Providing services in the United Kingdom to people with an intellectual disability who present behaviour which challenges: A review of the literature

Research in Developmental Disabilities

Volumn 32, Issue 2, 2011, Pages 395-403

  McKenzie, Karen ^a  

^a UNIVERSITY OF EDINBURGH   (United Kingdom)

Author keywords

Challenging behaviour; Intellectual disability; Review; Service provision; United Kingdom

Indexed keywords

BEHAVIOR; COMMUNITY CARE; HOSPITAL SERVICE; HUMAN; INTELLECTUAL IMPAIRMENT; LEARNING DISORDER; MENTAL DEFICIENCY; MENTAL HEALTH SERVICE; NATIONAL HEALTH SERVICE; OUTCOME ASSESSMENT; PATIENT CARE; QUALITY OF LIFE; RESIDENTIAL CARE; REVIEW; SOCIAL BEHAVIOR; SPECIALIST PERIPATETIC SUPPORT TEAM; UNITED KINGDOM;

COMMUNITY HEALTH SERVICES; GREAT BRITAIN; HUMANS; MENTAL DISORDERS; MENTAL HEALTH SERVICES; MENTAL RETARDATION;

EID: 79851515506     PISSN: 08914222     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ridd.2010.12.001     Document Type: Review

References (58)

1. Ager A.K. The life experiences checklist 1990, NFER-Nelson, Windsor.
2. Alborz A., Bromley J., Emerson E., Kiernan C., Qureshi H. Challenging behaviour survey: Individual schedule 1994, University of Manchester, Hester Adrian Research Centre, Manchester.
3. Allen D., Lowe K. Providing intensive community support to people with learning disabilities and challenging behaviour: A preliminary analysis of outcomes and costs. Journal of Intellectual Disability Research 1995, 39:67-82.
4. Allen D., Lowe K., Jones E., James W., Doyle T., Andrew A., et al. Changing the face of challenging behaviour services: The Special Projects Team. British Journal of Learning Disabilities 2006, 34:237-242.
5. Allen D., Lowe K., Moore K., Brophy S. Predictors, costs and characteristics of out of area placement for people with intellectual disability and challenging behavior. Journal of Intellectual Disability Research 2006, 51(6):409-416.
6. Aman M.G., Singh N.N. The aberrant behavior checklist 1986, Slosson Educational Publications, New York.
7. Ball T., Bush A., Emerson E. Psychological interventions for severely challenging behaviours shown by people with learning disabilities: Clinical practice guidelines 2004, British Psychological Society, Leicester.
8. Beadle-Brown J., Mansell J.L., Whelton B., Hutchinson A., Skidmore C. People with learning disabilities in 'out-of-area' residential placements. 2. Reasons for and effects of placement. Journal of Intellectual Disability Research 2006, 50(11):845-856.
9. Beecham J. Collecting and estimating costs. The economic evaluation of mental health care 1995, 157-174. Arena, Aldershot.
10. Bhaumik S., Watson J.M., Devapriam J.L., Raju B., Tin N.N., Kiani L., et al. Aggressive challenging behaviour in adults with intellectual disability following community resettlement. Journal of Intellectual Disability Research 2009, 53(3):298-302.
11. Blunden R., Allen D. Facing the challenge: An ordinary life for people with learning difficulties and challenging behaviours 1987, King's Fund, London.
12. Brigend P., Todd M. Challenging behaviour. Mental Handicap 1990, 18:99-105.
13. Broadhurst S., Mansell J. Organizational and individual factors associated with breakdown of residential placements for people with intellectual disabilities. Journal of Intellectual Disability Research 2007, 51(4):293-301.
14. Brown M., Paterson D. Out-of-area placements in Scotland and people with learning disabilities: A preliminary population study. Journal of Psychiatric and Mental Health Nursing 2008, 15(4):278-286.
15. Brylewski J., Duggan L. Antipsychotic medication for challenging behaviour in people with learning disability. Cochrane Database of Systematic Reviews 2004, 3. doi:10.1002/14651858.CD000377.pub2.
16. Department of Health Services for people with learning disabilities and challenging behaviour or mental health needs: Report of a Project Group (Chairman: Prof. J. L. Mansell) 1993, Her Majesty's Stationery Office, London.
17. DHSSPS Clinical Psychology Specialty Advisory Committee. (2002). Provision of learning disability challenging behaviour services in Northern Ireland: A Consultation Document. Available at: Last accessed 21 April 2010. http://www.bps.org.uk/downloadfile.cfm?file_uuid=0CC0D4FA-7E96-C67F-D43FE1E0CD8180E1&ext=pdf.
18. Didden R., Duker P.C., Korzilius H. Meta-analytic study of treatment effectiveness for problem behaviours with individuals who have mental retardation. American Journal on Mental Retardation 1997, 101(4):387-399.
19. Edwards R. The laying on of hands: Nursing staff talk about physical restraint. Journal of Learning Disabilities of Nursing, Health and Social Care 1999, 3(3):136-143.
20. Emerson E. Community support teams for people with learning disabilities and challenging behaviours: Results of a national survey. Journal of Mental Health 1996, 5(4):395-406.
21. Emerson E., Robertson J., Gregory N., Hatton C., Kessissoglou S., Hallam A., et al. Treatment and management of challenging behaviours in residential settings. Journal of Applied Research in Intellectual Disabilities 2000, 13:197-215.
22. Golding L., Emerson E., Thornton A. An evaluation of specialized community-based residential supports for people with challenging behaviour. Journal of Intellectual Disabilities 2005, 9(2):145-154.
23. Grey I.M., Hastings R.P. Evidence-based practices in intellectual disability and behaviour disorders. Current Opinion in Psychiatry 2005, 18:469-475.
24. Hassiotis A., Robotham D., Canagasabey A., Romeo R., Langridge D., Blizard R., et al. Randomized, single-blind, controlled trial of a specialist behavior therapy team for challenging behavior in adults with intellectual disabilities. American Journal of Psychiatry 2009, 166:1278-1285.
25. Knapp M., Comas-Herrera A., Astin J., Beecham J., Pendaries C. Intellectual disability, challenging behaviour and cost in care accommodation: What are the links?. Health and Social Care in the Community 2005, 13(4):297-306.
26. La Vigna G.W., Willis T.J., Shaull J.F. The periodic service review: A total quality assurance system for human services and education 1994, Brookes, Baltimore, MD.
27. Lowe K., Felce D., Blackman D. Challenging behaviour: The effectiveness of specialist support teams. Journal of Intellectual Disability Research 1996, 40:336-347.
28. Lowe K., Allen D., Jones E., Brophy S., Moore K., James W. Challenging behaviours: Prevalence and topographies. Journal of Intellectual Disability Research 2007, 51(8):625-636.
29. Mackenzie-Davies N., Mansell J. Assessment and treatment units for people with intellectual disabilities and challenging behaviour in England: An exploratory survey. Journal of Intellectual Disability Research 2007, 51(10):802-811.
30. Mansell J. Services for people with learning disabilities and challenging behaviour or mental health needs 2007, Department of Health, London. revised ed.
31. Mansell J., Beadle-Brown J., Whelton B., Beckett C., Hutchinson A. Effect of service structure and organization on staff care practices in small community homes for people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 2008, 21:398-413.
32. Mansell J., McGill P., Emerson E. Development and evaluation of innovative residential services for people with severe intellectual disability and serious challenging behavior. International review of research in mental retardation 2001, Vol. 24:245-298. Academic Press, New York.
33. Maxwell R.J. Quality assessment in health. British Medical Journal 1984, 288:1470-1472.
34. McBrien J. The Haytor Unit: Specialised day care for adults with severe mental handicaps and behaviour problems. Mental Handicap 1987, 15:77-80.
35. McGill P. Ten years of providing intensive support services for people with learning disabilities and challenging behaviour. Tizard Learning Disability Review 2000, 5(3):23-25.
36. McKenzie K., Paxton D., Matheson E., Murray G.C. An examination of the pattern of challenging behaviour referrals to a community learning disability nursing service. Health Bulletin 1999, 57(4):262-266.
37. McKenzie K., Paxton D., Matheson E., Murray G.C. Professional composition of community learning disability teams in Scotland: Implications for service provision. Health Bulletin 2000, 58(3):194-199.
38. McKenzie K., Rae H., MacLean H., Megson P., Wilson S. Difficulties faced by social care staff when managing challenging behaviour. Learning Disability Practice 2006, 9(2):28-32.
39. McKenzie K., Broad R., McLean H., Wilson S., Megson P., Miller S. Evaluating a community-based project for supporting clients with challenging behaviour. Learning Disability Practice 2009, 12(4):27-32.
40. McKenzie K., Patterson M. The evaluation of an Assertive Outreach Team: Implications for challenging behavior. British Journal of Learning Disabilities 2010, 38(4):319-327.
41. McGillivray J.A., McCabe M.P. The relationship between residence and the pharmacological management of challenging behavior in individuals with intellectual disability. Journal of Developmental and Physical Disabilities 2005, 17:311-325.
42. National Health Service and Community Care Act. (1990). Available at: Last accessed 23rd April 2010. http://www.opsi.gov.uk/ACTS/acts1990/ukpga_19900019_en_2.
43. Newman I., Emerson E. Specialised treatment units for people with challenging behaviours. Mental Handicap 1991, 19:113-119.
44. Nirira K., Lelland H., Lambert N. Adaptive behaviour scale-residential and community 1993, American Association on Mental Retardation, Washington, DC. 2nd ed.
45. Perry J., Felce D., Allen D., Meek A. Resettlement outcomes for people with severe challenging behavior moving from institutional to community living. Journal of Applied Research in Intellectual Disabilities 2010, (online early view).
46. Powell H., McKenzie K., Sinclair B., Murray G.C. The challenge of achieving enduring change. Learning Disability Practice 2003, 6:8-11.
47. Prosser H., Moss S., Costello H. The psychiatric assessment schedule for adults with a developmental disability (PAS-ADD) checklist 1998, University of Manchester, Hester Adrian Research Centre, Manchester, England.
48. Robertson J., Emerson E., Pinkney L., Caesar E., Felce D., Meek A., et al. Treatment and management of challenging behaviours in congregate and noncongregate community-based supported accommodation. Journal of Intellectual Disability Research 2005, 49:63-72.
49. Romeo R., Knapp M., Tyrer P., Crawford M., Oliver-Africano P. The treatment of challenging behaviour in intellectual disabilities: Cost-effectiveness analysis. Journal of Intellectual Disability Research 2009, 53(7):633-643.
50. Royal College of Psychiatrists Psychiatric services for mentally handicapped adults and young people. Bulletin of the Royal College of Psychiatrists 1986, 10:321-322.
51. Royal College of Psychiatrists, British Psychological Society and Royal College of Speech and Language Therapists Challenging behaviour a unified approach-Clinical and service guidelines for supporting people with learning disabilities who are at risk of receiving abusive or restrictive practices 2007, RCPsy, BPS, RCSLT, London.
52. Schalock R.L., Brown I., Brown R., Cummins R.A., Felce D., Matikka L., et al. Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation 2002, 40:457-470.
53. Sturmey P. Restraint, seclusion and PRN Medication in English services for people with learning disabilities administered by the National Health Service: An analysis of the 2007 National Audit Survey. Journal of Applied Research in Intellectual Disabilities 2009, 22:140-144.
54. Toogood S. Ten years of providing intensive support services for people with learning disabilities and challenging behaviour: A brief description and review. Tizard Learning Disability Review 2000, 5(3):15-22.
55. Totsika V., Toogood S., Hastings R.P., Lewis P. Persistence of challenging behaviours in adults with intellectual disability over a period of 11 years. Journal of Intellectual Disability Research 2008, 52(5):446-457.
56. Tyrer F., McGrother C., Thorp C., Donaldson M., Bhaumik S., Watson J., et al. Physical aggression towards others in adults with learning disabilities: Prevalence and associated factors. Journal of Intellectual Disability Research 2006, 50:295-304.
57. Tyrer P., Oliver-Africano P.C., Ahmed Z., Bouras N., Cooray S., Deb S., et al. Risperidone, haloperidol and placebo in the treatment of aggressive challenging behaviour in patients with intellectual disability: A randomized controlled trial. Lancet 2008, 371:57-63.
58. Xenitidis K.I., Henry J., Russell A.J., Ward A., Murphy D.G.M. An inpatient treatment model for adults with mild intellectual disability and challenging behaviour. Journal of Intellectual Disability Research 1999, 43(2):128-134.