Electronic consent channels: Preserving patient privacy without handcuffing researchers

Science Translational Medicine

Volumn 3, Issue 69, 2011, Pages

  Shelton, Robert H ^a  

^a Private Access   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACCESS TO INFORMATION; CLINICAL RESEARCH; ELECTRONIC MEDICAL RECORD; HEALTH CARE; HEALTH CARE PERSONNEL; HEALTH CARE PLANNING; HEALTH EDUCATION; HUMAN; INFORMATION TECHNOLOGY; MEDICAL INFORMATION; NOTE; PATIENT PARTICIPATION; PRIORITY JOURNAL; PRIVACY; TRANSLATIONAL RESEARCH; ARTICLE; CONFIDENTIALITY; MEDICAL INFORMATICS; MEDICAL RESEARCH; METHODOLOGY;

BIOMEDICAL RESEARCH; CONFIDENTIALITY; HUMANS; MEDICAL INFORMATICS; PRIVACY;

EID: 79851496258     PISSN: 19466234     EISSN: 19466242     Source Type: Journal    
DOI: 10.1126/scitranslmed.3002037     Document Type: Note

References (7)

1. J. J. Nadler, G. J. Downing, Liberating health data for clinical research applications. Sci. Transl. Med. 2, cm6 (2010).
2. C. P. Friedman, A. K. Wong, D. Blumenthal, Achieving a nationwide learning health system. Sci. Transl. Med. 2, cm29 (2010).
3. S. Schneider, J. Kerwin, C. Robins, D. Dean, Consumer engagement in developing electronic health information systems: Final report [Prepared by Westat, Rockville, MD, under contract 233-02-0087, Agency for Healthcare Research and Quality (AHRQ) Publication Number 09-0081-EF, Rockville, MD, July 2009].
4. B. A. Tarini, A. Goldenberg, D. Singer, S. J. Clark, A. Butchart, M. M. Davis, Not without my permission: Parents' willingness to permit use of newborn screening samples for research. Public Health Genomics 13, 125-130 (2010).
5. Private Access, https://www.privateaccess.info.
6. HIPAA Privacy Rule, http://www.hhs.gov/ocr/privacy/hipaa/administrative/ privacyrule/index.html.
7. P. P. Gunn, A. M. Fremont, M. Bottrell, L. R. Shugarman, J. Galegher, T. Bikson, The Health Insurance Portability and Accountability Act Privacy Rule: A practical guide for researchers. Med. Care 42, 321-327 (2004).