T. eds, Ethics in Qualitative Research. Sage, London: 53-69
17. Munday D, Dale J, Murray S (2007) Choice and place of death: individual preferences, uncertainty and the availability of care. J R Soc Med 100: 211-5 (Pubitemid 46814775)
18. National Council for Palliative Care (2010) End of Life Care Manifesto. www.ncpc.org.uk/download/publications/2010Manifesto.pdf (accessed 11 January 2011)
19. National Health Service (2001) About GSF. www.goldstandardsframework.nhs. uk/About-GSF (accessed 11 January 2011)
20. National Health Service (2007a) Gold Standards Framework. www.goldstandardsframework.nhs.uk/ (accessed 17 January 2011)
21. National Health Service (2007b) Preferred Priorities for Care. www.endoflifecareforadults.nhs.uk/publications/ppcform (accessed 17 January 2011)
22. National Institute for Health and Clinical Excellence (2004) Guidance on Cancer Services: Improving Supportive and Palliative Care for Adults with Cancer. www.nice.org.uk/csgsp (accessed 11 January 2011)
23. Parahoo K (2006) Nursing Research: Principles, Processes and Issues. 2nd edn. Palgrave Macmillan, Basingstoke
24. Priest H, Roberts P (2010) Conducting ethical research in healthcare. In: Roberts P, Priest H. eds, Healthcare Research: A Textbook for Students and Practitioners. Wiley-Blackwell, Chichester: 111-129
25. Read S, Maslin-Prothero S (2010) The involvement of users and carers in health and social research: the realities of inclusion and engagement. Qual Health Res (advance online publication; doi: 10.1177/1049732310391273)
26. Seymour JE, Ingleton C (1999) Ethical issues in qualitative research at the end of life. Int J Palliat Nurs 5(2): 65-73
27. Sixsmith J, Boneham M, Goldring JE (2003) Accessing the community: gaining insider perspectives from the outside. Qual Health Res 13(4): 578-89 (Pubitemid 44534776)
28. Thomas C (2005) The place of death of cancer patients: can qualitative data add to known factors? Soc Sci Med 60: 2597-607 (Pubitemid 40462383)
29. Thomas C, Morris SM, Clark D (2004) Place of death: preferences among cancer patients and their carers. Soc Sci Med 58: 2431-44 (Pubitemid 38471786)
30. Townsend J, Frank AO, Fermont D et al (1990) Terminal cancer and patients' preference for place of death: a prospective study. BMJ 301: 415-7 (Pubitemid 20279232)